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Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
6 months ago
Interesting paper/discovery - two types of PCa
Found by AI: https://medicalxpress.com/news/2024-02-ai-reveals-prostate-cancer-disease.html [i]Artificial Intelligence has helped scientists reveal a new form of aggressive prostate cancer that could revolutionize how the disease is diagnosed and treated in the future.[/i] [i]The study published in
Found by AI: https://medicalxpress.com/news/2024-02-ai-reveals-prostate-cancer-disease.html [i]Artificial Intelligence has helped scientists reveal a new form of aggressive prostate cancer that could revolutionize how the disease is diagnosed and treated in the future.[/i] [i]The study published in
Don_1213
in
Prostate Cancer Network
7 months ago
Gummie relief for degarelix shots?
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
DH has so much pain with each monthly shot and can't take nsaids. Is there anything that won't make him loopy to use after shots for a few days? He is ready to go back to lupron, it hurts so much. Mail order preferred.Thanks!
Chipnick
in
Advanced Prostate Cancer
7 months ago
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My Scan Story
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
Hi all...great info shared here that has helped me after my RP...I went from PSA of 2.4 in 2021 to a 4.91 in 10/23..Dr did a 12 core biopsy cause of 3 bro's and Dad all with PC. 2 cores came back with Gleason 7 and an 8. They did a PSMA test with nuclear dye that showed it confined to gland.(also did
wharr
in
Prostate Cancer Network
5 months ago
Dr. "Snuffy" Myers daughter talks about the day she heard about her Dad's diagnosis
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
Darryl
Partner
in
Prostate Cancer Network
7 months ago
Dr. "Snuffy" Myers daughter talks about the day she heard about her Dad's diagnosis
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
The De-Escalate Trial: Intermittently Stopping Prostate Cancer Treatments to Improve QoL
as the title says: https://www.urotoday.com/video-lectures/asco-gu-2024/video/mediaitem/3875-the-de-escalate-trial-intermittently-stopping-prostate-cancer-treatments-to-improve-quality-of-life-guillaume-grisay.html
as the title says: https://www.urotoday.com/video-lectures/asco-gu-2024/video/mediaitem/3875-the-de-escalate-trial-intermittently-stopping-prostate-cancer-treatments-to-improve-quality-of-life-guillaume-grisay.html
Maxone73
in
Advanced Prostate Cancer
7 months ago
What AI Says About Supplements and Off-Label Drug Use Regarding Prostate Cancer
Sure wish I had this tool over 2 years ago when I started reading up although you can't 100% trust the answers. The tools are getting smarter. I'm a software developer and have early access to Google's Gemini Pro 1.5 AI model that was relased Feb 15 2024 claiming to have better 'scores' than all the
Sure wish I had this tool over 2 years ago when I started reading up although you can't 100% trust the answers. The tools are getting smarter. I'm a software developer and have early access to Google's Gemini Pro 1.5 AI model that was relased Feb 15 2024 claiming to have better 'scores' than all the
jazj
in
Advanced Prostate Cancer
7 months ago
PSA is back
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
I was 51 yr old diagnosed with Prostate cancer state 1 with a PSA 4.7. Gleasons mixed of 3+3's and 3+4's.I had robotic prostatectomy. Psa was undetectable until January 2023 and slowly creeped back up to .19 now in April 2024 . Just started Hormonal Therapy with radiation scheduled for August.
LBbeachbum
in
Prostate Cancer Network
5 months ago
Oncologist visit today
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
Finished visit with oncologist. We are going to monitor PSA every 6 weeks to watch for doubling time. Next meds may be abiraterone and prednisone, but that still remains to be determined.
ppulatie
in
Advanced Prostate Cancer
5 months ago
Dad,83 - is biopsy necessary ?
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
My dad , 83 had an elevated psa at 18. Dr ordered MRI which showed a pirads 5 with 2-3 bone metastases in the pelvic region and femur. Went to an oncologist who said to do a PSMA and then to start him on Lupron and bicalutamide. And maybe radiation for the bone met pain. He said he did not really
Tinkudi
in
Advanced Prostate Cancer
5 months ago
Rise in psa
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
I had rp in 2021 with recurrence 12 months later to 1 lymph node. RT to 9lymph nodes and zoladex hormone therapy for 18 months. Psa has been undetectable for 12 months but just rose to 0.03. Do I need to wait until it rises to 2.0 as I've seen advice before or is there a more proactive approach? Thanks
Runner1957
in
Advanced Prostate Cancer
5 months ago
What Next After Xtandi Fail?
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
Morning all. Don't post much but now is the time. Been fighting the Beast since Nov 2016. On Lupron from the beginning and Xtandi since Nov 2019. Hit Nadir of .21 in Dec 2022. Since then, PSA has been jumping around, but trending upward. End of 2023, it was at .67. Feb 2024, PSA up to .87. Yesterday
ppulatie
in
Advanced Prostate Cancer
5 months ago
Some Reference Material - NECP/SCCP
-----
I am constantly updating this post as I come across additional relevant material.
----- Emerging Insights in Small-Cell Carcinoma of the Genitourinary Tract: From Diagnosis to Novel Therapeutic Horizons, 2024 https://ascopubs.org/doi/10.1200/EDBK_430336#:~:text=Small%2Dcell%20carcinoma
-----
I am constantly updating this post as I come across additional relevant material.
----- Emerging Insights in Small-Cell Carcinoma of the Genitourinary Tract: From Diagnosis to Novel Therapeutic Horizons, 2024 https://ascopubs.org/doi/10.1200/EDBK_430336#:~:text=Small%2Dcell%20carcinoma
skiingfiend
in
Advanced Prostate Cancer
7 months ago
Testosterone and PCa risk - 3
Here's a plot showing the Odds Ratio for having either Intermediate Risk PCa or high-risk PCa, as a function of baseline testosterone levels. The Odds Ratio tells the likelihood of getting PCa, compared to a reference value of 1. So, for example, for the lower plot (high risk), a testosterone level
Here's a plot showing the Odds Ratio for having either Intermediate Risk PCa or high-risk PCa, as a function of baseline testosterone levels. The Odds Ratio tells the likelihood of getting PCa, compared to a reference value of 1. So, for example, for the lower plot (high risk), a testosterone level
janebob99
in
Advanced Prostate Cancer
7 months ago
Testosterone and PCa risk - 2
This plot shows a Kaplan-Mier Prostate Cancer Mortality Survival plot for three different levels of baseline testosterone: Low-T, IntermediateT, and Normal-T. The best survival is for men with Normal testosterone levels at baseline, and the worst survival is for men with low-T. REF: www.spandidos-publications.com
This plot shows a Kaplan-Mier Prostate Cancer Mortality Survival plot for three different levels of baseline testosterone: Low-T, IntermediateT, and Normal-T. The best survival is for men with Normal testosterone levels at baseline, and the worst survival is for men with low-T. REF: www.spandidos-publications.com
janebob99
in
Advanced Prostate Cancer
7 months ago
Testosterone Levels and Prostate Cancer Risk - 1
This plot shows the association of baseline testosterone levels with PCa aggressiveness. For example, if you have low aggressive PCA, your testosterone is likely to be Normal. But, if you have metastatic PCa, your testosterone is likely to be very Low. This shows that having normal testosterone
This plot shows the association of baseline testosterone levels with PCa aggressiveness. For example, if you have low aggressive PCA, your testosterone is likely to be Normal. But, if you have metastatic PCa, your testosterone is likely to be very Low. This shows that having normal testosterone
janebob99
in
Advanced Prostate Cancer
7 months ago
Testosterone levels and Prostate Cancer Risk - 1
This plot shows the association of baseline testosterone levels with PCa aggressiveness. For example, if you have low aggressive PCA, your testosterone is likely to be Normal. But, if you have metastatic PCa, your testosterone is likely to be very Low. This shows that having normal testosterone levels
This plot shows the association of baseline testosterone levels with PCa aggressiveness. For example, if you have low aggressive PCA, your testosterone is likely to be Normal. But, if you have metastatic PCa, your testosterone is likely to be very Low. This shows that having normal testosterone levels
janebob99
in
Prostate Cancer Network
7 months ago
Castrate levels of Testosterone
My husband's testosterone level is 3nmol/L (86.5 ng/100ml). In the past year, his levels have ranged between 2-8 nmol/L. He's on quarterly Zoladex. I understand that castrate levels are ideally < 20 ng/100ml. If I understand correctly, his testosterone should be much lower. Can anyone please shed
My husband's testosterone level is 3nmol/L (86.5 ng/100ml). In the past year, his levels have ranged between 2-8 nmol/L. He's on quarterly Zoladex. I understand that castrate levels are ideally < 20 ng/100ml. If I understand correctly, his testosterone should be much lower. Can anyone please shed
cancervictim
in
Advanced Prostate Cancer
7 months ago
Stage 4, GL 9 seeking advice
After 10 months without pain, I'm starting to have pain in my back. Orgovyx and Zytiga have appeared to keep the cancer relatively quiet until now. Next month I turn 87. I'm quite healthy, apart from Prostate cancer. I have no illusions about a cure but would like to have as many QOL days as possible
After 10 months without pain, I'm starting to have pain in my back. Orgovyx and Zytiga have appeared to keep the cancer relatively quiet until now. Next month I turn 87. I'm quite healthy, apart from Prostate cancer. I have no illusions about a cure but would like to have as many QOL days as possible
Poollover
in
Advanced Prostate Cancer
5 months ago
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