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Polyglucosan body disease
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PIP listing health conditions
Hi, I received the forms to apply for PIP today. on the question asking about health conditions, dqo you list everything going on? Or just the most debilitating ones?I have seronegative inflammatory arthritis, fibromyalgia and osteoarthritis which affect me severely on a daily basis. But I also have
Hi, I received the forms to apply for PIP today. on the question asking about health conditions, dqo you list everything going on? Or just the most debilitating ones?I have seronegative inflammatory arthritis, fibromyalgia and osteoarthritis which affect me severely on a daily basis. But I also have
hazelcats
in
NRAS
25 days ago
KIDNEY EQUITY FOR ALL
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
In honor of Black History Month we'd like to highlight KIDNEY EQUITY FOR ALL. This is a patient-focused, community-minded movement dedicated to ensuring that ALL kidney patients have access to high-quality, patient-centered kidney care from the moment of diagnosis to transplantation. To learn more about
JackieJ_NKF
Partner
in
Kidney Dialysis
6 months ago
Gel nails and lupus/raynauds
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Shann07
in
LUPUS UK
25 days ago
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Inflammatory arthritis & pulmonary embolisms?
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
YorkieBard
in
NRAS
26 days ago
REMINDER! Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until
Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until
michaellasmith
Administrator
in
LUPUS UK
27 days ago
letter received from gastro
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Good morning to you all, I would really value your opinions on the letter I received yesterday from gastro ( to my doctor) basically it said bloods are still normal and liver screen was unremarkable which I know is good as it means normal so I’m really pleased with that, I just wish I knew what was
Sophia1968
in
British Liver Trust
6 months ago
PAIN PATH studies
Many people with rheumatoid arthritis suffer from pain every day. NRAS are working with researchers at Keele University to undertake two new studies to improve how pain is treated in people with rheumatoid arthritis and other types of inflammatory arthritis. The first study involves people with inflammatory
Many people with rheumatoid arthritis suffer from pain every day. NRAS are working with researchers at Keele University to undertake two new studies to improve how pain is treated in people with rheumatoid arthritis and other types of inflammatory arthritis. The first study involves people with inflammatory
Aribah-NRAS
NRAS
in
NRAS
27 days ago
Accept nothing question everything...with the proviso that you are well informed
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Everything that I have been complaining about for 8 years has now been seen on MRI. The private MRI that I paid for last week. Some of the best money I have ever spent. Not only do I have 'florid' synovitis in my hands, I have widespread enhanced bone erosions in both hands and feet. I also have
Mmrr
in
NRAS
28 days ago
Low red cell count but eat lots of red meat!
Hello again, just wanted to check this out with people as I do get quite tired in the afternoon and need to rest. Is this anaemia and so do I supplement with iron? Is there a good one for people with hashimotos?I have been told I have weak digestion and I feel I don't absorb things like iron very well
Hello again, just wanted to check this out with people as I do get quite tired in the afternoon and need to rest. Is this anaemia and so do I supplement with iron? Is there a good one for people with hashimotos?I have been told I have weak digestion and I feel I don't absorb things like iron very well
Pinkpetite
in
Thyroid UK
28 days ago
people with parents of lupus
hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum better !! if anyone could help and give tips thats so so appreciated :)
hey!! im a teen living with a mum struggling with lupus + bipolar and i would love to learn more about lupus and what it affects so i can easily help my mum better !! if anyone could help and give tips thats so so appreciated :)
b99lover
in
LUPUS UK
29 days ago
Gulten free diet with lupus
Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested to hear peoples experiences. Thank you
Hi just been researching gulten free diet for lupus to help with inflamation. Is anyone doing this or tried it and found any benefit. Id be really interested to hear peoples experiences. Thank you
Flows
in
LUPUS UK
29 days ago
LIVER TEST panel results GGT ALT ALP BILIRUBIN
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Hello people , I was having strange symtoms so had a Liver Test and had a shocking GGT high result ! Anyone else ??
Pulsar25
in
British Liver Trust
6 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
6 months ago
New lupus treatment trial recruiting now
This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE (systemic lupus erythematosus). This trial is recruiting now. You can find out more information about the trial in our article here: https://lupusuk.org.uk
This post has been sponsored by Bristol Myers Squibb. A new trial is assessing whether a type of immunosuppressant is safe and effective for people with SLE (systemic lupus erythematosus). This trial is recruiting now. You can find out more information about the trial in our article here: https://lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
29 days ago
Thyroid Scan
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis I’m curious to know what would show up on the scan to indicate autoimmune thyroid disease as opposed to it being caused by subacute thyroiditis.
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis I’m curious to know what would show up on the scan to indicate autoimmune thyroid disease as opposed to it being caused by subacute thyroiditis.
Dizzy444
in
Thyroid UK
30 days ago
I made another MS video….
Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust! https://youtu.be/ocsFgWVw9rA
Hi everybody! I made a review video of my favorite MS related creators on YouTube. Enjoy! MULTIPLE SCLEROSIS ALL STARS on YT that you can trust! https://youtu.be/ocsFgWVw9rA
irhunter
in
My MSAA Community
30 days ago
Arthritis and P.A
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Today the g.p. has told me that the mri I had shows arthritis in my upper back and neck. He says its likely to be osteoarthritis rather than rheumatoid arthritis. I told him I have pain every day and it's bad. I also have pain in my hip, elbow and hands. He said to have more blood tests and see the physio
Suesue246
in
Pernicious Anaemia Society
1 month ago
Too much b12?
As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in the other months and take Clean b12 tablets daily. As I thought your body can’t overdose I’ve been taking two b12 at night instead of one, and
As a coeliac I don’t absorb b12 and after much stress with doctors I had the 2wks of loading doses and one every 3 mths with doctor. I pay for an injection in the other months and take Clean b12 tablets daily. As I thought your body can’t overdose I’ve been taking two b12 at night instead of one, and
Palum
in
Pernicious Anaemia Society
1 month ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
6 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
6 months ago
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