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niggles or warnings?
A bit of context before my question. I was diagnosed with PMR in mid August by my GO, who was straight onto it from my telephone description, had me straight in for a blood test, and responded to my face to face description with “polymyalgia” before checking the blood results which confirmed it for
A bit of context before my question. I was diagnosed with PMR in mid August by my GO, who was straight onto it from my telephone description, had me straight in for a blood test, and responded to my face to face description with “polymyalgia” before checking the blood results which confirmed it for
Sibelius5
in
PMRGCAuk
8 months ago
ER visit after 13 days on Zanubrutinib (Diagnosed 13yrs 8mos b4 needing treatment)
Treatment Plan; Proventil Nebulizer 4X per day as needed, Doxycycline 100mg po 2X per day x 1 week,
Prednisone
40mg po x 3 days; Tylenol or etc for pain. Then Acalabrutinib 100mg po 1X per day to monitor side effects.
Treatment Plan; Proventil Nebulizer 4X per day as needed, Doxycycline 100mg po 2X per day x 1 week,
Prednisone
40mg po x 3 days; Tylenol or etc for pain. Then Acalabrutinib 100mg po 1X per day to monitor side effects.
CoachVera55
in
CLL Support
1 year ago
do I need more prednisolone?
Hello fellow sufferers! I was diagnosed PMR in February after 5 months and started 15mg Pred. Now down to 6mg but struggling. Broke my arm in June, put house on market (sale still going through), stepdaughters mental health reached very low point and just had surgery in unbroken arm. Went down from 7
Hello fellow sufferers! I was diagnosed PMR in February after 5 months and started 15mg Pred. Now down to 6mg but struggling. Broke my arm in June, put house on market (sale still going through), stepdaughters mental health reached very low point and just had surgery in unbroken arm. Went down from 7
Bobbiegirl
in
PMRGCAuk
8 months ago
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Adrenals
Still having problems with digestion Mood is very low and tired all the time On 3.5 Prednisolone GP not interested at all If this is Adrenals how long does it take to get back on track
Still having problems with digestion Mood is very low and tired all the time On 3.5 Prednisolone GP not interested at all If this is Adrenals how long does it take to get back on track
Harry8388
in
PMRGCAuk
8 months ago
Sword of Damocles
Hi, I am a month away from completing my initial treatment (external beam and brachytherapy, followed by 2 years of Lupron, Zytiga, and
prednisone
). I am not sure what to expect as my oncologist was not effusive in showing me a life I can expect.
Hi, I am a month away from completing my initial treatment (external beam and brachytherapy, followed by 2 years of Lupron, Zytiga, and
prednisone
). I am not sure what to expect as my oncologist was not effusive in showing me a life I can expect.
JayJinxed8112
in
Advanced Prostate Cancer
8 months ago
Recent OCD diagnosis coupled with autoimmune issues- Need hospital, treatment centers, advice or recommendations
The next 6 months he held down a job, did not self harm, had zero suicidal ideations, and felt like a normal 18 year old, until... they began decreasing his
prednisone
5mg a week. Within 4 weeks, he was worse than he was before they began the
prednisone
.
The next 6 months he held down a job, did not self harm, had zero suicidal ideations, and felt like a normal 18 year old, until... they began decreasing his
prednisone
5mg a week. Within 4 weeks, he was worse than he was before they began the
prednisone
.
msamyjoe
in
Anxiety and Depression Support
1 year ago
PMR and Breast Pain
I was diagnosed with GCA in 2016 and after many failed attempts managed to gradually reduce the steroids. Recently, I was diagnosed with PMR and am currently taking 10mg prednisolone. I have an ache from under my arms down into the side of both breasts. The left aside is worse than the right. I have
I was diagnosed with GCA in 2016 and after many failed attempts managed to gradually reduce the steroids. Recently, I was diagnosed with PMR and am currently taking 10mg prednisolone. I have an ache from under my arms down into the side of both breasts. The left aside is worse than the right. I have
040547RJH
in
PMRGCAuk
8 months ago
PSA Climbing while on Zoladex and Abiraterone with Prednisone
Going to ask if i can switch the
prednisone
for dexamethasone. Not sure if they will approve it. I was scheduled to start Xgeva. As I have been diagnosed with osteoporosis due to having ADT since 2017. What other treatment should I look forward to having. Thanks Rick PSA is 4.66
Going to ask if i can switch the
prednisone
for dexamethasone. Not sure if they will approve it. I was scheduled to start Xgeva. As I have been diagnosed with osteoporosis due to having ADT since 2017. What other treatment should I look forward to having. Thanks Rick PSA is 4.66
Islandboy2021
in
Advanced Prostate Cancer
1 year ago
Learning about GCA
Now increased from 10mg to 60mg
prednisone
. Eye check isn’t showing any long term damage and I have a plan going forward for steroids. Bit I’m struggling with is feeling grotty and trying to pace myself as I was previously very active. Also quite scared to be honest.
Now increased from 10mg to 60mg
prednisone
. Eye check isn’t showing any long term damage and I have a plan going forward for steroids. Bit I’m struggling with is feeling grotty and trying to pace myself as I was previously very active. Also quite scared to be honest.
Smellydog9
in
PMRGCAuk
1 year ago
GCA symptoms
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
pomeranion
in
PMRGCAuk
8 months ago
Hives and reducing pred
I’ve had terrible itchy hives on my arms, back, chest and neck for weeks now which is just not getting any better, it started from heat rash whilst on holiday in the summer. I’ve had a small amount of relief from antihistamines (Fexofenadine 180mg) and 2 weeks of Eumovate steroid cream and I’m slathering
I’ve had terrible itchy hives on my arms, back, chest and neck for weeks now which is just not getting any better, it started from heat rash whilst on holiday in the summer. I’ve had a small amount of relief from antihistamines (Fexofenadine 180mg) and 2 weeks of Eumovate steroid cream and I’m slathering
JoLou12
in
PMRGCAuk
8 months ago
PMR and Parkinson's Disease
Background: I have PMR diagnosed 2016 and GCA/extensive LVV diagnosed 2019. I have been on 5mg Prednisolone daily for the past year. I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced interstitial lung disease (now resolved).
Background: I have PMR diagnosed 2016 and GCA/extensive LVV diagnosed 2019. I have been on 5mg Prednisolone daily for the past year. I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced interstitial lung disease (now resolved).
JanetRosslyn
in
PMRGCAuk
8 months ago
Food poisoning
Some advice please,I have food poisoning,sickness and diarrhoea,although the sickness seems to have cleared up! There is no way I can eat anything,I have some Omeprazole 20mg capsules,should I take one of these about half an hour before my prednisolone( 8mg,non e/c),also should I take any extra prednisolone
Some advice please,I have food poisoning,sickness and diarrhoea,although the sickness seems to have cleared up! There is no way I can eat anything,I have some Omeprazole 20mg capsules,should I take one of these about half an hour before my prednisolone( 8mg,non e/c),also should I take any extra prednisolone
Seamab
in
PMRGCAuk
8 months ago
Undiagnosed inflammatory disease
After two weeks of severe and increasing pain in my legs and three GP appointments my blood was checked and I was admitted to hospital with a CRP of 330. I was initially put on Prednisolone at 60mg and gradually my CRP score improved. I then went through months where the pain seemed to move through my
After two weeks of severe and increasing pain in my legs and three GP appointments my blood was checked and I was admitted to hospital with a CRP of 330. I was initially put on Prednisolone at 60mg and gradually my CRP score improved. I then went through months where the pain seemed to move through my
Hightower62
in
NRAS
8 months ago
My CRP is over 100 and last week diagnosed with PMR
Add in the painful foot neuropathy from my diabetes and now on 20mg
prednisone
with morning glucoses running close to 400 and I am not in a good place. At night the
prednisone
tends to wear off. So last night all the pain came back as if I had no
prednisone
.
Add in the painful foot neuropathy from my diabetes and now on 20mg
prednisone
with morning glucoses running close to 400 and I am not in a good place. At night the
prednisone
tends to wear off. So last night all the pain came back as if I had no
prednisone
.
sdowney717
in
PMRGCAuk
1 year ago
Vasculitis/Tocilizumab
I have posted before regarding the fact that after a year on steroids and having many side effects I was told to reduce them by 1mg a month. My rheumatologist did not think I had PMR (diagnosed originally by GP). After 6 months of increasing pain and stiffness and down to 2mg I was able to have a
I have posted before regarding the fact that after a year on steroids and having many side effects I was told to reduce them by 1mg a month. My rheumatologist did not think I had PMR (diagnosed originally by GP). After 6 months of increasing pain and stiffness and down to 2mg I was able to have a
Daniella7
in
PMRGCAuk
8 months ago
Asthma attack recovery
Recently I was told my childhood asthma is back and this was diagnosed due too an asthma attack that left me in hospital for 4 days. It has really been stressful as my asthma attack was about a month ago and I don’t feel much better. Still coughing a lot, wheezing, tired and short of breath. I was
Recently I was told my childhood asthma is back and this was diagnosed due too an asthma attack that left me in hospital for 4 days. It has really been stressful as my asthma attack was about a month ago and I don’t feel much better. Still coughing a lot, wheezing, tired and short of breath. I was
kawaiicheater
in
Asthma Community Forum
8 months ago
Lupron and Abiraterone post treatment expectations?
Ive had RP; PSA didn’t go to zero; started Lupron and Abi +
Prednisone
and then 33 radiation treatments of whole pelvic region. PSA has been undetected for 7 mos now. Hope to stop all treatments after 6/24 Has anyone walked similar path? Did PSA stay at zero? Did libido return?
Ive had RP; PSA didn’t go to zero; started Lupron and Abi +
Prednisone
and then 33 radiation treatments of whole pelvic region. PSA has been undetected for 7 mos now. Hope to stop all treatments after 6/24 Has anyone walked similar path? Did PSA stay at zero? Did libido return?
jmarsh
in
Advanced Prostate Cancer
1 year ago
Missed dose and Adrenal Failure
Can
Prednisone
be taken instead of Prednisolone? I’m really hoping that I can sort this out today over the phone to my GP’s surgery and the pharmacy and don’t have to resort to missing doses but any information would be most welcome.
Can
Prednisone
be taken instead of Prednisolone? I’m really hoping that I can sort this out today over the phone to my GP’s surgery and the pharmacy and don’t have to resort to missing doses but any information would be most welcome.
Loco99
in
PMRGCAuk
1 year ago
"Flare"
Started on 40mg
prednisone
(after an 80mg shot!), and I gradually tapered to 12.5 mg several days ago. Started feeling some stiffness and then I had a total return of symptoms last night and this morning--as bad or worse than before starting steroids.
Started on 40mg
prednisone
(after an 80mg shot!), and I gradually tapered to 12.5 mg several days ago. Started feeling some stiffness and then I had a total return of symptoms last night and this morning--as bad or worse than before starting steroids.
Trinka13
in
PMRGCAuk
8 months ago
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