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Persistent atrial fibrillation
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OCD Institute - Houston
My adult son was recently referred to the OCD Institute in Houston for residential treatment. Has anyone had success there or can anyone share their experience there? He has been in outpatient treatment since the beginning of January and so far it is not working well. We are looking for any help we can
My adult son was recently referred to the OCD Institute in Houston for residential treatment. Has anyone had success there or can anyone share their experience there? He has been in outpatient treatment since the beginning of January and so far it is not working well. We are looking for any help we can
BrooksideBliss
in
My OCD Community
6 months ago
slow release liothyronine
Like many people on here I miss the wise opinion and knowledge of Diogenes enormously. I know he was working on the formulation of a slow release liothyronine which was in clinical trial. Does anyone have an update on this? is it any closer? In the meantime I am tempted to try sustained release compounded
Like many people on here I miss the wise opinion and knowledge of Diogenes enormously. I know he was working on the formulation of a slow release liothyronine which was in clinical trial. Does anyone have an update on this? is it any closer? In the meantime I am tempted to try sustained release compounded
Mollyfan
in
Thyroid UK
6 months ago
Pulsed Field Ablation (PFA) and Amiodarone
https://www.practiceupdate.com/C/152409/56?elsca1=emc_enews_topic-alert Awhile back, someone posted a link for the above site. It requires subscription (free) but has beneficial info on afib and other heart conditions. I cannot verify the veracity of the information but it does seem professional
https://www.practiceupdate.com/C/152409/56?elsca1=emc_enews_topic-alert Awhile back, someone posted a link for the above site. It requires subscription (free) but has beneficial info on afib and other heart conditions. I cannot verify the veracity of the information but it does seem professional
mav7
in
Atrial Fibrillation Support
1 year ago
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Palpitations
I know about the risks of stroke when you have Afib, and I take Warfarin, but just out of interest, do ordinary palpitations, like PVCs and SVEs also present a risk ? Annie
I know about the risks of stroke when you have Afib, and I take Warfarin, but just out of interest, do ordinary palpitations, like PVCs and SVEs also present a risk ? Annie
Tellingfibs
in
Atrial Fibrillation Support
1 year ago
Afib medications
I was diagnosed about half a year ago with Afib. I am trying to understand the medicines and their side effects better. I am currently on Amiodarone 200 mg and Metoprolol 50mg and have many unpleasant side effects. Need to get off these meds.
I was diagnosed about half a year ago with Afib. I am trying to understand the medicines and their side effects better. I am currently on Amiodarone 200 mg and Metoprolol 50mg and have many unpleasant side effects. Need to get off these meds.
abej
in
AF Association
1 year ago
Smell Training (Olfactory Training)
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post “Olfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinson’s”
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Smell Training (Olfactory Training)
March 18, 2024
This post is about Smell Training and is building on an earlier HU post “Olfactory enrichment improves olfactory ability in humans with olfactory loss due to Parkinson’s”
https://healthunlocked.com/cure-parkinsons/posts/150588869/olfactory-enrichment-improves-olfactory-ability-in-humans-with-olfactory-loss-due-to-parkinson-s
Bolt_Upright
in
Cure Parkinson's
6 months ago
Seeking anyone familiar with aggressive small cell neuroendocrine prostate cancer and/or with lurbinectedin as 2nd line chemotherapy.
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
A needle biopsy Oct 15, 2023 revealed that at least some of my metastatic prostate cancer in a lymph node had mutated to an aggressive small cell neuroendocrine prostate cancer. (notable for CDK N1B, RB1, Tp53 mutations. MSS, TMB low) I had 4 cycles of carboplatin/etoposide chemotherapy, which ended
silver5
in
Advanced Prostate Cancer
6 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
6 months ago
Webinar:Do magnifying intraocular lenses work for people with macular disease?
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Magnifying lenses, which are implanted are available to help those with macular disease see better. But, no trials have been done to prove how useful they are or who they are most suitable for. Dr Julie Silvestri from Royal Hospitals, Belfast, will be joining us for our first webinar of the month to
Carol_MacularSociety
Partner
in
Macular Society
6 months ago
Afib alert on fitbit
hiya haven’t posted for a while but was wondering if anyone could give some advice on afib heart rate while sleeping. I had an alert this morning on my Fitbit that I had a possible afib attack during the night. My heart rate went down as low as 36 and as high as 146. Should I be alarmed by this
hiya haven’t posted for a while but was wondering if anyone could give some advice on afib heart rate while sleeping. I had an alert this morning on my Fitbit that I had a possible afib attack during the night. My heart rate went down as low as 36 and as high as 146. Should I be alarmed by this
Corkel
in
Atrial Fibrillation Support
1 year ago
Feeling Disappointed
Following an ablation for SVT in January 2021 I have been problem free for two and a half years (at least heart wise). I began to feel breathless about three weeks ago and now am experiencing fairly regular runs of af. I have had an ablation for af in the past as well as surgery to repair leaky valves
Following an ablation for SVT in January 2021 I have been problem free for two and a half years (at least heart wise). I began to feel breathless about three weeks ago and now am experiencing fairly regular runs of af. I have had an ablation for af in the past as well as surgery to repair leaky valves
spinningjenny
in
AF Association
1 year ago
Amiodarone + AFIB
Hi. Just wondered if anyone had experienced any adverse effects of taking Amiodarone? I’ve just completed week 1 of the “loading dose” (200mg x 3 times a day). Whilst it [i]has[/i] reduced the AFib heart rate dramatically (from approx 160 to approx 110), it hasn’t stopped the AFib, which has become
Hi. Just wondered if anyone had experienced any adverse effects of taking Amiodarone? I’ve just completed week 1 of the “loading dose” (200mg x 3 times a day). Whilst it [i]has[/i] reduced the AFib heart rate dramatically (from approx 160 to approx 110), it hasn’t stopped the AFib, which has become
Dippy22
in
AF Association
1 year ago
Chemo or clinical trial?
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
Am scheduled for bone biopsy of met(s) from my hip tomorrow. Stopped Pluvicto after #3 due to rising PSA and progression. Hoping to get next gen. sequencing from biopsy sample and (maybe) functional testing. But, it's going to take some time to get results and I feel I can't wait. Pain has been getting
rsgdmd
in
Advanced Prostate Cancer
6 months ago
Bovine thyroid supplement
Hi , Has anyone heard of or used Grass fed beef thyroid supplements for thyroid support . I was checking out thyroid support supplements and came across this by a company called Ancestral supplements. Can anybody please recommend a thyroid support supplement that can help . Thankyou.
Hi , Has anyone heard of or used Grass fed beef thyroid supplements for thyroid support . I was checking out thyroid support supplements and came across this by a company called Ancestral supplements. Can anybody please recommend a thyroid support supplement that can help . Thankyou.
moljanie
in
Thyroid UK
1 year ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
6 months ago
The Importance of Peer-Review
Even renowned oncologists can fall in love with their data. It takes the impartial analysis of an outside expert to see the confirmation bias that may be blinding the lead investigator of a Phase 3 clinical trial. Although Phase 3 trials are Level 1 evidence, they still must be graded by outside experts
Even renowned oncologists can fall in love with their data. It takes the impartial analysis of an outside expert to see the confirmation bias that may be blinding the lead investigator of a Phase 3 clinical trial. Although Phase 3 trials are Level 1 evidence, they still must be graded by outside experts
Tall_Allen
in
Advanced Prostate Cancer
6 months ago
How long on Entresto
I would like to ask what’s the longest anyone on this post has been on Entresto. My cardiologist has patients who started on it back when the clinical trials began in 2015 and doing quite well.
I would like to ask what’s the longest anyone on this post has been on Entresto. My cardiologist has patients who started on it back when the clinical trials began in 2015 and doing quite well.
am1875
in
British Heart Foundation
6 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
7 months ago
Clinical Trial Starts Today
Morning folks, Sitting in clinic at Sarah Cannon Research Institute in Nashville getting my first dose of Phase 1 trial of a Xencor drug called XmAb808, which is an antibody that binds to tumor cells and immune cells called T cells. Baseline scans looked decent and all systems are go. Really blessed
Morning folks, Sitting in clinic at Sarah Cannon Research Institute in Nashville getting my first dose of Phase 1 trial of a Xencor drug called XmAb808, which is an antibody that binds to tumor cells and immune cells called T cells. Baseline scans looked decent and all systems are go. Really blessed
Pmann
in
Advanced Prostate Cancer
7 months ago
A different sort of vibrotactile device
Here is a picture of a different sort of vibrotactile device This one is intended for stroke victims. The article, https://www.medscape.com/viewarticle/promising-new-wearable-could-retrain-brain-after-stroke-2024a100044f?ecd=wnl_sci_tech_240306_MSCPEDIT_etid6355241&uac=415290AR&impID=6355241 says
Here is a picture of a different sort of vibrotactile device This one is intended for stroke victims. The article, https://www.medscape.com/viewarticle/promising-new-wearable-could-retrain-brain-after-stroke-2024a100044f?ecd=wnl_sci_tech_240306_MSCPEDIT_etid6355241&uac=415290AR&impID=6355241 says
Ctime
in
Cure Parkinson's
7 months ago
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