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Pegasys
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ET - Peg shortage alternative treatment options
I’ve been on
Pegasys
for about 2 years, platelet count has been stable in the normal range since I started Peg. No major complications, just get the non-specific/random symptoms related to MPNs in general, but largely I’m ok.
I’ve been on
Pegasys
for about 2 years, platelet count has been stable in the normal range since I started Peg. No major complications, just get the non-specific/random symptoms related to MPNs in general, but largely I’m ok.
cgcheets
in
MPN Voice
5 days ago
LDH Test with ET
Hello Family, I am on my 8th week of
pegasys
treatment which I seem to be tolerating well @ 45mcg. I am also in the process of seen an MPN Specialist in few weeks who has ordered bloods tests including LDH . I had a BMB 8 weeks ago and waiting results for same which is nerve wrecking.
Hello Family, I am on my 8th week of
pegasys
treatment which I seem to be tolerating well @ 45mcg. I am also in the process of seen an MPN Specialist in few weeks who has ordered bloods tests including LDH . I had a BMB 8 weeks ago and waiting results for same which is nerve wrecking.
Afya23
in
MPN Voice
1 year ago
Medication choices after hydroxyurea
I have read here about interferons
Pegasys
and Besremi and the studies on Jakafi and Rusfertide. I have time to figure this out but would appreciate any input or links to the most current research before I see my hematologist in a month. I've printed out a lot of info that has been posted here.
I have read here about interferons
Pegasys
and Besremi and the studies on Jakafi and Rusfertide. I have time to figure this out but would appreciate any input or links to the most current research before I see my hematologist in a month. I've printed out a lot of info that has been posted here.
saltmarsh
in
MPN Voice
1 year ago
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Changing blood results x
Hi, I'm on 90mcg of
Pegasys
Interferon at present and my HCT and platelets are finally reducing without venesection which it good....but my most recent plasma viscosity was 185...and my RDW was 18% which it has been for a while. Should I be concerned about this?
Hi, I'm on 90mcg of
Pegasys
Interferon at present and my HCT and platelets are finally reducing without venesection which it good....but my most recent plasma viscosity was 185...and my RDW was 18% which it has been for a while. Should I be concerned about this?
RCBr
in
MPN Voice
1 year ago
Pegasys- lack of response
Hi, I have ET CALR and have started
Pegasys
3 months ago. I am glad that I am not sufferring from any really annoying side effects but I am concerned by my platelet count. They were at 1500-1600 when I started and now seem to stabilize at 1200-1300, quite far from the ultimate goal.
Hi, I have ET CALR and have started
Pegasys
3 months ago. I am glad that I am not sufferring from any really annoying side effects but I am concerned by my platelet count. They were at 1500-1600 when I started and now seem to stabilize at 1200-1300, quite far from the ultimate goal.
Aelle
in
MPN Voice
1 year ago
possible Sjögren Syndrome
I have been on
Pegasys
for 11 months. I am taking 67 mcg weekly. Six months ago I started having symptoms of parotid gland swelling. I have had 2 episodes. Then at the end of March I had an episode of peri orbital swelling with fever. I have been overwhelmed with fatigue and joint pain.
I have been on
Pegasys
for 11 months. I am taking 67 mcg weekly. Six months ago I started having symptoms of parotid gland swelling. I have had 2 episodes. Then at the end of March I had an episode of peri orbital swelling with fever. I have been overwhelmed with fatigue and joint pain.
Wewo01
in
MPN Voice
1 year ago
MPN, Pegasys and Hypothyroidism
While I've read that thyroid problems can be caused by
Pegasys
in rare cases, I also have a family history of lots of thyroid issues, both over and under active. I'm just curious what this may mean for my beloved
Pegasys
!! I'm part of the
Pegasys
fan club and don't want to have to give it up!
While I've read that thyroid problems can be caused by
Pegasys
in rare cases, I also have a family history of lots of thyroid issues, both over and under active. I'm just curious what this may mean for my beloved
Pegasys
!! I'm part of the
Pegasys
fan club and don't want to have to give it up!
Emmyroos
in
MPN Voice
2 years ago
Pegasys
Hello Family Just started my
pegasys
injections today @ 45mcg. Also had a BMB, waiting for results . Wish me luck 🍀😉
Hello Family Just started my
pegasys
injections today @ 45mcg. Also had a BMB, waiting for results . Wish me luck 🍀😉
Afya23
in
MPN Voice
2 years ago
Good news
Have been taking
pegasys
since January 21 after being diagnosed with MF. Total shock as I had never heard of the condition. Platelets were at 1800 over. Strength 45 since then, platelets stable at just over 700. Last 10 weeks increased dose to 90mg.
Have been taking
pegasys
since January 21 after being diagnosed with MF. Total shock as I had never heard of the condition. Platelets were at 1800 over. Strength 45 since then, platelets stable at just over 700. Last 10 weeks increased dose to 90mg.
Robeets_33
in
MPN Voice
1 year ago
Pegasys Side Effects
On my 7th week (7th dose at 90mcg per dose) of
Pegasys
and noticing massive fatigue and some mood swings. Has anyone experience similar side effects and how early did they occur? Not sure how fast side effects can occur with this medication.
On my 7th week (7th dose at 90mcg per dose) of
Pegasys
and noticing massive fatigue and some mood swings. Has anyone experience similar side effects and how early did they occur? Not sure how fast side effects can occur with this medication.
Zeppelin11
in
MPN Voice
2 years ago
New version of "Pegasys" - have you noticed any changes in your response or side effects?
In recent months my supplies of PEG-Interferon ("
Pegasys
") have changed from those made by Roche to what I presume is a version made under licence by a company called zr pharma& GmbH of Vienna, Austria. A previous post here on MPN Voice had already drawn attention to this change.
In recent months my supplies of PEG-Interferon ("
Pegasys
") have changed from those made by Roche to what I presume is a version made under licence by a company called zr pharma& GmbH of Vienna, Austria. A previous post here on MPN Voice had already drawn attention to this change.
JaK2ET
in
MPN Voice
1 year ago
Switching from HU To Pegasys: Skin Cancer Risk
Today I met with my hematologist , to discuss HU vs
Pegasys
in relation to my skin cancer risk. She agreed that switching to
Pegasys
was “a very good choice” for me. So next week I’ll start the switch with a start dose of 45 mcg every other week.
Today I met with my hematologist , to discuss HU vs
Pegasys
in relation to my skin cancer risk. She agreed that switching to
Pegasys
was “a very good choice” for me. So next week I’ll start the switch with a start dose of 45 mcg every other week.
Minify
in
MPN Voice
2 years ago
HU to Peg Transition Problems -
Hello I am asking for help with difficulties I am having transitioning from hydroxyurea to
Pegasys
. I am 58, male, CalR-ET, diagnosed in 2008, started HU in 2011.
Hello I am asking for help with difficulties I am having transitioning from hydroxyurea to
Pegasys
. I am 58, male, CalR-ET, diagnosed in 2008, started HU in 2011.
LongETinUS
in
MPN Voice
2 years ago
Dry scalp/skin - ET & Interferon
in my lifestyle has changed, absolutely nothing, except starting
Pegasys
and I'm wondering if it's this as I know it can cause dry skin! Has anyone else experienced this too?? Does anyone have any tips?!
in my lifestyle has changed, absolutely nothing, except starting
Pegasys
and I'm wondering if it's this as I know it can cause dry skin! Has anyone else experienced this too?? Does anyone have any tips?!
cgcheets
in
MPN Voice
2 years ago
Pegasys & thyroid
HiI have been taking
Pegasys
for 10yrs & recently my thyroid levels have been increasing. I am aware that the treatment can affect the thyroid. Does anyone have any experience of this? If the treatment is stopped will the thyroid levels rectify or is this now permanent.
HiI have been taking
Pegasys
for 10yrs & recently my thyroid levels have been increasing. I am aware that the treatment can affect the thyroid. Does anyone have any experience of this? If the treatment is stopped will the thyroid levels rectify or is this now permanent.
Beartime
in
MPN Voice
2 years ago
Pegasys and Liver Heath
My ALT and Potassium have gone up since I have been on
Pegasys
. Is there anything I can do (or not do) to improve liver function? I have a pretty healthy diet and will avoid acetaminophen going forward. I work out, drink coffee, all the things.
My ALT and Potassium have gone up since I have been on
Pegasys
. Is there anything I can do (or not do) to improve liver function? I have a pretty healthy diet and will avoid acetaminophen going forward. I work out, drink coffee, all the things.
Zeppelin11
in
MPN Voice
2 years ago
Seeing an MPN Specialist tomorrow!
Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of
Pegasys
once a week. We are in a transitional period right now and I will eventually just be taking
Pegasys
and aspirin. Took my 4th dose of
Pegasys
yesterday.
Going on 5 years with ET+CALR and currently taking aspirin and 2 pills of Hydrea daily AND 90mcg of
Pegasys
once a week. We are in a transitional period right now and I will eventually just be taking
Pegasys
and aspirin. Took my 4th dose of
Pegasys
yesterday.
Zeppelin11
in
MPN Voice
2 years ago
St, Jak2, and now Asxl1...
It confirmed, and I started
Pegasys
. 3 months in, my platelets were still in the low 8's and we did a consult. Dr said that she wanted them to come down quicker and would normally add Hydroxy at this point, but instead increased my dosage of Peg.
It confirmed, and I started
Pegasys
. 3 months in, my platelets were still in the low 8's and we did a consult. Dr said that she wanted them to come down quicker and would normally add Hydroxy at this point, but instead increased my dosage of Peg.
Mortysdad
in
MPN Voice
1 year ago
Pegasys - to start or not
I am now seriously considering starting
Pegasys
and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of treatment is not standard for low risk ET.
I am now seriously considering starting
Pegasys
and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of treatment is not standard for low risk ET.
Bigcheat
in
MPN Voice
2 years ago
New Pegasys Manufacturer
Just received my next 6 month supply of
Pegasys
. Packaging and presentation is identical to the former Roche version but it’s now from the new licence holder Pharma& and manufactured by their subsidiary LOBA, both based in Austria.
Just received my next 6 month supply of
Pegasys
. Packaging and presentation is identical to the former Roche version but it’s now from the new licence holder Pharma& and manufactured by their subsidiary LOBA, both based in Austria.
AndyT
in
MPN Voice
2 years ago
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