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Next NoSilverBullet webinar on 11th of December: Prof Bas Bloem on "The importance of nutrition in managing Parkinson's"
I am delighted to announce the next NoSilverBullet Zoom webinar that will be taking place at 5.30 pm London time on Monday, the 11th of December. We will have the pleasure of listening to Professor Bas Bloem on "The importance of nutrition in managing Parkinson's". There is a growing focus on nutrition
I am delighted to announce the next NoSilverBullet Zoom webinar that will be taking place at 5.30 pm London time on Monday, the 11th of December. We will have the pleasure of listening to Professor Bas Bloem on "The importance of nutrition in managing Parkinson's". There is a growing focus on nutrition
Michel0220
in
Cure Parkinson's
8 months ago
Seafood shows promise as a future Parkinson's disease medication
Perhaps as a future PD medication, but nothing prevents you from enjoying seafood in your (MIND) diet already! From the Science News Team of the Dutch Parkinson's association I read the following article. [i]There is limited knowledge about the role of substances derived from marine life in the
Perhaps as a future PD medication, but nothing prevents you from enjoying seafood in your (MIND) diet already! From the Science News Team of the Dutch Parkinson's association I read the following article. [i]There is limited knowledge about the role of substances derived from marine life in the
Esperanto
in
Cure Parkinson's
8 months ago
Is this website BULLSH*T?
This is PDWarrior1900 I can't seem to login to my normal HealthUnlocked account from my downstairs computer. I subscribe to DOZENS of PD newsletters, clinical trials, etc. This was just emailed to me and I haven't check it out yet. -----------------------------------------------------------------
This is PDWarrior1900 I can't seem to login to my normal HealthUnlocked account from my downstairs computer. I subscribe to DOZENS of PD newsletters, clinical trials, etc. This was just emailed to me and I haven't check it out yet. -----------------------------------------------------------------
NewGuywithPD
in
Cure Parkinson's
8 months ago
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Fnd Movement symptoms and Autism diagnosis
Hey, for those who are autistic and have motor symptoms as part of their FND, this paper talks about the link between
parkinsonism
and autism. It's a systematic review so highest form of evidence.
Hey, for those who are autistic and have motor symptoms as part of their FND, this paper talks about the link between
parkinsonism
and autism. It's a systematic review so highest form of evidence.
Mattie21
in
Functional Neurological Disorder - FND Hope
1 year ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
8 months ago
Multiple mechanisms to clear a-synuclein with natural substances (in mice).
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
For informational purposes only Alpha Synuclein 1. INTRODUCTION: There are no effective treatments nor drugs available to modify disease progression
House2
in
Cure Parkinson's
8 months ago
Scientists have discovered a new cause of Parkinsons disease
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
https://scitechdaily.com/scientists-have-discovered-a-new-cause-of-parkinsons-disease/ A major discovery sheds light on the underlying mechanisms of Parkinson’s disease, opening the door for novel therapeutic approaches down the line. Until recently, our understanding of Parkinson’s disease has been
NextStage
in
Cure Parkinson's
8 months ago
Oral care tip
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Martina_MP
in
PSP Association
9 months ago
5-htp for adrenal insufficiency?
I've just read a bunch of articles about 5-htp (an amino acid precursor to serotonin) stimulating the HPA axis and increasing cortisol levels. Has anyone tried this when tapering through the lower doses of pred?
I've just read a bunch of articles about 5-htp (an amino acid precursor to serotonin) stimulating the HPA axis and increasing cortisol levels. Has anyone tried this when tapering through the lower doses of pred?
sferios
in
PMRGCAuk
9 months ago
Parkinson’s stategy: Embracing Hiking
Not entirely comparable, as he has rapidly deteriorating Corticobasal degeneration CBD (a form of
Parkinsonism
), and I have PD, for which at least there is levodopa medication.
Not entirely comparable, as he has rapidly deteriorating Corticobasal degeneration CBD (a form of
Parkinsonism
), and I have PD, for which at least there is levodopa medication.
Esperanto
in
Cure Parkinson's
7 months ago
T'ai Chi & PD study
Tai chi may help slow down the symptoms of Parkinson's disease for several years, a Chinese study suggests. Those who practised the martial art twice a week had fewer complications and better quality of life than those who didn't, the researchers say. Parkinson's is a progressive brain disease which
Tai chi may help slow down the symptoms of Parkinson's disease for several years, a Chinese study suggests. Those who practised the martial art twice a week had fewer complications and better quality of life than those who didn't, the researchers say. Parkinson's is a progressive brain disease which
Reetpetitio
in
Cure Parkinson's
9 months ago
"First ever successful experimental stem cell therapy for Parkinson's Disease"
https://youtu.be/Cz_0T7A7xc4?si=X7X0UCasxigtSmPf "Oct 9, 2023 #parkinsonsdisease #stemcelltreatment #parkinson In this podcast, we discuss a new potential treatment for Parkinson's Disease has been developed by Bluerock Therapeutics that has completed and released results for the Phase 1 clinical
https://youtu.be/Cz_0T7A7xc4?si=X7X0UCasxigtSmPf "Oct 9, 2023 #parkinsonsdisease #stemcelltreatment #parkinson In this podcast, we discuss a new potential treatment for Parkinson's Disease has been developed by Bluerock Therapeutics that has completed and released results for the Phase 1 clinical
MBAnderson
in
Cure Parkinson's
9 months ago
What I had failed to grasp about caffeine all these years...
I am a coffee lover all the way through my life to the extent that we now have a nespresso these days with all the various blends to keep variety up. All the research I read talked about the anti-oxidant properties of coffee and the benefits to a more positive digestion etc etc. Even I used to think
I am a coffee lover all the way through my life to the extent that we now have a nespresso these days with all the various blends to keep variety up. All the research I read talked about the anti-oxidant properties of coffee and the benefits to a more positive digestion etc etc. Even I used to think
Danielj1
in
Thyroid UK
9 months ago
The disease is in thought, environment, perception and inherited information. Then it goes into our body chemistry.
I had a fabulous summer. Living in a natural paradise, having a vegetable garden, bathing in the river, meditation, Chikung, electric bike rides in the mountains, fresh air and springs, redox molecule supplements, electro-stimulation with micro-currents, etc. have all made my Parkinson's "even better
I had a fabulous summer. Living in a natural paradise, having a vegetable garden, bathing in the river, meditation, Chikung, electric bike rides in the mountains, fresh air and springs, redox molecule supplements, electro-stimulation with micro-currents, etc. have all made my Parkinson's "even better
ManuCalma
in
Cure Parkinson's
9 months ago
What the Heck? I thought boosting Short Chain Fatty Acids (SCFAs) was a Good Thing?
So... I'm digging into PDTom's post: Propionic acid (sodium propionate) - Does anyone have any experience? https://healthunlocked.com/cure-parkinsons/posts/150101092/propionic-acid-sodium-propionate-does-anyone-have-any-experience
And the feedback seems to be "Go Propionic Acid!" so I start
So... I'm digging into PDTom's post: Propionic acid (sodium propionate) - Does anyone have any experience? https://healthunlocked.com/cure-parkinsons/posts/150101092/propionic-acid-sodium-propionate-does-anyone-have-any-experience
And the feedback seems to be "Go Propionic Acid!" so I start
Bolt_Upright
in
Cure Parkinson's
9 months ago
“Strategies for the Treatment of Parkinson’s Disease: Beyond Dopamine”
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
Gioc
in
Cure Parkinson's
9 months ago
Are you ready to kick neurotoxins to the curb?
You can start by not eating them and clean up your diet. The next step is to remove neurotoxins from your personal care and cleaning products. Edit: Would you be more motivated to change your lifestyle if you understood how Roundup is used and why it's poison? Roundup kills any actively growing plant
You can start by not eating them and clean up your diet. The next step is to remove neurotoxins from your personal care and cleaning products. Edit: Would you be more motivated to change your lifestyle if you understood how Roundup is used and why it's poison? Roundup kills any actively growing plant
SilentEchoes
in
Cure Parkinson's
9 months ago
Nightly leg cramps
Hi Warriors: I have GCA since June 2023. Down to 35 mg pred from 60 mg. Tapering down by 5mg every 2 weeks til I get to l5mg. Then will go much slower. I am having very painful leg cramps every night that wake me up. after about 3/4 hrs sleep. I have to get up and walk around. Last night I took 2
Hi Warriors: I have GCA since June 2023. Down to 35 mg pred from 60 mg. Tapering down by 5mg every 2 weeks til I get to l5mg. Then will go much slower. I am having very painful leg cramps every night that wake me up. after about 3/4 hrs sleep. I have to get up and walk around. Last night I took 2
Groda
in
PMRGCAuk
9 months ago
Straw therapy for low speech volume
Hubby has low volume speech. He is currently doing work with the Parkinson’s Voice Project (PVP) with some success — IF he keeps up with it. We recently saw exercises for help projecting with volume using a straw (you blow into a glass of water), supposedly this helps with increasing the muscle tone
Hubby has low volume speech. He is currently doing work with the Parkinson’s Voice Project (PVP) with some success — IF he keeps up with it. We recently saw exercises for help projecting with volume using a straw (you blow into a glass of water), supposedly this helps with increasing the muscle tone
1rocketman
in
Cure Parkinson's
9 months ago
The Epidemiology of Parkinson's Disease
I live in the Red River Valley - a neurodegenerative disease hot spot. This isn't where I was poisoned, it's where we landed after I got sick. I had to be transferred by ambulance to a different hospital system in May - there are specially trained teams for patients with ALS due to respiratory failure
I live in the Red River Valley - a neurodegenerative disease hot spot. This isn't where I was poisoned, it's where we landed after I got sick. I had to be transferred by ambulance to a different hospital system in May - there are specially trained teams for patients with ALS due to respiratory failure
SilentEchoes
in
Cure Parkinson's
9 months ago
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