My appointment for my Feno test finally arrived on Friday but I didn't know that it included a whole range of other tests too including a lung volume test.
I didn't realise how badly my respiratory failure back in April had affected me but as soon as they closed the door of the compartment I felt sheer panic and had to get out. The thought of having my oxygen stopped even just for 2 seconds was enough to send me into a cold sweat! Hopefully not having these results won't change my diagnosis when it finally comes through.
I just wondered if anyone else had experienced this?
Written by
Coughingalltheway
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I'd advise you to have the LFTs and just leave out the one in the closed compartment if it makes you panic too much (can't remember what it's called). The best way to get an accurate diagnosis is to take all of the tests you are offered - that's the point of doing the tests! We are not able to tell you what difference it will make to your diagnosis if you leave one out.
Best to talk your fear through with the technician doing the tests before they start them. I dont love that part of the LFTs but it's really not so bad - and they should be able to reassure you. Good luck!
Thanks for answering. I did do the rest of the tests, I just felt silly that I couldn't do the lung volume one. The technician was very kind about it, he said that recently 3 other people couldn't do it either but I don't know if he was just trying to make me feel better. I guess that my question was: did anyone else feel unable to do the lung volume test and did it affect their diagnosis.
I remember doing that test and feeling rather enclosed. Are you a bit claustrophobic? Its at least see through so you can see the technician to follow instructions. It was the first time i had had that test and you dont know what to expect. It is also quite a demanding test, but in the end it gives results for your diagnosis so worth putting yourself through it if you can. Do you think you could try it again? I hope you are feeling better anyway. All the best Sally.
Yes, I am a little claustrophobic but it was the thought of not being able to breathe that did it for me. It was an hour long appointment including reversability and feno testing so I'm guessing that I've missed it. The guy did say that although I couldn't complete it, the machine was plating up as well but whether he was just being kind to save my face, I'm not sure... Looks like I'm the only wuss on here 🥺All the best to you too.
Hi, I haven't had this test but I know I would react exactly as you did!😱. Just the thought of it!! I never used to worry about enclosed spaces but now I can't bear to be enclosed (even in the shower or toilet!!). So you're not alone in feeling like this.❤️Take care xxx
Thanks Nula, I never used to worry either before my type 2 repiratory failure. That sort of experience doesn't just affect lungs. You take care too and thanks for reponding ❤️xxx
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