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Experiences with
Pelizaeus–Merzbacher-like disease
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Previous Heart attack/stent
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
2016 when my life changed. I look back now and see that my life in a wierd form changed for the better following my heart attack at the age of 55. Since having the stent placed I realised how restricted my body had been and the relief this procedure had given me. I attended rehabilitation classes for
Frazzelena
in
Sudden Cardiac Arrest & Heart Attack
6 months ago
serum lipids
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Hello, I am waiting for my TSH, T4 + T3 results ordered by Endo but have received the serum lipid results today (test taken yesterday morning as per Thyroid UK’s protocol), which are as follows: 4.46 mmol/L Serum cholesterol 0.72 mmol/L Serum triglycerides 1.52 mmol/L Serum HDL cholesterol level
Lottyplum
in
Thyroid UK
6 months ago
Reducing cholesterol
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
I’ve been told that because of the stricter diagnostic parameters the NHS now uses for assessing cholesterol levels in the blood, I have very slightly raised cholesterol. I’ve been told I can have statins, which I agreed to take, with much regret, because they are powerful drugs and I’m already taking
Tellingfibs
in
Atrial Fibrillation Support
6 months ago
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Switching from Disopyramide to Bisoprolol - any advice?
Hi, I have been taking Disopyramide (Rhythmodan Retard 250mg) for AF, but have been unable to find any pharmacists with stock for a while now. So the Cardiac Nurse at my Doctor's Surgery has switched me to Bisoprolol. I am about to switch over from the last of my Disopyramide, and start with the Bisoprolol
Hi, I have been taking Disopyramide (Rhythmodan Retard 250mg) for AF, but have been unable to find any pharmacists with stock for a while now. So the Cardiac Nurse at my Doctor's Surgery has switched me to Bisoprolol. I am about to switch over from the last of my Disopyramide, and start with the Bisoprolol
DE-AF
in
AF Association
6 months ago
Bisoprolol
The only problem I ve encountered is with the specific AF tablet dihydrochloride etc. I have never encountered a problem with 10mg Bisoprolol. I m on Entresto Digoxin spironolactone apixaban and a number of others.
The only problem I ve encountered is with the specific AF tablet dihydrochloride etc. I have never encountered a problem with 10mg Bisoprolol. I m on Entresto Digoxin spironolactone apixaban and a number of others.
NAC1
in
AF Association
6 months ago
Cramps
I have been having a few problems with my hands lately, stiffness etc which my GP originally put down to old age and arthritis, but just lately I have been getting cramp in my left hand which can be painful, do you think this could be due to arthritis or possibly something else?
I have been having a few problems with my hands lately, stiffness etc which my GP originally put down to old age and arthritis, but just lately I have been getting cramp in my left hand which can be painful, do you think this could be due to arthritis or possibly something else?
Doggie123-UK
in
Arthritis Action
6 months ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
8 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
8 months ago
Elevated LDH
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
Hello, I haven’t posted before. My 44-year-old husband was diagnosed 2 years ago. He has been in watch and wait. We just met with his oncologist. His other blood counts are relatively stable, just increasing at a low rate. But his LDH has steadily increased the last 3 tests and is elevated. His oncologist
leahleah
in
CLL Support
8 months ago
Treatment Update IMRT with ADT 18 months later
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Follow up 18 months later. I am due for another ADT injection in December. Spoke to the Urologist and he feels 18months is enough keeping with the European standard while the Oncologist would like me to stay the course and do the full 2 years. I am in favor of 18 months also, that would be nice. Still
Mischa1111111
in
Advanced Prostate Cancer
8 months ago
Vacation from Lupron/Zytiga - Temporary or Permanent!
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
I have been on ADT (Lupron/Zytiga) for 2.5 years. PSA and testosterone immeasurable currently. Looking to go on "vacation" from meds. History: Gleason 8/9 with a PSA of only 1.89 (on Finasteride). CT/Bone scan did not show any definite metastasis. PSMA PET showed "possible" metastasis in 4 spots
groth12345
in
Advanced Prostate Cancer
8 months ago
Kellgren Centre in Manchester retains LUPUS UK Centre of Excellence award
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
In September 2023, LUPUS UK conducted an inspection of the Kellgren Centre at Manchester Royal Infirmary and are very pleased to conclude it should retain the LUPUS UK Centre of Excellence award. You can read the full inspection report, including how it met our criteria and what we recommended for improvements
Debbie_kinsey
Administrator
in
LUPUS UK
6 months ago
Confused and getting worse... Update
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
Hi I visited my GP today. I got a letter about my last visit and some results but I need to see my consultant for the rest. Most look OK to me just a couple outside of normal. The letter just confirmed that I have a strong family history of Rheumatoid arthritis and I exhibit organ specific autoimmune
12stkeepgoing
in
Thyroid UK
6 months ago
Elbow
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
Has anyone had an operation on the elbow that has rheumatoid arthritis? If so has it helped or not?
65_women
in
PMRGCAuk
6 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
8 months ago
stomach acid
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
happy new year everyone I was diagnosed with PA approx 9yrs ago with some atrophic gastritis and metaplasia (I think) I also have arthritis in my knees/hips I SI every 7 to 10 days Im 56 and I’m fairly fit and active so I know I’m lucky compared to some what I’m confused about is stomach acid.
lifegems
in
Pernicious Anaemia Society
6 months ago
Symptoms but blood tests Normal?
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
Hello, I have symptoms of underactive thyroid. - heavy periods - fatigue - pins and needles in hand - fatigue - cold - anxiety and depression. - struggle with weight loss My mum has underactive thyroid and maternal nan also. Contacted gp as have very heavy periods, on slimming world but can't
jennylouise91
in
Thyroid UK
6 months ago
Starting Abiraterone and predniSONE
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
Tomorrow morning I take my first dose of Abiraterone (Zytiga) and predniSONE for metastatic castrate resistant prostate cancer. I don't know what kind of side effects I would get. I hope I would tolerate the treatment well. Reaching this stage of my cancer I reflect on my 12 year journey with prostate
dac500
in
Advanced Prostate Cancer
8 months ago
Collapse then AF
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
Dad has mixed dementia and is 90 in May. He lives alone with my support. He has a history of collapse dating back to the 1990's but only three in all that time. He had a pacemaker in 2017 due to another collapse and found to have some heart block. A year later he had another and this is when we noticed
ian16527
in
AF Association
6 months ago
Is it a choice? Pacemaker v Implanted defibrillator?
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Hi, it's #chinkoflight here with an update. Things are moving on. I'm in coronary care, and the evidence for my fainting whilst running story has now shown an arrthymia at the time of the fall, effectively stopping my heart functioning, leading to the drop in blood pressure and the syncope event. It's
Chinkoflight
in
Atrial Fibrillation Support
6 months ago
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