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Experiences with
Plaquenil
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Dryness issues
Rheumy wanted me to try
plaquenil
but gp wasn't keen, probably because I'm on so many meds already. I use what I think is a steroid nasal spray but Is that just adding to the problems by drying everything out ? Any advice?? Many thanks x
Rheumy wanted me to try
plaquenil
but gp wasn't keen, probably because I'm on so many meds already. I use what I think is a steroid nasal spray but Is that just adding to the problems by drying everything out ? Any advice?? Many thanks x
Littlemissmuffet
in
LUPUS UK
8 years ago
Let's start this over
I am now taking
plaquenil
. Anyone on this and how well does it work? I still didn't get answers on my rash especially my butterfly rash, my ankles swelling, itchiness, light sensitivity, and the fatigue. But after my self deleted rant i am grateful that I'm one step closer.
I am now taking
plaquenil
. Anyone on this and how well does it work? I still didn't get answers on my rash especially my butterfly rash, my ankles swelling, itchiness, light sensitivity, and the fatigue. But after my self deleted rant i am grateful that I'm one step closer.
Ratana21
in
LUPUS UK
8 years ago
Another work day missed!
Have been lucky do far and only on
plaquenil
, not sure what the next stage could be. Also worried now about work as I just seem to be so exhausted all of the time. Feel so lost at the moment and hard to stay positive. Do any of you have tips on how to manage work and tiredness?
Have been lucky do far and only on
plaquenil
, not sure what the next stage could be. Also worried now about work as I just seem to be so exhausted all of the time. Feel so lost at the moment and hard to stay positive. Do any of you have tips on how to manage work and tiredness?
kareng74
in
LUPUS UK
8 years ago
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Pradaxa (Dabigatran) V's Warfarin
I have APLS and SLE and have been on warfarin +
plaquenil
since 2005. Wondering if it has worked for you? Benefits and are have you had any bad side effects? Do you think it is too new a drug to take the chance in switching? Thanks for your help Linda
I have APLS and SLE and have been on warfarin +
plaquenil
since 2005. Wondering if it has worked for you? Benefits and are have you had any bad side effects? Do you think it is too new a drug to take the chance in switching? Thanks for your help Linda
Linda72
in
Hughes Syndrome APS Forum
8 years ago
Churg Strauss and Gastritus
Having been diagnosed with Churg Strauss syndrome over 4 years ago it seems to be under control with Methotrexate and
Plaquenil
.
Having been diagnosed with Churg Strauss syndrome over 4 years ago it seems to be under control with Methotrexate and
Plaquenil
.
sarahdollygirl
in
Vasculitis UK
8 years ago
Confused - ?RA with no signs of inflammation on hand sono
Rheum believes I have RA(son seronegative RA) but questions if I have Lupus also (sister Lupus and I use to get circular red patches and mouth sores before starting
plaquenil
).
Rheum believes I have RA(son seronegative RA) but questions if I have Lupus also (sister Lupus and I use to get circular red patches and mouth sores before starting
plaquenil
).
NY65
in
NRAS
8 years ago
20 years of RA frustrations?
I just know that I was put on 2
Plaquenil
a day right away by my GP and then I was scheduled for a Rheumy appt 3 weeks later, where he put me on 20 mg Prednisone and Methotrexate injections weekly along with the folic acid daily except for Meth date.
I just know that I was put on 2
Plaquenil
a day right away by my GP and then I was scheduled for a Rheumy appt 3 weeks later, where he put me on 20 mg Prednisone and Methotrexate injections weekly along with the folic acid daily except for Meth date.
Arrlly1
in
Cure Arthritis Community
8 years ago
Thinning hair because of mctd
Hello, about a year ago i was diagnosed with mctd and i have lost about half of the amount of hair on my head...it sure makes me feel ugly and also frustrated because my hair was always thick and shiny...now its thin and dull looking :-(... iam on
plaquenil
and it stopped the hair to fall out.
Hello, about a year ago i was diagnosed with mctd and i have lost about half of the amount of hair on my head...it sure makes me feel ugly and also frustrated because my hair was always thick and shiny...now its thin and dull looking :-(... iam on
plaquenil
and it stopped the hair to fall out.
stonehard
in
LUPUS UK
8 years ago
Newly diagnosed and unsure
Started
Plaquenil
7weeks ago. Not much changed. I have been having cramps in my neck/shoulders, including an acute bout of bursitis. Normal? Not sure what's common, normal or expected.
Started
Plaquenil
7weeks ago. Not much changed. I have been having cramps in my neck/shoulders, including an acute bout of bursitis. Normal? Not sure what's common, normal or expected.
Leroa
in
NRAS
8 years ago
Lupus,rash, prednisone
I'm on many medications including
plaquenil
,cellcept, warfarin, and a turmeric curium supplement. I eat a diet similar to paleo only I do eat some dairy and very low sodium. I just want to get off steroids, and feel better. Any suggestions for supplements or anything to help me?
I'm on many medications including
plaquenil
,cellcept, warfarin, and a turmeric curium supplement. I eat a diet similar to paleo only I do eat some dairy and very low sodium. I just want to get off steroids, and feel better. Any suggestions for supplements or anything to help me?
Saladbar
in
LUPUS UK
8 years ago
So fed up 😢😢
day , read loads of posts on here and you all help me so much thanks I'm not alone see rheumatologist regularly but as I was going on holiday he put back my injections as I had to learn by nurse to do these myself been back 4 weeks and heard nothing in a way I'm glad fed up with medication so just on
plaquenil
day , read loads of posts on here and you all help me so much thanks I'm not alone see rheumatologist regularly but as I was going on holiday he put back my injections as I had to learn by nurse to do these myself been back 4 weeks and heard nothing in a way I'm glad fed up with medication so just on
plaquenil
Harrisgran1
in
LUPUS UK
8 years ago
Update on cardiac catherization and saw new Rheumatologist today!
Thx any info on
Plaquenil
wud be greatly appreciated!
Thx any info on
Plaquenil
wud be greatly appreciated!
Debbweb01
in
Hughes Syndrome APS Forum
8 years ago
yeast and Sjogren's
I also wonder if the
Plaquenil
is interfering with my immune fighting the fungus. Does anyone have this problem and can suggest remedy?
I also wonder if the
Plaquenil
is interfering with my immune fighting the fungus. Does anyone have this problem and can suggest remedy?
wsjkcj1
in
LUPUS UK
8 years ago
Nose sores?
When I am off
plaquenil
and ldn I get the rash on my face. I go through periods of flare where the pain is intense in all areas to the point I can barely walk or bend to even put my underware on. Now I keep getting sores inside my nostrils.
When I am off
plaquenil
and ldn I get the rash on my face. I go through periods of flare where the pain is intense in all areas to the point I can barely walk or bend to even put my underware on. Now I keep getting sores inside my nostrils.
jillmd
in
LUPUS UK
8 years ago
Lupus, rash, prednisone
I'm on many medications including
plaquenil
,cellcept, warfarin, and a turmeric curium supplement. I eat a diet similar to paleo only I do eat some dairy and very low sodium. I just want to get off steroids, and feel better. Any suggestions for supplements or anything to help me?
I'm on many medications including
plaquenil
,cellcept, warfarin, and a turmeric curium supplement. I eat a diet similar to paleo only I do eat some dairy and very low sodium. I just want to get off steroids, and feel better. Any suggestions for supplements or anything to help me?
Saladbar
in
PMRGCAuk
8 years ago
Mgb123
Rheumy immediately started me on
plaquenil
, aspirin, for joint pain, aches,, fatigue, gastro issues, etc. then 6mos. later started on Depakote for my lupus fog, or migraines.
Rheumy immediately started me on
plaquenil
, aspirin, for joint pain, aches,, fatigue, gastro issues, etc. then 6mos. later started on Depakote for my lupus fog, or migraines.
Dickenson
in
LUPUS UK
8 years ago
Racing heart and severe left chest pain has landed me in hospital.
based there.Was assessed and kept in.Had a few CT scans with dye blood and kidney tests,iv antibiotic, have heart monitor on till tomorrow.all in less than 24 hours.Rhuemy and cardiologist arrived early this morning and now have a pulmonary specialist and have a bronchoscopy in the morning.Have to stop
plaquenil
based there.Was assessed and kept in.Had a few CT scans with dye blood and kidney tests,iv antibiotic, have heart monitor on till tomorrow.all in less than 24 hours.Rhuemy and cardiologist arrived early this morning and now have a pulmonary specialist and have a bronchoscopy in the morning.Have to stop
plaquenil
Circles
in
LUPUS UK
8 years ago
Skin discouloration
Hi all, can I ask if anyone who is taking medication e.g..
plaquenil
,tinzaparin ,has experienced skin discoloration when Waring jewellery. My SOS bracelet is turning my wrist green.It's gold plated and wasn't cheap. The lady in the jewellers said it might be because I'm taking these drugs.
Hi all, can I ask if anyone who is taking medication e.g..
plaquenil
,tinzaparin ,has experienced skin discoloration when Waring jewellery. My SOS bracelet is turning my wrist green.It's gold plated and wasn't cheap. The lady in the jewellers said it might be because I'm taking these drugs.
Elfie1
in
Hughes Syndrome APS Forum
8 years ago
Bicycling and numb feet
I am currently on Methotrexate (25mg weekly) and
Plaquenil
(200mg BID). If I unclip my feet, the numbness subsides fairly quickly but once i clip back in, the numbness will return. Any tips appreciated.
I am currently on Methotrexate (25mg weekly) and
Plaquenil
(200mg BID). If I unclip my feet, the numbness subsides fairly quickly but once i clip back in, the numbness will return. Any tips appreciated.
dwallenburg
in
Cure Arthritis Community
8 years ago
Have to stop Azathioprine
Ive been told to stop my aza and
plaquenil
immediately as my white cells are so low. My blood work will be repeated in 1 week. Has anyone experience of this and will I get to continue on aza as it was helping my symptoms alot?
Ive been told to stop my aza and
plaquenil
immediately as my white cells are so low. My blood work will be repeated in 1 week. Has anyone experience of this and will I get to continue on aza as it was helping my symptoms alot?
Shann07
in
LUPUS UK
8 years ago
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