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Paroxysmal atrial fibrillation
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Walking in rhythm
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
Hello, long time lurker on here and thank you to all the regular posters who keep us lurkers so well informed. Sorry in advance for the long post :) My afib story started in Feb 19 and like all new Afibbers I was scared and ignorant of the condition. I am very lucky to have no symptoms and don't
diminished7th
in
AF Association
1 year ago
clinical trial vyd222 monoclonal AB against covid update science 37
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
thought i'd give an update on my experience with this study. i got my first infusion on oct 17th and had no ill effects other than my blood pressure getting super high. but i think that was from the last minute fumbles in planning thru science 37. my infusion medicine was supposed to arrive the afternoon
bachplayer13
in
CLL Support
6 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
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Amiodarone
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
I had 3 ablations at MUSC to address PVC’s and ARVC, got an ICD after that, then developed AFib followed by an atrial ablation and finally a cardioversion to fix atrial flutter a month after the shocker. I’ve felt fine through all of this - asymptomatic all along. I’m 70 and was a runner for 22 years
AblatedCyclist
in
AF Association
1 year ago
New clinical trial BNT152+153.
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
Hi, I'm about to enter into a new Phase 1 clinical trial at MD Anderson for solid tumors including new drugs from BioNtech called BNT152+153, which are based on Interluekin 2 & 7. Do any members have any knowledge or experience with these relatively new trial drugs? There is an NCT listing on the clinicaltrial.gov
kklott01
in
Advanced Prostate Cancer
6 months ago
An update on new therapy clinical trial enrollment Phase I/II TheraPb clinical trial of ²¹²Pb-ADVC001 to treat PSMA-positive mCRPC
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
https://www.clinicaltrialsarena.com/news/advancell-prostate-cancer-trial/
Maxone73
in
Advanced Prostate Cancer
6 months ago
My brother has advanced Prostate Cancer
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
I'm here for my brother. He is 55 now. He has diagnosed when he was 54 with advanced prostate cancer that had metastasized to his pelvic bone. He started hormone therapy on October 2022 and then started chemotherapy for 6 sessions from November 2022 till March 2023 and started Nubeqa at the same time
rasher1
in
Advanced Prostate Cancer
6 months ago
Any advice on Lead extraction op welcome please
I have been offered an invasive option as we've exhausted most unsuccessful options of medications. I seem to have settled best on Quinedine now after several allergies to other meds. Unfortunately though, I had another defibrillator shock recently after nearly 2 years without any. As I still get almost
I have been offered an invasive option as we've exhausted most unsuccessful options of medications. I seem to have settled best on Quinedine now after several allergies to other meds. Unfortunately though, I had another defibrillator shock recently after nearly 2 years without any. As I still get almost
Frequentshocker
in
British Heart Foundation
1 year ago
A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
6 months ago
clinical trials and dropped off a cliff
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Five years ago I joined the Astra Zeneca clinical trial of Olaparib with Zytiga, through my oncologist at Fox Chase in Philadelphia. Earlier this year A-Z ended the trial and applied for FDA approval of the combo, it does seem to help some of us. I learned that I had been taking the placebo, not the
Johnkelsey
in
Advanced Prostate Cancer
6 months ago
Do you live with advanced liver disease? Are you interested in attending an in-person workshop in Bristol or Liverpool this month?
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
The British Liver Trust are working with UK CLIF, a dynamic new network of clinicians, patients, carers/relatives and researchers coming together over our shared interest to improve research and clinical outcomes for people with chronic liver failure. Cases of liver disease are rising alarmingly and
BritishLiverTrust1
Partner
in
British Liver Trust
6 months ago
Advice required about lead extraction ops please
I have been offered an invasive option as we've exhausted most options of medications. I seem to have settled best on Quinedine now after several allergies to other meds. Unfortunately though, I had another defibrillator shock recently after nearly 2 years witjout any. As I still get almost daily AFs
I have been offered an invasive option as we've exhausted most options of medications. I seem to have settled best on Quinedine now after several allergies to other meds. Unfortunately though, I had another defibrillator shock recently after nearly 2 years witjout any. As I still get almost daily AFs
Frequentshocker
in
AF Association
1 year ago
Metastic clear cell...
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
Hi, everyone. How are you? I just came back from my clinic appointment and was told news I didn't really want to hear. It spread again to one of lymph nodes near right kidney. That made sense why I had a pain there. I was on single dose of celarsertib for a few years. Now it's discontinued. My consultant
carrotmunch5
in
My Ovacome
6 months ago
Aspen Neuroscience Granted Fast Track Designation
FDA Grants Fast Track Designation to ANPD001, Autologous Investigational Cell Therapy for the Treatment of Parkinson’s Disease SAN DIEGO, Oct. 19, 2023 /PRNewswire/ — Aspen Neuroscience today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for ANPD001 for
FDA Grants Fast Track Designation to ANPD001, Autologous Investigational Cell Therapy for the Treatment of Parkinson’s Disease SAN DIEGO, Oct. 19, 2023 /PRNewswire/ — Aspen Neuroscience today announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation for ANPD001 for
redhawk1
in
Cure Parkinson's
6 months ago
drug holiday
I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing days it’s taken. I would really appreciate any feed back. My story is I’ve got really good bloods now and have been taking ibrutinib for 4 years
I’m looking for some experiences please about taking an ibrutinib holiday. I see there have been some posts about clinical trials either stopping or reducing days it’s taken. I would really appreciate any feed back. My story is I’ve got really good bloods now and have been taking ibrutinib for 4 years
Zoethedog
in
CLL Support
6 months ago
Bayer Investing in New Cell Therapy Facility
Bayer Opens First Cell Therapy Manufacturing Facility to Advance Regenerative Medicines on a Global Scale $250 million (USD) plant will help produce transformational cell and gene therapies on a global scale Creating readiness for first production runs of potential commercial launches, including bemdaneprocel
Bayer Opens First Cell Therapy Manufacturing Facility to Advance Regenerative Medicines on a Global Scale $250 million (USD) plant will help produce transformational cell and gene therapies on a global scale Creating readiness for first production runs of potential commercial launches, including bemdaneprocel
redhawk1
in
Cure Parkinson's
6 months ago
Depression, anxiety higher in lupus patients at risk of heart disease
Obesity, diabetes, hypertension among conditions raising a cardiovascular risk
by Marisa Wexler, MS | November 6, 2023 Depression and anxiety are more likely in people with systemic lupus erythematosus (SLE) who also are at a greater risk of heart disease, like those with obesity or high blood
Obesity, diabetes, hypertension among conditions raising a cardiovascular risk
by Marisa Wexler, MS | November 6, 2023 Depression and anxiety are more likely in people with systemic lupus erythematosus (SLE) who also are at a greater risk of heart disease, like those with obesity or high blood
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
Share Your Voice: Shaping the Future of Clinical Trial Searches
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Darryl
Partner
in
Prostate Cancer Network
6 months ago
Share Your Voice: Shaping the Future of Clinical Trial Searches
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Dear Friends, Clinical trial search engines suck. Most are primitive and return hit-or-miss results. None consider your specific concerns, leaving you vulnerable to hours of phone calls and form-filling, only to be rejected or to find that the trial is different than what you first thought. Malecare's
Darryl
Partner
in
Advanced Prostate Cancer
6 months ago
Peter Attia -Journal club with Andrew Huberman: metformin as a geroprotective drug, the power of belief, and how to read scientific papers
Why Peter no longer takes Metformin and why believing that a drug will work helps make ir happen https://peterattiamd.com/andrewhuberman2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230911-pod-andrewhuberman2&utm_content=230911-pod-andrewhuberman2-email-nonsubs&mc_cid=31e952e2dd&mc_eid=ee5f4da697
Why Peter no longer takes Metformin and why believing that a drug will work helps make ir happen https://peterattiamd.com/andrewhuberman2/?utm_source=podcast-email&utm_medium=email&utm_campaign=230911-pod-andrewhuberman2&utm_content=230911-pod-andrewhuberman2-email-nonsubs&mc_cid=31e952e2dd&mc_eid=ee5f4da697
Scout4answers
in
Advanced Prostate Cancer
8 months ago
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