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I took out a subscription to the Macular Society after a 6 months free trial. I have been a member for over 3 years. You receive a magazines in large print and it’s the most comprehensive and informative magazine on AMD. Interesting personal stories, It keeps you informed of all the latest trials
I took out a subscription to the Macular Society after a 6 months free trial. I have been a member for over 3 years. You receive a magazines in large print and it’s the most comprehensive and informative magazine on AMD. Interesting personal stories, It keeps you informed of all the latest trials
Whitegoose
in
Macular Society
2 years ago
Thyroid eye disease
Hello everyone, I’ve been told that I may have thyroid eye disease and certainly it seems that I have all the symptoms of it. I’m really confused though as the GP did loads of blood tests that came back fine for thyroid function. I have an appt with a thyroid eye specialist at the end of July and in
Hello everyone, I’ve been told that I may have thyroid eye disease and certainly it seems that I have all the symptoms of it. I’m really confused though as the GP did loads of blood tests that came back fine for thyroid function. I have an appt with a thyroid eye specialist at the end of July and in
Solstice11
in
Thyroid UK
2 years ago
Time to decide about leaving the initial NON TIME LIMITED Captivate trial because of potential toxicity
Hi all, My husband is in the initial 164 trial group of Non Time limited Captivate Trial. The trial design was Venetoclax ramp up and then ibrutinib until MRD. When MRD was achieved, a blind was set up for placebo vs Ibrutinib indefinitely, or until progression/toxicity. Since MRD, we have settled
Hi all, My husband is in the initial 164 trial group of Non Time limited Captivate Trial. The trial design was Venetoclax ramp up and then ibrutinib until MRD. When MRD was achieved, a blind was set up for placebo vs Ibrutinib indefinitely, or until progression/toxicity. Since MRD, we have settled
I282much
in
CLL Support
2 years ago
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levo&ndt
I got some Thyroid-s ndt and I would like to take with levo but I don't know exactly how to combine them. I know that I feel more human on ndt . The last time when I took it I had more energy and a good mood but I gained weight and my knees, ankles hurt and I had to take painkillers pills. I think there's
I got some Thyroid-s ndt and I would like to take with levo but I don't know exactly how to combine them. I know that I feel more human on ndt . The last time when I took it I had more energy and a good mood but I gained weight and my knees, ankles hurt and I had to take painkillers pills. I think there's
adin
in
Thyroid UK
2 years ago
Help.
So I’ve was in hospital on Monday and discharged Wednesday was told I have a block Fallopian tube and sent homr with pain killers even though I told them I can’t manage the pain on oral morph. I was then back in hospital Thursday morning to a different hospital where they blue lighted me in an ambulance
So I’ve was in hospital on Monday and discharged Wednesday was told I have a block Fallopian tube and sent homr with pain killers even though I told them I can’t manage the pain on oral morph. I was then back in hospital Thursday morning to a different hospital where they blue lighted me in an ambulance
Adeno2020
in
Endometriosis UK
2 years ago
Graves' Ophthalmopathy in the Setting of Primary Hypothyroidism
I have heard a specialist ophthalmic nurse insist to a patient that Graves' Ophthalmopathy only occurs in hyperthyroidism. Whilst a full review article including links to all known case reports might be desirable, even one case report demonstrates that it is possible. I think it is also good that the
I have heard a specialist ophthalmic nurse insist to a patient that Graves' Ophthalmopathy only occurs in hyperthyroidism. Whilst a full review article including links to all known case reports might be desirable, even one case report demonstrates that it is possible. I think it is also good that the
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Adalimumab effect only lasting 10 days
I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?
I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?
vonniesims
in
NRAS
2 years ago
Am I heading for a PMR flareup?
After feeling very smug with myself for reducing my prednisolone down to 15mg since May 2022. Now in my 4th week since my last reduction and only had very mild symptoms in the mornings until the preds had kicked in for the day. My last blood test showed my inflammation had reduced down to nearly nothing
After feeling very smug with myself for reducing my prednisolone down to 15mg since May 2022. Now in my 4th week since my last reduction and only had very mild symptoms in the mornings until the preds had kicked in for the day. My last blood test showed my inflammation had reduced down to nearly nothing
Washingup
in
PMRGCAuk
2 years ago
Scared
Had my eye test today I’ve had glaucoma for 6 years so far my pressure has been good today was up to 36 my dr was not very happy and used some very negative words like aggressive glaucoma . I was very upset and told him so . He put my on 2x drops a day and potentially laser surgery in a few months .
Had my eye test today I’ve had glaucoma for 6 years so far my pressure has been good today was up to 36 my dr was not very happy and used some very negative words like aggressive glaucoma . I was very upset and told him so . He put my on 2x drops a day and potentially laser surgery in a few months .
pinks223
in
Glaucoma UK
2 years ago
Nerve damage and back pain - help or advice needed
I have had 5 spinal operations, and have a fusion from L3 - S1, my last operation was about 6 years ago.I have considerable nerve damage in my legs and feet, plus constant lower back pain. It’s been steadily getting worse and now I have upper back pain, neck pain, loss of sensation in my groin, shooting
I have had 5 spinal operations, and have a fusion from L3 - S1, my last operation was about 6 years ago.I have considerable nerve damage in my legs and feet, plus constant lower back pain. It’s been steadily getting worse and now I have upper back pain, neck pain, loss of sensation in my groin, shooting
Leiimarii
in
Pain Concern
2 years ago
Taking Flecainide even when in Permanent Afib
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Am in permanent Afib since feb 2021 and after taking my second dose of pfizer vaccine. Am on 2X90 mg Dilzem and 2,5 mg Nebilt/day. MY HR is 70-73 BPM 38% of the time, 66-69 BPM 33% of the time, 74-79 BPM 19% of the time and 62-65 BPM 2% of the time. To improve these results , I suggested to stop Nebilet
Malhouse
in
Atrial Fibrillation Support
2 years ago
Recent new Glaucoma diagnosis - should I wait 3mths for next appointment?
Hello all, hope you are all keeping well as can be and enjoying the pleasant recent weather. New to the site as only recently been diagnosed. Apologies in advance if this becomes a long post, but I think I'll bullet point my story and questions in order to make this post more easily digestible. *
Hello all, hope you are all keeping well as can be and enjoying the pleasant recent weather. New to the site as only recently been diagnosed. Apologies in advance if this becomes a long post, but I think I'll bullet point my story and questions in order to make this post more easily digestible. *
glauca
in
Glaucoma UK
2 years ago
Tips for shoulder and back pain after endo laparoscopy?
Hello, just joined here. I had a laparoscopy yesterday and had inflamed areas in my pelvis removed. The pain in my stomach I can deal with but since waking up I’ve had the most horrendous cramping and pain in my shoulders and neck. I’ve tried all painkillers, heat and cold. Any advice?
Hello, just joined here. I had a laparoscopy yesterday and had inflamed areas in my pelvis removed. The pain in my stomach I can deal with but since waking up I’ve had the most horrendous cramping and pain in my shoulders and neck. I’ve tried all painkillers, heat and cold. Any advice?
Catrin57
in
Endometriosis UK
2 years ago
Low IOP and blurred vision after Trab
It's been nearly three weeks after Trab and my blurred vision is coming back frustratingly and worryingly slow. I have a double vision and difficult to read my phone however close it is. Meanwhile, I had a check up and the doctor confirmed the op went well and the bleb is working fine and eye is healing
It's been nearly three weeks after Trab and my blurred vision is coming back frustratingly and worryingly slow. I have a double vision and difficult to read my phone however close it is. Meanwhile, I had a check up and the doctor confirmed the op went well and the bleb is working fine and eye is healing
charles555
in
Glaucoma UK
2 years ago
Second Pegasys injection and I’m weak as a kitten!
Update/ I took my second Pegasys yesterday evening. I sweat ALL night long. I feel fatigued and so weak. Also had a headache and some nausea last night. I have planted myself on the couch, today, and am depending on my husband to keep refilling my water glass. I am hoping this passes by tomorrow, when
Update/ I took my second Pegasys yesterday evening. I sweat ALL night long. I feel fatigued and so weak. Also had a headache and some nausea last night. I have planted myself on the couch, today, and am depending on my husband to keep refilling my water glass. I am hoping this passes by tomorrow, when
Wewo01
in
MPN Voice
2 years ago
newbie & fearful
Hello everyone, Im new here but been reading the posts with interest. I had high eye pressures as was referred to the eye hospital, they told me I had glaucoma and cataracts in both eyes and suggested operation. I was so shocked and terrified of an op on eyes whilst your awake so they said they would
Hello everyone, Im new here but been reading the posts with interest. I had high eye pressures as was referred to the eye hospital, they told me I had glaucoma and cataracts in both eyes and suggested operation. I was so shocked and terrified of an op on eyes whilst your awake so they said they would
Gilly1959
in
Glaucoma UK
2 years ago
Fistula
Hi ladies, has anyone had a similar experience to me. I started 3rd line chemo carbo/ gemcitabine in mid April. Within 36 hours or so I started to have horrible abdominal pain. I went to A&E as advised by oncology helpline and they gave me pain killers. A week later I was admitted to hospital. CT scan
Hi ladies, has anyone had a similar experience to me. I started 3rd line chemo carbo/ gemcitabine in mid April. Within 36 hours or so I started to have horrible abdominal pain. I went to A&E as advised by oncology helpline and they gave me pain killers. A week later I was admitted to hospital. CT scan
Duskygem
in
My Ovacome
2 years ago
Newly diagnosed with RA
I hope I'm writing on the correct page. 2013 was diagnosed with PMR and treated with Prednisolone. went into remission in 2019. All was fine. I had Jab 1 of Covid all ok. Had jab 2 of Covid and exactly a week later all my PMR symptoms returned, November 2021. I began prednisone again 7mgs and have been
I hope I'm writing on the correct page. 2013 was diagnosed with PMR and treated with Prednisolone. went into remission in 2019. All was fine. I had Jab 1 of Covid all ok. Had jab 2 of Covid and exactly a week later all my PMR symptoms returned, November 2021. I began prednisone again 7mgs and have been
tina-shelley
in
NRAS
2 years ago
Antibiotic eye drops- dosage and side effects
After a trab, I was given boxes of antibiotic eye drops called Dexafree. I was diligently taking them but after five days or so, the discomfort and inflammation is gone. Still a blurred vision, which is a concern... Am I supposed to take them until doctors say otherwise? Since this is a steroid eye
After a trab, I was given boxes of antibiotic eye drops called Dexafree. I was diligently taking them but after five days or so, the discomfort and inflammation is gone. Still a blurred vision, which is a concern... Am I supposed to take them until doctors say otherwise? Since this is a steroid eye
charles555
in
Glaucoma UK
2 years ago
I'd like to hear people's experience with Linzess. I've been taking it for a week. 142mg. No pain relief.
I have constant ache in my lower right quadrant. All tests have come out negative.Have had this since July.
I have constant ache in my lower right quadrant. All tests have come out negative.Have had this since July.
Angelisse
in
IBS Network
2 years ago
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