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PMR vs Fibro - follow up to my post
Thanks for all the comments on my first post. It was very helpful. So I put in an e consult to make an appointment with doc for review of my PMR and pred dosage. I arrived at the surgery and discovered that I actually had an appointment with the physio, not the doc. So much for AI! 🙄 Anyway, we
Thanks for all the comments on my first post. It was very helpful. So I put in an e consult to make an appointment with doc for review of my PMR and pred dosage. I arrived at the surgery and discovered that I actually had an appointment with the physio, not the doc. So much for AI! 🙄 Anyway, we
Gimme
in
PMRGCAuk
5 months ago
Syringomyelia and physical therapy
Hello. My daughter has been diagnosed with this condition. Permanent pain is a feature. She also has arachnoiditis. Both are rare conditions (although they can go undiagnosed for years so not sure how really rare they are) I was hoping to connect with anyone who has similar issues. Also, specifically
Hello. My daughter has been diagnosed with this condition. Permanent pain is a feature. She also has arachnoiditis. Both are rare conditions (although they can go undiagnosed for years so not sure how really rare they are) I was hoping to connect with anyone who has similar issues. Also, specifically
looby24
in
Pain Concern
5 months ago
Constipation caused by pelvic floor dysfunction
I have been diagnosed with obstructive defecation syndrome (pelvic floor dysfunction) from a proctogram - I’ve been given
physiotherapy
and it hasn’t worked. I’ve asked to be referred for biofeedback and my doctor says they won’t do anything else. Does anyone have any advice?
I have been diagnosed with obstructive defecation syndrome (pelvic floor dysfunction) from a proctogram - I’ve been given
physiotherapy
and it hasn’t worked. I’ve asked to be referred for biofeedback and my doctor says they won’t do anything else. Does anyone have any advice?
Pinkcrystal5
in
Pelvic Pain Support Network
1 year ago
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Physio???
Hi all, I hope you're all as well as can be expected. Just a quick question. I've just been offered physio. Did anyone find physio helpful, or is it a waste of what little physical strength we have. Scared it'll make my pains worse. Thanks guys.x
Hi all, I hope you're all as well as can be expected. Just a quick question. I've just been offered physio. Did anyone find physio helpful, or is it a waste of what little physical strength we have. Scared it'll make my pains worse. Thanks guys.x
Purple7265
in
Fibromyalgia Action UK
5 months ago
rheumatologist appt
Hi everyone. Hope all good, After waiting for rheumatologist appt for 14 months, recieved a txt today for appt. But after waiting for such a long time, I don't even know what am I going for. All I remember when GP said have ro see rheumatologist but for what!! My physio and GP said I got FMS then what
Hi everyone. Hope all good, After waiting for rheumatologist appt for 14 months, recieved a txt today for appt. But after waiting for such a long time, I don't even know what am I going for. All I remember when GP said have ro see rheumatologist but for what!! My physio and GP said I got FMS then what
Cleverclog22
in
Fibromyalgia Action UK
5 months ago
Advice please
After yesterday's post, which ended on a high, he's taken a step back today. They said he's been unsettled in the night and still is this morning. They changed his sedation to one that leaves the system within 10 minutes, and they took him off it at 6 this morning. The physio is with him working on his
After yesterday's post, which ended on a high, he's taken a step back today. They said he's been unsettled in the night and still is this morning. They changed his sedation to one that leaves the system within 10 minutes, and they took him off it at 6 this morning. The physio is with him working on his
Hidden
in
British Heart Foundation
5 months ago
Cardiac Rehab update!
First session yesterday! Gym looked like a torture chamber 🤣Talked through all the equipment as I embarked..not as hard as I thought.. physio very reassuring and pulse oximeter used to monitor me. Great banter amongst the 3 ladies and numerous men...🏴🏴🏴All activities
First session yesterday! Gym looked like a torture chamber 🤣Talked through all the equipment as I embarked..not as hard as I thought.. physio very reassuring and pulse oximeter used to monitor me. Great banter amongst the 3 ladies and numerous men...🏴🏴🏴All activities
Catwifie
in
British Heart Foundation
5 months ago
Co-morbidity issues
As if the unknowns about PMR weren't enough ! My recent flare happened as I was actually doing physical therapy for some lower back pain related to disc / nerve problems. And the PT was quite helpful, so the condition seemed to be resolving. But one morning my hips and low back were suddenly so
As if the unknowns about PMR weren't enough ! My recent flare happened as I was actually doing physical therapy for some lower back pain related to disc / nerve problems. And the PT was quite helpful, so the condition seemed to be resolving. But one morning my hips and low back were suddenly so
Bahba
in
PMRGCAuk
5 months ago
Pelvic floor therapy after menopause
Hi, I am in the US, so a few things are different, but I am looking for help. I have MS, and I have muscle tightness or spasticity in other places as well as pelvic pain and tightness of my hip flexors. When I the hip pain worsens, so does the pelvic pain. I found a specialist who wants me to use vaginal
Hi, I am in the US, so a few things are different, but I am looking for help. I have MS, and I have muscle tightness or spasticity in other places as well as pelvic pain and tightness of my hip flexors. When I the hip pain worsens, so does the pelvic pain. I found a specialist who wants me to use vaginal
CatsandCars
in
Pelvic Pain Support Network
5 months ago
Helpful Hints Wanted
I'm 70 years old with PPMS (diagnosed Oct 2022). I had a heart attack three weeks ago, two stents via heart cath. I'm trying to get exercise to help recovery but MS fatigue making it hard. Even my MS exercise routine is hard to complete now. My Cardiologist says I have a chance at recovering heart
I'm 70 years old with PPMS (diagnosed Oct 2022). I had a heart attack three weeks ago, two stents via heart cath. I'm trying to get exercise to help recovery but MS fatigue making it hard. Even my MS exercise routine is hard to complete now. My Cardiologist says I have a chance at recovering heart
alsorenson
in
My MSAA Community
5 months ago
Auto immune encephalitis
My father was diagnosed with autoimmune encephalitis, after experiencing seizures and deja vu, approx 12 months ago, he was treated with steroids. He subsequently developed diabetes and 9 weeks ago was admitted to hospital after developing a leg infection. The leg infection was treated successfully.
My father was diagnosed with autoimmune encephalitis, after experiencing seizures and deja vu, approx 12 months ago, he was treated with steroids. He subsequently developed diabetes and 9 weeks ago was admitted to hospital after developing a leg infection. The leg infection was treated successfully.
WhippetMum101
in
Encephalitis International
5 months ago
Persistent pelvic pain & next to no support. Does anyone know of any support groups or services, please?
Hi - I was diagnosed with interstitial cystitis last April, and have experienced ongoing pelvic pain since I caught covid in September 2022. Next two paragraphs are just venting, request for resources is in the last paragraph if you want to skip it. I have vaginal pain, bladder pain, and stabbing pain
Hi - I was diagnosed with interstitial cystitis last April, and have experienced ongoing pelvic pain since I caught covid in September 2022. Next two paragraphs are just venting, request for resources is in the last paragraph if you want to skip it. I have vaginal pain, bladder pain, and stabbing pain
purpleheresy
in
Pelvic Pain Support Network
5 months ago
Exercisedduring and after Cancer Treatment,
Although I am informed that there is some
Physiotherapy
involved in some cases.
Although I am informed that there is some
Physiotherapy
involved in some cases.
Vindicatrix
in
CLL Support
1 year ago
RA meds & Peri menopuase
Hello, I have had ra for 15 years now, been on meds for 10. Been on Enbrel injection and methotrexate and have all been fine until last year . 2 years. Apparently I am prei menopausal and my physio mentioned that you could be on RA drugs for years and they work fine but you hit pre menopause and it stops
Hello, I have had ra for 15 years now, been on meds for 10. Been on Enbrel injection and methotrexate and have all been fine until last year . 2 years. Apparently I am prei menopausal and my physio mentioned that you could be on RA drugs for years and they work fine but you hit pre menopause and it stops
pammi2
in
NRAS
6 months ago
Help with whether leg pain is side effect of brand of levo prescribed
Hi Everyone I had a parathyroidectomy in January 2023 which resulted in me being hypothyroid (TSH 22.) I was put on 50mg levo which following quarterly blood tests was increased to 75mg in May and 100 mg in November. My blood test last week finally saw my TSH in normal range. It is 2.94 mU/L (range
Hi Everyone I had a parathyroidectomy in January 2023 which resulted in me being hypothyroid (TSH 22.) I was put on 50mg levo which following quarterly blood tests was increased to 75mg in May and 100 mg in November. My blood test last week finally saw my TSH in normal range. It is 2.94 mU/L (range
Vivirose
in
Thyroid UK
6 months ago
feeling a bit overwhelmed and lost
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
opalescenthope
in
LUPUS UK
6 months ago
Bronchiectasis, Asthma, para oesophageal lymph node enlarges and Gord
Hi,I was diagnosed with mild asthma in 20 14, but rarely needed blue inhaler. During the pandemic I fell ill with a tubo ovarian abcess which I was hospitalised for week . This made me quite ill for a few months and as a result I didn't exercise as much and gained some weight. After everything went back
Hi,I was diagnosed with mild asthma in 20 14, but rarely needed blue inhaler. During the pandemic I fell ill with a tubo ovarian abcess which I was hospitalised for week . This made me quite ill for a few months and as a result I didn't exercise as much and gained some weight. After everything went back
Laurapeil
in
Asthma Community Forum
6 months ago
Leg Pain pt 3
Writing again because one of you lovely people suggested I saw my MRI results for myself. She was right, my doctor said it was wear and tear in the back. Keep taking the painkillers and walk. But I did see the results and it is Grade 1 degenerative spondylolisthesis. He did not suggest physio. But
Writing again because one of you lovely people suggested I saw my MRI results for myself. She was right, my doctor said it was wear and tear in the back. Keep taking the painkillers and walk. But I did see the results and it is Grade 1 degenerative spondylolisthesis. He did not suggest physio. But
Alloagirl
in
Pain Concern
6 months ago
Neck ache - PMR? I don't think so.
I've had horrible neck pain (ache) for 5 days now. Okay overnight but as soon as I am sitting at my screen (I am there a lot) I am in pain. My px'd analgesia isn't working much and I can only get comfort from slumping down on the sofa and supporting my upper back. 10 years ago my neck was Xray-d and
I've had horrible neck pain (ache) for 5 days now. Okay overnight but as soon as I am sitting at my screen (I am there a lot) I am in pain. My px'd analgesia isn't working much and I can only get comfort from slumping down on the sofa and supporting my upper back. 10 years ago my neck was Xray-d and
IdasMum
in
PMRGCAuk
6 months ago
vestibular migraine nightmare
Hi everyone. I just at my wits end and wondered if anyone can help?’! Diagnosed with vestibular migraine 10 years ago by default as they did every test imaginable both ENT and Neurological and decided it had to be that and gave me propranolol and the following day it was a miracle. Hadn’t left house
Hi everyone. I just at my wits end and wondered if anyone can help?’! Diagnosed with vestibular migraine 10 years ago by default as they did every test imaginable both ENT and Neurological and decided it had to be that and gave me propranolol and the following day it was a miracle. Hadn’t left house
dobbo1234
in
National Migraine Centre
6 months ago
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