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Experiences with
Prednisone
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I’m back again …5th cycle 🤞
It feels very daunting , been over a year. Not planned to wait this long but had so many set backs. I had my laporoscopy surgery in June (after been cancelled 3 times ) , recovery and then a week before I was meant to start next cycle , I caught covid. I had an appointment last week with miscarriage
It feels very daunting , been over a year. Not planned to wait this long but had so many set backs. I had my laporoscopy surgery in June (after been cancelled 3 times ) , recovery and then a week before I was meant to start next cycle , I caught covid. I had an appointment last week with miscarriage
Rol81
in
Fertility Network UK
7 months ago
Prednisolone And Thinning Skin
Hi, I don’t post on here very often but I have a problem that I would like to share. I have been on Prednisolone for about eight years, since I was diagnosed with Polymyalgia; it caused my retirement at 64 years. I even posted a poem on here that I wrote, with the first line "Polly Myalgia, she
Hi, I don’t post on here very often but I have a problem that I would like to share. I have been on Prednisolone for about eight years, since I was diagnosed with Polymyalgia; it caused my retirement at 64 years. I even posted a poem on here that I wrote, with the first line "Polly Myalgia, she
Geodesic
in
PMRGCAuk
7 months ago
treatment for my husband
He has been treated with
prednisone
, BP meds, ace inhibitors since diagnosis they now think it is C3G. I am looking for treatment options or those also treated with
prednisone
. Drs have concern about long term side effects of
prednisone
. So far my husband has tolerated this treatment well.
He has been treated with
prednisone
, BP meds, ace inhibitors since diagnosis they now think it is C3G. I am looking for treatment options or those also treated with
prednisone
. Drs have concern about long term side effects of
prednisone
. So far my husband has tolerated this treatment well.
Dldant
in
C3 Glomerulopathy
1 year ago
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Medications on Planes
Hello! I was hoping to get some advice. I was wondering if anyone has had any problems with security and customs at airports, and if so was it easily resolved? Or what else have they asked for? Just want to be as prepared as possible. I'm off to Costa Rica in December flying from Gatwick airport with
Hello! I was hoping to get some advice. I was wondering if anyone has had any problems with security and customs at airports, and if so was it easily resolved? Or what else have they asked for? Just want to be as prepared as possible. I'm off to Costa Rica in December flying from Gatwick airport with
poppies_are_red
in
LUPUS UK
7 months ago
stiffness with reduction plan
I started on 20 mg of prednisolone early July and had reduced to 12mg by mid September without any problems. I caught Covid and pain returned but only in my left hip so I increased to 15mg for a couple of weeks while the pain subsided. During October I’ve decreased to 13.5mg and have some mild stiffness
I started on 20 mg of prednisolone early July and had reduced to 12mg by mid September without any problems. I caught Covid and pain returned but only in my left hip so I increased to 15mg for a couple of weeks while the pain subsided. During October I’ve decreased to 13.5mg and have some mild stiffness
Nanatoo
in
PMRGCAuk
7 months ago
Steroids, statins, strange query
I was put on 80mg Atvostatin mid Aug following a TIA/Afib episode and diagnosis. From mid September I started to suffer an intermittent throbbing, burning pain on the ball of my foot and last three toes. It comes on suddenly such as during the short 1 mile walk I’ve just completed. Bloods in Sept showed
I was put on 80mg Atvostatin mid Aug following a TIA/Afib episode and diagnosis. From mid September I started to suffer an intermittent throbbing, burning pain on the ball of my foot and last three toes. It comes on suddenly such as during the short 1 mile walk I’ve just completed. Bloods in Sept showed
Bluey-1
in
PMRGCAuk
7 months ago
Chemo (Docetaxel) with Prednisone
After a failed clinical trial (immunotherapy) I started Docetaxel 2 weeks ago and was prescribed
Prednisone
(5mg twice per day). I seem to be very sensitive to the
Prednisone
....having trouble sleeping, feeling anxious, etc. even when taking it at dinner at 6:00pm.
After a failed clinical trial (immunotherapy) I started Docetaxel 2 weeks ago and was prescribed
Prednisone
(5mg twice per day). I seem to be very sensitive to the
Prednisone
....having trouble sleeping, feeling anxious, etc. even when taking it at dinner at 6:00pm.
carguy
in
Advanced Prostate Cancer
1 year ago
past my sell by date
yesterday I had an eye test and the optician asked if I was “still !” using eye drops in my very dry eyes. He said I should do so hourly. I wasn’t aware I was supposed to but apparently they are so dry they account for the regular migraines I’ve been experiencing. Then the usual questions regarding
yesterday I had an eye test and the optician asked if I was “still !” using eye drops in my very dry eyes. He said I should do so hourly. I wasn’t aware I was supposed to but apparently they are so dry they account for the regular migraines I’ve been experiencing. Then the usual questions regarding
AnniesRyder5
in
PMRGCAuk
7 months ago
May second follow up appointment since new treatment
I had my 2nd follow up yesterday since start of zytiga,
Prednisone
and Lupron. All of my blood labs are within normal range, PSA continues to ⬇️ now at 2.6 (from 16) before treatment restart.
I had my 2nd follow up yesterday since start of zytiga,
Prednisone
and Lupron. All of my blood labs are within normal range, PSA continues to ⬇️ now at 2.6 (from 16) before treatment restart.
Blueribbon63
in
Advanced Prostate Cancer
1 year ago
In so much pain and feeling poorly
Hi folks, Last Friday while squeazing the edge of the mattress into the corner of a fitted sheet I had an excruciating shooting pain across the middle of my back. After that I could barely do anything without serious pain. Ever since, I've been falling asleep all day, had nausea, bloating & painful
Hi folks, Last Friday while squeazing the edge of the mattress into the corner of a fitted sheet I had an excruciating shooting pain across the middle of my back. After that I could barely do anything without serious pain. Ever since, I've been falling asleep all day, had nausea, bloating & painful
strawclutching
in
PMRGCAuk
7 months ago
Adrenal insufficiency and dosage
I searched this site but didn't find this article. For me the top takeaway was "[i]Mean prednisolone dose the last 3 months and basal P-cortisol were the best and simplest predictors of adrenal function."[/i] This conclusion seems to support the DSNS protocol(which I am using with success so far--thank
I searched this site but didn't find this article. For me the top takeaway was "[i]Mean prednisolone dose the last 3 months and basal P-cortisol were the best and simplest predictors of adrenal function."[/i] This conclusion seems to support the DSNS protocol(which I am using with success so far--thank
papadapadoo
in
PMRGCAuk
7 months ago
possible flare or low cortisol
Hi, reduced my prednisolone about 2 weeks ago to 4.5mg from 5mg and have been okay until today. A couple of twinges here and there but manageable. Today I’m feeling awful, headache, pain in back, legs, feet and shoulders/neck. Absolutely exhausted and feeling tearful. Could this be a flare do you think
Hi, reduced my prednisolone about 2 weeks ago to 4.5mg from 5mg and have been okay until today. A couple of twinges here and there but manageable. Today I’m feeling awful, headache, pain in back, legs, feet and shoulders/neck. Absolutely exhausted and feeling tearful. Could this be a flare do you think
Abcd123455
in
PMRGCAuk
7 months ago
Is it tapering or adrenals?
I'm in hols at the moment, so probably have doing a bit too much! However, today I have shortness of breath doing the slightest thing, even sitting down, and feeling faint and wobbly. I'm a bit better now I've rested all day.Do you think I just need to up my steroids for a couple of days(I've been
I'm in hols at the moment, so probably have doing a bit too much! However, today I have shortness of breath doing the slightest thing, even sitting down, and feeling faint and wobbly. I'm a bit better now I've rested all day.Do you think I just need to up my steroids for a couple of days(I've been
CoziNess
in
PMRGCAuk
7 months ago
Bright Lights and Halos
Hi, For a change, I am not asking for myself, but for a male friend who has literally just been diagnosed with PMR. He is on day five of taking 15mg Gastro costed Pred, and seeing an improvement in his symptoms. However yesterday he started to see massive halos around single point lights like street
Hi, For a change, I am not asking for myself, but for a male friend who has literally just been diagnosed with PMR. He is on day five of taking 15mg Gastro costed Pred, and seeing an improvement in his symptoms. However yesterday he started to see massive halos around single point lights like street
Songbird69
in
PMRGCAuk
7 months ago
it feels like I'll never get better
Hi! I've had constant air hunger every day since June. During my early teens, I was diagnosed with asthma caused by cats. I got prescribed Ventolin which I used when in contact with cats, it helped. I never had any other issues with asthma. As I was young, the allergy tests only confirmed me being
Hi! I've had constant air hunger every day since June. During my early teens, I was diagnosed with asthma caused by cats. I got prescribed Ventolin which I used when in contact with cats, it helped. I never had any other issues with asthma. As I was young, the allergy tests only confirmed me being
crabdip
in
Asthma Community Forum
7 months ago
reducing prednisone with slow method
I have been reducing for 2 months and have gone from 15mg daily to 12. Things are going pretty good. I have tweaked it a little and wonder what anyone thinks about it. In the past I have flared doing this and thought what can I do differently to help myself. I usually take my pred in the evening. Now
I have been reducing for 2 months and have gone from 15mg daily to 12. Things are going pretty good. I have tweaked it a little and wonder what anyone thinks about it. In the past I have flared doing this and thought what can I do differently to help myself. I usually take my pred in the evening. Now
Linny3
in
PMRGCAuk
1 year ago
Rate of Prednisone Decrease after Upping for a Flare
I like to separate thyroid med from
prednisone
and since I am a night owl (bad habit) that means I sometimes don’t take my
prednisone
until noon or later. Is this less than optimal timing? Thanks!
I like to separate thyroid med from
prednisone
and since I am a night owl (bad habit) that means I sometimes don’t take my
prednisone
until noon or later. Is this less than optimal timing? Thanks!
Donna5658
in
PMRGCAuk
1 year ago
Any ideas for travel insurance for those with PMR
I have been taking Prednisolone for PMR about 18 months now. Have tried hard to taper but following flares have now been told by Rheumy to go back to my original dose of 15 mg and start again from there. Today has been my first day back on the 15 and suddenly I am pain free and feel almost like before
I have been taking Prednisolone for PMR about 18 months now. Have tried hard to taper but following flares have now been told by Rheumy to go back to my original dose of 15 mg and start again from there. Today has been my first day back on the 15 and suddenly I am pain free and feel almost like before
Sukian
in
PMRGCAuk
7 months ago
update on subacute thyroiditis
I was eventually given a course of steroids as my ESR was stubbornly high (40mg
prednisone
) which was tapered off and B blockers to manage thyrotoxic symptoms. The steroids worked like magic and I’m now feeling so much better. I also started B complex vitamins and iron supplements.
I was eventually given a course of steroids as my ESR was stubbornly high (40mg
prednisone
) which was tapered off and B blockers to manage thyrotoxic symptoms. The steroids worked like magic and I’m now feeling so much better. I also started B complex vitamins and iron supplements.
Morey53
in
Thyroid UK
7 months ago
Wandering Scot presently living in Mexico and recently diagnosed with PMR
I know the risks of
prednisone
especially as I already have osteoporosis but I’m hoping I can mitigate those. When I started the
prednisone
I started a calcium supplement with vitamin D. I’ll also add vitamin K.
I know the risks of
prednisone
especially as I already have osteoporosis but I’m hoping I can mitigate those. When I started the
prednisone
I started a calcium supplement with vitamin D. I’ll also add vitamin K.
emsscot
in
PMRGCAuk
1 year ago
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