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Plaquenil
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if my diagnosis & treatment for SLE took years to arrive, is the prior progression of my condition at all reversible?
Hope this makes sense....I'm very greatful to have finally been diagnosed 2+ years ago and immediately put on
plaquenil
400mg which is helping a bit generally, but disability in my extremities (due to a typically complicated mix of issues) and fatigue don't seem to be reducing.
Hope this makes sense....I'm very greatful to have finally been diagnosed 2+ years ago and immediately put on
plaquenil
400mg which is helping a bit generally, but disability in my extremities (due to a typically complicated mix of issues) and fatigue don't seem to be reducing.
Barnclown
in
LUPUS UK
11 years ago
Headaches..... Ugh
Was diagnosed 13 years ago and have been on
plaquenil
that long......now for a week my headaches have returned.... Every morning when I get up and every night Before I go to bed.... This is so frustrating, you can only take So much ibuprofen....
Was diagnosed 13 years ago and have been on
plaquenil
that long......now for a week my headaches have returned.... Every morning when I get up and every night Before I go to bed.... This is so frustrating, you can only take So much ibuprofen....
Lilylupy
in
LUPUS UK
11 years ago
Pain in arms and legs.
I have sero negative hughes and was started on
Plaquenil
(every other day) at my last appt at St T's in October. I noticed it was helping the joint pain a bit by January, however now I am getting pains in my arms and legs as well my joints.
I have sero negative hughes and was started on
Plaquenil
(every other day) at my last appt at St T's in October. I noticed it was helping the joint pain a bit by January, however now I am getting pains in my arms and legs as well my joints.
huds
in
Hughes Syndrome APS Forum
11 years ago
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Why oh why did u stop taking plaquenil
I started taking azathioprine about a year ago along with steroids,
plaquenil
, pain killers etc and, apart from the pleurisy which will not shift, I was feeling generally better.
I started taking azathioprine about a year ago along with steroids,
plaquenil
, pain killers etc and, apart from the pleurisy which will not shift, I was feeling generally better.
jennywren444
in
LUPUS UK
11 years ago
Numbness in hands
I'm not on steroids at the moment, only on
Plaquenil
. As some of the symptoms for lupus are similar to vasculitis, and given that both respond to steroid treatment, I'm wondering whether these two separate symptoms have been "mislabeled". Does anyone suffer from such numbness, please?
I'm not on steroids at the moment, only on
Plaquenil
. As some of the symptoms for lupus are similar to vasculitis, and given that both respond to steroid treatment, I'm wondering whether these two separate symptoms have been "mislabeled". Does anyone suffer from such numbness, please?
Purpletop
in
Vasculitis UK
11 years ago
So Much Anxiety
The Rheumy diagnosed me with RA and started me on methoxerate and
plaquenil
. That didn't help. Then my doctor tried me on other meds, half of which I can't even remember anymore. All of which I had some sort of bad reaction. Turned out I'm allergic to NSAIDs.
The Rheumy diagnosed me with RA and started me on methoxerate and
plaquenil
. That didn't help. Then my doctor tried me on other meds, half of which I can't even remember anymore. All of which I had some sort of bad reaction. Turned out I'm allergic to NSAIDs.
Lynn610
in
NRAS
11 years ago
Plaquenil, anyone taking this, and have hearing loss?
Wife has been taking
Plaquenil
for about 4 weeks... starting to get some hearing loss, anyone ever have any or some hearing loss?
Wife has been taking
Plaquenil
for about 4 weeks... starting to get some hearing loss, anyone ever have any or some hearing loss?
Skyllark
in
Hughes Syndrome APS Forum
11 years ago
New here
The thought that maybe something like
Plaquenil
or even warfarin helping seems wonderful. I take gabapentin, tramadol & paracetamol but can't say that they really do much. Sorry to ramble on but I'm just hoping that the jigsaw is finally coming together. Thanks
The thought that maybe something like
Plaquenil
or even warfarin helping seems wonderful. I take gabapentin, tramadol & paracetamol but can't say that they really do much. Sorry to ramble on but I'm just hoping that the jigsaw is finally coming together. Thanks
rosiemay
in
Hughes Syndrome APS Forum
11 years ago
Stopped plaquenil on account of tinnitus
This constant noise has really dragged me down again I just hope the
plaquenil
was the cause and it will get a bit quieter again.
This constant noise has really dragged me down again I just hope the
plaquenil
was the cause and it will get a bit quieter again.
Jade
in
Hughes Syndrome APS Forum
11 years ago
First Cyclosphosphamide Infusion
<sigh> Drugs I m taking now is on Pred. 40mg daily, Calcium & VD3 supplements, and
Plaquenil
on alternate days because it has an issue with my eyes. I wanted to stop it permanently but my rheumy told me otherwise...
<sigh> Drugs I m taking now is on Pred. 40mg daily, Calcium & VD3 supplements, and
Plaquenil
on alternate days because it has an issue with my eyes. I wanted to stop it permanently but my rheumy told me otherwise...
nass361
in
LUPUS UK
11 years ago
Plaquenil and blood tests?
I've never been told to have regular blood tests while on
Plaquenil
, nor can I understand why they might be thought necessary. Eye tests, yes, but not blood tests. Anybody else come across this?
I've never been told to have regular blood tests while on
Plaquenil
, nor can I understand why they might be thought necessary. Eye tests, yes, but not blood tests. Anybody else come across this?
Coppernob
in
Hughes Syndrome APS Forum
11 years ago
Hello,not blogged for a while! and WELCOME any new members from over the last few weeks!
Meanwhile I am on a new treatment called LDN.. this is my own experiment, under a GP in Glasgow, as I am one of the unlucky people not suited to
Plaquenil
, I had a serious reaction, however it suits my young daughter beautifully.
Meanwhile I am on a new treatment called LDN.. this is my own experiment, under a GP in Glasgow, as I am one of the unlucky people not suited to
Plaquenil
, I had a serious reaction, however it suits my young daughter beautifully.
MaryF
Administrator
in
Hughes Syndrome APS Forum
11 years ago
Plaquenil and increased tinnitus, anybody had this?
I started
plaquenil
in January and now my tinnitus is getting louder again. I really don't know if its the
plaquenil
but to be honest if I thought it was I would give it up as I prefer pain to mental torture and spending my life with an internal orchestra. Has anybody else had this problem?
I started
plaquenil
in January and now my tinnitus is getting louder again. I really don't know if its the
plaquenil
but to be honest if I thought it was I would give it up as I prefer pain to mental torture and spending my life with an internal orchestra. Has anybody else had this problem?
Jade
in
Hughes Syndrome APS Forum
11 years ago
New Patient
I have currently been put in
Plaquenil
200mg/day and have started medication today. I hope you can give me some kind words of support.
I have currently been put in
Plaquenil
200mg/day and have started medication today. I hope you can give me some kind words of support.
ksharma
in
Hughes Syndrome APS Forum
11 years ago
Undiagnosed...& new here!
I get Lupus-like reactions to drugs eg
Plaquenil
, Clexane. Recently I developed profound weakness & a couple of weeks later, serositis/peritonitis-like episode where abdomen swelled, bloated & was tender.
I get Lupus-like reactions to drugs eg
Plaquenil
, Clexane. Recently I developed profound weakness & a couple of weeks later, serositis/peritonitis-like episode where abdomen swelled, bloated & was tender.
AusBehcets
in
Behçet's UK
11 years ago
Couple more questions, sorry!!
I have SLE and Sjorgens possibly MCTD, I am on
plaquenil
and Azathiaprione along with a cocktail of other meds. The ulcers 'downstairs' have only started since being off the steroids. So I am supposedly on effective treatment for my illness.
I have SLE and Sjorgens possibly MCTD, I am on
plaquenil
and Azathiaprione along with a cocktail of other meds. The ulcers 'downstairs' have only started since being off the steroids. So I am supposedly on effective treatment for my illness.
dizzy2
in
Behçet's UK
11 years ago
Anyone else take Mepacrine?
I was put on Mepacrine by the Prof in 2002 because allergic to
Plaquenil
. I have horrid black marks on my nails and what look like bruises on my legs which apparently is due to taking it.
I was put on Mepacrine by the Prof in 2002 because allergic to
Plaquenil
. I have horrid black marks on my nails and what look like bruises on my legs which apparently is due to taking it.
panda60
in
Hughes Syndrome APS Forum
11 years ago
Plaquenil
My rheumy started me on
Plaquenil
10 months ago, even though I don't have a lupus diagnosis he thought it would help with the fatigue.
My rheumy started me on
Plaquenil
10 months ago, even though I don't have a lupus diagnosis he thought it would help with the fatigue.
Mair
in
Hughes Syndrome APS Forum
11 years ago
lyrica side effects
At the same time my
plaquenil
dose was increased so I don't know which change had the positive effect I experienced (reduced fatigue). Over the past couple of weeks I have been really struggling with brain fog.
At the same time my
plaquenil
dose was increased so I don't know which change had the positive effect I experienced (reduced fatigue). Over the past couple of weeks I have been really struggling with brain fog.
crazyk
in
LUPUS UK
11 years ago
Has anyone developed a blood disorder since their diagnosis with RA?
I am sero-negative and MTX, Sulphasalazine,
Plaquenil
, steroids and NSAIDs are all off the menu now! Thank you.
I am sero-negative and MTX, Sulphasalazine,
Plaquenil
, steroids and NSAIDs are all off the menu now! Thank you.
Ellenkay
in
NRAS
11 years ago
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