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SMOKING!!!
Just reading through some BLOGS with regards to SMOKING. Just wanted to congradulate everyone for stopping SMOKING and for everone trying to stop. It is a great hurdle to cross, even the thought of giving up was hard for me. I just want to say a big well done and keep up the good work
Just reading through some BLOGS with regards to SMOKING. Just wanted to congradulate everyone for stopping SMOKING and for everone trying to stop. It is a great hurdle to cross, even the thought of giving up was hard for me. I just want to say a big well done and keep up the good work
1968
in
Lung Conditions Community Forum
12 years ago
Pain in knee joints
Hi all, I have APS, and severe lung disease, however, twice now, both times after taking steroids for my breathing, I am suffering terrible pain in my knees, pain score of 9 out 10 ....... My left leg is the worst, also being the leg I had a DVT, it is also really swollen with fluid. I don't think I
Hi all, I have APS, and severe lung disease, however, twice now, both times after taking steroids for my breathing, I am suffering terrible pain in my knees, pain score of 9 out 10 ....... My left leg is the worst, also being the leg I had a DVT, it is also really swollen with fluid. I don't think I
Lesley_D
in
Hughes Syndrome APS Forum
12 years ago
The 'black dog' is finally lifting and I am gradually getting back to normal thank goodness.
Its never lasted so long before or been so bad for ages - over 2 weeks. I cant talk or type or speak to people when its on. I just feel like a big inert lump who just stares mindlessly at the telly and sleeps a lot. I did force myself out some but speaking and putting on a happy face was exhausting
Its never lasted so long before or been so bad for ages - over 2 weeks. I cant talk or type or speak to people when its on. I just feel like a big inert lump who just stares mindlessly at the telly and sleeps a lot. I did force myself out some but speaking and putting on a happy face was exhausting
Hidden
in
Lung Conditions Community Forum
12 years ago
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Hello to everyone new to this site.I am 59 years old with COPD (cronic emphyema.cronic broncitus.
I had upper lung volume reduction surgery back in january 2010,makes me feel i have a freaky lung,plus i need help with what food to eat.I get the shakes a lot,is this all normal.
I had upper lung volume reduction surgery back in january 2010,makes me feel i have a freaky lung,plus i need help with what food to eat.I get the shakes a lot,is this all normal.
directmystery
in
Lung Conditions Community Forum
12 years ago
DepoProvera compatible with APS?
I just began DepoProvera injections to prevent ovulation due to serious bleeding after a normal ovulation. Is anyone else out there using this form of birth control and have you had any problems with it?
I just began DepoProvera injections to prevent ovulation due to serious bleeding after a normal ovulation. Is anyone else out there using this form of birth control and have you had any problems with it?
olleberj
in
Hughes Syndrome APS Forum
12 years ago
off for my assessment next week.
As some of you may know i have been asked by guys hospital if i would do a drugs trial for an inhaler specifically for use with COPD. Having looked at all the info about it ( don't know what the drug is because you are not allowed for fear of influencing the result, but know it is a inhalant and
As some of you may know i have been asked by guys hospital if i would do a drugs trial for an inhaler specifically for use with COPD. Having looked at all the info about it ( don't know what the drug is because you are not allowed for fear of influencing the result, but know it is a inhalant and
Hidden
in
Lung Conditions Community Forum
12 years ago
because of weight gain 3.5 stone have lost 55 % lung volume has it hapened to anyone else ?
yusuf
in
PMRGCAuk
12 years ago
Fragmin and bleeding does anyone else get this.
Hi I have started Fragmin 2 days ago the only thing I'm concerned about is today at work I noticed blood coming from one of the injection marks not a lot just enough to know some blood had come out. Does this happen to any one else . Thanks xx
Hi I have started Fragmin 2 days ago the only thing I'm concerned about is today at work I noticed blood coming from one of the injection marks not a lot just enough to know some blood had come out. Does this happen to any one else . Thanks xx
Moonbug
in
Hughes Syndrome APS Forum
12 years ago
A matter of Mind!!
Hi I am new to these sites, having only discovered them over the weekend. I have COPD. On the whole I have found reading them very helpful and interesting. However yesterday I ws reading about DLA - a subject I am very interested in. I receive DLA and have done for the past 4 years; which is prior
Hi I am new to these sites, having only discovered them over the weekend. I have COPD. On the whole I have found reading them very helpful and interesting. However yesterday I ws reading about DLA - a subject I am very interested in. I receive DLA and have done for the past 4 years; which is prior
Bevvy
in
Lung Conditions Community Forum
12 years ago
What is likely to happen to me? Please, any advice is needed.
I am really terrified, I am being tested for APS and other things, but only the APS test is going to show anything up, because I had to be given Heparin injections before there was time to take bloods. Please tell me, I have no idea - what is this going to do to my life? This year alone I have been
I am really terrified, I am being tested for APS and other things, but only the APS test is going to show anything up, because I had to be given Heparin injections before there was time to take bloods. Please tell me, I have no idea - what is this going to do to my life? This year alone I have been
anniesensi
in
Hughes Syndrome APS Forum
12 years ago
Pbc and breathing problems
Hi everyone I was diagnosed with Pbc march 2011 I have positive AMA and normal liver function tests so not started on urso I suffer very painful salivary glands on a daily basis so I have been told possible sjogrens but no signs of sjogrens in blood or lip biopsy my other worrying symptom is shortness
Hi everyone I was diagnosed with Pbc march 2011 I have positive AMA and normal liver function tests so not started on urso I suffer very painful salivary glands on a daily basis so I have been told possible sjogrens but no signs of sjogrens in blood or lip biopsy my other worrying symptom is shortness
Wendom
in
PBC Foundation
12 years ago
HEPARIN
i AM ON HEPARIN FOR INR BELOW 3. OF LATE BEEN GIVING IT EVERY DAY AND I SEEM TO GET BRUISES ON TUMMY - DOES ANYONE ELSE HAVE THIS. YET WHEN IN HOSPITAL HARDLY A BRUISE ANY TIPS. IAM ALSO ON WARFARIN, STATIN AND PLAQUNIL.
i AM ON HEPARIN FOR INR BELOW 3. OF LATE BEEN GIVING IT EVERY DAY AND I SEEM TO GET BRUISES ON TUMMY - DOES ANYONE ELSE HAVE THIS. YET WHEN IN HOSPITAL HARDLY A BRUISE ANY TIPS. IAM ALSO ON WARFARIN, STATIN AND PLAQUNIL.
daisy11
in
Hughes Syndrome APS Forum
12 years ago
has anyone had the lung volume reduction surgery?
When I was in hospital the specialist said that he was going to talk to me at a later date about this operation and I have had a read up about it on the internet, all sounds a bit worrying but did give me an idea what to expect. I would like to hear from anyone who has had this surgery and how it has
When I was in hospital the specialist said that he was going to talk to me at a later date about this operation and I have had a read up about it on the internet, all sounds a bit worrying but did give me an idea what to expect. I would like to hear from anyone who has had this surgery and how it has
loda
in
Lung Conditions Community Forum
12 years ago
had some lung function test results the other day and they were.......
....lung volume normal but, KCO = 73.4% and TLCO = 62.5%. My age is 32 and height 5,11. Does anyone know what this means or can point me to a website to help me understand?
....lung volume normal but, KCO = 73.4% and TLCO = 62.5%. My age is 32 and height 5,11. Does anyone know what this means or can point me to a website to help me understand?
Treeman1
in
Lung Conditions Community Forum
12 years ago
complet drainage of energy to my body
hi everyone my question is i was diagnosed at xmas with copd ,has a complete mot on myself , but the breathflusness , and complete drain of energy , is puzzling them , they have found nothing on the scan reports , but am waiting to have a camera to c wot is going on inside my body does
hi everyone my question is i was diagnosed at xmas with copd ,has a complete mot on myself , but the breathflusness , and complete drain of energy , is puzzling them , they have found nothing on the scan reports , but am waiting to have a camera to c wot is going on inside my body does
andytyres
in
Lung Conditions Community Forum
12 years ago
LVRD or valve Insertion
today i have been told its time to be thinking about a lung volume reduction procedure or the new treatment of valve insertion,i have been reffered for ctscan and other tests to see if i am eligible..Has anyone had any of these and can tell me ,how was the op ,what was the recovery period and how their
today i have been told its time to be thinking about a lung volume reduction procedure or the new treatment of valve insertion,i have been reffered for ctscan and other tests to see if i am eligible..Has anyone had any of these and can tell me ,how was the op ,what was the recovery period and how their
maddyo2
in
Lung Conditions Community Forum
12 years ago
all very real!!
so last week i was given some options for lung volume reduction procedures and have asked for 6 months to discuss with family and to decide whether to go ahead or not..today i recieived app for CT scan..the start of tests to see if i am eligible for this op ..all seems very quick and very real now
so last week i was given some options for lung volume reduction procedures and have asked for 6 months to discuss with family and to decide whether to go ahead or not..today i recieived app for CT scan..the start of tests to see if i am eligible for this op ..all seems very quick and very real now
maddyo2
in
Lung Conditions Community Forum
12 years ago
Lung Volume Reduction Surgery
Have been to see the Surgeon at Harefield today and it is now looking like we are going with LVRS to reduce my right lung which has a huge black hole in it. Got to have a one night stay there first so thwey can do more tests, scans etc and then she will book the operation in, it wont be keyhole as the
Have been to see the Surgeon at Harefield today and it is now looking like we are going with LVRS to reduce my right lung which has a huge black hole in it. Got to have a one night stay there first so thwey can do more tests, scans etc and then she will book the operation in, it wont be keyhole as the
Perce
in
Lung Conditions Community Forum
12 years ago
Have met a couple of consultants recently who have a gobsmackingly different opinion of Hughes syndrome!
Was diagnosed with Hughes by Hughes a couple of years ago and have had 4 positive Anticardiolipin tests over time but although I have had plenty of TIA-like events and a 'suspected' DVT and PE, there is no hard evidence of clotting e.g. DVT ultrasound doc was undecided whether it was a clot or not and
Was diagnosed with Hughes by Hughes a couple of years ago and have had 4 positive Anticardiolipin tests over time but although I have had plenty of TIA-like events and a 'suspected' DVT and PE, there is no hard evidence of clotting e.g. DVT ultrasound doc was undecided whether it was a clot or not and
Eagle
in
Hughes Syndrome APS Forum
12 years ago
What type of doctors do u see?
Hi, I was wondering what type of specialist do you all see? I have a wonderful pulmonary doctor that monitors my inr and warfarin. I really liked the hematologist, but I only seen him once. It looks like the doctor I see the most is the one I like the least and that is the rheumatologist. I really
Hi, I was wondering what type of specialist do you all see? I have a wonderful pulmonary doctor that monitors my inr and warfarin. I really liked the hematologist, but I only seen him once. It looks like the doctor I see the most is the one I like the least and that is the rheumatologist. I really
KellyO
in
Hughes Syndrome APS Forum
13 years ago
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