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Experiences with
Permanent atrial fibrillation
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Keynote 365 Trial
Hey fellas, Seeing my MO tomorrow about enrolling in the Keynote 365 clinical trial with Keytruda in combination with another drug. Has anybody had any experience with Keytruda? Did it work for you? SE’s? I’m 17 years into this journey, castrate resistant, failed Xtandi, and recently failed Docetaxel
Hey fellas, Seeing my MO tomorrow about enrolling in the Keynote 365 clinical trial with Keytruda in combination with another drug. Has anybody had any experience with Keytruda? Did it work for you? SE’s? I’m 17 years into this journey, castrate resistant, failed Xtandi, and recently failed Docetaxel
deano58
in
Advanced Prostate Cancer
5 months ago
Atrial Flutter?
I had a very similar experience. About four weeks after my RF ablation my heart rate jumped from a very steady 60 to a very steady 135. ( I have an I CD that maintains my heart rate at 60) my EP called, said I was in atrial flutter, and did a cardioversion the next day to shock me back into a normal
I had a very similar experience. About four weeks after my RF ablation my heart rate jumped from a very steady 60 to a very steady 135. ( I have an I CD that maintains my heart rate at 60) my EP called, said I was in atrial flutter, and did a cardioversion the next day to shock me back into a normal
AblatedCyclist
in
AF Association
1 year ago
Questions for those currently on or have tried Olaparib or Rucaparib PARP inhibitors. Recently published study on Rucaparib.
For those of you who have tried or are on PARP inhibitors, which one did you use and at what point did you use them? Was it before chemo or after chemo? Did insurance cover the cost? Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest Olaparib (Lynparrza) before chemo
For those of you who have tried or are on PARP inhibitors, which one did you use and at what point did you use them? Was it before chemo or after chemo? Did insurance cover the cost? Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest Olaparib (Lynparrza) before chemo
mrssnappy
in
Advanced Prostate Cancer
5 months ago
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Vyalev, steady levodopa/carbidopa infusion, now available in Canada
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Thal
in
Cure Parkinson's
5 months ago
Long Journey
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
MJCA
in
Prostate Cancer And Gay Men
5 months ago
Hip Replacement while on treatment??
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
laurieq
in
CLL Support
5 months ago
where I’m at and what docs suggest
hello all I have occasional episodes of AFib up to 5 days a couple of times a year but have been having more shorter episodes for a few seconds or minutes at times, very occasionally at night when sleeping on my stomach. So a change. I take apixaban. My life is normal other than tiredness probably
hello all I have occasional episodes of AFib up to 5 days a couple of times a year but have been having more shorter episodes for a few seconds or minutes at times, very occasionally at night when sleeping on my stomach. So a change. I take apixaban. My life is normal other than tiredness probably
FiveMilesSouth
in
AF Association
1 year ago
Still preclinical so don't get too excited: Lu-177 Lu-lbu-DAB-PSMA works better than Lu-177-PSMA-617
From Sweden with love...and hopefully with a clinical trial soon "The data of this study demonstrated a significant therapeutic advantage of [Lu-177]Lu-Ibu-DAB-PSMA over [Lu-177]Lu-PSMA-617 and a more favorable safety profile as compared to that of [Lu-177]Lu-PSMA-ALB-56. Based on these results, [Lu
From Sweden with love...and hopefully with a clinical trial soon "The data of this study demonstrated a significant therapeutic advantage of [Lu-177]Lu-Ibu-DAB-PSMA over [Lu-177]Lu-PSMA-617 and a more favorable safety profile as compared to that of [Lu-177]Lu-PSMA-ALB-56. Based on these results, [Lu
Maxone73
in
Advanced Prostate Cancer
5 months ago
WHOOPS
I just spoke with my doctors nurse and it shows you can always learn new things and you can also mess things up. Lol. I hadn’t mentioned much about being a little bit nervous regarding my new pacemaker. The past two days my heart rate has been up. I am set for 80. I have noticed, and I know that my
I just spoke with my doctors nurse and it shows you can always learn new things and you can also mess things up. Lol. I hadn’t mentioned much about being a little bit nervous regarding my new pacemaker. The past two days my heart rate has been up. I am set for 80. I have noticed, and I know that my
DawnTX
in
AF Association
1 year ago
clinical trial still recruiting: JNJ-78278343 immunotherapy targeting KLK2-CD3
https://classic.clinicaltrials.gov/ct2/show/NCT06095089 Conceptually promising but still phase 1/2
https://classic.clinicaltrials.gov/ct2/show/NCT06095089 Conceptually promising but still phase 1/2
Maxone73
in
Advanced Prostate Cancer
5 months ago
Chip implantation
Guys, a man in China had a chip implanted in his head, will anyone then go there to try out the invention?Or will you wait for Neurаlink Musk? “The next stage of the research will be the development of a new protocol for active rehabilitation using a neuro-computer interface to accelerate the growth
Guys, a man in China had a chip implanted in his head, will anyone then go there to try out the invention?Or will you wait for Neurаlink Musk? “The next stage of the research will be the development of a new protocol for active rehabilitation using a neuro-computer interface to accelerate the growth
Intensor
in
AMN EASIER
5 months ago
Insulin resistant & query about blood results
Good afternoon, Please can someone advise if my bloods are acceptable. I had to nag doctor to increase my dose from 125 to 150mg and now fear although I am starting to feel better in myself that they will reduce dose down again when I see them my blood sugars are also out of range - a clinical trial
Good afternoon, Please can someone advise if my bloods are acceptable. I had to nag doctor to increase my dose from 125 to 150mg and now fear although I am starting to feel better in myself that they will reduce dose down again when I see them my blood sugars are also out of range - a clinical trial
littlerobot
in
Thyroid UK
5 months ago
Tanta Anna Updatw
I’m hoping you remember my past posts I’ve been on a series of meditation trials - is what I’ll call them After my four ablations last one from the highly recognized Dr Natalie., I’m having thus strange spikes from being in NSR and HR in the 70’s. to 120 and back continuing on and with the
I’m hoping you remember my past posts I’ve been on a series of meditation trials - is what I’ll call them After my four ablations last one from the highly recognized Dr Natalie., I’m having thus strange spikes from being in NSR and HR in the 70’s. to 120 and back continuing on and with the
Tantaanna
in
AF Association
1 year ago
Benefits of Sacc. Boulardii probiotic
Just wondering whether to reorder my sacc. boulardii which I bought originally to combat candida, and on googling saw it's also relevant to PD - thought I'd share for those who missed this July study: https://pubmed.ncbi.nlm.nih.gov/36708254/ 'Mitochondrial impairment is a hallmark feature of neurodegenerative
Just wondering whether to reorder my sacc. boulardii which I bought originally to combat candida, and on googling saw it's also relevant to PD - thought I'd share for those who missed this July study: https://pubmed.ncbi.nlm.nih.gov/36708254/ 'Mitochondrial impairment is a hallmark feature of neurodegenerative
Reetpetitio
in
Cure Parkinson's
5 months ago
Is anyone in the group interested in genetic research about NASH?
We are working with Sano Genetics to encourage more research into the genetics that predispose someone to liver disease. As part of that they are convening a focus group to gather patient perspectives. We want to encourage the adoption of genetic testing as part of normal patient care. If you have
We are working with Sano Genetics to encourage more research into the genetics that predispose someone to liver disease. As part of that they are convening a focus group to gather patient perspectives. We want to encourage the adoption of genetic testing as part of normal patient care. If you have
nash2
Partner
in
Living with Fatty Liver and NASH
5 months ago
University of Freiburg KMI 169
https://kommunikation.uni-freiburg.de/pm-en/press-releases-2024/prostate-cancer-newly-developed-inhibitor-shows-massive-potential I saw this recently has anyone heard of this and if clinical trials are proposed or???
https://kommunikation.uni-freiburg.de/pm-en/press-releases-2024/prostate-cancer-newly-developed-inhibitor-shows-massive-potential I saw this recently has anyone heard of this and if clinical trials are proposed or???
Peppertree602
in
Advanced Prostate Cancer
5 months ago
Clinical trials
As I posted before, this was one of the most exciting parts of my attending The PBC Summit last May. So many pharmaceutical companies are working on drugs/research for finding the overall cause of PBC, the itch, and the fatigue. Several of you have posted about participating in clinical trials. First
As I posted before, this was one of the most exciting parts of my attending The PBC Summit last May. So many pharmaceutical companies are working on drugs/research for finding the overall cause of PBC, the itch, and the fatigue. Several of you have posted about participating in clinical trials. First
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Erleada or Xtandi vs Seizure Risk
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
vintage42
in
Advanced Prostate Cancer
5 months ago
new procedure
Using metered cryospray technology, pre-determined doses (based on patient anatomy) of liquid nitrogen are delivered systematically through the airways,” says Professor Shah. The RejuvenAir® System is designed with safety cut-off technology, which stops the flow of nitrogen once it reaches the required
Using metered cryospray technology, pre-determined doses (based on patient anatomy) of liquid nitrogen are delivered systematically through the airways,” says Professor Shah. The RejuvenAir® System is designed with safety cut-off technology, which stops the flow of nitrogen once it reaches the required
Trevor6
in
COPD Friends
5 months ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
5 months ago
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