japanese have a drug for i t p

[rizzo1018]

i ran across it on line months ago and lost the name .. i think it began with har ?? anyone know of it ?? from what i read about it really works and i seen it on drugs.com but totally 4 got it . anyone have info ?? .. hey i will try anything to get away from our nite mare .. on 75 mg. of promacta ( the max ) and steady at 50k . b4 i was on 50mg. and declining and scared. there is no way to take 100mg. it will kill you .. thanks everyone and we all pray for a cure ..

[Ricksp]

Hi. I have never heard of it. Promacta is good stuff!!

[Anthonyh7]

The full list of current treatments for ITP is at the following link ....

itpsupport.org.uk/index.php...

Not heard of anything other than the items listed.

The list is produced by the ITP Support Association here in the UK and is up to date , reliable and frequently checked and approved by the medical panel which the ITP Support Association work with.

So if any new treatment/drug had been made available I am fairly sure it would have been added to the list.

Best wishes

Anthony

[Camdenjane]

It seems to me I have seen that

I will ask on the Facebook ITP group

I cannot afford any of the Tier 4?? Drugs

My insurance Medicare Plus does does cover Promacta, Tavalisse etc

I am now having success win a combo of WinRho and NPlate ( covered because it is given inLifespan Cancer Institute.

[Camdenjane]

I would never use a steroid again

[Tdeller89]

The drug you maybe talking about is called doptelet . I am on it now it helps however the side effects have been an issue. Pain in my extremities have been the worse. With veins swelling as well. I was on promacta it didn't really help my count much.