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PositiveSam
Hi all, ive been diagnosed about 3 years now. I'm taking azilect 1 mg tablets and mirapexin 0.52 mg. finding sleeping can be biggest issue. Especially if I'm late taking medicin. I play tennis every day even twice. I try to carry on as normal.
Hi all, ive been diagnosed about 3 years now. I'm taking azilect 1 mg tablets and mirapexin 0.52 mg. finding sleeping can be biggest issue. Especially if I'm late taking medicin. I play tennis every day even twice. I try to carry on as normal.
Angelo65
in
Cure Parkinson's
8 years ago
Ooh - It's arrived.....Now what...
Hi, I have been taking nutri-thyroid - about 6 a day, 2 T-Covert and the occasional nutri Thyro Complex which I take reluctantly as makes me feel nauseous. Also two NAX and two 5-HTP. This is under advice from private Dr. (also si B12 and take other supplements) Independently, I ordered Thiroyd NDT
Hi, I have been taking nutri-thyroid - about 6 a day, 2 T-Covert and the occasional nutri Thyro Complex which I take reluctantly as makes me feel nauseous. Also two NAX and two 5-HTP. This is under advice from private Dr. (also si B12 and take other supplements) Independently, I ordered Thiroyd NDT
Bluedragon
in
Thyroid UK
8 years ago
Carbidopa/Levadopa question
I started C/L a couple weeks ago. It made me queasy so a couple days ago the doc added a carbidopa supplement (25 mg). I can hardly keep my eyes open and my legs feel like they're ready to give out after walking just a couple blocks or so. I want to give these meds a fair shot but I am wondering if I
I started C/L a couple weeks ago. It made me queasy so a couple days ago the doc added a carbidopa supplement (25 mg). I can hardly keep my eyes open and my legs feel like they're ready to give out after walking just a couple blocks or so. I want to give these meds a fair shot but I am wondering if I
Beckey
in
Cure Parkinson's
8 years ago
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DIPHENHYDRAMINE, therapeutic?
As I write this I am back to feeling well-managed. However a few days ago I bought a wrist cuff blood pressure device for my wife and became quite upset with my personal b/p measurements. The machine was about 35% high in its readings, of course. but until I visited a phaarmacy and had my b/p measured
As I write this I am back to feeling well-managed. However a few days ago I bought a wrist cuff blood pressure device for my wife and became quite upset with my personal b/p measurements. The machine was about 35% high in its readings, of course. but until I visited a phaarmacy and had my b/p measured
BUZZ1397
in
Cure Parkinson's
8 years ago
An Artist's Journey Into Parkinson's - Documentary Interview
I recently finished my documentary about Parkinson's Disease and will be interviewed by Robert Rogers, PHD on April 18 at 3PM Eastern Standard Time. I will be talking about specific minerals, vitamins, amino acids and herbs which are good for Parkinson's disease. The link is here: http://www.blogtalkradio.com
I recently finished my documentary about Parkinson's Disease and will be interviewed by Robert Rogers, PHD on April 18 at 3PM Eastern Standard Time. I will be talking about specific minerals, vitamins, amino acids and herbs which are good for Parkinson's disease. The link is here: http://www.blogtalkradio.com
silvestrov
in
Cure Parkinson's
8 years ago
SCA 6 and colon problems?
Hi, my husband was tested SCA6 about 3 years ago. He has always suffered from constipation, but since January he has been admitted to hospital twice for an intestinal blockage caused by volvulus of the sigmoid colon. Please forgive the terms, we live in France and I am translating. I ws talking to our
Hi, my husband was tested SCA6 about 3 years ago. He has always suffered from constipation, but since January he has been admitted to hospital twice for an intestinal blockage caused by volvulus of the sigmoid colon. Please forgive the terms, we live in France and I am translating. I ws talking to our
fosca
in
Ataxia UK
8 years ago
ENTERIC COATING....MAY NEED SOME WARNINGS
Having just gone through my worst flare of my 15 months of actively dealing with GCA and PMR......I've ended up spending most of my time in bed with time to think. Hubby and I have done some posting about our decision to split my daily dosage ( 18mg ) to relieve some of my morning PMR pain. For three
Having just gone through my worst flare of my 15 months of actively dealing with GCA and PMR......I've ended up spending most of my time in bed with time to think. Hubby and I have done some posting about our decision to split my daily dosage ( 18mg ) to relieve some of my morning PMR pain. For three
cjatthesea
in
PMRGCAuk
8 years ago
Parkinson's
I was diagnosed in 2008 at age 65 with onset Parkinson's. I consider myself case manager and aggressively manage. I consider my case mild at this stage confined to left side. Fortunately right handed. I have movement disorder Neurologist for med refills, most provide little help. I have holistic MD who
I was diagnosed in 2008 at age 65 with onset Parkinson's. I consider myself case manager and aggressively manage. I consider my case mild at this stage confined to left side. Fortunately right handed. I have movement disorder Neurologist for med refills, most provide little help. I have holistic MD who
Tedhpersonal
in
Cure Parkinson's
8 years ago
RLS-UK Annual General Meeting, 03/09/16 - Professor K Ray Chaudhuri confirmed as Guest Speaker
He is the European Editor of Basal Ganglia and is in the editorial board of
Parkinsonism
and Related Disorders and Journal of Parkinson’s Disease..He also represents UK research and development in the National Institute of Health Research (NIHR) as well as at a local level for London South CLRN neurosciences
He is the European Editor of Basal Ganglia and is in the editorial board of
Parkinsonism
and Related Disorders and Journal of Parkinson’s Disease..He also represents UK research and development in the National Institute of Health Research (NIHR) as well as at a local level for London South CLRN neurosciences
Daragh
Restless Leg Syndrome
in
Restless Legs Syndrome
8 years ago
Ataxia to Atrophy
MSA can be `MSA-P (
parkinsonism
) or MSA-C (Cerebellar) The symptoms of Ataxia and MSA are very similar. At the appointment I met the Ataxia uk representative who was extremely helpful. Anyone else with MSA on this site ( I have joined the MSA site which is very similar to this one) Colin
MSA can be `MSA-P (
parkinsonism
) or MSA-C (Cerebellar) The symptoms of Ataxia and MSA are very similar. At the appointment I met the Ataxia uk representative who was extremely helpful. Anyone else with MSA on this site ( I have joined the MSA site which is very similar to this one) Colin
cymruralf
in
Ataxia UK
8 years ago
Please help desperate
Ok here's the story so Monday I found out I had candida doc prescribed me nystatin 3x a day for 6 weeks started it monday. Tuesday intense itching started,Wednesday got worse along with hives and sunburn look almost everywhere was advised by pharmacy to stop nystatin so I did Wednesday .took claritin
Ok here's the story so Monday I found out I had candida doc prescribed me nystatin 3x a day for 6 weeks started it monday. Tuesday intense itching started,Wednesday got worse along with hives and sunburn look almost everywhere was advised by pharmacy to stop nystatin so I did Wednesday .took claritin
lindsey1987
in
Thyroid UK
8 years ago
probiotics recommendations please
Unrelated post - but I'm just finishing my second course of antibiotics for a nasty upper respiratory infection. My gut bacteria are going to need some serious replenishing and I don't believe generic live yoghurt from the supermarket is going to cut the mustard... I had a look on Amazon and am more
Unrelated post - but I'm just finishing my second course of antibiotics for a nasty upper respiratory infection. My gut bacteria are going to need some serious replenishing and I don't believe generic live yoghurt from the supermarket is going to cut the mustard... I had a look on Amazon and am more
Joburton
in
Thyroid UK
8 years ago
Group support - exercise etc
Hello fellow ataxians. This is by way of answer to two recent posts, on difficulty standing and on the media and support for ataxia. Doing more exercise to strengthen the body is the only way to help ourselves. My wife Jenny and I do 20 - 30 minutes yoga based stretching every morning before breakfast
Hello fellow ataxians. This is by way of answer to two recent posts, on difficulty standing and on the media and support for ataxia. Doing more exercise to strengthen the body is the only way to help ourselves. My wife Jenny and I do 20 - 30 minutes yoga based stretching every morning before breakfast
nigelrheath
in
Ataxia UK
8 years ago
Irregular heart beat
My husband has had Parkinsons for 6 years. He takes Sinemet and entacapone. Shortly after taking his medication (every 3hours) he feels very weak . When I check his BP it is often very low and shows "irregular heart beat" I feel it is the medication rather than "off" time. I don't often contribute to
My husband has had Parkinsons for 6 years. He takes Sinemet and entacapone. Shortly after taking his medication (every 3hours) he feels very weak . When I check his BP it is often very low and shows "irregular heart beat" I feel it is the medication rather than "off" time. I don't often contribute to
leojohn
in
Cure Parkinson's
8 years ago
Have you considered DBS? It is recommended for people with midstage PD who for whom meds are no longer working well!
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
sdekozan
in
Cure Parkinson's
8 years ago
Dancing with the devil
I was brought up to be very considers about other people's views and openness. At a party you never discuss religion or politics and you always take the hostess a gift. unusually I am going to type a post that is more controversial than I would normally. What has prompted this is my pet hate assumption
I was brought up to be very considers about other people's views and openness. At a party you never discuss religion or politics and you always take the hostess a gift. unusually I am going to type a post that is more controversial than I would normally. What has prompted this is my pet hate assumption
Hidden
in
Cure Parkinson's
8 years ago
Can a smartphone unlock new discoveries in Parkinson’s?
The Cure Parkinson’s Trust are supporting a world-first global study to learn more about the health of people with Parkinson’s, to help bridge the long gap between visits to the doctor. You’re invited to become a citizen scientist, tracking the ten most important aspects of your health for 100 days
The Cure Parkinson’s Trust are supporting a world-first global study to learn more about the health of people with Parkinson’s, to help bridge the long gap between visits to the doctor. You’re invited to become a citizen scientist, tracking the ten most important aspects of your health for 100 days
CPT_Helen
Administrator
in
Cure Parkinson's
8 years ago
Nausea with my Sinement
I take carbidopa/levodopa 3x a day I was getting nausea about 25 minutes after taking it. But not all the time so my neurologist wants me to take Tigan it is $185.00 a month I told him I can't afford it he got mad, so he said take carbidopa 1 hrs before I take my carb/lev sometimes I get sick and sometimes
I take carbidopa/levodopa 3x a day I was getting nausea about 25 minutes after taking it. But not all the time so my neurologist wants me to take Tigan it is $185.00 a month I told him I can't afford it he got mad, so he said take carbidopa 1 hrs before I take my carb/lev sometimes I get sick and sometimes
sleddog
in
Cure Parkinson's
8 years ago
wellbutrin (bupropion) potential problems
downregulates BDNF possibly increasing risk of PD http://www.ncbi.nlm.nih.gov/pubmed/22507762
parkinsonism
induced by it (no abstract in last 3) http://www.ncbi.nlm.nih.gov/pubmed/1592841 (falling backwards) http://www.ncbi.nlm.nih.gov/pubmed/17133932 http://www.ncbi.nlm.nih.gov/pubmed/17534961 http
downregulates BDNF possibly increasing risk of PD http://www.ncbi.nlm.nih.gov/pubmed/22507762
parkinsonism
induced by it (no abstract in last 3) http://www.ncbi.nlm.nih.gov/pubmed/1592841 (falling backwards) http://www.ncbi.nlm.nih.gov/pubmed/17133932 http://www.ncbi.nlm.nih.gov/pubmed/17534961 http
zawy
in
Cure Parkinson's
8 years ago
Could the side effects of Neurofibromatosis type 2 [NF2] be mistaken for Parkinson's Disease?
Having NF2 with shaking hands, unsteady gait, small term memory loss, etc, be mistaken for the similar effects of Parkinson's Disease? Would they be related in some way?
Having NF2 with shaking hands, unsteady gait, small term memory loss, etc, be mistaken for the similar effects of Parkinson's Disease? Would they be related in some way?
Adlon57
in
Healthy Evidence
8 years ago
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