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A puzzle
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
MrsMarigold
in
LUPUS UK
5 months ago
Autoimmune diseases and mental health
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
Attempting to attach article which strikes a chord with me atm. https://www.msn.com/en-gb/health/medical/study-reveals-hidden-mental-health-symptoms-in-people-with-autoimmune-diseases/ar-AA1e1S9k
random901
in
PMRGCAuk
5 months ago
Today our fragmented NHS
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
I have been struggling with vibrating feet and balance issues my ESR is raised and MCV so emailed Rheumatoid nurse already had a routine telephone conversation this week. She rung me about 6pm today obviously at home I don't think she had access to my bloods didn't really listen told me to go to walk
welsh12
in
NRAS
5 months ago
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10 year PMR anniversary! A new drug for me called Etanercept being advised.
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
Originally 'diagnosed' with PMR in 2014, initially controlled with prednisolone and then Methotrexate introduced in 2018 after I queried my diagnosis and treatment plan. A PET scan in 2018 by my new Rheumatologist satisfied him that I had PMR. Leflunomide trialled but did not work for me. My aim is
MC60
in
PMRGCAuk
5 months ago
Lupus and Fibromyalgia with Sjogren syndrome
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
I have been dealing with Lupus for 11 years and it has been a day by day experience for me I have a lot of pain and anxiety but I am taking turmeric 3 times a day to get rid of the inflammation but I am still feeling better with a lot of pain but not as bad . My back hurts so bad and I found out I have
Denise1219
in
LUpus Patients Understanding and Support
5 months ago
Lupus participants needed for a study with The University of Edinburgh!
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
Do you have Systemic Lupus and currently experience disordered eating? If you're 18+ years old, we want to hear about your experience. For more information, please contact: l.bruha@sms.ed.ac.uk by email or via Instagram @thelupusexperience Thank you for your time.
michaellasmith
Administrator
in
LUPUS UK
5 months ago
Hello everyone đ
Hello. I read about PBC and i found this foundation where i read about these diagnose. I do not have PBC but we suspect my mother has it. For some other reasons she went on Computer tomography, and everything was ok but that doktor that read it told her she must go to gastroenterohepatolgist for cirosis
Hello. I read about PBC and i found this foundation where i read about these diagnose. I do not have PBC but we suspect my mother has it. For some other reasons she went on Computer tomography, and everything was ok but that doktor that read it told her she must go to gastroenterohepatolgist for cirosis
Justiceandlaw
in
PBC Foundation
2 hours ago
Jaundice eyes
My partner has cirrhosis fibroscan 75kpa and capscore 310. Which I realise are on the high end of things. He has varices and is on betablockers. He has no ascites but his legs are swelled and itchy. His eyes are becoming more and more yellow almost orange in the corners. I don't know weather that
My partner has cirrhosis fibroscan 75kpa and capscore 310. Which I realise are on the high end of things. He has varices and is on betablockers. He has no ascites but his legs are swelled and itchy. His eyes are becoming more and more yellow almost orange in the corners. I don't know weather that
Smileyfaces
in
British Liver Trust
9 hours ago
Curious what you think?
Background: I have to take my wife for all her appointments - doctors, hair, etc. Her MO who treats her blood cancer seemed like a good doctor but I know nothing about blood cancer. So I went to her with my records for a consult with the idea it would be easier and less hassle if we could get appointments
Background: I have to take my wife for all her appointments - doctors, hair, etc. Her MO who treats her blood cancer seemed like a good doctor but I know nothing about blood cancer. So I went to her with my records for a consult with the idea it would be easier and less hassle if we could get appointments
Mgtd
in
Advanced Prostate Cancer
2 days ago
Post Kasai_ biliary atresia
My son is 6 months last week, he had biliary atresia and they did the kasai at 5 weeks, the jaundice is still there, how long does it take to clear? Also he was diagnosed with Cirrhosis of the liver. We start solids this week. The stool has changed to yellow now but sometimes it's oily. We were recommended
My son is 6 months last week, he had biliary atresia and they did the kasai at 5 weeks, the jaundice is still there, how long does it take to clear? Also he was diagnosed with Cirrhosis of the liver. We start solids this week. The stool has changed to yellow now but sometimes it's oily. We were recommended
Min_Gum
in
Children's Liver Disease Foundation
2 days ago
PSA rising
Two months ago, husbandâs PSA was .23, last month .20, yesterday .27. MO wants to watch and see what it is next month. Husband diagnosed 9/23, finished 6 rounds chemo on 2/21, is on Zytiga and Orgovyx currently. Concerned about the rise in PSA, would like input. Thank you.
Two months ago, husbandâs PSA was .23, last month .20, yesterday .27. MO wants to watch and see what it is next month. Husband diagnosed 9/23, finished 6 rounds chemo on 2/21, is on Zytiga and Orgovyx currently. Concerned about the rise in PSA, would like input. Thank you.
Lindajda
in
Advanced Prostate Cancer
2 days ago
Tumor Lysis Syndrome
Anyone have this happen after a treatment? I am well aware of all the symptoms and events but was wondering if anyone experienced this while getting treatments. My potassium level had gone from 5.4 to 7.0 after treatment a week beforehand and was told by the Oncologist to get to the ER ASAP. ER tested
Anyone have this happen after a treatment? I am well aware of all the symptoms and events but was wondering if anyone experienced this while getting treatments. My potassium level had gone from 5.4 to 7.0 after treatment a week beforehand and was told by the Oncologist to get to the ER ASAP. ER tested
PARKER3237
in
Advanced Prostate Cancer
2 days ago
Ttck15
I had liver transplant in 2016, now suffering from low sodium and need to get a nuclear gastric emptying scan, has anyone had this test and what was the outcome.
I had liver transplant in 2016, now suffering from low sodium and need to get a nuclear gastric emptying scan, has anyone had this test and what was the outcome.
Corriemay15
in
British Liver Trust
2 days ago
Rise in PSA and extra Eligard Injection
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no âhotspotsâ. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
My psa has risen from <0.01 in Feb to 0.04 in April to 0.27 in July then 0.41 this week. I had a CT and full body scan on Tuesday, which according to my MO, who I saw today, showed no âhotspotsâ. Because my PCa metastasised to 4 places in 2016 when first diagnosed, I had radiation to the prostate followed
Brightman
in
Advanced Prostate Cancer
2 days ago
ARPIs May Improve Survival in Some With Prostate Cancer
"In patients with metastatic castration-resistant prostate cancer, researchers have found that androgen receptor pathway inhibitors (ARPIs) outperformed the standard of care, which improved responses to treatment and overall survival (OS; time a patient lives, regardless of disease status)." We are
"In patients with metastatic castration-resistant prostate cancer, researchers have found that androgen receptor pathway inhibitors (ARPIs) outperformed the standard of care, which improved responses to treatment and overall survival (OS; time a patient lives, regardless of disease status)." We are
Maxone73
in
Advanced Prostate Cancer
2 days ago
Emerging cancer drugs (IDO1 inhibitors) might also treat early-stage Alzheimer's disease [and maybe Parkinson's disease dementia].
"The therapies that are currently available are working to remove peptides that are likely the result of a bigger issue we can target before those peptides can start forming plaques. We're demonstrating that by targeting the brain's metabolism, we can not only slow, but reverse the progression of this
"The therapies that are currently available are working to remove peptides that are likely the result of a bigger issue we can target before those peptides can start forming plaques. We're demonstrating that by targeting the brain's metabolism, we can not only slow, but reverse the progression of this
jeffreyn
in
Cure Parkinson's
2 days ago
A Comprehensive Review of the Role of Stem Cells in Neuroregeneration: Potential Therapies for Neurological Disorders
This review provides a comprehensive analysis of the role of stem cells in neuroregeneration, exploring different types of stem cells, including embryonic stem cells (ESCs), induced pluripotent stem cells (iPSCs), and adult stem cells, and their mechanisms of action in neural repair. It examines current
This review provides a comprehensive analysis of the role of stem cells in neuroregeneration, exploring different types of stem cells, including embryonic stem cells (ESCs), induced pluripotent stem cells (iPSCs), and adult stem cells, and their mechanisms of action in neural repair. It examines current
Farooqji
in
Cure Parkinson's
3 days ago
Stem Cell Therapy for Parkinson - Current trials Patients experiences
Co-organized by ISSCR and the WPC, this open access webinar will provide a high-level outlook of current cell therapy research and clinical applications for Parkinsonâs disease. Presenters will highlight advances in cell and gene therapies, including basic research discoveries and the latest clinical
Co-organized by ISSCR and the WPC, this open access webinar will provide a high-level outlook of current cell therapy research and clinical applications for Parkinsonâs disease. Presenters will highlight advances in cell and gene therapies, including basic research discoveries and the latest clinical
Farooqji
in
Cure Parkinson's
3 days ago
Stem Cell Therapy for Parkinson - Current trials Patients experiences
Co-organized by ISSCR and the WPC, this open access webinar will provide a high-level outlook of current cell therapy research and clinical applications for Parkinsonâs disease. Presenters will highlight advances in cell and gene therapies, including basic research discoveries and the latest clinical
Co-organized by ISSCR and the WPC, this open access webinar will provide a high-level outlook of current cell therapy research and clinical applications for Parkinsonâs disease. Presenters will highlight advances in cell and gene therapies, including basic research discoveries and the latest clinical
Farooqji
in
Cure Parkinson's
3 days ago
Common Bile Duct
Hello, everyone. I had my Ultrasound last week, My CBD diameter is prominent measuring 12.1 cm. Is this finding worrying? Also my weight is 50 kilos taking 250mg of Urso 3 times a day equivalent to 750 mg. for so many years, my specialist reduced my Urso to 500mg a day, told me my liver is ok
Hello, everyone. I had my Ultrasound last week, My CBD diameter is prominent measuring 12.1 cm. Is this finding worrying? Also my weight is 50 kilos taking 250mg of Urso 3 times a day equivalent to 750 mg. for so many years, my specialist reduced my Urso to 500mg a day, told me my liver is ok
barotacnuevo
in
PBC Foundation
3 days ago
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