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Help please
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
So I had radioactive iodine treatment about 20 months ago and have since been on 125mcg levothyroxine whoch has now got my levels in normal range. However, the joint pains especially in left hand and both legs are horrendous as is the brain fog and weight. I was started on 50mcg hrt patch at the same
Zolap
in
Thyroid UK
2 months ago
Operation
Hi everybody! So I was diagnosed PMR 2 years ago and started on 25mg of pref. I am now down to 5mg. I saw my Rumy a few weeks ago who did bloods ect and seems to think my PMR is over! However I’m due to have a hip replacement on the 5th December which I’m so happy about as I’ve been in agony for a long
Hi everybody! So I was diagnosed PMR 2 years ago and started on 25mg of pref. I am now down to 5mg. I saw my Rumy a few weeks ago who did bloods ect and seems to think my PMR is over! However I’m due to have a hip replacement on the 5th December which I’m so happy about as I’ve been in agony for a long
Holycow2
in
PMRGCAuk
6 months ago
HRT related
Hello 🌷 Please may I ask how much HRT are ladies on? Last night I accidentally left my old Evorel patch on (1 put a new one on every 3.5 days instead of the 3 day /4 day combo) and put on the new one. I realised it this morning and took the old one off. I guess it was still giving me oestrogen because
Hello 🌷 Please may I ask how much HRT are ladies on? Last night I accidentally left my old Evorel patch on (1 put a new one on every 3.5 days instead of the 3 day /4 day combo) and put on the new one. I realised it this morning and took the old one off. I guess it was still giving me oestrogen because
Amazon07
in
Thyroid UK
2 months ago
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Will I ever get my son back?
My 5 year old son was diagnosed with ADHD and DMDD. He's angry and mean all the time. He didn't used to be this way; it started developing a few years ago and has gotten worse. We're trying now to find medication, none seem to work so far. He needs behavioral therapy but I can't afford it. He's so smart
My 5 year old son was diagnosed with ADHD and DMDD. He's angry and mean all the time. He didn't used to be this way; it started developing a few years ago and has gotten worse. We're trying now to find medication, none seem to work so far. He needs behavioral therapy but I can't afford it. He's so smart
redmama2
in
CHADD's ADHD Parents Together
9 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
4 months ago
LUNG CANCER TREATMENT SUPPORT
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
9 months ago
calprotectin levels
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Hi just seeing if anyone is in same position or has been Basically I’ve been having bowel issues since I had my son jan 2022 I stayed having constipation lose bowels with blood mucus urgency to go stomach cramps ect So doctor said I needed to do calprotectin test and that came back at 157 repeated
Lo181
in
Bowel Disease Support
6 months ago
Is this low B12 / folate?
Hi all! Curious if anyone can advise please- I am fatigued (really struggle at work), brain fog, aches and pains - have been taking HRT for few months but not cured it! Also stable levothyroxine for many years and have Psoriasis although mild. Wondering if I should ask GP for further investigation
Hi all! Curious if anyone can advise please- I am fatigued (really struggle at work), brain fog, aches and pains - have been taking HRT for few months but not cured it! Also stable levothyroxine for many years and have Psoriasis although mild. Wondering if I should ask GP for further investigation
Ajom
in
Thyroid UK
2 months ago
What if mri is clear?
Hi, I'm 26 and have always had bad periods as a teenager. Poor health in general but march of this year I started experiencing the most excruciating pain along with weakness, dizziness, nausea, spotting ect. I've been in and out of the hospital all year long with multiple gp appointments and multiple
Hi, I'm 26 and have always had bad periods as a teenager. Poor health in general but march of this year I started experiencing the most excruciating pain along with weakness, dizziness, nausea, spotting ect. I've been in and out of the hospital all year long with multiple gp appointments and multiple
Lavenderpetal
in
Endometriosis UK
6 months ago
Time to PSA Nadir is related to progression-free-survival
This graph from Teoh (2014) plots the relationship between Time to PSA Nadir (months) versus Time to Progression (months) (i.e., Progression Free Survival). Cohort: ADT monotherapy (No RP or RT), all metastatic patients, median 74 y.o., GS = 8-10, N=419. A cubic spline curve fit matched the data points
This graph from Teoh (2014) plots the relationship between Time to PSA Nadir (months) versus Time to Progression (months) (i.e., Progression Free Survival). Cohort: ADT monotherapy (No RP or RT), all metastatic patients, median 74 y.o., GS = 8-10, N=419. A cubic spline curve fit matched the data points
janebob99
in
Advanced Prostate Cancer
2 months ago
significant free fluid in pouch of douglas
Hello I have been suffering with terrible pain in my right side lower groin. I described to the Gap that it feels like I am carrying something or a pressure in lower back and at times causes my right thigh to actually go numb. I went to the GP and was referred for an ultrasound for a hernia. No hernia
Hello I have been suffering with terrible pain in my right side lower groin. I described to the Gap that it feels like I am carrying something or a pressure in lower back and at times causes my right thigh to actually go numb. I went to the GP and was referred for an ultrasound for a hernia. No hernia
brontec
in
Endometriosis UK
2 months ago
Using Enzalutamide, Darolutamide, Apalutamide only.
I've seen a number of posters here and there who say they use one of the "mides" listed above with no ADT like Lupron, Eligard, Firmagan, or Orgovyx, etc. If so, did you begin that regimen after being on first level ADT for a while along with the 'mide," or did you start on the "mide" alone at the start
I've seen a number of posters here and there who say they use one of the "mides" listed above with no ADT like Lupron, Eligard, Firmagan, or Orgovyx, etc. If so, did you begin that regimen after being on first level ADT for a while along with the 'mide," or did you start on the "mide" alone at the start
dhccpa
in
Prostate Cancer Network
2 months ago
nervous about starting Levo
As of January this year TSH ; 7.28 Free T4: 11 TPO antibodies greater than 600 My history is in 2018( 56yrs old) I had acute thyroiditis, commenced Levo for a week, intolerant, so I went to functional Dr who recommended a diet for me Gluten,Diary and soya free, I have been stable
As of January this year TSH ; 7.28 Free T4: 11 TPO antibodies greater than 600 My history is in 2018( 56yrs old) I had acute thyroiditis, commenced Levo for a week, intolerant, so I went to functional Dr who recommended a diet for me Gluten,Diary and soya free, I have been stable
glutendairysoya
in
Thyroid UK
2 months ago
Pelvic pain on prostap
Hello, i am experiencing very bad pelvic and lower back pain. i am 35 with adenomyosis, i didn't know i had this until i had an MRI. They put me on prostap 3 and i have had none stop pelvic pain and on/off bleeding. I am nearly 9 weeks in to the 3 monthly injection. Please help, is this normal? i haven't
Hello, i am experiencing very bad pelvic and lower back pain. i am 35 with adenomyosis, i didn't know i had this until i had an MRI. They put me on prostap 3 and i have had none stop pelvic pain and on/off bleeding. I am nearly 9 weeks in to the 3 monthly injection. Please help, is this normal? i haven't
SallyK2589
in
Endometriosis UK
2 months ago
Recommendations via direct message for endo
Morning all, hoping to hear if anyone has worked successfully with an endo based in London/south east who specialise in thyroid AND menopause? Private or NHS.... Thank you. As per the rules of the board, please direct message me with these. Need help starting on hrt at same time as starting thyroid
Morning all, hoping to hear if anyone has worked successfully with an endo based in London/south east who specialise in thyroid AND menopause? Private or NHS.... Thank you. As per the rules of the board, please direct message me with these. Need help starting on hrt at same time as starting thyroid
Astrido
in
Thyroid UK
2 months ago
Studies re: PSA > 0.5% after RT
Can anyone interpret the gist of these studies? Correct me if I am wrong (and I sure hope to be) but from what I am gleaning, it seems that for those who have RT and a concurrent round of ADT: 1) Researchers and studies are showing that waiting 18 months to reach a post RT nadir isn't necessary to determine
Can anyone interpret the gist of these studies? Correct me if I am wrong (and I sure hope to be) but from what I am gleaning, it seems that for those who have RT and a concurrent round of ADT: 1) Researchers and studies are showing that waiting 18 months to reach a post RT nadir isn't necessary to determine
quietcorner
in
Advanced Prostate Cancer
2 months ago
6 Month Eligard
I got my results from PSA/PET last week, showing no metastatic activity anywhere, bones and lymph nodes clear. My last Gleason score was 4+3 in 1 sample, 3+3 in 2 more same side, but focus of intraductal cancer in 2 cores on other side. Last PSA 5.3 in February, stable between 5.0 and 5.8 last 2 years
I got my results from PSA/PET last week, showing no metastatic activity anywhere, bones and lymph nodes clear. My last Gleason score was 4+3 in 1 sample, 3+3 in 2 more same side, but focus of intraductal cancer in 2 cores on other side. Last PSA 5.3 in February, stable between 5.0 and 5.8 last 2 years
SherpaT
in
Prostate Cancer Network
2 months ago
pelvic pain and no hrt withdrawal bleed
Hello all, I would be grateful for some advice or reassurance please. I have been on Sequential HRT for 5 years, as started having perimenopause symptoms around then. I have always had a withdrawal bleed once a month. I have found that taking hrt does make me a bit bloated and my tummy a bit uncomfortable
Hello all, I would be grateful for some advice or reassurance please. I have been on Sequential HRT for 5 years, as started having perimenopause symptoms around then. I have always had a withdrawal bleed once a month. I have found that taking hrt does make me a bit bloated and my tummy a bit uncomfortable
girlwithcurls
in
Pelvic Pain Support Network
2 months ago
3year Updates w/PSA Graph
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
brucesam
in
Advanced Prostate Cancer
2 months ago
Length of Treatment for Orgovyx (Relugolix) versus Lupron and other Longer Acting ADT drugs as Adjuvant to RT or Used for IADT?
I'm curious if anyone has had any discussion with their MO or Radiation Oncologist about having to take a longer course of Orgovyx compared to Lupron or other longer acting ADT drugs because Testosterone comes back so much quicker on Orgovyx? It would seem to me, 6 months of Orgovyx is like the equivalent
I'm curious if anyone has had any discussion with their MO or Radiation Oncologist about having to take a longer course of Orgovyx compared to Lupron or other longer acting ADT drugs because Testosterone comes back so much quicker on Orgovyx? It would seem to me, 6 months of Orgovyx is like the equivalent
jazj
in
Advanced Prostate Cancer
2 months ago
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