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Experiences with
Primary ciliary dyskinesia (PCD)
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Sinemet best practice - take a tablet when you feel you need it or stick to 3 times a day and be uncomfortable.
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
I cannot stick to 1 tablet of Sinemet, 62.5mg 3 times a day as directed by my PD Nurse as I definitely need one every 4 hours or I wear off and have very uncomfortable, painful restless leg syndrome. I have started taking 5 a day and then add in Sinemet CR 25mg Levodopa at night to try and get some
Yogibear
in
Cure Parkinson's
12 years ago
Sticking and falling
Can anyone help me?I'm fed up with sticking and falling over. I broke my humerus (upper arm) last September when I fell over in the hall, then last week I fell in the kitchen and I broke the same arm just above the wrist. Then this week to crown it all whilst getting into the car I fell and broke my
Can anyone help me?I'm fed up with sticking and falling over. I broke my humerus (upper arm) last September when I fell over in the hall, then last week I fell in the kitchen and I broke the same arm just above the wrist. Then this week to crown it all whilst getting into the car I fell and broke my
camper
in
PSP Association
12 years ago
Hi
Dear friends of pain: every now and then I read your comments and events about you pains, sorrows and joys of everyday life. I want you to know that like you I am in a lot of pain and Etc.etc., and two weeks ago I went into Interstitial cystitis, which is Characterized by the Presence of a chronic Inflammation
Dear friends of pain: every now and then I read your comments and events about you pains, sorrows and joys of everyday life. I want you to know that like you I am in a lot of pain and Etc.etc., and two weeks ago I went into Interstitial cystitis, which is Characterized by the Presence of a chronic Inflammation
Julianne
in
Fibromyalgia Action UK
12 years ago
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How do you deal with gastroparesis?
I have been diagnosed with bile reflux disease and erosive gastritis which the doctor states is being aggravated by my gastroparesis. According to the GI gastroparesis is rather common in PD and I know that I have been diagnosed with it for at least 2 years longer than I have with PD. Anyway, if I
I have been diagnosed with bile reflux disease and erosive gastritis which the doctor states is being aggravated by my gastroparesis. According to the GI gastroparesis is rather common in PD and I know that I have been diagnosed with it for at least 2 years longer than I have with PD. Anyway, if I
Aharris2006
in
Cure Parkinson's
12 years ago
Permenant cystitis - What do you recommend?
I went to GP at the beginning of the week because I have had permenant cystitis since xmas. It even wakes me up in the night as I have constant burning. I am up at least twice every night to the loo and I have to drink at least one glass of water during the night to prevent it being really bad in the
I went to GP at the beginning of the week because I have had permenant cystitis since xmas. It even wakes me up in the night as I have constant burning. I am up at least twice every night to the loo and I have to drink at least one glass of water during the night to prevent it being really bad in the
Katt
in
Endometriosis UK
12 years ago
Interstitial Cystitis
Hey, does anyone here have this condition and if so how do they help you control it? Cheers for your help in advance.
Hey, does anyone here have this condition and if so how do they help you control it? Cheers for your help in advance.
Elsbeth
in
Pelvic Pain Support Network
12 years ago
2012
My sincerest,warmest wishes of good luck and happiness to you all for 2012... May your days be less painfull May your memory be bettered stored May you all live a little happiness where hospitals leave us bored Let your limbs be more nimble And hurt less than the month before May the tia's
My sincerest,warmest wishes of good luck and happiness to you all for 2012... May your days be less painfull May your memory be bettered stored May you all live a little happiness where hospitals leave us bored Let your limbs be more nimble And hurt less than the month before May the tia's
Andrewl
in
Hughes Syndrome APS Forum
13 years ago
AZILECT & DYSKINESIAS
Began Azilect last of 2011, I think, and dyskinesas starts and continues for several hours and/or throughout the day. 1 hour ago I took my one Azilect for the day and I have tremors, legs jumping, stiff and my emotions are "shot." Any commens or suggestions or help would be appreciated. Thank you!
Began Azilect last of 2011, I think, and dyskinesas starts and continues for several hours and/or throughout the day. 1 hour ago I took my one Azilect for the day and I have tremors, legs jumping, stiff and my emotions are "shot." Any commens or suggestions or help would be appreciated. Thank you!
Dennis
in
Cure Parkinson's
13 years ago
Mirapex ER......
Mirapex is 1 of the 3 meds i take daily. I have found it is the Mirapex that's causing me to have a bad sore gut all the time. I live on crackers and tums to keep the acids in check and not feel sick to my stomach. I am new to this, is this something that will fade or what.... Also, the Sudden Sleep
Mirapex is 1 of the 3 meds i take daily. I have found it is the Mirapex that's causing me to have a bad sore gut all the time. I live on crackers and tums to keep the acids in check and not feel sick to my stomach. I am new to this, is this something that will fade or what.... Also, the Sudden Sleep
sbtexas
in
Cure Parkinson's
13 years ago
Needing to get involved...
I have a blog on word press, it helps me get my feelings out. I really love to write and do not get much time anymore to do so. I am 35 (almost 36) dx with Parkinson's in July. For the last few months I had been doing really well. The amatadine was working really well for me especially for the fatigue
I have a blog on word press, it helps me get my feelings out. I really love to write and do not get much time anymore to do so. I am 35 (almost 36) dx with Parkinson's in July. For the last few months I had been doing really well. The amatadine was working really well for me especially for the fatigue
Parkie35
in
Cure Parkinson's
13 years ago
Has anyone else had swollen ankles and skin rashes from amantadine? And do the good effects of amantadine disappear over time?
dottie
in
Cure Parkinson's
13 years ago
New therapies
Dr. Robert Hauser has recently penned an outstanding paper reviewing all the new therapies in the Parkinson's disease pipeline. Dr. Hauser is professor at the NPF Center of Excellence at the University of South Florida in Tampa. Here is the link to the article which is free access through
Dr. Robert Hauser has recently penned an outstanding paper reviewing all the new therapies in the Parkinson's disease pipeline. Dr. Hauser is professor at the NPF Center of Excellence at the University of South Florida in Tampa. Here is the link to the article which is free access through
Hidden
in
Cure Parkinson's
12 years ago
Anyone else get tardive dyskinesia when taking Lomotil and Phenergan?
I have been really sick lately and was given Lomotil and Phenergan, both of which I have taken separately in the past with no problems. This time I had severe episodes of tardive dyskinesia which I found rather disturbing. I also take 1.5mg Mirapex 3 times daily and 150mg Topamax 2 times daily, in case
I have been really sick lately and was given Lomotil and Phenergan, both of which I have taken separately in the past with no problems. This time I had severe episodes of tardive dyskinesia which I found rather disturbing. I also take 1.5mg Mirapex 3 times daily and 150mg Topamax 2 times daily, in case
Aharris2006
in
Cure Parkinson's
12 years ago
Drugs not toxic
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Important News for the Parkinson’s Disease Community: More Evidence that Sinemet and Madopar are Not Toxic and do Not Accelerate Disease Progression You can find out more about NPF's National Medical Director, Dr. Michael S. Okun, by also visiting the NPF Center of Excellence, University of Florida
Hidden
in
Cure Parkinson's
12 years ago
Anxiety after severe sthma attack
Hi I haven't been on this forum for a long time but I was wondering if you very wise and lovely people could provide me with some help!?! Last month, I had my first and probably worst attack I have ever had in the last 2 years. It was my first admission to adults and to be honest adults was awful.
Hi I haven't been on this forum for a long time but I was wondering if you very wise and lovely people could provide me with some help!?! Last month, I had my first and probably worst attack I have ever had in the last 2 years. It was my first admission to adults and to be honest adults was awful.
Hidden
in
Asthma Community Forum
15 years ago
Quinine Works
I know many have often said they are not sure if quinine works myself included. Well 2 weeks ago I ran out in my favour I always seem to have several partially used quinine packets in my ""stock"" box. I did not order any more today because I wanted to actually go a week without putting in a rpt script
I know many have often said they are not sure if quinine works myself included. Well 2 weeks ago I ran out in my favour I always seem to have several partially used quinine packets in my ""stock"" box. I did not order any more today because I wanted to actually go a week without putting in a rpt script
Hidden
in
Asthma Community Forum
15 years ago
Two questions-TSH results and cystitis?
Hi everyone! I am currently on 50 mcg a day for underactive thyroid. I have two questions really: does anyone experience cystitis/frequent urination symptoms with thyroid problems? Both of these symptoms are driving me crazy but the doctor won't accept the connection between to the two. I have had urine
Hi everyone! I am currently on 50 mcg a day for underactive thyroid. I have two questions really: does anyone experience cystitis/frequent urination symptoms with thyroid problems? Both of these symptoms are driving me crazy but the doctor won't accept the connection between to the two. I have had urine
cookie
in
Thyroid UK
14 years ago
Does anyone get blood in their urine?
Every time I get my urine tested, it shows I have blood. The urologist has checked and I have no kidney stones, he thinks it is something to do with lupus but rheumatologist doesn't seem worried by the blood and doesn't see a connection. Who do I believe?
Every time I get my urine tested, it shows I have blood. The urologist has checked and I have no kidney stones, he thinks it is something to do with lupus but rheumatologist doesn't seem worried by the blood and doesn't see a connection. Who do I believe?
Yols
in
LUPUS UK
13 years ago
Restlessness. Anything that can be done to help?
Dear all, Dad has become super restless in the last couple of days, he is constantly crossing and uncrossing his legs, sitting down, standing up (losing his balance) and pacing about. He says it feels "bloody awful". He looks so distressed and looks to be really suffering. I know it might be daft to
Dear all, Dad has become super restless in the last couple of days, he is constantly crossing and uncrossing his legs, sitting down, standing up (losing his balance) and pacing about. He says it feels "bloody awful". He looks so distressed and looks to be really suffering. I know it might be daft to
daughter_Julie
in
PSP Association
13 years ago
Need HELP asap!! Anyone (patient or caregiver). Who has a medication they think is helping them EVEN A LITTLE please!!
My Dad has to stop taking levdopa, and now stopping mirapex. Levdopa was useless, and mirapex was causing him to be very drowsy, extremely unsteady, his speech is way worse and he was having terrible stomach aches. I JUST spoke to the neurologists secretary and she told me he would be open to trying
My Dad has to stop taking levdopa, and now stopping mirapex. Levdopa was useless, and mirapex was causing him to be very drowsy, extremely unsteady, his speech is way worse and he was having terrible stomach aches. I JUST spoke to the neurologists secretary and she told me he would be open to trying
MJ-Mark
in
PSP Association
13 years ago
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