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RIP Debbie
Debbie was initially diagnosed with Parkinson's /
Parkinsonism
this time 4 years ago, with diagnosis changing to MSA 2 years ago, although I strongly suspected MSA a year into initial Parkinson's diagnosis. We have a lot to be thankful for with how Debbie went in the end.
Debbie was initially diagnosed with Parkinson's /
Parkinsonism
this time 4 years ago, with diagnosis changing to MSA 2 years ago, although I strongly suspected MSA a year into initial Parkinson's diagnosis. We have a lot to be thankful for with how Debbie went in the end.
leroybrown
in
Multiple System Atrophy Trust
6 months ago
Bang for your buck
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
heartinmotion
in
Cure Parkinson's
3 months ago
documentary one in 37 by Cure Parkinson’s NZ
https://www.cureparkinsonsnz.org.nz/one-in-37-documentary/ ”Our full-length, 60-min documentary tells the personal stories of five individuals living with Parkinson’s disease and highlights the New Zealand research effort to develop therapies that can stop or slow disease progression. It also breaks
https://www.cureparkinsonsnz.org.nz/one-in-37-documentary/ ”Our full-length, 60-min documentary tells the personal stories of five individuals living with Parkinson’s disease and highlights the New Zealand research effort to develop therapies that can stop or slow disease progression. It also breaks
LAJ12345
in
Cure Parkinson's
3 months ago
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Help in understanding drugs in Parkinsons
I've recently been diagnosed with Parkinsons and have been prescribed LevaDopa -1/2 tablet (125mg) 4 times per day. I understand that there are complimentary drugs such MAO-B Inhibitors (such as Selegiline, Rasagiline, and Safinamide) I've done some cursory reseach which indicates that MAO-B inhibitors
I've recently been diagnosed with Parkinsons and have been prescribed LevaDopa -1/2 tablet (125mg) 4 times per day. I understand that there are complimentary drugs such MAO-B Inhibitors (such as Selegiline, Rasagiline, and Safinamide) I've done some cursory reseach which indicates that MAO-B inhibitors
Mezmerric
in
Cure Parkinson's
3 months ago
L-Theanine (not to be confused with Theanine B1)
Does anybody have any experience of supplementing with L-Theanine, (or drinking Green Tea, which contains L-Theanine) to help with sleep or any symptoms of Parkinsons? This video piqued by interest as it indicates that L-Theanine reduces the excitatory signals of Glutamate in the brain. https://www.youtube.com
Does anybody have any experience of supplementing with L-Theanine, (or drinking Green Tea, which contains L-Theanine) to help with sleep or any symptoms of Parkinsons? This video piqued by interest as it indicates that L-Theanine reduces the excitatory signals of Glutamate in the brain. https://www.youtube.com
Mezmerric
in
Cure Parkinson's
3 months ago
US FDA declines to approve Supernus' Parkinson's combination again
The company plans to address the FDA's concerns and resubmit its application for the product, which aims to treat so-called "off episodes", which affects nearly all patients of Parkinson's, heightening symptoms such as tremors and difficulty in walking, as medication wears off. https://www.reuters.com
The company plans to address the FDA's concerns and resubmit its application for the product, which aims to treat so-called "off episodes", which affects nearly all patients of Parkinson's, heightening symptoms such as tremors and difficulty in walking, as medication wears off. https://www.reuters.com
Farooqji
in
Cure Parkinson's
3 months ago
Urolithin A (UA) – To anybody taking, what’s your experience?
Sometimes, I feel gullible for the fleeing by an over-priced, over-hyped supplement. As I understand, UA is produced by bacteria in your gut and without the right bacteria, your gut can’t produce from food. And, maybe the product is more concentrated than what’s produced by bacteria. AI Says: “Urolithin
Sometimes, I feel gullible for the fleeing by an over-priced, over-hyped supplement. As I understand, UA is produced by bacteria in your gut and without the right bacteria, your gut can’t produce from food. And, maybe the product is more concentrated than what’s produced by bacteria. AI Says: “Urolithin
Gcf51
in
Cure Parkinson's
3 months ago
Next NoSilverBullet webinar on 22nd of April: Dr M Sexton on “How can medical cannabis help people with Parkinson’s?”
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.30pm London time on Monday, the 22nd of April. Dr Michelle Sexton will be talking to us about “How can medical cannabis help people with Parkinson’s?” Please use the Eventbrite link below to register for
Michel0220
in
Cure Parkinson's
3 months ago
Diabetes drug similar to Ozempic helped slow progression of Parkinson’s disease in small trial
https://www.cnbc.com/2024/04/04/drug-similar-to-ozempic-slowed-parkinsons-disease-in-small-trial.html And they are no longer manufacturing this older drug as it would be a "cheap" drug. It will be repurposed and cost $$$. I know I am being cynical. [i]Sanofi pulled lixisenatide from the market
https://www.cnbc.com/2024/04/04/drug-similar-to-ozempic-slowed-parkinsons-disease-in-small-trial.html And they are no longer manufacturing this older drug as it would be a "cheap" drug. It will be repurposed and cost $$$. I know I am being cynical. [i]Sanofi pulled lixisenatide from the market
Sydney75
in
Cure Parkinson's
3 months ago
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bee venom for the treatment of Parkinson’s disease: How far is it possible? 2017 https://sci-hub.st/10.1016/j.biopha.2017.04.065 A woman on FB Parkinson's Alternative Healing posted that wasp venom has made most of her symptoms go away. I am still trying to find out if she stopped her meds.
Bolt_Upright
in
Cure Parkinson's
3 months ago
GLP1-R agonist improves Parkinson disease symptoms
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
Gcf51
in
Cure Parkinson's
3 months ago
question about macuna
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
hi Few questions. 1. Does macuna capsule must take with benserazide or carbidopa? 2. If so, i am taking 100mg levodopa/25mg benserazide(Madopar) if I want to add 400mg mucuna15% levodopa ; so I need to take extra benserazide? thx
limcheeese22
in
Cure Parkinson's
4 months ago
How Much Carbidopa Levodopa After 5-10 Years? Any other meds?
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
I am about to "celebrate" the six year anniversary of my Parkinson's disease diagnosis. I currently take five 25/100 Carbidopa Levodopa tablets per day, usually around 9:00 a.m., noon, 3:00 p.m., 6:00 p.m., and 9:00 p.m. although timing varies slightly from day to day. Lately, I have noticed that I
jimcaster
in
Cure Parkinson's
4 months ago
Husband with PSP
Hi there My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s He is Madopar four times a day plus to Amantandine the medication has helped a lot with his tremor His mobility is very poor, he had another fall today. The lack of empathy is very common and
Hi there My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s He is Madopar four times a day plus to Amantandine the medication has helped a lot with his tremor His mobility is very poor, he had another fall today. The lack of empathy is very common and
Poodlelady1
in
PSP Association
4 months ago
Cat's Claw
Anyone out there know of taking Cat's Claw tiincture for Parkinson's shake ( tremor)? Anyother benefit?
Anyone out there know of taking Cat's Claw tiincture for Parkinson's shake ( tremor)? Anyother benefit?
b-bobble
in
Cure Parkinson's
4 months ago
Photopharmics kickstarts phototherapy trial for Parkinson’s disease
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
The US Food and Drug Administration (FDA)-approved device targets photoreceptors in the eye responsible for circadian signalling. Research has shown that Parkinson’s disease can damage the retina and impact the circadian system leading to symptoms such as trouble sleeping, cognition, depression, and
Farooqji
in
Cure Parkinson's
4 months ago
Sustaining friendships in the 21st century
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
jeeves19
in
Cure Parkinson's
4 months ago
Parkinson's Patients See Hope in Novel Stem Cell Repair Method
In work funded by The Michael J. Fox Foundation for Parkinson's Research (MJFF) and Science Foundation Ireland, published this week in the Journal of Neural Engineering, the team in the College of Medicine, Nursing and Health Sciences at University of Galway have shown that transplanting the immature
In work funded by The Michael J. Fox Foundation for Parkinson's Research (MJFF) and Science Foundation Ireland, published this week in the Journal of Neural Engineering, the team in the College of Medicine, Nursing and Health Sciences at University of Galway have shown that transplanting the immature
Farooqji
in
Cure Parkinson's
4 months ago
The best advice I can or may ever give to anyone who has Parkinson's especially the newly diagnosed .
The Davis Phinney Foundation for Parkinson's in partnership with Parkinson's Canada has published the Canadian edition of the book "Every Victory Counts". It is my understanding that they have published this book in associations with several national Parkinson's groups and are making it available
The Davis Phinney Foundation for Parkinson's in partnership with Parkinson's Canada has published the Canadian edition of the book "Every Victory Counts". It is my understanding that they have published this book in associations with several national Parkinson's groups and are making it available
Gymsack
in
Cure Parkinson's
4 months ago
Has anyone tried Piracetam for Parkinson's disease.
Hi, was diagnosed with Parkinson's August 2023. Taking one Levocarb CR 200/50 MG for tremor. Also using Coronet 4 light helmet therapy twice daily and symbyx 904 PD care laser on gut alternate days ,along with vibratory gloves alternate days with great results. Heard that Piracetam might help,wondering
Hi, was diagnosed with Parkinson's August 2023. Taking one Levocarb CR 200/50 MG for tremor. Also using Coronet 4 light helmet therapy twice daily and symbyx 904 PD care laser on gut alternate days ,along with vibratory gloves alternate days with great results. Heard that Piracetam might help,wondering
Logon206500
in
Cure Parkinson's
4 months ago
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