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STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
steve5441
in
CLL Support
1 year ago
VIKTORIA-1 CLINICAL TRIAL
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
CTGirl1962
in
SHARE Metastatic Breast Cancer
1 year ago
Severe bruising
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
spanish36
in
CLL Support
1 year ago
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Shingrix may be available on Australia's National Immunisation Program for those with CLL from 1 November 2023
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
CLLerinOz
Administrator
in
CLL Support
1 year ago
Cost of PSMA scan in US
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
TJGuy
in
Advanced Prostate Cancer
1 year ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
1 year ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
INTERCEPT IS ENDING CLINICAL TRIAL
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
NYLassie
in
Living with Fatty Liver and NASH
1 year ago
Sister likely has endometrial cancer
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
fell
in
SHARE Uterine Cancer Support
1 year ago
Oral NT-0796 for Parkinson’s shows promise in early clinical trials
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
Farooqji
in
Cure Parkinson's
1 year ago
OVM 200 clinical trial on TV
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
Brysonal
in
Fight Prostate Cancer
1 year ago
My brother has advanced Prostate cancer
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
rasher1
in
Advanced Prostate Cancer
1 year ago
Reminder: The virtual LiveLung SCLC group meeting is TONIGHT, June 20th at 7 pm ET.
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
AmyKamp
Partner
in
Small Cell Lung Cancer Support
1 year ago
Facebook message received anyone heard Of this group
Facebook in my inbox -message requesting invitation to join trials for Potential new treatment. It reads Adults with diagnosis of Afib with High blood pressure, heart attack, stroke, diabetes may be able to take part in a clinical trials rearching new treatment. From panaceapatientrecruitment- panaceapatientrecruitment.com
Facebook in my inbox -message requesting invitation to join trials for Potential new treatment. It reads Adults with diagnosis of Afib with High blood pressure, heart attack, stroke, diabetes may be able to take part in a clinical trials rearching new treatment. From panaceapatientrecruitment- panaceapatientrecruitment.com
Tryfan
in
AF Association
1 year ago
Clinical trial for Mesothelioma patients
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
This is a stage 1 trial for patients who have Mesothelioma with a pleural effusion. If interested the contact details are below. The trial is an option for mesothelioma patients who have failed first-line treatment and have an IPC. MITOPE is available at Guy's Hospital, University of Leicester,
RoyCastleHelpline
Roy Castle
in
The Roy Castle Lung Cancer Foundation
1 year ago
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
Lupkynis helps protect kidneys with lupus nephritis and high proteinuria
Pooled trial data favor use with background therapy for at-risk patients
by Lindsey Shapiro | June 12, 2023 Lupkynis (voclosporin) combined with background lupus treatments better preserved kidney function among
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Will I be offered surgery?
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Hi All, I have HGSOC stage 1V and when I was diagnosed just over two years ago my abdominal tumour was 15cm x 11cm with a side mass of 4cm. I had spread to the lymph nodes in my neck and chest which have now gone. After two years of chemo the tumours had reduced but are now back to square one. I was
Guilane
in
My Ovacome
1 year ago
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