Erleada/ADT

[Leaffan57]

hey so when are the side effects are supposed to kick in… started ADT in Mid October and Erleada mid January. Thanks in advance.

[MoonRocket]

Which SEs would you like... we'll send them over.

[Leaffan57 in reply to MoonRocket]

Seriously, I was asking when do they start for my own edification…

[MoonRocket in reply to Leaffan57]

It's different for everyone. Fatigue is the usual but there are various degrees of fatigue that men suffer. Then again, you might not even notice if your high all the time. So maybe that's a plus.

[Leaffan57]

I didn’t have any with fatigue with the ADT that I couldn’t power through, in fact I’ve lost 2kgs, but still put on some belly fat and of course some hot flashes. No changes since the Erleada.

[MoonRocket in reply to Leaffan57]

I had a co-worker ask me where I get all my energy from...I kid you not. As I replied, there is a spectrum of SEs and staying physically active ameliorates a good many of them.

[Leaffan57]

So True. I’ve never been in better shape since my stage 4 dx, enrolled in that program and just being as active as possible. I may have a buzz on, but I keep moving and stay away from product that gives me the munchies. lol

uwaterloo.ca/centre-communi...

[lowT163 in reply to Leaffan57]

Hope you can continue the upbeat energy level. It kicked my ass especially after radiation.

[Leaffan57 in reply to lowT163]

Radiation crushed me, I was off work for 6 months.

[lowT163 in reply to Leaffan57]

yes. According to my RO it’s the body repairing itself and it takes awhile.

[Gearhead]

If you had an active and satisfactory sex life before October, is it still just as active and satisfactory? If yes, I suspect they are giving you fake ADT.

[Leaffan57 in reply to Gearhead]

Man, that ship sailed after the RP 4 years ago.

[Boywonder56]

6 .5 yrs...lupron earleada.....heavy legs...elevator button for a johnson.....hot flashes...crs x20....use pays your money ...use take your chances....i salute those who have no fn side effects....but they say im alive.....theyll let me know when im dead....

[icanwintwice]

18 months on Erleada so far. Mainly hot flashes fatigue and brain fog. Took about 4-5 months for the brain fog to start in. By month 15 pretty bad for me….

[delornut in reply to icanwintwice]

I, like you, have been on Erleada for about 18mos along with 6 mos shots of Eligard. I had a prostectamy in 2010 and salvage radiation two years later when my Psa hit .20. 18 mos ago my PMSA showed a few lymph nodes lite up so I was started on the Erleada/ Eligard with a Psa of 1.0. I’m 81 and still active and nite hot flashes are the most evident side effect. Breasts are a bit larger and the brain fog, if that’ s what it is, amounts to forgetting a few names or words. My urologist said most of this is attributed to the Eligard. I use two or three pads a day, Teva being the best, and my psa and testosterone are both less than .10. My urologist says he’ll get me to 95 and I’m holding him to it.

[icanwintwice in reply to delornut]

you said you use two or three pads a day. Those are for incontinence?

[delornut in reply to icanwintwice]

Yes, slight incontinence since salvage radiation.

[London441]

Cardiovascular exercise and weight training will keep sides minimal, but you have to work harder and eat less to counter the slowed metabolism. 4 months is early. You may feel more later.

[Nomiskneh]

Maybe never. I had ADT for 24 months. After a couple of months I had problems getting an erection, but that was all. Libido intact. No other side effects. PSA was very fastly undetectable as was T. I do walk a lot (3 hours a day, vigorous pace). I feel great and can only hope it stays that way. I wish you the same.

Henk

[vintage42]

"... when are the side effects are supposed to kick in… started ADT in Mid October and Erleada mid January."

I wonder, too, as I started Orgovyx in mid-December and will start Erleada next week. I am most concerned about seizure as an Erleada side effect. I had read that Erleada is not recommended if a history of seizures, so my urologist prescribed a half-dose. I wanted Xtandi but he said it had a worse seizure risk.

[gsun]

I had hot flashes not too far in. Also loss of libido. The fatigue did not kick in for about four years. Now, at six years, it's bad.

[j-o-h-n]

No SEs yet? Just wait, they start when your dick falls off.........

Good Luck, Good Health and Good Humor.

j-o-h-n

[Leaffan57 in reply to j-o-h-n]

Lol …

[SteveTheJ]

ADT means Erleada and a number of other possible medications. Nobody can answer your question.

[Leaffan57 in reply to SteveTheJ]

Eligard and Erleada

[Izzysdad]

3 years on Eligard and Erleada. I’m pushing 73. The usual adt effects hot flashes, night sweats, muscle loss etc. Resistence training and exercise is the key. No libido but that doesn’t matter because the equipment doesn’t work from RP and RT so maybe it’s a blessing. Physically I feel pretty much the same as I did before I started down this road. In fact I can’t tell what is treatment related and what is just getting older. I look at other guys my age and think it could be the latter. Your meds may hit you like a train or be virtually unnoticeable. Like you, I was waiting for the train but it never came. We are all different. Think positive and fight for every breath!

[Leaffan57 in reply to Izzysdad]

Thanks man, appreciate your response

[sciaticaman]

Side effects? I am in a support group. Side effect complaints are pretty much all we talk about. There are one or two guys out of about 50 who say they have had no side effects. The rest of us are all jealous. I guess it is like everything else with PCa: everyone’s a little different.