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Potassium iodide
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Frustrated and confused
Endo appointment yesterday. As usual it's not the same one as last time. Explain your history? Don't they have notes? I think you need to consider RAI or surgery as there is no proof that Carbimazole is safe for long term use although some people have been on it for 15 years !!! My response, I don't
Endo appointment yesterday. As usual it's not the same one as last time. Explain your history? Don't they have notes? I think you need to consider RAI or surgery as there is no proof that Carbimazole is safe for long term use although some people have been on it for 15 years !!! My response, I don't
purple64
in
Thyroid UK
5 years ago
Vaccines, Ibrutinib toxicity,Dr. Rai on a cure, Dr Ghia on TP563 testing and ERIC
I warned that our website's pages would be busy through the end of the year. I tried to synthesize the vaccine guidelines referenced here and elsewhere in this review: https://cllsociety.org/2019/10/vaccines-for-cll-patients/ Dr. Awan wrote for us on the recent news about Ibrutinib's effect on cardiovascular
I warned that our website's pages would be busy through the end of the year. I tried to synthesize the vaccine guidelines referenced here and elsewhere in this review: https://cllsociety.org/2019/10/vaccines-for-cll-patients/ Dr. Awan wrote for us on the recent news about Ibrutinib's effect on cardiovascular
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
From Canada
I had the same problem with burning after iodine use to clean the eye. Got them to stop using it problem solved. I ended up in emerg because of iodine there are other things to use .....stop using iodine !!
I had the same problem with burning after iodine use to clean the eye. Got them to stop using it problem solved. I ended up in emerg because of iodine there are other things to use .....stop using iodine !!
orangesky
in
Macular Society
5 years ago
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Rookie question
Hi there, I had a full thyroidectomy in summer 2018 (follicular and papillary cancer found), radioactive iodine at the end of last year and have been for a scan and blood tests (post Thyrogen injections) a couple of weeks ago. Thankfully all seems fine but I’m curious about the results of the thyroid
Hi there, I had a full thyroidectomy in summer 2018 (follicular and papillary cancer found), radioactive iodine at the end of last year and have been for a scan and blood tests (post Thyrogen injections) a couple of weeks ago. Thankfully all seems fine but I’m curious about the results of the thyroid
Cronkes76
in
Thyroid UK
5 years ago
Do I have pa?
Hi all, I'm curious about pa . I have had aneamia my whole life due to thalleseamia trait I have hypothyroidism after removal via radio iodine. My b12 sits at 300 usually but last 4 yrs on and off horrendous vertigo chronic tinnitus and weird sounds with intermittent loss lasts a few secs and ectopic
Hi all, I'm curious about pa . I have had aneamia my whole life due to thalleseamia trait I have hypothyroidism after removal via radio iodine. My b12 sits at 300 usually but last 4 yrs on and off horrendous vertigo chronic tinnitus and weird sounds with intermittent loss lasts a few secs and ectopic
Contra21
in
Pernicious Anaemia Society
5 years ago
MD Anderson/Mayo or Peter MacCallum for treatment?
Hi all, My husband is just diagnosed with CLL with WBC at 49, Platelet at 77, enlarged spleen 20 cm and enlarged liver 17 cm. 70% lymphocytes in bone marrow. The FISH test is not available yet until next week so the treatment plan is also not available. But seem that he’s on Stage IV under RAI classification
Hi all, My husband is just diagnosed with CLL with WBC at 49, Platelet at 77, enlarged spleen 20 cm and enlarged liver 17 cm. 70% lymphocytes in bone marrow. The FISH test is not available yet until next week so the treatment plan is also not available. But seem that he’s on Stage IV under RAI classification
writepa
in
CLL Support
5 years ago
Sterilization before Eylea shot
Hi all. I am in the USA. I have previously read that, in Europe, Iodine is used to sterilize & prep the eye just before the shot, but some people have a reaction to the iodine & must switch to something else. My Retina Specialists here in the USA use Betadine. For a long time it was fine with me,
Hi all. I am in the USA. I have previously read that, in Europe, Iodine is used to sterilize & prep the eye just before the shot, but some people have a reaction to the iodine & must switch to something else. My Retina Specialists here in the USA use Betadine. For a long time it was fine with me,
Retired130
in
Macular Society
5 years ago
Future heart problems
Do people who have had rai like myself and on thyroxine develop heart problems later in life?? Is there a connection? I manage my thyroid well and see a dr but seeing another endo as my ectopics are scaring me and unsure if thyroid related. Been checked had tests all ok for heart bit am.curious if we
Do people who have had rai like myself and on thyroxine develop heart problems later in life?? Is there a connection? I manage my thyroid well and see a dr but seeing another endo as my ectopics are scaring me and unsure if thyroid related. Been checked had tests all ok for heart bit am.curious if we
anetap4545
in
Thyroid UK
5 years ago
Thyroid Nodule Testing is endless
Hi Guys I'm brand new here and desperately hopeful that I will find others in a similar situation who can reassure me that this endless waiting for a diagnosis is normal. I presented to my GP in June this year with what I was concerned were symptoms of hypothyroidism - Sudden weight gain, constipation
Hi Guys I'm brand new here and desperately hopeful that I will find others in a similar situation who can reassure me that this endless waiting for a diagnosis is normal. I presented to my GP in June this year with what I was concerned were symptoms of hypothyroidism - Sudden weight gain, constipation
Roopidoo
in
Thyroid UK
5 years ago
Appointment with surgeon
Hi I have my appointment with the surgeon tomorrow and just wondered what to expect/ask. I have been referred by my endo as he asked me if I wanted surgery or RAI, even though he was trying to push me towards RAI i eel that surgery might be best. Just wondered what sort of questions I should ask. Thanks
Hi I have my appointment with the surgeon tomorrow and just wondered what to expect/ask. I have been referred by my endo as he asked me if I wanted surgery or RAI, even though he was trying to push me towards RAI i eel that surgery might be best. Just wondered what sort of questions I should ask. Thanks
Hidden
in
Thyroid UK
5 years ago
A-FIB
RAI for Graves 1992, Cytomel 100 mcg, Nature-throid 1-grain just got back from ER diagnosed with A-fib most recent blood-test TSH .01L (.40-4.50 mu/l), T4, Free .4L (.8 - 1.8 ng), T3, Reverse 6L (8-25 ng/dl) , T3 Free 3.2 (2.3 - 4.2 pg) I am trying to figure out what is going on. Are
RAI for Graves 1992, Cytomel 100 mcg, Nature-throid 1-grain just got back from ER diagnosed with A-fib most recent blood-test TSH .01L (.40-4.50 mu/l), T4, Free .4L (.8 - 1.8 ng), T3, Reverse 6L (8-25 ng/dl) , T3 Free 3.2 (2.3 - 4.2 pg) I am trying to figure out what is going on. Are
electriclade
in
Thyroid UK
5 years ago
Gp endos in north london or norwich
i heard Health Unlocked has a list of Gp's or private Dr and endos who are open regarding thyroid issues and treatment..i am currently in north London and may move to Norwich next year... i have not seen an endo for 20 years and every GP i've had since RAI back then, plus hospital has refused to consider
i heard Health Unlocked has a list of Gp's or private Dr and endos who are open regarding thyroid issues and treatment..i am currently in north London and may move to Norwich next year... i have not seen an endo for 20 years and every GP i've had since RAI back then, plus hospital has refused to consider
kildareD
in
Thyroid UK
5 years ago
Heart and thyroid
Hi all i have a q, has anyone been on thyroxine after rai from graves amd subsequently became hypothyroid. Can u develop heart problems from being in thyroxine forever. Last 4 yrs I've had ectopics on amd off and don't know where they are coming from I worry could my thyroid give me heart problems
Hi all i have a q, has anyone been on thyroxine after rai from graves amd subsequently became hypothyroid. Can u develop heart problems from being in thyroxine forever. Last 4 yrs I've had ectopics on amd off and don't know where they are coming from I worry could my thyroid give me heart problems
Contra21
in
Thyroid UK
5 years ago
Graves’ disease 2 years on
Hi, got diagnosed 2 years ago and what a roller coaster! Still in carbimazole 20mg but feeling lethargic, thyroid swelling up periodically and generally feeling like 💩. Bloods done a few days ago so will ring up consultant to see what is what. My question is, can I stay on carbimazole for longer? I
Hi, got diagnosed 2 years ago and what a roller coaster! Still in carbimazole 20mg but feeling lethargic, thyroid swelling up periodically and generally feeling like 💩. Bloods done a few days ago so will ring up consultant to see what is what. My question is, can I stay on carbimazole for longer? I
Welshmumm
in
Thyroid UK
5 years ago
Hair loss help!!!
I usually have v.thick wavy silver hair glossy with life..since hyper thyroid diagnosis and one year later radioactive iodine theatment and now hypo..hair began to fall out and i had patches with no hair at all and no eyebrows ..started to use kerastase shampoo and conditioner/ hair mask every week and
I usually have v.thick wavy silver hair glossy with life..since hyper thyroid diagnosis and one year later radioactive iodine theatment and now hypo..hair began to fall out and i had patches with no hair at all and no eyebrows ..started to use kerastase shampoo and conditioner/ hair mask every week and
Hurtlocker
in
Thyroid UK
5 years ago
Just egg?
Good morning, Has anyone ever tried just egg? I don’t think you can buy it in the Uk so it’s probably available in Australia and USA so I’m sure it will come this way with all things plant based taking off as they have. Here is the ingredients list Ingredients: Water, Mung Bean Protein Isolate, Expeller-Pressed
Good morning, Has anyone ever tried just egg? I don’t think you can buy it in the Uk so it’s probably available in Australia and USA so I’m sure it will come this way with all things plant based taking off as they have. Here is the ingredients list Ingredients: Water, Mung Bean Protein Isolate, Expeller-Pressed
Agoodenough
Administrator
in
Vegan Foods for Life
5 years ago
Iodine contrast dye with Hashimoto`s
Hi folks :) I`m to have a CT scan in a few weks, + gp has said it wil involve me being injected with an iodine based dye to make stuff show up on scan. Am rather concerned about the effect of the iodine on my already poorly thyroid. I have Hashi`s. Has anyone any experience of this at all please? Many
Hi folks :) I`m to have a CT scan in a few weks, + gp has said it wil involve me being injected with an iodine based dye to make stuff show up on scan. Am rather concerned about the effect of the iodine on my already poorly thyroid. I have Hashi`s. Has anyone any experience of this at all please? Many
catsmummel
in
Thyroid UK
5 years ago
Possible MS ??? About see 3rd neurologist...steady decline since Feb 2019
Hello im not from the UK. But ive searched high and low for answers. Anyone please help and thank u in advance! I had thyroid removed dec 2018 d/t PTC no RAI needed. U knoe the drill they slowly started increasing dose with goal TSH 0.5 . I started off 75mcg levothyroxine and then 88...i first noticed
Hello im not from the UK. But ive searched high and low for answers. Anyone please help and thank u in advance! I had thyroid removed dec 2018 d/t PTC no RAI needed. U knoe the drill they slowly started increasing dose with goal TSH 0.5 . I started off 75mcg levothyroxine and then 88...i first noticed
BethanyOxe
in
My MSAA Community
5 years ago
looking for dr in shefgield abd north london knowledgeable to treat thyroid and other sutoimmune isdues
hi does anyone know a knowledgeable dr endo for graves near sheffgield; and treatment after years on T4 following RAI but now with a lot of autoimmune issues near north london please..i dont know if it ok to ask ?
hi does anyone know a knowledgeable dr endo for graves near sheffgield; and treatment after years on T4 following RAI but now with a lot of autoimmune issues near north london please..i dont know if it ok to ask ?
kildareD
in
Thyroid UK
5 years ago
Toxic multi nodular thyroid
Thank you so much for all your replies. Very much appreciated. I have been getting copies of my blood results. Will try to get everything together and post on site. Didn’t know carbimazole could be stayed on long term if doing ok with it. Endo said I could only have it for 18 months because it was too
Thank you so much for all your replies. Very much appreciated. I have been getting copies of my blood results. Will try to get everything together and post on site. Didn’t know carbimazole could be stayed on long term if doing ok with it. Endo said I could only have it for 18 months because it was too
Bluesammy
in
Thyroid UK
5 years ago
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