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Experiences with
Prostate-specific antigen (PSA)
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New lab tests
Seems long and I was hoping to track road to my nadir even if values on
psa
or T wont be at lowest yet?
Seems long and I was hoping to track road to my nadir even if values on
psa
or T wont be at lowest yet?
runtrails
in
Advanced Prostate Cancer
1 year ago
SBRT - 1 year after
Will monitor
PSA
in 6 months. Still following up with my Uro. THE BAD. i did develop a mild case of peyronies disease, with some upward bend of the penis (which has a kink in it). some size loss, though not extreme (who wants to loss any, though?).
Will monitor
PSA
in 6 months. Still following up with my Uro. THE BAD. i did develop a mild case of peyronies disease, with some upward bend of the penis (which has a kink in it). some size loss, though not extreme (who wants to loss any, though?).
chrisNYC
in
Prostate Cancer Network
1 year ago
Very slow start getting treatment and diagnosis
Hi everyone, My dad went to the doctor recently and discovered he has a
psa
of 255. His doctor ordered him a psma pet scan for a week later which was supposed to be today. He shows up and Kaiser cancelled the scan. They told me it happens a lot that radiology appointments need to be cancelled (?
Hi everyone, My dad went to the doctor recently and discovered he has a
psa
of 255. His doctor ordered him a psma pet scan for a week later which was supposed to be today. He shows up and Kaiser cancelled the scan. They told me it happens a lot that radiology appointments need to be cancelled (?
AppleTree43
in
Advanced Prostate Cancer
1 year ago
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equilibrium issues
My
Psa
is <.006 . Started having motion issues. Plane kiddie rides at Disney. Soaring, Orange mission space. Anyone else? Why? Pretty sure I’m kicking cancers butt now.
My
Psa
is <.006 . Started having motion issues. Plane kiddie rides at Disney. Soaring, Orange mission space. Anyone else? Why? Pretty sure I’m kicking cancers butt now.
1Warrior1
in
Advanced Prostate Cancer
1 year ago
Specialty to start with?
Been tracking my own
PSA
for a few years and it is now 18.5. Due to this group and other reading I am pretty well versed in treatment alternatives. I am 77 and if I do any treatments I would lean toward proton therapy.
Been tracking my own
PSA
for a few years and it is now 18.5. Due to this group and other reading I am pretty well versed in treatment alternatives. I am 77 and if I do any treatments I would lean toward proton therapy.
Billyeff
in
Advanced Prostate Cancer
1 year ago
No Longer Undetectable
His
PSA
has been undetectable up until now. He was undetectable on 11-29-22. On 3-31-23 his
PSA
jumped to 6.3. We requested another test be done today, 4-3-23 and the
PSA
was 7.1. We are meeting with the MO's PA on 4-5-23. I plan on telling them that we need imaging done.
His
PSA
has been undetectable up until now. He was undetectable on 11-29-22. On 3-31-23 his
PSA
jumped to 6.3. We requested another test be done today, 4-3-23 and the
PSA
was 7.1. We are meeting with the MO's PA on 4-5-23. I plan on telling them that we need imaging done.
DesertDaisy
in
Fight Prostate Cancer
1 year ago
Hyperbaric Oxjen Chamber/ Portable unit
He has always had a low
PSA
but it starting rising while waiting for treatment - months and months to have more chemo at UCSF - then it spread to his liver and a few lymphs. He did 10 rounds of chemo at UCSF and finished a few months ago. His
Psa
just jumped 25 points.
He has always had a low
PSA
but it starting rising while waiting for treatment - months and months to have more chemo at UCSF - then it spread to his liver and a few lymphs. He did 10 rounds of chemo at UCSF and finished a few months ago. His
Psa
just jumped 25 points.
Peanutdog123
in
Advanced Prostate Cancer
1 year ago
Initial PSA drop after 3 months on Lupron
I stared Lupron 1/17/23 and IMRT on 3/21/23 Got my first
PSA
test today and was 0.14 (was 18 before the injection). This is 3 months after the Lupron shot. It seems OK to me based on what I have read - would like to see it below 0.1 after 4 or 5 months - correct?
I stared Lupron 1/17/23 and IMRT on 3/21/23 Got my first
PSA
test today and was 0.14 (was 18 before the injection). This is 3 months after the Lupron shot. It seems OK to me based on what I have read - would like to see it below 0.1 after 4 or 5 months - correct?
OldVTGuy
in
Advanced Prostate Cancer
1 year ago
PSA & Testosterone 3 months post RT
After MRI/biopsy was recommended AS for G7 in Jan 2020 and
PSA
4.1, which stayed stable until mid 2021 - I opted for HIFU for in Decembers 2021 when my
PSA
reached 6 then 8. However it failed as
PSA
return to 6 by July 2022. Another MRI and biopsy surprises urologist aa reveals G9.
After MRI/biopsy was recommended AS for G7 in Jan 2020 and
PSA
4.1, which stayed stable until mid 2021 - I opted for HIFU for in Decembers 2021 when my
PSA
reached 6 then 8. However it failed as
PSA
return to 6 by July 2022. Another MRI and biopsy surprises urologist aa reveals G9.
SimMartin
in
Advanced Prostate Cancer
1 year ago
PSA after 4-5 months on Lupron (Scholz)?
Just watched a Scholz (PCRI) video posted last week about
PSA
.
Just watched a Scholz (PCRI) video posted last week about
PSA
.
Gl448
in
Advanced Prostate Cancer
1 year ago
update to this conversation part 2
Even though his
psa
went up from 15 to 19 to 28, he's not overly worried because nothing had really changed. He has given us some options to consider, he is quite optimistic, he says husband is done with lupron taking his mind and strength.
Even though his
psa
went up from 15 to 19 to 28, he's not overly worried because nothing had really changed. He has given us some options to consider, he is quite optimistic, he says husband is done with lupron taking his mind and strength.
Spring15-3
in
Advanced Prostate Cancer
1 year ago
PSMAddition Phase 1/2 Results?
Last August with,
psa
around 1.4, a psma pet picked up an 8 mm lesion in my right lung and nothing else. Too small to biopsy. Everyone unsure what it was. In November my
psa
was stable at around 1.4 and a ct scan indicated the lesion was unchanged. Too small to biopsy.
Last August with,
psa
around 1.4, a psma pet picked up an 8 mm lesion in my right lung and nothing else. Too small to biopsy. Everyone unsure what it was. In November my
psa
was stable at around 1.4 and a ct scan indicated the lesion was unchanged. Too small to biopsy.
Hidden
in
Advanced Prostate Cancer
1 year ago
what treatment usuful?
Hi dear My father diagnosed 4.5 years ago
psa
16 Gleason9 He had peostactomy and 1.5 years after radiography
psa
nadir 1 year later
psa
4 he get abiraton astate but not effective and rise
psa
12 Zityga it’s not available in my country Dr said chemotherapy and another dr said Lu 177 we try Lu
Hi dear My father diagnosed 4.5 years ago
psa
16 Gleason9 He had peostactomy and 1.5 years after radiography
psa
nadir 1 year later
psa
4 he get abiraton astate but not effective and rise
psa
12 Zityga it’s not available in my country Dr said chemotherapy and another dr said Lu 177 we try Lu
aidasmt
in
Advanced Prostate Cancer
1 year ago
T4 with scleratic focus
I have been taking zolodex since june 2021 My
PSA
started to rise in feb 2022 and I started xtandi in june 2022 My
PSA
is currently 0.4 but this is rising any advice on what to do next would be appreciated
I have been taking zolodex since june 2021 My
PSA
started to rise in feb 2022 and I started xtandi in june 2022 My
PSA
is currently 0.4 but this is rising any advice on what to do next would be appreciated
Ian996
in
Advanced Prostate Cancer
1 year ago
SBRT and spaceoar
I have a gleason score of 7 and
psa
of 8.1. My biopsy showed two lession…one 4+3 , positive and the other 3+4 was negative. I will get the barrier gel next week in Montgomery, Al at the Alabama Cancer center. I’ve ask if I will need all 5 sessions but waiting on a response from my Dr.
I have a gleason score of 7 and
psa
of 8.1. My biopsy showed two lession…one 4+3 , positive and the other 3+4 was negative. I will get the barrier gel next week in Montgomery, Al at the Alabama Cancer center. I’ve ask if I will need all 5 sessions but waiting on a response from my Dr.
ArmyCW5Retired
in
Advanced Prostate Cancer
1 year ago
Concerns about treatment
In 3/2018 realized my
PSA
was .3. Underwent salvation radiation with no change.
PSA
tested every 3 months and has been climbing, except when I tried KETO diet. Attempts to locate using PET scans with Auxim have failed. On 4/5/23 a PET CT PSMA scan revealed cancer in lymph nodes in pelvis region.
In 3/2018 realized my
PSA
was .3. Underwent salvation radiation with no change.
PSA
tested every 3 months and has been climbing, except when I tried KETO diet. Attempts to locate using PET scans with Auxim have failed. On 4/5/23 a PET CT PSMA scan revealed cancer in lymph nodes in pelvis region.
Takenca
in
Advanced Prostate Cancer
1 year ago
Physical, Mental, and Diet to slow PC progression.
Ever since being diagnosed with PC last October, I’ve watched my
PSA
go from 9.2 down to 5.3 and bounce up to 7.0 and back down a bit. After the initial shock of the diagnosis wore off, I got busy living again practicing a healthy lifestyle with diet, exercise, and supplements.
Ever since being diagnosed with PC last October, I’ve watched my
PSA
go from 9.2 down to 5.3 and bounce up to 7.0 and back down a bit. After the initial shock of the diagnosis wore off, I got busy living again practicing a healthy lifestyle with diet, exercise, and supplements.
Maximode
in
Prostate Cancer Network
1 year ago
Asking employer for accommodations - yes, no, maybe?
Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with
PSA
at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall for ADHD-inattentive. My issue: I'm a 62 year old Electrical Engineer.
Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with
PSA
at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall for ADHD-inattentive. My issue: I'm a 62 year old Electrical Engineer.
farmanerd
in
Advanced Prostate Cancer
1 year ago
Treatment break?
Been on Lupron and Zytiga for past 24 months with an undetectable
psa
and clean scans. Most recent was pylarify PET scan. Impression: No evidence of psma avid malignancy. MO is recommending a treatment break at this point.
Been on Lupron and Zytiga for past 24 months with an undetectable
psa
and clean scans. Most recent was pylarify PET scan. Impression: No evidence of psma avid malignancy. MO is recommending a treatment break at this point.
Bhraen2
in
Fight Prostate Cancer
1 year ago
Time for a vacation, but worried about IADT
As backstory, next month I'll complete the "triple play" treatment plan that included ADT + Docetaxel + Nubeqa + SBRT after recurrent low volume/high risk
PSA
. At the start of this round my
PSA
was 0.9 with a 4 month doubling rate and 2 "possible" hot spots on a rib and vertebra.
As backstory, next month I'll complete the "triple play" treatment plan that included ADT + Docetaxel + Nubeqa + SBRT after recurrent low volume/high risk
PSA
. At the start of this round my
PSA
was 0.9 with a 4 month doubling rate and 2 "possible" hot spots on a rib and vertebra.
PGDuan
in
Advanced Prostate Cancer
1 year ago
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