Search
Search
About
Log in
Join
Experiences with
Pegasys
Posts
Communities
627 public posts
Filter results
Pegasys not working
Four months in, and
Pegasys
is not working. I started low and slow 4 months ago and worked up to my current 90 mcg/week without any side effects.
Four months in, and
Pegasys
is not working. I started low and slow 4 months ago and worked up to my current 90 mcg/week without any side effects.
Minify
in
MPN Voice
1 year ago
using pegasys during pregnancy
pregnant again and I don’t know if
pegasys
is safe during pregnancy as standard form of INF Should I switch to standard form of INF or it is safe to continue
pegasys
There is little information about this disease in my country and hematologists follow general protocols not any especial experiences
pregnant again and I don’t know if
pegasys
is safe during pregnancy as standard form of INF Should I switch to standard form of INF or it is safe to continue
pegasys
There is little information about this disease in my country and hematologists follow general protocols not any especial experiences
Violetaaa
in
MPN Voice
11 months ago
Starting Pegasys soon
I should be starting
Pegasys
sometime in January and I have a few questions : - anything I should do before? I read somewhere that I should get an eye exam. - what side effects are you experiencing? I saw the list… should I be worried? Thanks!
I should be starting
Pegasys
sometime in January and I have a few questions : - anything I should do before? I read somewhere that I should get an eye exam. - what side effects are you experiencing? I saw the list… should I be worried? Thanks!
IsabelleHo
in
MPN Voice
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pegasys issues
Hi everyone previously I had told you that I was having Sjogrens symptoms while on
Pegasys
. I stopped it and saw a rheumatologist. She was very dismissive.
Hi everyone previously I had told you that I was having Sjogrens symptoms while on
Pegasys
. I stopped it and saw a rheumatologist. She was very dismissive.
Wewo01
in
MPN Voice
1 year ago
Pegasys side effects
Week 6 on
Pegasys
I caught a mild case of Covid & all my
Pegasys
side effects stopped immediately! Telephone consult with consultant due to Covid & dose increased from 45mg to 90mg as my blood results had improved slightly but not vastly.
Week 6 on
Pegasys
I caught a mild case of Covid & all my
Pegasys
side effects stopped immediately! Telephone consult with consultant due to Covid & dose increased from 45mg to 90mg as my blood results had improved slightly but not vastly.
Lilliegarden
in
MPN Voice
1 year ago
Does hair loss stop or improve if changing from hydroxycarbemide to Pegasus?
I’m a fit and healthy 70 year old and wondered if I should try
pegasys
to stop this hair loss. I know I’m fortunate at the moment to only have hair loss but I’d love not to have that. What are your thoughts please. Thanks Irene
I’m a fit and healthy 70 year old and wondered if I should try
pegasys
to stop this hair loss. I know I’m fortunate at the moment to only have hair loss but I’d love not to have that. What are your thoughts please. Thanks Irene
Na56
in
MPN Voice
1 year ago
Besremi, Pegasys and Jakafi adverse event question?
The title of the slide is "Besremi is far safer than
Pegasys
and Jakafi". It showed that Jakafi and
Pegasys
seem to have way more serious adverse events than Besremi? The source of data suggests it was from FAERs, which seems to be the FDA's data base but I can't verify the numbers.
The title of the slide is "Besremi is far safer than
Pegasys
and Jakafi". It showed that Jakafi and
Pegasys
seem to have way more serious adverse events than Besremi? The source of data suggests it was from FAERs, which seems to be the FDA's data base but I can't verify the numbers.
Joey1025
in
MPN Voice
1 year ago
Pegasys and periods and trouble sleeping
Of the ladies on here who are on
Pegasys
and are of child bearing age, do any of you find you get a night of disturbed sleep each month, just before your period starts? I’ve been charting it and it’s literally every month, on a Tuesday for me. I take my peg on a Sunday.
Of the ladies on here who are on
Pegasys
and are of child bearing age, do any of you find you get a night of disturbed sleep each month, just before your period starts? I’ve been charting it and it’s literally every month, on a Tuesday for me. I take my peg on a Sunday.
NCB1983
in
MPN Voice
1 year ago
Pegasys Reaction?
I took my first dose of 45mcgs of
Pegasys
Sunday evening with no signs of any side effects. Woke up the next day (yesterday) and about 9am I started getting stomach cramps. They continued to get worse and by noon I was in bed with a heating pad on my stomach.
I took my first dose of 45mcgs of
Pegasys
Sunday evening with no signs of any side effects. Woke up the next day (yesterday) and about 9am I started getting stomach cramps. They continued to get worse and by noon I was in bed with a heating pad on my stomach.
russkatt
in
MPN Voice
1 year ago
Pegasus side effects episode 2!
For ref when I started
Pegasys
my platelets were over 1000 & my haemacrit was 0.45. After 6 weeks of 45mcg weekly my platelets were 840 ish, haemacrit 0.45.
For ref when I started
Pegasys
my platelets were over 1000 & my haemacrit was 0.45. After 6 weeks of 45mcg weekly my platelets were 840 ish, haemacrit 0.45.
Lilliegarden
in
MPN Voice
1 year ago
Hydroxyurea to give
Since doc change my meds to Jakafi and
Pegasys
, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
Since doc change my meds to Jakafi and
Pegasys
, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
william-Indo
in
MPN Voice
1 year ago
Pegasys Injection Help
Anyone use insulin needles to inject
Pegasys
? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
Anyone use insulin needles to inject
Pegasys
? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
russkatt
in
MPN Voice
1 year ago
Pegasys Single Use Vials?
I am taking 45mcgs weekly and do they expect me to throw away the balance of peg left after each injection? That's 135mcgs I would be throwing away. I am paying almost $200 per 180mcg vial. I am going to use up my entire vial. I see no reason to throw it out as long as it is kept refrigerated and new
I am taking 45mcgs weekly and do they expect me to throw away the balance of peg left after each injection? That's 135mcgs I would be throwing away. I am paying almost $200 per 180mcg vial. I am going to use up my entire vial. I see no reason to throw it out as long as it is kept refrigerated and new
russkatt
in
MPN Voice
1 year ago
pegasys
good morning everyone I finally got my
pegasys
approved shots I will be in today and may wait towards the weekend to be on a better schedule scared and anxious at the same time. Just keeping everyone updated.
good morning everyone I finally got my
pegasys
approved shots I will be in today and may wait towards the weekend to be on a better schedule scared and anxious at the same time. Just keeping everyone updated.
Nc3500
in
MPN Voice
1 year ago
Pegasys Left in Syringe?
I noticed that there was a small amount of Peg left in the Syringe that I didn’t get. How can I avoid that waste?
I noticed that there was a small amount of Peg left in the Syringe that I didn’t get. How can I avoid that waste?
russkatt
in
MPN Voice
1 year ago
Anyone else out there with both ET & MBL?
In addition to my ET (diagnosed in 2003 and now well controlled on
Pegasys
) I’ve recently been diagnosed with Monoclonal B-Cell Lymphocytosis (MBL).
In addition to my ET (diagnosed in 2003 and now well controlled on
Pegasys
) I’ve recently been diagnosed with Monoclonal B-Cell Lymphocytosis (MBL).
AndyT
in
MPN Voice
10 months ago
pegasys
good morning everyone just saw Dr Mesa finally have answers he wants to start me on a low dose one
Pegasys
I heard a lot of good things and bad about this medication any advice would be helpful I’m relieved and worried at the same time
good morning everyone just saw Dr Mesa finally have answers he wants to start me on a low dose one
Pegasys
I heard a lot of good things and bad about this medication any advice would be helpful I’m relieved and worried at the same time
Nc3500
in
MPN Voice
1 year ago
platelets are in normal range
hi everybody I wanted to give an update I’ve been on
pegasys
for a month today. I will take my fifth treatment. I took blood work yesterday and I saw the results today. My platelets are in normal range for the first time in over a year probably two years they were 376.
hi everybody I wanted to give an update I’ve been on
pegasys
for a month today. I will take my fifth treatment. I took blood work yesterday and I saw the results today. My platelets are in normal range for the first time in over a year probably two years they were 376.
Nc3500
in
MPN Voice
1 year ago
PE with ET
I am recently been feeling well and tolerating
Pegasys
for few months month . This has improved my quality of life an also my platelets are normal. Unfortunately I had a rough week with right rib / abdomen pain which then worsened and left me Breathless , tachycardia and nauseated.
I am recently been feeling well and tolerating
Pegasys
for few months month . This has improved my quality of life an also my platelets are normal. Unfortunately I had a rough week with right rib / abdomen pain which then worsened and left me Breathless , tachycardia and nauseated.
Afya23
in
MPN Voice
1 year ago
myelofibrosis and interferon
I was put onto Interferon
Pegasys
June 2022 to slow down platelets which reached a high of 776. White blood count had reached 22. I had very mild side effects which only lasted a single day, but my blood counts crashed (pancytopenia) after 16 weeks on 90mcg injections.
I was put onto Interferon
Pegasys
June 2022 to slow down platelets which reached a high of 776. White blood count had reached 22. I had very mild side effects which only lasted a single day, but my blood counts crashed (pancytopenia) after 16 weeks on 90mcg injections.
Pragmaticone
in
MPN Voice
1 year ago
1
...
6
7
8
...
32
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
MPN Voice
618 results
British Liver Trust
3 results
HepNS
3 results
View top 10 communities
Sort by
Most Relevant
Newest