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Advice please
on Rituximab (last single infusion Jan) and had a toe op yesterday to remove pins inserted years ago. Been sent home with painkillers. They obviously tell u the things that could happen post op…infection etc. I forgot to ask if mayb I should take antibiotics now…just in case. Of course its Bank
on Rituximab (last single infusion Jan) and had a toe op yesterday to remove pins inserted years ago. Been sent home with painkillers. They obviously tell u the things that could happen post op…infection etc. I forgot to ask if mayb I should take antibiotics now…just in case. Of course its Bank
Evie3
in
NRAS
1 year ago
Do I still have Endometriosis?
This probably sounds bizarre and silly but I'm struggling with the concept that my endometriosis is back or never went away in the first place. I had excision surgery back in 2021 and was it success. Doctor said he got rid of it all and he wouldn't see me again. I took this to mean I had Endometriosis
This probably sounds bizarre and silly but I'm struggling with the concept that my endometriosis is back or never went away in the first place. I had excision surgery back in 2021 and was it success. Doctor said he got rid of it all and he wouldn't see me again. I took this to mean I had Endometriosis
Rock-Cat
in
Endometriosis UK
1 year ago
leg weakness with prolapse
Hi. I have been suffering from incontinence back pain, weak legs, very painful to have sex for years at least 12 if not more. I was always very fit. I have two sons who I played squash with swam 100 lengths of our local pool every morning before going to work in my full time job where I lifted heavy
Hi. I have been suffering from incontinence back pain, weak legs, very painful to have sex for years at least 12 if not more. I was always very fit. I have two sons who I played squash with swam 100 lengths of our local pool every morning before going to work in my full time job where I lifted heavy
01269JJ
in
Pelvic Pain Support Network
1 year ago
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Support letter from rheumatologist, for ill health retirement for fibromyalgia and depression.
Hi , Im 56 years old and have had fibromyalgia for 20 years , I was diagnosed 11 years ago by a rheumatologist in Sheffield . I am a teacher and over the last 7 years I have had reasonable work adjustments made , in addition to reducing my working hours to 15 hours a week, 5 mornings only. Since the
Hi , Im 56 years old and have had fibromyalgia for 20 years , I was diagnosed 11 years ago by a rheumatologist in Sheffield . I am a teacher and over the last 7 years I have had reasonable work adjustments made , in addition to reducing my working hours to 15 hours a week, 5 mornings only. Since the
RaniM
in
Fibromyalgia Action UK
1 year ago
The battle is over
Pain
management
was the only treatment. I had expected that the many lesions growth would have been continuous until they sucked life from him., so the sudden death spared him what I envisioned to be a rather awful death. For this I am grateful.
Pain
management
was the only treatment. I had expected that the many lesions growth would have been continuous until they sucked life from him., so the sudden death spared him what I envisioned to be a rather awful death. For this I am grateful.
Hidden
in
Advanced Prostate Cancer
1 year ago
trying to get a diagnosis for fibromialgia
Hi I'm suffering with aches and pains daily .....doctors refuse to say I have fibromialgia I've even seen a specialist which told me I don't because I didn't have any pain when she lifted my leg that was all she did to come to that conclusion. I'm fed up with the pains etc I've been feeling down I go
Hi I'm suffering with aches and pains daily .....doctors refuse to say I have fibromialgia I've even seen a specialist which told me I don't because I didn't have any pain when she lifted my leg that was all she did to come to that conclusion. I'm fed up with the pains etc I've been feeling down I go
eggbox1970
in
Fibromyalgia Action UK
1 year ago
Stinging in outer foot area - Nerve pain
Hi, I have had this pain for all of this year, it starts whenever my foot isn't pressing on the ground, eg when I am relaxing in recliner with feet up or even sitting in a chair, it very rarely eases.I am a diabetic type 2, with year on dropping numbers but still needs improving. I am on full doses of
Hi, I have had this pain for all of this year, it starts whenever my foot isn't pressing on the ground, eg when I am relaxing in recliner with feet up or even sitting in a chair, it very rarely eases.I am a diabetic type 2, with year on dropping numbers but still needs improving. I am on full doses of
greekqueen
in
Pain Concern
1 year ago
any advice welcome…
I was diagnosed in January 2022, I had flares every couple of months. In December my pain started to get a lot worse I now have pain everyday in my hands and someday my knees, feet and shoulders. In somedays are a real struggle. I was given a steroid injection and prescribed hydroxychloroquine sulfate
I was diagnosed in January 2022, I had flares every couple of months. In December my pain started to get a lot worse I now have pain everyday in my hands and someday my knees, feet and shoulders. In somedays are a real struggle. I was given a steroid injection and prescribed hydroxychloroquine sulfate
Star307
in
NRAS
1 year ago
My PMR Journey so far
The condition started with a stiff neck and in early February I experienced a lot of pain in my upper arms, a great deal of stiffness and loss of energy and strength. It took a few weeks to get to see a GP and initially he only prescribed painkillers. I eventually got Prednisone prescribed after a second
The condition started with a stiff neck and in early February I experienced a lot of pain in my upper arms, a great deal of stiffness and loss of energy and strength. It took a few weeks to get to see a GP and initially he only prescribed painkillers. I eventually got Prednisone prescribed after a second
Cricket47
in
PMRGCAuk
1 year ago
ET related fatigue
Hi my husband is 50 and was diagnosed with ET in January 2023 due to high platelets (917). He is overweight a little but other than that he does not have any other risk factors. All other bloods have come back normal. He is taking daily aspirin. We live in the UK. Since around September 2022 (prior
Hi my husband is 50 and was diagnosed with ET in January 2023 due to high platelets (917). He is overweight a little but other than that he does not have any other risk factors. All other bloods have come back normal. He is taking daily aspirin. We live in the UK. Since around September 2022 (prior
Morris941
in
MPN Voice
1 year ago
nerve damage?
So I’m now being referred to the
pain
management
team because they think it might be nerve damage that is causing the pain, and if so, it’s irreversible. Has anyone else been told this before? I’m at a bit of a loss with what to do and how to take the news.
So I’m now being referred to the
pain
management
team because they think it might be nerve damage that is causing the pain, and if so, it’s irreversible. Has anyone else been told this before? I’m at a bit of a loss with what to do and how to take the news.
Blossoms1994
in
Endometriosis UK
2 years ago
Off topic. In Wales visiting sister 😄
Well now on new pain killers and patch I decided time to go away. We are in chilly but sunny Wales visiting my sister. It's done us both a world of good! Menorca booked for end of may too! Last day today but we'll be back 😉😎😎
Well now on new pain killers and patch I decided time to go away. We are in chilly but sunny Wales visiting my sister. It's done us both a world of good! Menorca booked for end of may too! Last day today but we'll be back 😉😎😎
Haz58
in
NRAS
1 year ago
gardenergirl1947
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Gardenergirl1947
in
PMRGCAuk
1 year ago
Hysterectomy, Oophorectomy or neither?
Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl treatment last year & yet here I am back to square 1 but now perimenopausal for real & in a dilemma. Have a 5cm endometrioma on left ovary with
Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl treatment last year & yet here I am back to square 1 but now perimenopausal for real & in a dilemma. Have a 5cm endometrioma on left ovary with
AilsS
in
Endometriosis UK
1 year ago
update on flare versus muscle pain contd
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
sewinggranny
in
PMRGCAuk
1 year ago
cancer has invaded the bowel
Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has never given me a reason for this extremely uncomfortable and inconvenient problem. Recently cancerous nodules were found on my bladder wall and
Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has never given me a reason for this extremely uncomfortable and inconvenient problem. Recently cancerous nodules were found on my bladder wall and
Pippasandy
in
My Ovacome
1 year ago
heart palpitations anxiety
hey guys. Me again, sorry to bother and ramble on, the past 3 days I’ve been having a few heart palpitations a day. Now I did phone my doctors and they told me this didn’t sound serious and it was normal. They said if the palpitations were regular every few minutes it would be a concern. I get 2 or 3
hey guys. Me again, sorry to bother and ramble on, the past 3 days I’ve been having a few heart palpitations a day. Now I did phone my doctors and they told me this didn’t sound serious and it was normal. They said if the palpitations were regular every few minutes it would be a concern. I get 2 or 3
Littlechopsxo
in
Anxiety and Depression Support
1 year ago
RA reaction to medication would like general advice on how to manage RA
Hello, I’ve had a reaction to medication I was on for an over active thyroid, which has given me RA symtoms, came on very suddenly so hoping it will eventually clear (have read can take 3/4 weeks). Have been referred to a rheumatoid specialist but apparently it might take months for an appointment. I
Hello, I’ve had a reaction to medication I was on for an over active thyroid, which has given me RA symtoms, came on very suddenly so hoping it will eventually clear (have read can take 3/4 weeks). Have been referred to a rheumatoid specialist but apparently it might take months for an appointment. I
Abimilne
in
NRAS
1 year ago
Seeking some advice [Had numerous tests]
Hi, 48yr old male, not overweight, eat relatively healthy, but due to a back issue, limited exercise. Take no meds other than painkillers from time to time for my back. But wasn't taking them during these episodes. My issues began a week today exactly. Got up for the loo around 4am, and went back to
Hi, 48yr old male, not overweight, eat relatively healthy, but due to a back issue, limited exercise. Take no meds other than painkillers from time to time for my back. But wasn't taking them during these episodes. My issues began a week today exactly. Got up for the loo around 4am, and went back to
ProfBaw
in
British Heart Foundation
1 year ago
liver and pain relief medication
I take pregabalin and cocodamol for neuropathic pain relief plus cervical spondylosis pain relief but I was given a blood test last week and the do raid there was a problem with my liver and I’m to have another blood test Monday but I’m wondering if it’s the pain reliever meds I take that has caused
I take pregabalin and cocodamol for neuropathic pain relief plus cervical spondylosis pain relief but I was given a blood test last week and the do raid there was a problem with my liver and I’m to have another blood test Monday but I’m wondering if it’s the pain reliever meds I take that has caused
Pearce1940oscar
in
Pain Concern
1 year ago
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