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Experiences with
Permanent atrial fibrillation
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Not in AF but so Breathless
Hi Everyone. I have only had two instances of AF since I was diagnosed in A&E in November 2022. My last occurance of AF was on 30 December. Since then my GP has let me come off the Diltiazem which had some unpleasant side effects but I am still on Flecainide 50mg twice daiy and Edoxoban. I bought a
Hi Everyone. I have only had two instances of AF since I was diagnosed in A&E in November 2022. My last occurance of AF was on 30 December. Since then my GP has let me come off the Diltiazem which had some unpleasant side effects but I am still on Flecainide 50mg twice daiy and Edoxoban. I bought a
MKG50
in
AF Association
1 year ago
High diastolic blood pressure
Been having issues over the last 6 months (and increasingly severe for the last 3 months after I had COVID) with feeling dizzy and like I am about to faint, with some shortness of breath and a pounding chest. I went to my doctor thinking that maybe it was just stress or anxiety. My blood pressure was
Been having issues over the last 6 months (and increasingly severe for the last 3 months after I had COVID) with feeling dizzy and like I am about to faint, with some shortness of breath and a pounding chest. I went to my doctor thinking that maybe it was just stress or anxiety. My blood pressure was
biitsy
in
Arrhythmia Alliance
1 year ago
Wait or start docetaxel?
Currently taking Nubeqa and Orgovyx but PSA doubling time is only 7 weeks and PSMA scan shows activity in abdominal lymph nodes, 2 vertebrae and 2 ribs. MO suggested DORA Clinical trial (everyone gets docetaxel, half get radium) but the head of a trial I was previously in at NIH feels that unless a CT
Currently taking Nubeqa and Orgovyx but PSA doubling time is only 7 weeks and PSMA scan shows activity in abdominal lymph nodes, 2 vertebrae and 2 ribs. MO suggested DORA Clinical trial (everyone gets docetaxel, half get radium) but the head of a trial I was previously in at NIH feels that unless a CT
AllenMarco
in
Advanced Prostate Cancer
6 months ago
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Clinical trial: keep an eye on this
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
First results should be available by the first months of 2024. Radiation Medication (Radium-223 Dichloride) Versus Radium-223 Dichloride Plus Radiation Enhancing Medication (M3814) Versus Radium-223 Dichloride Plus M3814 Plus Avelumab (a Type of Immunotherapy) for Advanced Prostate Cancer Not Responsive
Maxone73
in
Advanced Prostate Cancer
6 months ago
Heart Quiver
I have had Arterial Fibrillation since October 2021, was taken ill and had really high infection markers. On medication, had a Cardioversion in August last year, when I woke up was told back in rhythm, however, step outside the hospital, and it came back with a vengeance, (seems never happened that quickly
I have had Arterial Fibrillation since October 2021, was taken ill and had really high infection markers. On medication, had a Cardioversion in August last year, when I woke up was told back in rhythm, however, step outside the hospital, and it came back with a vengeance, (seems never happened that quickly
BHFK967
in
Atrial Fibrillation Support
1 year ago
Researchers add to existing evidence that vitamin B3 may help slow down the progression of Parkinson'
https://www.parkinsons.org.uk/news/more-research-shows-potential-benefits-vitamin-b3-parkinsons A new phase 1 clinical trial, the NR-SAFE study, has published promising signs that taking a high dose of vitamin B3 is safe, and can reduce some symptoms for people with Parkinson’s.
https://www.parkinsons.org.uk/news/more-research-shows-potential-benefits-vitamin-b3-parkinsons A new phase 1 clinical trial, the NR-SAFE study, has published promising signs that taking a high dose of vitamin B3 is safe, and can reduce some symptoms for people with Parkinson’s.
CuriousMe12
in
Cure Parkinson's
6 months ago
Cancer causation -- inflammation and statistics
https://www.newyorker.com/magazine/2023/12/18/all-the-carcinogens-we-cannot-see Those of us whose cancer is quiet don't want to wake it up, but nobody knows for sure what to do (or not do). This article provides some food for thought and offers the opportunity for us to revisit our views about the
https://www.newyorker.com/magazine/2023/12/18/all-the-carcinogens-we-cannot-see Those of us whose cancer is quiet don't want to wake it up, but nobody knows for sure what to do (or not do). This article provides some food for thought and offers the opportunity for us to revisit our views about the
mistersafety
in
Advanced Prostate Cancer
6 months ago
Slow pulse after ablation
My normal sinus pulse is 55 to 60 resting. Digoxin and flecanide have sent it even lower.Also meds are giving me all sorts of different rhythms and pauses. My cardiologist will do an ablation but says I may need a pacemaker after. Anyone with experience of bradycardia from drugs ?
My normal sinus pulse is 55 to 60 resting. Digoxin and flecanide have sent it even lower.Also meds are giving me all sorts of different rhythms and pauses. My cardiologist will do an ablation but says I may need a pacemaker after. Anyone with experience of bradycardia from drugs ?
Cassag
in
AF Association
1 year ago
New Member
Hello everyone. I just joined and was asked to introduce myself so I am simply pasting the bio I wrote when joining. It pretty much describes my story. I will read more of the existing posts before I start asking a lot of questions. I look forward to being part of the group! Bio: I began having episodes
Hello everyone. I just joined and was asked to introduce myself so I am simply pasting the bio I wrote when joining. It pretty much describes my story. I will read more of the existing posts before I start asking a lot of questions. I look forward to being part of the group! Bio: I began having episodes
SJP123
in
AF Association
1 year ago
Restless Leg Syndrome, neuromodulation..
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
Treatment was well tolerated, and no adverse events were reported. Our case series shows a potential role for self-administered taVNS in patients with severe pharmacoresistant RLS. Hartley S, Bao G, Russo A, Zagdoun M, Chevallier S, Lofaso F, Leotard A, Azabou E. Self-administered non-invasive vagus
House2
in
Restless Legs Syndrome
7 months ago
questioning plan of care
My AFib usually starts with a few ectopics and the an irregular HR but usually low 60/80 I’m running out of triggers !! Mostly it just happens randomly , I’m seeing my ep cardiologist on Friday and I’m going to ask if there is a plan of care or do I just carry on till it gets worse . I am on apixaban
My AFib usually starts with a few ectopics and the an irregular HR but usually low 60/80 I’m running out of triggers !! Mostly it just happens randomly , I’m seeing my ep cardiologist on Friday and I’m going to ask if there is a plan of care or do I just carry on till it gets worse . I am on apixaban
Linesteps
in
AF Association
1 year ago
pacemaker & defibrillator
I’ve been told I need a pacemaker/ Defibrillator fitted quite soon. My heart failure has only gone up from 33% to 35% heart pumping function and although stable my symptoms are worrying and I need help from these devices. My tablets can’t be increased as I have low blood pressure and would make my symptoms
I’ve been told I need a pacemaker/ Defibrillator fitted quite soon. My heart failure has only gone up from 33% to 35% heart pumping function and although stable my symptoms are worrying and I need help from these devices. My tablets can’t be increased as I have low blood pressure and would make my symptoms
honeybubs
in
British Heart Foundation
1 year ago
afib/svt
I had ablation for svt around 7 years ago and then cryoablation for afib 6 years ago. I am taking both a blood thinner and a small dose of beta blocker While I have felt an occasional off beat it wasn’t until Friday that I entered tachycardia of around 109. I had not taken the beta blocker the night
I had ablation for svt around 7 years ago and then cryoablation for afib 6 years ago. I am taking both a blood thinner and a small dose of beta blocker While I have felt an occasional off beat it wasn’t until Friday that I entered tachycardia of around 109. I had not taken the beta blocker the night
Kmwh
in
AF Association
1 year ago
Stop Prednisone completely?
I was diagnosed with PMR about one year ago and placed on 13mg of P. It hit me most in the shoulders and hips: e.g., I could not pull up my trousers because the action of doing so naturally moves your elbows towards the rear of the center line of one's body and that caused great pain. Could also
I was diagnosed with PMR about one year ago and placed on 13mg of P. It hit me most in the shoulders and hips: e.g., I could not pull up my trousers because the action of doing so naturally moves your elbows towards the rear of the center line of one's body and that caused great pain. Could also
Mansplainer101
in
PMRGCAuk
8 months ago
Old new approach! MYC inhibitors
myc is a gene present in most kinds of cancer, something has reached clinical trials at last! https://www.peptomyc.com/results-revealed-from-phase-i-clinical-trial-of-the-first-drug-to-successfully-inhibit-the-myc-gene-which-drives-many-common-cancers/
myc is a gene present in most kinds of cancer, something has reached clinical trials at last! https://www.peptomyc.com/results-revealed-from-phase-i-clinical-trial-of-the-first-drug-to-successfully-inhibit-the-myc-gene-which-drives-many-common-cancers/
Maxone73
in
Advanced Prostate Cancer
7 months ago
Advances in solid tumors: finnish clinical trial
Interesting results are coming! Bexmarilimab seems to be able to improve immunotherapy. It was not yet tested on prostate cancer, but it's already commercially used to treat blood malignacies. As single agent: https://www.faron.com/our-science/clinical-trials/matins "Latest data showed a three-fold
Interesting results are coming! Bexmarilimab seems to be able to improve immunotherapy. It was not yet tested on prostate cancer, but it's already commercially used to treat blood malignacies. As single agent: https://www.faron.com/our-science/clinical-trials/matins "Latest data showed a three-fold
Maxone73
in
Advanced Prostate Cancer
7 months ago
Need to Change Treatment
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
Trissh
in
SHARE Metastatic Breast Cancer
7 months ago
Intense jaw pain (pt.2)
Three months ago my husband developed intense right jaw pain. After multiple scans showing "something" (thankfully no PSMA activity) he had a surgical bone biopsy 11/29. Two days ago we received the pathology report but have not been able to speak with the Dr. to help us understand it. The good news
Three months ago my husband developed intense right jaw pain. After multiple scans showing "something" (thankfully no PSMA activity) he had a surgical bone biopsy 11/29. Two days ago we received the pathology report but have not been able to speak with the Dr. to help us understand it. The good news
Decktime
in
Advanced Prostate Cancer
7 months ago
ST-067 in combination with pembrolizumab clinical trial
https://www.moffitt.org/clinical-trials-and-studies/clinical-trial-21340/
https://www.moffitt.org/clinical-trials-and-studies/clinical-trial-21340/
Maxone73
in
Advanced Prostate Cancer
7 months ago
Anyone can access this article?
"As Bertagnolli steps in, NIH and FDA reenvision clinical trials and evidence generation"..it could be the modernization of clinical trials I have been waiting for The only Monica Bertagnolli I knew was a tough girl, I want to see if this Monica is also such a tough cookie https://cancerletter.com
"As Bertagnolli steps in, NIH and FDA reenvision clinical trials and evidence generation"..it could be the modernization of clinical trials I have been waiting for The only Monica Bertagnolli I knew was a tough girl, I want to see if this Monica is also such a tough cookie https://cancerletter.com
Maxone73
in
Advanced Prostate Cancer
7 months ago
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