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Orchidectomy vs ADT
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
For anyone who had the bilateral orchidectomy, I would like some advice for my husband. When was it done? Before or after BCR occurred? What are the side effects? Do you take any other ADT meds after? How is your QOL and is there anything you'd do differently. He had RP in Dec 2021. No other treatment
tn12
in
Advanced Prostate Cancer
4 months ago
My Oligometastatic PCa Journey Continues...coming up on year 9!
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
It's been a while since I've posted. But wanted to offer a note of
encouragement
for those here that have
oligometastatic prostate cancer
. I was diagnosed in 2015 (227 PSA, Gleason 8, 1 MET in the spine) and still going strong. After years of
hormone therapy
, 6 rounds of
chemo
JamesAtlanta
in
Advanced Prostate Cancer
4 months ago
Lupron Question.
I have been on Lupron since June 2022. September 2023 Abiraterone and 5mg of prednisone was added. Psa was 19 in Sept and dropped to 1.26 as of Jan. 11 2024. Since going on Abi when I get a monthly Lupron shot I have trouble sleeping that first night and mild flu like symptoms the next day. I have agreed
I have been on Lupron since June 2022. September 2023 Abiraterone and 5mg of prednisone was added. Psa was 19 in Sept and dropped to 1.26 as of Jan. 11 2024. Since going on Abi when I get a monthly Lupron shot I have trouble sleeping that first night and mild flu like symptoms the next day. I have agreed
Professorgary
in
Advanced Prostate Cancer
4 months ago
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Actemra
hi I started the injection on Tuesday and haven’t felt right since. Lightheaded dizzy at times and on and of sickness. Has anyone els had side effects from this, and how long did they last. Iv been on a lot of injections for RA but my body seems to reject them I’m just hoping this isn’t the case and
hi I started the injection on Tuesday and haven’t felt right since. Lightheaded dizzy at times and on and of sickness. Has anyone els had side effects from this, and how long did they last. Iv been on a lot of injections for RA but my body seems to reject them I’m just hoping this isn’t the case and
Larachez2102
in
NRAS
7 months ago
Clavicular joint pain
Hello you supporting People. I am on Lupron since seven months. I try to be serious about rather heavy weightlifting. In the beginning of my ADT journey my achilles tendons were sore. Then pain moved to anterior knees and lately to my all four clavicular joints and refering to my neck.This is really
Hello you supporting People. I am on Lupron since seven months. I try to be serious about rather heavy weightlifting. In the beginning of my ADT journey my achilles tendons were sore. Then pain moved to anterior knees and lately to my all four clavicular joints and refering to my neck.This is really
Gs-rider
in
Advanced Prostate Cancer
4 months ago
Latest reults
hi I’ve just had my latest thyroid panel results, numbers seem slightly better for antibodies but still higher than they should. Ft4 & Ft3 slightly higher than last time but still not optimal? B12 and vit D is a work in progress. Ferritin is edging out of optimal towards high end, not sure what this
hi I’ve just had my latest thyroid panel results, numbers seem slightly better for antibodies but still higher than they should. Ft4 & Ft3 slightly higher than last time but still not optimal? B12 and vit D is a work in progress. Ferritin is edging out of optimal towards high end, not sure what this
Chell1
in
Thyroid UK
6 months ago
Need recommendations for herbal supplements.
I'm 67 and have had anxiety since menopause. I don't do hrt and haven't taken natural supplements. My anxiety comes and goes and is exacerbated by histamine in pollen season and possibly low oestrogen ongoing. Constantly light headed and sob intermittently and can't make arrangements in advance as each
I'm 67 and have had anxiety since menopause. I don't do hrt and haven't taken natural supplements. My anxiety comes and goes and is exacerbated by histamine in pollen season and possibly low oestrogen ongoing. Constantly light headed and sob intermittently and can't make arrangements in advance as each
celticlady
in
Anxiety Support
4 months ago
Bicalutamide Vs Eligard
I'm just starting my journey which will involve ADT and RT. The RT is scheduled to happen in early July and ADT to start soon. No spread according to Pet scan. Gleason 4+4 and PSA 7.9. Absolutely no symptoms whatsoever, feeling good for a 65yo. RO doesn't seem to be in any hurry. I have a few important
I'm just starting my journey which will involve ADT and RT. The RT is scheduled to happen in early July and ADT to start soon. No spread according to Pet scan. Gleason 4+4 and PSA 7.9. Absolutely no symptoms whatsoever, feeling good for a 65yo. RO doesn't seem to be in any hurry. I have a few important
PJT58
in
Advanced Prostate Cancer
4 months ago
FET on day 7 of progesterone
I’m doing a HRT FET this month with transfer booked for Friday. Just wondering what others experience is regarding timescales. My clinic told me to start progesterone on Saturday which means my transfer will be on day 7 of progesterone. Previously I’ve had transfers on day 6 so thought this was odd.
I’m doing a HRT FET this month with transfer booked for Friday. Just wondering what others experience is regarding timescales. My clinic told me to start progesterone on Saturday which means my transfer will be on day 7 of progesterone. Previously I’ve had transfers on day 6 so thought this was odd.
Cutecolliedog
in
Fertility Network UK
5 months ago
New Mama
Hi all, I'm new to the whole pregnancy world! I've been trying for a baby for over 7 years (was with an abusive partner at the time) but after being with my new partner for a few months I'm now expecting! The thing I want to ask is going to sound weird and no one seems to know what I mean or say that
Hi all, I'm new to the whole pregnancy world! I've been trying for a baby for over 7 years (was with an abusive partner at the time) but after being with my new partner for a few months I'm now expecting! The thing I want to ask is going to sound weird and no one seems to know what I mean or say that
KR2022
in
Pregnancy and Parenting Support
7 months ago
Zoladex side effects?
Hi, I've been taking Zoladex since October and have been having quite a few side effects recently. Aside from the more medical ones I've been struggling emotionally by not feeling like myself. Has anyone got any tips for that side of things? Also wanted to ask if people have any tips for the beauty side
Hi, I've been taking Zoladex since October and have been having quite a few side effects recently. Aside from the more medical ones I've been struggling emotionally by not feeling like myself. Has anyone got any tips for that side of things? Also wanted to ask if people have any tips for the beauty side
Humbug7
in
Endometriosis UK
5 months ago
Please may I get your thoughts on 2nd round of thyroid tests?
Hello 😊 Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Hello 😊 Please could I have some help with interpreting my 2nd lot of thyroid results? They are 8 weeks after the first as kindly advised on here. Please can I also get some advice on possible next steps? Apologies this is so long but wanted to share as much detail as possible to save anyone having
Bertiepuss
in
Thyroid UK
5 months ago
Erleada & ADT
just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and are on the above. No side effects yet!!!
just started Erleada with my ADY, I enjoy pot daily, anyone else smoke pot and are on the above. No side effects yet!!!
Leaffan57
in
Advanced Prostate Cancer
5 months ago
Weight gain
Hi there, I'm new to this and I apologise in advance for the essay but I'm struggling with this and would appreciate some advice. I'm almost 54 been taking hrt for 3 years. Was first put on trisequens but was told by someone I shouldn't be on that while still having periods. Anyway having seen another
Hi there, I'm new to this and I apologise in advance for the essay but I'm struggling with this and would appreciate some advice. I'm almost 54 been taking hrt for 3 years. Was first put on trisequens but was told by someone I shouldn't be on that while still having periods. Anyway having seen another
Bambough
in
Menopause and Perimenopause Support
5 months ago
Is ADT routinely given after prostatectomy
Trying to decide between prostatectomy and radiation (I understand if there was recurrence, I would have to do radiation and ADT) Is surgery the best chance to avoid ADT altogether Also, can anyone recommended a Surgeon at MD Anderson I also have urinary symptoms due to an enlarged prostate, I
Trying to decide between prostatectomy and radiation (I understand if there was recurrence, I would have to do radiation and ADT) Is surgery the best chance to avoid ADT altogether Also, can anyone recommended a Surgeon at MD Anderson I also have urinary symptoms due to an enlarged prostate, I
Vortex12
in
Prostate Cancer Network
5 months ago
Dental Issues with Finesteride
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
I am 7 years post full gland HIFU surgery. Quality of life remains good. I've been off ADT all this time. PSA has been slowly rising and hit 2.8. My urologist put me on finesteride. It prevents the conversion of T to DHT. Five weeks after starting on it I experienced an onslaught of dental problems.
fast_eddie
in
Advanced Prostate Cancer
5 months ago
Over heating
I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story) and has gotten worse over the period from then until now. I start sweating no matter what the weather or temperature is day and night, I can
I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story) and has gotten worse over the period from then until now. I start sweating no matter what the weather or temperature is day and night, I can
pramela
in
Pernicious Anaemia Society
5 months ago
Is my oestrogen high or low?
Hi everyone, I had a full hysterectomy two years ago and I've been having a bit of trouble getting my HRT right since. My latest results are attached but I'm confused as to whether my Beta Oestadiol level means my HRT (100mg patches) are working or not? I've been on them for about two months but they've
Hi everyone, I had a full hysterectomy two years ago and I've been having a bit of trouble getting my HRT right since. My latest results are attached but I'm confused as to whether my Beta Oestadiol level means my HRT (100mg patches) are working or not? I've been on them for about two months but they've
Jojozo
in
Menopause and Perimenopause Support
5 months ago
Persistent PSA
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
3/23 Prostatectomy PSA pre-op 4.8 Gleason 4+4, epe: present, lymphnodes removed and clear 4/23. PSA: 0.21 7/23 PSA: 0.22 8/23. PSA: 0.32 9/23 39 rounds of IMRT, ending 11/23 1/24. PSA: 0.32 3/24 PSA: 0.39 PSMA PET scan shows no evidence of recurrence or metastatic disease
Nonno
in
Prostate Cancer Network
3 months ago
How much reduction in dose to lower TSH to please the specialist???
In July I saw an endocrinologist who found my TSH of 0.025 alarming. He wanted to lower the dose because "Low TSH can cause heart complications." (Eye roll) As many of you pointed out, it's not the TSH that's the problem. Is there sufficient, but not excessive, thyroid hormone to support cellular energy
In July I saw an endocrinologist who found my TSH of 0.025 alarming. He wanted to lower the dose because "Low TSH can cause heart complications." (Eye roll) As many of you pointed out, it's not the TSH that's the problem. Is there sufficient, but not excessive, thyroid hormone to support cellular energy
RockyPath
in
Thyroid UK
5 months ago
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