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Scared
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
I’ve been feeling a bit rubbish very tired ,had some tests showing elevated ALT ranging between 47 and 76 this year also raised ferritin around 300 . Diagnosed by this and a fibroscan showed f4 fibrosis /early Cirrosis and fatty liver disease . Awaiting full bloods but I know 30 years ago they saw
Kikidee08
in
British Liver Trust
2 years ago
Hi, im new here
Hi, im really wondering if i have developed fibromyalgia. I have recently recovered from treatment for blood cancer by having a stem cell transplant (14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin
Hi, im really wondering if i have developed fibromyalgia. I have recently recovered from treatment for blood cancer by having a stem cell transplant (14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin
Marchhare7
in
Fibromyalgia Action UK
1 year ago
Kidney Transplant
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
Hi Could I please have a chat to a male doctor, or specialist, about that after effects of the operation. I had several years ago
AS52
in
Kidney Disease
2 years ago
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I Feel like I should be grateful to be on the waiting list for a new liver. But I really don’t feel grateful to towards the kind doctors.
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
I hate the way I feel about the thought of a new liver transplant. I have made it know to doctors about my feeling towards a new liver transplant. I feel great at the moment and I only on one type of tablet a day. For my liver condition. After I have a new liver transplant I will be on 27 different
LucyBarrett
in
British Liver Trust
2 years ago
I really don’t want a liver transplant but do not know how to get of the list for good.
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
2 years ago
What do you do and what support do you get if you really don’t want a liver transplant
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
I really don’t want a liver transplant. Last year in December I was out on the liver transplant list. I got called in within less then a week after being put on the transplant list. 14th December 2021 to be more precise. But it never happened. And just felt the whole excise was a trial run. I been attending
LucyBarrett
in
British Liver Trust
2 years ago
billionaires
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
Rupa88
in
Cure Parkinson's
1 year ago
5 Presents that Make Life with a Kidney Transplant Easier
If you know someone who recently received a kidney transplant, you don't need us to tell you how exciting and life-changing this event is. It's completely natural to want to celebrate the surgery, but you may not know how to do so. To learn more, visit: https://www.kidney.org/newsletter/5-presents-make-life-kidney-transplant-easier
If you know someone who recently received a kidney transplant, you don't need us to tell you how exciting and life-changing this event is. It's completely natural to want to celebrate the surgery, but you may not know how to do so. To learn more, visit: https://www.kidney.org/newsletter/5-presents-make-life-kidney-transplant-easier
JackieJ_NKF
Partner
in
Kidney Transplant
2 years ago
Covid Tests for Vulnerable People
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
Dear All, I am repeating on this Forum, a 'Post' I put on the Kidney Transplant forum, regarding Covid Test Availability. Essentially these Test ARE 'Still Available' to Vulnerable People. Solid Organ Transplant recipients, like myself, automatically 'qualify'- as might many 'others' on here. You can
AndrewT
in
Vasculitis UK
2 years ago
Covid Self Tests, For Vulnerable Folk.
Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold Organ Transplant Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site. I found this out after 'Chasing My Tail', for about forty minutes.
Dear all, The 'Availability' of Free Covid Tests is now 'Limited To Certain Groups', however Sold Organ Transplant Patients ARE Included. If you do want to 'Order' some, then go to 'gov.uk', rather than 119- or the Normal Covid Site. I found this out after 'Chasing My Tail', for about forty minutes.
AndrewT
in
Kidney Transplant
2 years ago
Bone Marrow Transplant
BONE MARROW TRANSPLANT:Why Mazi Henry Uroegbulam Eric Otulle Eke Sr Will Never Ever Forgive World-famous Hospital For Failing His Daughter - was the child used as a guinea-pig? BONE MARROW TRANSPLANT: Sub-Continent with world's highest prevalence of SCD/SCT goes into BMT - a whole new era for medical
BONE MARROW TRANSPLANT:Why Mazi Henry Uroegbulam Eric Otulle Eke Sr Will Never Ever Forgive World-famous Hospital For Failing His Daughter - was the child used as a guinea-pig? BONE MARROW TRANSPLANT: Sub-Continent with world's highest prevalence of SCD/SCT goes into BMT - a whole new era for medical
sicklecellnews
in
Sickle Cell Society
1 year ago
Haemochromatosis and my liver
Male, now 50. My story starts five years ago when I was renovating my house and tripped down a broken staircase and knocked myself unconscious. I went to A&E and after getting a head scan my GP had me get some blood tests for any nasty tell tale signs to do with concussion and bleed on the brain. Thankfully
Male, now 50. My story starts five years ago when I was renovating my house and tripped down a broken staircase and knocked myself unconscious. I went to A&E and after getting a head scan my GP had me get some blood tests for any nasty tell tale signs to do with concussion and bleed on the brain. Thankfully
HydroBee
in
British Liver Trust
2 years ago
Important to know, but sucks to have: TP53 Mutations Confer High Risk in Patients With Myelofibrosis Undergoing HSCT
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
PhysAssist
in
MPN Voice
1 year ago
Liver Transplant first then kidney transplant after recovery
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
Canttakemyeyesoffyou
in
British Liver Trust
2 years ago
Bone marrow transplant possibility and leriglitazone update
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
JShough
in
AMN EASIER
1 year ago
‘World's 1st' fetal brain stem cell transplant effective in Parkinson's disease: study
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
CHA University Bundang Medical Center (CBMC) said on Monday that its researchers proved the safety and effectiveness of dopamine neural precursor cells derived from fetal mesenchymal stem cells transplanted into patients with Parkinson's disease "for the first time in the world." Cell replacement therapy
Baron1
in
Cure Parkinson's
1 year ago
Seeking feedback for a project
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
Hello everyone, I am working with a small team on a school project that we are very excited about. We are developing an app that will help people track food consumption and nutrients. The goal of this project is to provide Kidney Disease patients with a platform where they can organize and keep track
cl123
in
Kidney Disease
2 years ago
Post transplant
Hi after having a liver transplant did anyone suffer with their kidneys . Just seeking assurance ste is 1 month post transplant but kidneys are still struggling .
Hi after having a liver transplant did anyone suffer with their kidneys . Just seeking assurance ste is 1 month post transplant but kidneys are still struggling .
Lippy42
in
British Liver Trust
2 years ago
Travel insurance within the UK.
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
I'm travelling from Essex to Belfast next month and am looking for travel insurance. With belfast being in the UK I wonder if I actually need cover anyway. I am over 200 days post stem cell transplant and it will be my first time travelling abroad as such since the start of covid in 2020. I am considering
Kraskie1915
in
CLL Support
1 year ago
4 of 5 treatments for covid in immunocompromised being removed in NHS
mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of
mol.im/a/11447861 [i]"Four Covid drugs which have kept thousands of vulnerable Britons out of hospital were quietly removed last week, after the NHS spending watchdog pulled funding for them.[/i] [i]While the Covid vaccines and boosters provide strong protection against serious illness for most of
Harvist
in
CLL Support
2 years ago
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