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Medication not working
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
Lornap1
in
NRAS
2 months ago
biologics
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽♀️I’m staying on the metratrexate but adding in the biologic as
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽♀️I’m staying on the metratrexate but adding in the biologic as
Mybirthday1975
in
NRAS
2 months ago
Heat does it cause problems
Hi allBoth ankles and knees swollen does this often happen with underactive thyroid I am on 75 to 100mg daily which I alternate as recommended by you lovely lot which has helped me become stable and feel better for last year I do have inflammatory arthritis also and am on DMARS for Any advise tips will
Hi allBoth ankles and knees swollen does this often happen with underactive thyroid I am on 75 to 100mg daily which I alternate as recommended by you lovely lot which has helped me become stable and feel better for last year I do have inflammatory arthritis also and am on DMARS for Any advise tips will
Castroll
in
Thyroid UK
2 months ago
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so. Is Undifferentiated Connective Tissue Disease latent lupus or lupus?
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
Bigdave79
in
LUPUS UK
2 months ago
Results from blood tests
These is what my blood results came back has. I'm been treated for underactive . But to be told I'm hyperthyroidism instead
These is what my blood results came back has. I'm been treated for underactive . But to be told I'm hyperthyroidism instead
Salsybar73
in
Thyroid UK
2 months ago
Disease remission achieved in SLE with dual-target CAR T-cell therapy
Disease remission achieved in SLE with dual-target CAR T-cell therapy Nearly all patients in small trial see long-term medication-free remission Nearly all people with systemic lupus erythematosus (SLE) treated with iCell Gene Therapeutics’ dual-target CAR T-cell therapy achieved medication-free
Disease remission achieved in SLE with dual-target CAR T-cell therapy Nearly all patients in small trial see long-term medication-free remission Nearly all people with systemic lupus erythematosus (SLE) treated with iCell Gene Therapeutics’ dual-target CAR T-cell therapy achieved medication-free
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Feeling rubbish
Hi been feeling achy, exhausted,can sleep 12 hrs but wake up groggy & tired. Everything hurts. Have plantar fasciatis. Patella deformity in knee, spondylitis in my back giving me sciatica. Herniated discs both sides of neck. Causing numbess & pain. Chronic pain syndrome. Cfs/fybro/me. Arthritis in some
Hi been feeling achy, exhausted,can sleep 12 hrs but wake up groggy & tired. Everything hurts. Have plantar fasciatis. Patella deformity in knee, spondylitis in my back giving me sciatica. Herniated discs both sides of neck. Causing numbess & pain. Chronic pain syndrome. Cfs/fybro/me. Arthritis in some
bellemia
in
Thyroid UK
2 months ago
NRAS Live: How Important is Nutrition & Diet when Managing Rheumatoid Arthritis?
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Aribah-NRAS
NRAS
in
NRAS
2 months ago
Strange definition of pernicious anemia
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
palmier
in
Pernicious Anaemia Society
2 months ago
Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
2 months ago
Lupus toothpaste reaction
Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers. Cracks on my tongue, lips and the skin around my mouth. I was putting the ulcers down to the Lupus. But everytime I brush my teeth now, my mouth
Hi all, I have had Lupus for a long time but it never affected my mouth before. After a very stressful few weeks/months, I now have a mouth full of ulcers. Cracks on my tongue, lips and the skin around my mouth. I was putting the ulcers down to the Lupus. But everytime I brush my teeth now, my mouth
LupusMigraineetc
in
LUPUS UK
2 months ago
Newly diagnosed
Hello. I felt unwell for a long time. I've been diagnosed with underactive thyroid and started treatment. My symptoms have been severe and I've really struggled. I feel like every part of my body has been effected and yet from the outside no one can tell and it's hard for people to understand how bad
Hello. I felt unwell for a long time. I've been diagnosed with underactive thyroid and started treatment. My symptoms have been severe and I've really struggled. I feel like every part of my body has been effected and yet from the outside no one can tell and it's hard for people to understand how bad
Plumbobmummyreads
in
Thyroid UK
2 months ago
sun sensitivity
curious question- does Levothyroxine effect you in the sun?? I’ve never had any issues before being in the sun- and today I’ve been out maybe for an hour or so and my skin is so sore and itchy?? I know with having a underactive thyroid you get dry skin etc but this is bizzare?
curious question- does Levothyroxine effect you in the sun?? I’ve never had any issues before being in the sun- and today I’ve been out maybe for an hour or so and my skin is so sore and itchy?? I know with having a underactive thyroid you get dry skin etc but this is bizzare?
Lisalee123456
in
Thyroid UK
2 months ago
Dam Lupus
I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" 😒
I have only one thing to say about this dam Lupus tonight! "I Want My Mammy" 😒
Will1408
in
LUPUS UK
2 months ago
rheumatoid nodules
I was diagnosed with Adult Onset Stills disease aged 17 in 1979 which is autoimmune RA. I’m experiencing bilateral nodules (Dip) in the tip joint of both idex fingers. Numbness, stiffness, redness, soreness, stiffness and itchiness, really weird . Anyone else?
I was diagnosed with Adult Onset Stills disease aged 17 in 1979 which is autoimmune RA. I’m experiencing bilateral nodules (Dip) in the tip joint of both idex fingers. Numbness, stiffness, redness, soreness, stiffness and itchiness, really weird . Anyone else?
Stills
in
NRAS
2 months ago
Underactive thyroid and Peri menopause
Hi, I have started perimenopause and having symptons e.g heat palpatations (tests done but no other medical issues found) mood swings, aches and pains etc… and I am trying to find solutions to help. Have started taking viticulture supplements but it seems really confusing as to which ones are safe
Hi, I have started perimenopause and having symptons e.g heat palpatations (tests done but no other medical issues found) mood swings, aches and pains etc… and I am trying to find solutions to help. Have started taking viticulture supplements but it seems really confusing as to which ones are safe
Tracey8
in
Thyroid UK
2 months ago
PIP listing health conditions
Hi, I received the forms to apply for PIP today. on the question asking about health conditions, dqo you list everything going on? Or just the most debilitating ones?I have seronegative inflammatory arthritis, fibromyalgia and osteoarthritis which affect me severely on a daily basis. But I also have
Hi, I received the forms to apply for PIP today. on the question asking about health conditions, dqo you list everything going on? Or just the most debilitating ones?I have seronegative inflammatory arthritis, fibromyalgia and osteoarthritis which affect me severely on a daily basis. But I also have
hazelcats
in
NRAS
2 months ago
Gel nails and lupus/raynauds
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Hi everyone 🌸 May sound like a silly question but Im just curious if anyone here has regular gel nail polish? Is it considered safe when nails are delicate due to lupus and raynauds? Ive had gel polish before, but I found the removal of the gel painful with the scraping technique the nail technician
Shann07
in
LUPUS UK
2 months ago
Inflammatory arthritis & pulmonary embolisms?
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
YorkieBard
in
NRAS
2 months ago
REMINDER! Northern Ireland Lupus Group and LUPUS UK Virtual Volunteering Event - 26th June 7pm!
Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until
Don't forget, if you live in Northern Ireland and are interested in volunteering, there is a great opportunity to learn about how you can get involved! The Northern Ireland Lupus Group and LUPUS UK National Office are hosting an online volunteer information event on Wednesday 26th June, from 7pm until
michaellasmith
Administrator
in
LUPUS UK
2 months ago
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