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Polyglucosan body disease
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confused?
Just want to say that although I am confused I am also thankful with the results I received following an US. Making this short I have been diagnosed with Cryptogenic cirrhosis following abnormal bloods and Fibroscan. As per NICE guidelines I have bloods taken every 6 months and US. I have also had
Just want to say that although I am confused I am also thankful with the results I received following an US. Making this short I have been diagnosed with Cryptogenic cirrhosis following abnormal bloods and Fibroscan. As per NICE guidelines I have bloods taken every 6 months and US. I have also had
0range5520
in
British Liver Trust
5 months ago
Updating my husband's journey, hoping it helps others - any words of encouragement are welcome, but please only positive comments
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
The first part is in my profile. It makes me feel vulnerable to share, but we have benefited enormously from reading others' stories, so I'm sharing. UPDATE: 8/18/21 PSA =0.45 9/6/21 last dose Orgovyx 9/7/21 First Eligard 3 month shot 9/17/21 PSA =0.78 10/18/21 PSA =1.28 Nov not tested 12
SuppWife
in
Advanced Prostate Cancer
5 months ago
Assistant Dogs.
I searched google a few years ago about assistant dogs because I thought I need one of them, but I got nowhere. Today I saw a demonstration of an assistant dog at work, it brought me to tears because it showed me just how much I do need one, how good , helpful it would be. I really think it would
I searched google a few years ago about assistant dogs because I thought I need one of them, but I got nowhere. Today I saw a demonstration of an assistant dog at work, it brought me to tears because it showed me just how much I do need one, how good , helpful it would be. I really think it would
saxcat
in
Fibromyalgia Action UK
2 hours ago
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RA and rashes
hi, I’m just wondering if you can get rashes with RA.. I’ve developed a few patches of small rashes possibly a bit like hives, though one is a circular rash (which aware could be ringworm but don’t think it is).. also aware these may just be fungal rashes. we have lupus in the family and although
hi, I’m just wondering if you can get rashes with RA.. I’ve developed a few patches of small rashes possibly a bit like hives, though one is a circular rash (which aware could be ringworm but don’t think it is).. also aware these may just be fungal rashes. we have lupus in the family and although
Sapphire1701
in
NRAS
7 hours ago
Lupus connected to Radiation
I recently read an article where someone felt that Lupus was connected to radiation exposure. Around 1989 I had a full radiation treatment for breast cancer. Back then they radiated your entire side back to front and I had horrific burns. 25 years later I was diagnosed with Sjogrens and Lupus. Has anyone
I recently read an article where someone felt that Lupus was connected to radiation exposure. Around 1989 I had a full radiation treatment for breast cancer. Back then they radiated your entire side back to front and I had horrific burns. 25 years later I was diagnosed with Sjogrens and Lupus. Has anyone
DogHospiceMom
in
LUPUS UK
22 hours ago
Patient's view least important in diagnosis 🙄
Who'd have thought it? Research for Lupus Trust and in a Sjogren's UK newsletter but very applicable for us and others...https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead685/7473364?login=false UPDATE: larger photos of all three pages of the article uploaded below.
Who'd have thought it? Research for Lupus Trust and in a Sjogren's UK newsletter but very applicable for us and others...https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/kead685/7473364?login=false UPDATE: larger photos of all three pages of the article uploaded below.
Agitator23
in
Thyroid UK
23 hours ago
After 25 years they have stopped my B12 - what can I do?
I'm in my early sixties. Generally very good health. On no medication. About twenty five years ago my then brilliant GP did a blood test for B12. A few days later rang me to come to the surgery immediately where he injected B12 himself. Apparently I had dangerously low levels of B12 that indicated I
I'm in my early sixties. Generally very good health. On no medication. About twenty five years ago my then brilliant GP did a blood test for B12. A few days later rang me to come to the surgery immediately where he injected B12 himself. Apparently I had dangerously low levels of B12 that indicated I
DIYenthusiast
in
Pernicious Anaemia Society
1 day ago
overactive to underactive
Hi Everyone, I’m a newbie to all this but i certainly need some advice as i feel like im in the dark with my doctors and endocrinologists i don’t exactly know anything apart from having an overactive thyroid which was treated for 18months then went into remission but came back 8months later then thyroid
Hi Everyone, I’m a newbie to all this but i certainly need some advice as i feel like im in the dark with my doctors and endocrinologists i don’t exactly know anything apart from having an overactive thyroid which was treated for 18months then went into remission but came back 8months later then thyroid
Leeleemarksy86
in
Thyroid UK
1 day ago
has anyone got Lupus in their eyes?
I have been told I have Lupus in my eyes. Does anyone else have this? Thank you
I have been told I have Lupus in my eyes. Does anyone else have this? Thank you
drobbie
in
LUPUS UK
2 days ago
PBC & Lupus
Hi, I'm just wondering if anyone here has Lupus along with PBC? I have developed a distinct butterfly rash on my face that has been appearing on and off over the last few weeks. In late 2022 I became aware that a blood pressure med I was taking seemed to be causing a rash. If I stopped it, the rash went
Hi, I'm just wondering if anyone here has Lupus along with PBC? I have developed a distinct butterfly rash on my face that has been appearing on and off over the last few weeks. In late 2022 I became aware that a blood pressure med I was taking seemed to be causing a rash. If I stopped it, the rash went
Turquoise2075
in
PBC Foundation
2 days ago
Sle lupus
Hi I have sle lupus , my skin is itching 24/7, plus dreadful spasms of pain any tips? , also awaiting to see a new rhematologist for some treatment.
Hi I have sle lupus , my skin is itching 24/7, plus dreadful spasms of pain any tips? , also awaiting to see a new rhematologist for some treatment.
Sunflower1921
in
NRAS
3 days ago
are atrophic gastritis and pernicious anemia the same thing
hello all, I was wondering if the atrophic gastritis and PA are the same thing.
hello all, I was wondering if the atrophic gastritis and PA are the same thing.
JesusMercy60
in
Pernicious Anaemia Society
4 days ago
Bupa Doctor Recommendations for Hashimotos, Hypothyroidism and Pernicious Anaemia
Hi! I'm looking for recommendations for specialists in these areas: Hashimotos Hypothyroidism Pernicious Anaemia The recommendations are for my wife who has Bupa private healthcare so if anyone has recommendations for bupa that would be great, however, I'd be happy to hear other private doctors
Hi! I'm looking for recommendations for specialists in these areas: Hashimotos Hypothyroidism Pernicious Anaemia The recommendations are for my wife who has Bupa private healthcare so if anyone has recommendations for bupa that would be great, however, I'd be happy to hear other private doctors
mxnero
in
Thyroid UK
4 days ago
thyroid cancer
my husband’s latest PSMA showed a possible thyroid cancer. Anyone here developed a secondary cancer perhaps due to advanced PC treatment (chemo, radiation)? This is too much while dealing with the PC
my husband’s latest PSMA showed a possible thyroid cancer. Anyone here developed a secondary cancer perhaps due to advanced PC treatment (chemo, radiation)? This is too much while dealing with the PC
Jojoteacher
in
Advanced Prostate Cancer
5 days ago
Self-Management Tips
Hello to our lovely Health Unlocked Community! We’re excited to share some helpful tips on self-managing arthritis to empower you in making informed decisions about your health and wellbeing. Self-management means taking control of your condition by using techniques that work best for you to manage
Hello to our lovely Health Unlocked Community! We’re excited to share some helpful tips on self-managing arthritis to empower you in making informed decisions about your health and wellbeing. Self-management means taking control of your condition by using techniques that work best for you to manage
arthritis_action
Partner
in
Arthritis Action
5 days ago
Vitamin B12
Did you know that the symptoms of B12 deficiency are similar to hypothyroidism? https://thyroiduk.org/if-you-are-hypothyroid/the-importance-of-vitamins-and-minerals-hypo/checking-for-b12-deficiency-and-pernicious-anaemia/
Did you know that the symptoms of B12 deficiency are similar to hypothyroidism? https://thyroiduk.org/if-you-are-hypothyroid/the-importance-of-vitamins-and-minerals-hypo/checking-for-b12-deficiency-and-pernicious-anaemia/
TUKOffice
Thyroid UK
in
Thyroid UK
5 days ago
Appointment with Endocrinologist (finally)
Hi all, trust everyone is well, after 7 months of waiting for all my thyroid results from my doctors and receiving nothing even after I requested them on more than one occasion and went in to speak to them, I have now received an appointment for endo. I had a total thyroidectomy when I was 17 because
Hi all, trust everyone is well, after 7 months of waiting for all my thyroid results from my doctors and receiving nothing even after I requested them on more than one occasion and went in to speak to them, I have now received an appointment for endo. I had a total thyroidectomy when I was 17 because
JILalways
in
Thyroid UK
6 days ago
coeliac safe Levo?
I have been taking levo for five years. 6 months into this I was diagnosed with coeliac disease (after my GP accused me of not taking my meds as my bloods kept coming back with no change and I was still very unwell). I asked my pharmacist at the drs to find me a gluten free levo tablet. They said TEVA
I have been taking levo for five years. 6 months into this I was diagnosed with coeliac disease (after my GP accused me of not taking my meds as my bloods kept coming back with no change and I was still very unwell). I asked my pharmacist at the drs to find me a gluten free levo tablet. They said TEVA
Coeliacmama
in
Thyroid UK
6 days ago
Stills disease or other arthritis pain
Adult onset Stills disease diagnosed aged 17 in 1979 now 62 and not on RA drugs just pain relief and self management by living within the boundaries of what the condition allows. 2023 brought stress and may be the cause of worsening joint pain and new symptoms possible down to autoimmune thyroiditis
Adult onset Stills disease diagnosed aged 17 in 1979 now 62 and not on RA drugs just pain relief and self management by living within the boundaries of what the condition allows. 2023 brought stress and may be the cause of worsening joint pain and new symptoms possible down to autoimmune thyroiditis
Stills
in
NRAS
7 days ago
Can pernicious anaemia be caused by long term use of lansoprazole?
Hello everyone, I am a lady of 67. Ive been taking lansoprazole for years. Then I began to feel ill with various symptoms the doctor was not interested in or would virtually say I was a hypocondriac. I nagged and got sent to a consultant who said I had neurological problems caused by fibromylgia and
Hello everyone, I am a lady of 67. Ive been taking lansoprazole for years. Then I began to feel ill with various symptoms the doctor was not interested in or would virtually say I was a hypocondriac. I nagged and got sent to a consultant who said I had neurological problems caused by fibromylgia and
wiserlady
in
Pernicious Anaemia Society
7 days ago
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