I am 51 years old and finally saw a rheumatologist a few weeks ago. I know I'm looking at this forum without knowing that I have Hughes but my blood test for anticardolon? has come back borderline positive. I have to have another test in 3 months and I know it's crazy but I'm hoping it's positive.
I've had livedo retikulous? since aged 10 plus loads of other seemingly unrelated problems. I just want a name for it.
I have suffered dizziness since childhood, every kind going, which no medication has helped. I suffer bouts of extreme exhaustion plus daily tiredness but learnt pacing myself years ago. I had 2 miscarriages but as they were at 5 weeks I didn't realize that they could be linked to this but luckily have 3 children. My memory is shocking and I can't remember names at all now, even though that didn't used to me a problem.
I suffer with what I call 3 day headaches where my arms go numb and have flashing lights on a daily basis. When my last child was born I lost the vision in one eye for half a day but put it down to stress although this hasn't happened since and I have had pleurisy on many occasions. Plus I hurt from head to toe ALL the time. I also have bouts of shooting pains behind my ears and in my arms at the same time, then it goes away again for months.
The rheumy said I have fibromyalgia and osteoathritis, which is a start and I have to thank a lovely physio for pushing me into demanding to see a rheumy.
I work full time but am self employed, so if I need to sleep for 18 hours, I can do lol.
My sister has lupus and sjorgrens and we have a family history of strokes and heart attacks at an early age.
The thought that maybe something like Plaquenil or even warfarin helping seems wonderful. I take gabapentin, tramadol & paracetamol but can't say that they really do much.
Sorry to ramble on but I'm just hoping that the jigsaw is finally coming together.