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First MS Neuro Appointment!
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
Neuro confirmed in person that I have MS. I have RRMS. To get me out of the current flare, I started steroid infusions today, and will do 3 days of it. I am hopeful that it will really help. I'm looking forward to seeing what my 'new normal' is (more like impatiently waiting for this flare to be over
MSFlea
in
My MSAA Community
5 months ago
Any practical tools to prevent computer vision syndrome?
Any practical tools to prevent computer vision syndrome (lower back and neck pain, eye dryness and strain)?
Any practical tools to prevent computer vision syndrome (lower back and neck pain, eye dryness and strain)?
bliinkai
in
Pain Concern
5 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
5 months ago
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From high hopes to not a lot of hope in one gruelling morning.
Hi everyone. What a day. Particularly what a morning. This is my third post. I was commenced on Mycophenolate by the Royal Hallamshire Consultant in early January. I attended for my second consultation this morning. Appointment was 10.20am. Arrived 9.30am. Car park full. Had to park half mile away and
Hi everyone. What a day. Particularly what a morning. This is my third post. I was commenced on Mycophenolate by the Royal Hallamshire Consultant in early January. I attended for my second consultation this morning. Appointment was 10.20am. Arrived 9.30am. Car park full. Had to park half mile away and
DaveLister
in
Lung Conditions Community Forum
5 months ago
flutter not fibrillation
Hi all I have paid to see an EP (privately) today who has confirmed 100% I have atrial flutter and no fibrillation? Anyone else just have flutter? He has recommended an ablation to sort it out and told me to stop taking Flecainide which makes me nervous. He says it probably isn’t doing much and could
Hi all I have paid to see an EP (privately) today who has confirmed 100% I have atrial flutter and no fibrillation? Anyone else just have flutter? He has recommended an ablation to sort it out and told me to stop taking Flecainide which makes me nervous. He says it probably isn’t doing much and could
Dogmad2
in
AF Association
5 months ago
Experiences with fast protein digestion
I am getting tired of not having any protein during the day or just fasting all day and I would like to be able to get "cheat days" once in a while. In this quest, I am convinced that there might be ways to digest food and in particular, protein faster 🧀🍕 Has anyone tried anything that you have found
I am getting tired of not having any protein during the day or just fasting all day and I would like to be able to get "cheat days" once in a while. In this quest, I am convinced that there might be ways to digest food and in particular, protein faster 🧀🍕 Has anyone tried anything that you have found
pdpatient
in
Cure Parkinson's
5 months ago
Possible lung metastasis
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
hi everyone I am 10 years just gone since the start of my journey, usual operation and chemo in 2014. then recurrence in the bowel in 2018 with resection and further chemo. I now have a single lung lesion noticed in March last year. Its now grown from 6mm in October to 9mm now. I have been told that
Bettyxxx
in
My Ovacome
5 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
5 months ago
Sigmoid Sinus Diverticulum
Hello, So I've been suffering from tinnitus since 2022 and from pulsatile tinnitus since 2023. I've been to ENT and had an MRI scan with and without contrast. My results with contrast show that I have a small transverse sinus diverticulum. Which from looking online is a rare vascular disorder. I
Hello, So I've been suffering from tinnitus since 2022 and from pulsatile tinnitus since 2023. I've been to ENT and had an MRI scan with and without contrast. My results with contrast show that I have a small transverse sinus diverticulum. Which from looking online is a rare vascular disorder. I
Shantelle00
in
Tinnitus UK
5 months ago
Functional practitoner
In my search for answers, other than taking pills only for any manifestations of illness which occur (I have Sjogrens disease also), I am speaking with a functional practitioner tonight as they claim to find out causes of and then treat so it should be interesting. Doctors just give you more and more
In my search for answers, other than taking pills only for any manifestations of illness which occur (I have Sjogrens disease also), I am speaking with a functional practitioner tonight as they claim to find out causes of and then treat so it should be interesting. Doctors just give you more and more
Poshy
in
IBS Network
5 months ago
Intro
I have had intermittent tinnitus, a low drone head noise, since May 2021 (I think vaccine induced). In Nov 2022 I had microsuction on one ear. In April 2023 I woke up to nonstop static/white noise in my head, high pitched and loud. Has been 24/7 for nearly 10 months. Can hear it over the TV, in the car
I have had intermittent tinnitus, a low drone head noise, since May 2021 (I think vaccine induced). In Nov 2022 I had microsuction on one ear. In April 2023 I woke up to nonstop static/white noise in my head, high pitched and loud. Has been 24/7 for nearly 10 months. Can hear it over the TV, in the car
Lovechopin
in
Tinnitus UK
5 months ago
Cold cap advice?
Im a very lucky gal whose cancer was caught early (by accident) at stage 1c. I've had surgery and about to start chemo tomorrow. Carbopentin only. They booked me a cold cap as I was originally going to have Carbo + Taxil which usually results in hair loss. Now the risk is lower so not sure whether you'd
Im a very lucky gal whose cancer was caught early (by accident) at stage 1c. I've had surgery and about to start chemo tomorrow. Carbopentin only. They booked me a cold cap as I was originally going to have Carbo + Taxil which usually results in hair loss. Now the risk is lower so not sure whether you'd
Shluggie
in
My Ovacome
5 months ago
EA 2010, Section 20 reasonable adjustments
Hi I have had Tins for about 3 years . It started in the left ear and has got progressively worse. It is now in both ears. At best it is like constant white noise at its worst it is like a Chinook Helicopter in my head. The pitch and severity varies through out the day. I am unable to do anything
Hi I have had Tins for about 3 years . It started in the left ear and has got progressively worse. It is now in both ears. At best it is like constant white noise at its worst it is like a Chinook Helicopter in my head. The pitch and severity varies through out the day. I am unable to do anything
Tinssufferer1
in
Tinnitus UK
5 months ago
Stopping apixaban before a bladder tumour removal
Hi all, I have afib but this question is for my brother who is really anxious about an upcoming procedure to remove a bladder tumour (Friday 9th Feb).He has had an awful 12 months with 4 mini strokes (caused by undiagnosed afib), early stage Parkinson's and now a bladder tumour. He has severe health
Hi all, I have afib but this question is for my brother who is really anxious about an upcoming procedure to remove a bladder tumour (Friday 9th Feb).He has had an awful 12 months with 4 mini strokes (caused by undiagnosed afib), early stage Parkinson's and now a bladder tumour. He has severe health
Karendeena
in
AF Association
5 months ago
DMARD trial
Some input needed please. I am in Norwich under the care of Max Yates and currently on 3.5/4mg of pred. He thinks that i will stay on 4mg. My inflammation markers are in the normal range. I have a lot of disfunction in my legs but cant decide if that is PMR or collateral knee/muscle damage. My upper
Some input needed please. I am in Norwich under the care of Max Yates and currently on 3.5/4mg of pred. He thinks that i will stay on 4mg. My inflammation markers are in the normal range. I have a lot of disfunction in my legs but cant decide if that is PMR or collateral knee/muscle damage. My upper
marionofnorwich
in
PMRGCAuk
5 months ago
Worrying
I suffer with IBS and have done now for more than 20 years it can be constipation or loose no weeks are the same no pattern to it at all but over the last few days the constipation has lasted most of the week I take a daily fibergel sometimes this helps other times it doesn’t my problem today is when
I suffer with IBS and have done now for more than 20 years it can be constipation or loose no weeks are the same no pattern to it at all but over the last few days the constipation has lasted most of the week I take a daily fibergel sometimes this helps other times it doesn’t my problem today is when
Poppyseed8
in
IBS Network
5 months ago
Persistent pelvic pain & next to no support. Does anyone know of any support groups or services, please?
Hi - I was diagnosed with interstitial cystitis last April, and have experienced ongoing pelvic pain since I caught covid in September 2022. Next two paragraphs are just venting, request for resources is in the last paragraph if you want to skip it. I have vaginal pain, bladder pain, and stabbing pain
Hi - I was diagnosed with interstitial cystitis last April, and have experienced ongoing pelvic pain since I caught covid in September 2022. Next two paragraphs are just venting, request for resources is in the last paragraph if you want to skip it. I have vaginal pain, bladder pain, and stabbing pain
purpleheresy
in
Pelvic Pain Support Network
5 months ago
NTG and thin corneas
Hi I was diagnosed with NTG in my left eye over 20 years ago. Since then my pressures have been stable with apparently no cause for concern. Last year I had a severe infection in both eyes which has increased the pressure in my left eye from 11 to 14. I didn't think that was too bad as it had been
Hi I was diagnosed with NTG in my left eye over 20 years ago. Since then my pressures have been stable with apparently no cause for concern. Last year I had a severe infection in both eyes which has increased the pressure in my left eye from 11 to 14. I didn't think that was too bad as it had been
NoraBoneGirl
in
Glaucoma UK
5 months ago
Vital Role of B12 and Folate
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
https://www.sciencedirect.com/science/article/abs/pii/S0193953X12001001?via%3Dihub This article focuses on the role of b12 and folate in the synthesis of methionine and one of the side effects of improper synthesis is depression and cognitive impairment. However, I want to emphasise that poor synthesis
B12life
in
Pernicious Anaemia Society
5 months ago
Simbrinza shortage?
Over the years my opthamologist and I have settled on Simbrinza eye drops as the best for my glaucoma. Yesterday my pharmacist tells me he can't find the drops anywhere and he's going to keep looking. We're in SE London area. Any suggestions? Thanks
Over the years my opthamologist and I have settled on Simbrinza eye drops as the best for my glaucoma. Yesterday my pharmacist tells me he can't find the drops anywhere and he's going to keep looking. We're in SE London area. Any suggestions? Thanks
meandpd
in
Glaucoma UK
5 months ago
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