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Pegasys approved for PV and ET in Europe, Good news?
https://www.ema.europa.eu/en/medicines/human/variation/
pegasys
It looks like
Pegasys
has been approved by the European EMA for treating PV and ET. Although
Pegasys
has been used to treat these diseases for some time, it was previously off-label.
https://www.ema.europa.eu/en/medicines/human/variation/
pegasys
It looks like
Pegasys
has been approved by the European EMA for treating PV and ET. Although
Pegasys
has been used to treat these diseases for some time, it was previously off-label.
SamHathaway1800
in
MPN Voice
2 months ago
Great progress on Pegasys!
I’ve not had any side effects to the
Pegasys
. I feel great on the
Pegasys
, and all my ET related symptoms are gone, including the one that was most persistent - burning feet.
I’ve not had any side effects to the
Pegasys
. I feel great on the
Pegasys
, and all my ET related symptoms are gone, including the one that was most persistent - burning feet.
Minify
in
MPN Voice
1 month ago
Pegasys not working to lower Allele burden
Has anyone had this happen while on
Pegasys
?
Has anyone had this happen while on
Pegasys
?
Roxthebox
in
MPN Voice
14 days ago
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Rash Impacted by Pegasys?
Hi, I am 71, have had PV (exon 12) for about 4 years, been on
pegasys
for 3 years. Presently apparently in CHR, with maintenance dose of
pegasys
45 mcg every other week. Generally it has been going well.
Hi, I am 71, have had PV (exon 12) for about 4 years, been on
pegasys
for 3 years. Presently apparently in CHR, with maintenance dose of
pegasys
45 mcg every other week. Generally it has been going well.
gvibes
in
MPN Voice
2 months ago
Postcovid with pegasys
Any experiencers using
pegasys
in addition to post covid? Were there any changes our side effects? Greetings Paul (Et + postcovid)
Any experiencers using
pegasys
in addition to post covid? Were there any changes our side effects? Greetings Paul (Et + postcovid)
pvdm
in
MPN Voice
2 months ago
Starting Pegasys
hi all, I’m about to start the next stage of my treatment journey, 45mg
Pegasys
fortnightly. I’ve picked up the meds and just waiting for my remaining blood tests to come back before I start.
hi all, I’m about to start the next stage of my treatment journey, 45mg
Pegasys
fortnightly. I’ve picked up the meds and just waiting for my remaining blood tests to come back before I start.
Steve_Essex
in
MPN Voice
1 month ago
Pegasys skin?
Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking
Pegasys
? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse.
Has anyone else had their skin turn into rough, dry, chicken skin on large parts of their bodies after taking
Pegasys
? Mine started out with itchiness, and now the skin itself is weird. I've used tons of lotion, including Sarna. I have also taken Beta Alanine orally. Problem is growing worse.
dogsandhorses
in
MPN Voice
1 month ago
Pegasys Journey
I started
Pegasys
45mcg 14wks ago and my platelet count was stabilised at 10wks (age 66yrs). I was given the option of Hydroxy or
Pegasys
, for me
Pegasys
was the right decision. The only change I could report yesterday at my FU was increased muscle pain.
I started
Pegasys
45mcg 14wks ago and my platelet count was stabilised at 10wks (age 66yrs). I was given the option of Hydroxy or
Pegasys
, for me
Pegasys
was the right decision. The only change I could report yesterday at my FU was increased muscle pain.
Carol0925
in
MPN Voice
5 months ago
Pegasys nhs
Has anyone had a problem getting prescribed
Pegasys
on nhs as a first line treatment at 45? Really keen on this as a starting treatment due to age.
Has anyone had a problem getting prescribed
Pegasys
on nhs as a first line treatment at 45? Really keen on this as a starting treatment due to age.
Scaredalone
in
MPN Voice
3 months ago
Shortage of Pegasys Interferon
We are aware that some countries may be experiencing a shortage in the supply of
Pegasys
Interferon and would like to reassure you various UK Health Bodies and MPN experts have this under review and that it is not an immediate problem in the UK.
We are aware that some countries may be experiencing a shortage in the supply of
Pegasys
Interferon and would like to reassure you various UK Health Bodies and MPN experts have this under review and that it is not an immediate problem in the UK.
Mazcd
MPNVoice
in
MPN Voice
1 month ago
Pegasys side effects
I was switched from 500 Hydroxyurea/day to 90mg
Pegasys
every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on
Pegasys
. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500 Hydroxyurea/day to 90mg
Pegasys
every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on
Pegasys
. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
5 months ago
Airport travel with Injections
Can some experienced travellers who use
Pegasys
give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my
Pegasys
syringes in whilst travelling.
Can some experienced travellers who use
Pegasys
give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my
Pegasys
syringes in whilst travelling.
swimswam
in
MPN Voice
4 months ago
Pegasys causing Depression
Started
Pegasys
approx 6-7mths ago. My last injection was two days ago. I will of course be contacting my MPN Drs to discuss further. I really don’t want to stop it unless absolutely necessary. Just wondering whether any others have had to stop it due to low mood etc.
Started
Pegasys
approx 6-7mths ago. My last injection was two days ago. I will of course be contacting my MPN Drs to discuss further. I really don’t want to stop it unless absolutely necessary. Just wondering whether any others have had to stop it due to low mood etc.
Carol0925
in
MPN Voice
2 months ago
Interferon and the liver
My blood numbers actually look decent and I want to keep taking
pegasys
but I am nervous because my last ALT number was like 80 with the top of range being <41..
My blood numbers actually look decent and I want to keep taking
pegasys
but I am nervous because my last ALT number was like 80 with the top of range being <41..
dbus1417
in
MPN Voice
5 months ago
ET PLATLETS
I was suffering from headaches vertigo and other things so my gp refer me to hematologist who carried out loads of other bloods and came back with this to me I was so shocked with this news but he told me it was manageable with routine check ups so a year later I'm on asprin and started 90mg of
pegasys
I was suffering from headaches vertigo and other things so my gp refer me to hematologist who carried out loads of other bloods and came back with this to me I was so shocked with this news but he told me it was manageable with routine check ups so a year later I'm on asprin and started 90mg of
pegasys
VTAR24
in
MPN Voice
2 months ago
Pegasys Side Effects
Hello All - Two months ago I started injecting 45mcg of
Pegasys
weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water.
Hello All - Two months ago I started injecting 45mcg of
Pegasys
weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water.
Proton_1
in
MPN Voice
3 months ago
How much daily water should I drink on Pegasys?
Hi everyone I will be starting
Pegasys
in 10 days time and see that the MPN Voice leaflet says to drink 3 litres of water daily. I do drink a lot of water but that amount seems huge. Do you
Pegasys
veterans drink that every day or just on injection day? I would appreciate your advice.
Hi everyone I will be starting
Pegasys
in 10 days time and see that the MPN Voice leaflet says to drink 3 litres of water daily. I do drink a lot of water but that amount seems huge. Do you
Pegasys
veterans drink that every day or just on injection day? I would appreciate your advice.
Na56
in
MPN Voice
6 months ago
What to expect at start of Pegasys?
A question for those of you with PV on
Pegasys
Interferon please:- If you had side-effects were they from the first injection or did they emerge later? I know this will be dose / individual dependent (I don't yet know dose or frequency).
A question for those of you with PV on
Pegasys
Interferon please:- If you had side-effects were they from the first injection or did they emerge later? I know this will be dose / individual dependent (I don't yet know dose or frequency).
RoundTheWorld
in
MPN Voice
3 months ago
Pegasys & Hydrea
I am wondering if anyone is taking both in combination? I am not getting the results from PEG and I don't want to increase my dose above 115 mcgs. I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a
I am wondering if anyone is taking both in combination? I am not getting the results from PEG and I don't want to increase my dose above 115 mcgs. I asked my doctor if we could try a small dose of Hydrea maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a
russkatt
in
MPN Voice
5 months ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on
Pegasys
Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on
Pegasys
Interferon and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
LeoTravels
in
MPN Voice
3 months ago
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