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Short of breath
On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a flight of stairs leaves me gasping. I continue to workout including running (slower and shorter since radiation started), hiking and weights
On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a flight of stairs leaves me gasping. I continue to workout including running (slower and shorter since radiation started), hiking and weights
SLOJIM
in
Advanced Prostate Cancer
1 year ago
Converting NDT and T3 to combo
I am currently on 20 mcg T3 and 150 mcg Thyroid—S daily. I have always bought my own medication as I didn't think I would manage to get T3 on NHS. I have just received a message to say they will give it to me so I'm over the moon. They also want me to ditch the Thyroid-S and replace with 100mcg Levo.
I am currently on 20 mcg T3 and 150 mcg Thyroid—S daily. I have always bought my own medication as I didn't think I would manage to get T3 on NHS. I have just received a message to say they will give it to me so I'm over the moon. They also want me to ditch the Thyroid-S and replace with 100mcg Levo.
carolinegodlonton
in
Thyroid UK
1 year ago
Possible SBRT on prostate and lymph nodes?
Hello again. Gleason 4+3+7, Grade 3, Stage IIc cancer, Tumor cT1c, N0M0, PSA 7.4 (5 weeks ago on biopsy; 10.4 last week). Prostate volume 52 cc. Neither MRI nor ultrasound detected a tumor. Enlarged prostate is pressing on urethral area. Calcifications throughout. Unfavorable. Will have PSMA/PET in
Hello again. Gleason 4+3+7, Grade 3, Stage IIc cancer, Tumor cT1c, N0M0, PSA 7.4 (5 weeks ago on biopsy; 10.4 last week). Prostate volume 52 cc. Neither MRI nor ultrasound detected a tumor. Enlarged prostate is pressing on urethral area. Calcifications throughout. Unfavorable. Will have PSMA/PET in
conchjoe
in
Advanced Prostate Cancer
1 year ago
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High TSH on high NDT dose
Hey, I'm feeling so confused. Any advice appreciated! I have used Thyrogold (NDT) to successfully treat my underactive thyroid (Hypothyroid with Hashimotos) for the last few years. Occasionally my dose needs altering slightly but generally it has remained stable on this medication. I am currently taking
Hey, I'm feeling so confused. Any advice appreciated! I have used Thyrogold (NDT) to successfully treat my underactive thyroid (Hypothyroid with Hashimotos) for the last few years. Occasionally my dose needs altering slightly but generally it has remained stable on this medication. I am currently taking
SunshineSaff
in
Thyroid UK
1 year ago
Frustrated at endo's obsession with TSH when other results point in the opposite direction
I hope this isn't going to take too long to explain. And this is really a frustrated rant about the obsession with TSH. I went to see a private endo, as my hypo symptoms had not resolved on a daily dose of 150mcg T4 and a split dose of 40mcg T3, given to me by an NHS endo who was prepared to accept
I hope this isn't going to take too long to explain. And this is really a frustrated rant about the obsession with TSH. I went to see a private endo, as my hypo symptoms had not resolved on a daily dose of 150mcg T4 and a split dose of 40mcg T3, given to me by an NHS endo who was prepared to accept
Reefseeker
in
Thyroid UK
1 year ago
High cortisol
Hello again, So I finally did a 4 point saliva cortisol test and morning cortisol is high , how do I lowe this ? Could this be why im not tolerating my t3 in the ndt ?
Hello again, So I finally did a 4 point saliva cortisol test and morning cortisol is high , how do I lowe this ? Could this be why im not tolerating my t3 in the ndt ?
Rhannii7
in
Thyroid UK
1 year ago
If immediately stopping after two years taking Orgovyx how long before testosterone begins to rise?
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
I’ve heard that testosterone returns quicker if using Orgovyx compared to Lupron. But I also heard that the longer on any ADT the longer the recovery. Or maybe testosterone never recovers? What do you guys think question
SViking
in
Advanced Prostate Cancer
1 year ago
Just had Psma-pet scan... Confused
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
My initial Axium pet scan nearly 2 years ago showed "innumerable" mets throughout musculoskeletal system, from head to knees... Understandably, my PSA at the time was 480. After 1 year on ADT and 8 months of Xtandi another Axium showed mets in calvarial region (skull), neck and clavicle no longer present
GSDF
in
Advanced Prostate Cancer
1 year ago
Finding Support Groups
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
I am 84 and diagnosed with PCa in 2014. I had a multi-specialty work up Sibley Hospital in Washington DC (Johns Hopkins staffed clinic). No mets found. I was given 1 option, External beam; 70 Gray treatment went smoothly with no SE. I was given one injection of Lupron prior to the radiation. PSA
gbpmdjd
in
Advanced Prostate Cancer
1 year ago
My Small PCa Cells Don't Produce PSA
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Hi All, Anyone here have these PCa cells and experience in treating them? Bio/history summary : - Dx Gleason 8 seven years ago - Prostate tumour metastasis to seminal vesicules and pelvic lymph nodes - PSA from about 150 to undetectable after ADT, enzalutamide , and 6 x docetaxal Now - March scans
Bandit99
in
Advanced Prostate Cancer
1 year ago
Is this a "normal" reaction to NDT?
Hi All, I'm trying to take NDT instead of levo, on which I was for around 20 years before, mostly on 75 mcg. My TSH went out of balance back in October 2022 and between then and now it's been a massive struggle. I increase my T4 slightly (even by 12,5 mcg) and get heart palpitations (heart was checked
Hi All, I'm trying to take NDT instead of levo, on which I was for around 20 years before, mostly on 75 mcg. My TSH went out of balance back in October 2022 and between then and now it's been a massive struggle. I increase my T4 slightly (even by 12,5 mcg) and get heart palpitations (heart was checked
Juliet_22
in
Thyroid UK
1 year ago
Regulolix [Orgovyx]
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
I am looking for the experiences of those that are taking Regulolix [Orgovyx) with either, Xtandi , Erleada or Daralutamide. My Dr claims that Regulolix doesn't " play well with other ADT orals-guess of the "lutamide family " I listed above. I heard there are those that are taking Rugulolix with these
podsart
in
Advanced Prostate Cancer
1 year ago
I want to try SARM's-Yes or No?
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
currently taking Nubeqa and Orgovyx and hate the sarcopenia I'm experiencing. I asked my MO about BAT and I've had two cycles of getting a month off ADT and receiving an injection of testosterone the month off of ADT before restarting ADT. I've read some positive reviews on this site about Ostarine
AllenMarco
in
Advanced Prostate Cancer
1 year ago
Can orchidectomy substitute ADT/HT?
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
Specially when it comes to side effects, persons having other health issues, like someone who has severe coronary artery disease (CAD). Side effetcs: Hot flashes - Fatigue - Loss of libido - Weight gain - Gynecomastia - Osteoporosis and bone density loss - Mood changes and depression - Memory and
FMOH_N
in
Prostate Cancer Network
1 year ago
Zannado
I was told by endo I could get t3 if I did 6 weeks on levo to show I don't convert properly. I did this on 175 levo but my t4 was rising out of range and t3 not in the highest range. I've been on ndt and t3 but always self sorced. But I was hoping to get t3 on percripton. The gp has said I now have to
I was told by endo I could get t3 if I did 6 weeks on levo to show I don't convert properly. I did this on 175 levo but my t4 was rising out of range and t3 not in the highest range. I've been on ndt and t3 but always self sorced. But I was hoping to get t3 on percripton. The gp has said I now have to
Zannadoo
in
Thyroid UK
1 year ago
Dodged Another Bullet
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
I was on Eligard for two years and the hormone treatment was ended in October 2022. On July 3rd 2023 I had a minor heart attack. Fortunately I recognized the symptoms straight away and went directly to the ER. I had a >90% blockage in my right coronary artery, and ended up with one stent in the artery
TottenhamMan
in
Advanced Prostate Cancer
1 year ago
eGFR down 14% since starting ADT
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
I just noticed that my estimated GFR which measures kidney health is down from 89 in October to 77 in June 2023. In October I started Lupron. Does Lupron impact kidney health? This is something I want to keep track off. Mark
SierraSix
in
Advanced Prostate Cancer
1 year ago
Sweet!
Had 2nd of 90 days Lupron Feb 1-23 as adjuvant 6-month ADT therapy with my Salvage IMRT. First PSA test yesterday and T level. Undetectable (less than .006 uPSA) and T level of 30. Here's to hoping it stays down. I know BCR may happen over the long run with SVI, PNI, bladder neck, and surgical margins
Had 2nd of 90 days Lupron Feb 1-23 as adjuvant 6-month ADT therapy with my Salvage IMRT. First PSA test yesterday and T level. Undetectable (less than .006 uPSA) and T level of 30. Here's to hoping it stays down. I know BCR may happen over the long run with SVI, PNI, bladder neck, and surgical margins
runtrails
in
Prostate Cancer Network
1 year ago
Latest Treatments for Advanced Prostate Cancer
I asked my computer (Bing) for the latest treatments for advanced prostate cancer. Response follows: [i]There are several treatments available for advanced prostate cancer, which is prostate cancer that has spread beyond the prostate to other parts of the body. The choice of treatment depends on many
I asked my computer (Bing) for the latest treatments for advanced prostate cancer. Response follows: [i]There are several treatments available for advanced prostate cancer, which is prostate cancer that has spread beyond the prostate to other parts of the body. The choice of treatment depends on many
NecessarilySo
in
Advanced Prostate Cancer
1 year ago
ideal biochemistry monitoring
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
question: I know that there are protols for regular blood PSA and sometimes Testosterone when on SOC following RT and during the 2-3 years ADT (with localised high risk G9-10). My excellent ONC does a full biochemistry every 3 months with a face to face meeting which is great, but I will have to
SimMartin
in
Advanced Prostate Cancer
1 year ago
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