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feeling a bit overwhelmed and lost
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
opalescenthope
in
LUPUS UK
5 months ago
a newby to Lupus
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
C0rnflakes
in
LUPUS UK
5 months ago
A Happy Anniversary
Dear AFA forum family. Isn't life wonderful? I joined the AFA forum some four years ago and had it not been for chance encounters, who knows where I would be today. It started with an AFA post titled "Tim' Story". At the time of his post (several years ago) Tim was 55 and his story mirrored my own
Dear AFA forum family. Isn't life wonderful? I joined the AFA forum some four years ago and had it not been for chance encounters, who knows where I would be today. It started with an AFA post titled "Tim' Story". At the time of his post (several years ago) Tim was 55 and his story mirrored my own
saulger
in
AF Association
7 months ago
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PSA rise from initial Pluvicto treatment
I am curious if most of you that have been through Pluvicto experienced a PSA rise initially? I just finished my first injection, and did see a bit of a jump in PSA level. I had a similar experience in the SPLASH trial last year. After the first Lu177 injection, my PSA shot up quite a lot. This got
I am curious if most of you that have been through Pluvicto experienced a PSA rise initially? I just finished my first injection, and did see a bit of a jump in PSA level. I had a similar experience in the SPLASH trial last year. After the first Lu177 injection, my PSA shot up quite a lot. This got
joeguy
in
Advanced Prostate Cancer
7 months ago
Fibro medication and alcahol
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
henrythewasp
in
Fibromyalgia Action UK
5 months ago
Do you know your pulse?
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
Your heartbeat is the most fundamental rhythm in your life, signalling the regular pumping of your heart as it propels blood carrying oxygen and nutrients to the rest of your body. We take the regular beating completely for granted, never giving it a second thought until the elegant control process
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
4 months ago
New treatment for neurodegenerative diseases may be found in used coffee grounds
New treatment for neurodegenerative diseases may be found in used coffee grounds
: Caffeic-acid based Carbon Quantum Dots have the potential to be transformative in the treatment of neurodegenerative disorders 2023 https://www.caledonianrecord.com/features/health/used-coffee-grounds-may-help-prevent-alzheimer-s-and-parkinson-s-study
New treatment for neurodegenerative diseases may be found in used coffee grounds
: Caffeic-acid based Carbon Quantum Dots have the potential to be transformative in the treatment of neurodegenerative disorders 2023 https://www.caledonianrecord.com/features/health/used-coffee-grounds-may-help-prevent-alzheimer-s-and-parkinson-s-study
Bolt_Upright
in
Cure Parkinson's
7 months ago
Autoimmune Diseases
Saw this news article today and found it interesting. https://www.ctvnews.ca/health/lupus-and-other-autoimmune-diseases-strike-far-more-women-than-men-now-there-s-a-clue-why-1.6751469 Really found this part interesting. “Scientists have long thought it takes a combination of genetic susceptibility
Saw this news article today and found it interesting. https://www.ctvnews.ca/health/lupus-and-other-autoimmune-diseases-strike-far-more-women-than-men-now-there-s-a-clue-why-1.6751469 Really found this part interesting. “Scientists have long thought it takes a combination of genetic susceptibility
Swift20
in
Pernicious Anaemia Society
5 months ago
Article: Why autoimmune disease is more common in women
I thought people might be interested in this article from Nature about why autoimmune diseases are more common in women: https://www.nature.com/articles/d41586-024-00267-6 "A new explanation for the discrepancy has emerged: a molecular coating typically found on half of a woman’s X chromosomes — but
I thought people might be interested in this article from Nature about why autoimmune diseases are more common in women: https://www.nature.com/articles/d41586-024-00267-6 "A new explanation for the discrepancy has emerged: a molecular coating typically found on half of a woman’s X chromosomes — but
cyberbarn
in
NRAS
5 months ago
Some new science on why women are more prone to autoimmune disease
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
whisperit
in
LUPUS UK
5 months ago
Hashis and Graves? Watch and Wait has now caught up.
About 15 months or so, I had an appointment for a thyroid specialist as my thyroid tests pointed towards Graves. I had been hypothyroid for about 17years when my different results meant my gp prescribing less and less levo. When the amount became 12.5mcg, (after an original 150 mcg) I asked to be
About 15 months or so, I had an appointment for a thyroid specialist as my thyroid tests pointed towards Graves. I had been hypothyroid for about 17years when my different results meant my gp prescribing less and less levo. When the amount became 12.5mcg, (after an original 150 mcg) I asked to be
Bluebell999
in
Thyroid UK
7 months ago
Jean Jackson
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
jeanjack
in
Lung Conditions Community Forum
5 months ago
change of medication to Atenolol from Bisoprolol
I have been on Bisoprolol for a couple of weeks but I haven’t felt great. I felt tired and foggy most of the time, struggled to get my breath and my feet were freezing. I have spoken to the pharmacist at our surgery and he has changed my medication to Atenolol even though he said Bisoprolol was the preferred
I have been on Bisoprolol for a couple of weeks but I haven’t felt great. I felt tired and foggy most of the time, struggled to get my breath and my feet were freezing. I have spoken to the pharmacist at our surgery and he has changed my medication to Atenolol even though he said Bisoprolol was the preferred
Wilky57
in
Atrial Fibrillation Support
4 months ago
Can anyone please offer advice?
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
anniemac81
in
Thyroid UK
5 months ago
Alcohol home detox
hi everyone my daughter is an alcoholic and has many health issues related to her drinking. She is waiting to do a home detox which is being arranged through turning point. (She doesn’t want to go to a clinic) She was previously given a date for this but was told by the doctor at turning point that
hi everyone my daughter is an alcoholic and has many health issues related to her drinking. She is waiting to do a home detox which is being arranged through turning point. (She doesn’t want to go to a clinic) She was previously given a date for this but was told by the doctor at turning point that
Bellabinx
in
British Liver Trust
7 months ago
Persistent AF
Hello, for the past couple of years I have had paroxysmal AF which has taken increasingly long times to convert to NSR. The last few have been 22 hours and usually every couple of weeks or so. This time I was quite pleased as I went 22 days without, the longest interval for 18 months. However it's now
Hello, for the past couple of years I have had paroxysmal AF which has taken increasingly long times to convert to NSR. The last few have been 22 hours and usually every couple of weeks or so. This time I was quite pleased as I went 22 days without, the longest interval for 18 months. However it's now
Spj57
in
Atrial Fibrillation Support
4 months ago
What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
7 months ago
Lupus SLE, APS, Vasculitis
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
I was officially diagnosed 3 weeks ago with Lupus SLE and Antiphospholipid Syndrome.and then last week I was informed a CT scan in Jan 21 I had a stroke which I was never informed about. I’ve had another CT scan nov 23 which has shown possible blood clot which I am awaiting mri results. Regardless
Newlupus76
in
LUPUS UK
5 months ago
Diabetes cirrhosis and HCC
Hi All. I need an honest opinion. i have posted on here a few times regarding my partner. He has compensated Cirrhosis and hcc 2cm tumor and awaitng results of biopsy to establish which treatment he will have. He has now developed diabetes and have read that this can affect mortality greatly. Does
Hi All. I need an honest opinion. i have posted on here a few times regarding my partner. He has compensated Cirrhosis and hcc 2cm tumor and awaitng results of biopsy to establish which treatment he will have. He has now developed diabetes and have read that this can affect mortality greatly. Does
pussycat66
in
British Liver Trust
7 months ago
Endo gave me private prescription
so, good news! The private Endo appointment went as I’d hoped and he was happy to let me try T3. I’m now trying to source it. I’ve had a no back from a couple of places on the list from Thyroid UK. Thing is, I just wanted to check as on the prescription it says triiodothyronine rather than liothyronine
so, good news! The private Endo appointment went as I’d hoped and he was happy to let me try T3. I’m now trying to source it. I’ve had a no back from a couple of places on the list from Thyroid UK. Thing is, I just wanted to check as on the prescription it says triiodothyronine rather than liothyronine
Loopnova
in
Thyroid UK
4 months ago
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