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Was there ever really a chance for a cure?
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
duxlubber
in
Advanced Prostate Cancer
5 months ago
Class 3 Medicines Recall: Besins Healthcare (UK) Ltd, Oestrogel Pump-Pack 750 micrograms/actuation Gel (estradiol), EL (24)A/09
In case any members are using this product: [i]
Class 3 Medicines Recall: Besins Healthcare (UK) Ltd, Oestrogel Pump-Pack 750 micrograms/actuation Gel (estradiol), EL (24)A/09
[/i] [i][/i] [i]Besins Healthcare (UK) Ltd has informed the MHRA that a defective pump system was detected in two batches
In case any members are using this product: [i]
Class 3 Medicines Recall: Besins Healthcare (UK) Ltd, Oestrogel Pump-Pack 750 micrograms/actuation Gel (estradiol), EL (24)A/09
[/i] [i][/i] [i]Besins Healthcare (UK) Ltd has informed the MHRA that a defective pump system was detected in two batches
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Brain Fog or Dimentia?
Hey warriors! So how do you know if you have brain fog or the beginning of dementia? Is it possible to blame ADT and Zytiga? My husband has been on Ellegaard for five years and Zytiga for 2 1/2. Years, he seems to have a lot of memory issues lately, and I fear it’s only getting worse Any thoughts or
Hey warriors! So how do you know if you have brain fog or the beginning of dementia? Is it possible to blame ADT and Zytiga? My husband has been on Ellegaard for five years and Zytiga for 2 1/2. Years, he seems to have a lot of memory issues lately, and I fear it’s only getting worse Any thoughts or
Keeper70
in
Advanced Prostate Cancer
5 months ago
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Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
5 months ago
PSA on the way up again
I am getting a little concerned about a increase in my PSA, and not just the increase, but also the increase in the rate of increase. Short history. Diagnosed March 2021 by MRI and biopsy Gleason 4 + 3, Stage T3B, ISUP 3 ADT (Zoladex) started June 2021 EBRT 60Gy in 20 fractions December 2021 Last
I am getting a little concerned about a increase in my PSA, and not just the increase, but also the increase in the rate of increase. Short history. Diagnosed March 2021 by MRI and biopsy Gleason 4 + 3, Stage T3B, ISUP 3 ADT (Zoladex) started June 2021 EBRT 60Gy in 20 fractions December 2021 Last
ParrotY
in
Prostate Cancer Network
5 months ago
Dutasteride Monotherapy is effective for Newly Diagnosed PCa men not on ADT
This plot shows men that either don't have PCa (Group A) or newly diagnosed men with PCa by biopsy (Group B). Neither group is on ADT. Dutasteride monotherapy (0.5 mg/day) causes an average drop in PSA of about 50% in both Groups, and an average drop of about 20% in prostate volume. In one man, his
This plot shows men that either don't have PCa (Group A) or newly diagnosed men with PCa by biopsy (Group B). Neither group is on ADT. Dutasteride monotherapy (0.5 mg/day) causes an average drop in PSA of about 50% in both Groups, and an average drop of about 20% in prostate volume. In one man, his
janebob99
in
Prostate Cancer Network
5 months ago
First time poster overwhelmed with symptoms and considering self-medicating with bovine adrenals & NDT. Asking for advice & recommendations
TLDR: First time poster diagnosed Hashimotos and POI, investigating IBS which is potentially also autoimmune cause. Fatigue, depression and anxiety are ruining my life. Low Adrenal Index Test results so considering self-medicating with Bovine Adrenals. High TSH and anti thyroid antibodies, but low-end-of-normal
TLDR: First time poster diagnosed Hashimotos and POI, investigating IBS which is potentially also autoimmune cause. Fatigue, depression and anxiety are ruining my life. Low Adrenal Index Test results so considering self-medicating with Bovine Adrenals. High TSH and anti thyroid antibodies, but low-end-of-normal
KayNaomi
in
Thyroid UK
5 months ago
What Now?
So I had my laparoscopy last May, confirmed endo, coil fitted. Pain returned after a few months. In November I was put on Zoladex injections with Tibilone HRT tablets, this helped the pain a lot and reduced it to a few times within the 3 month period of being on it. Now the last 2 weeks the pain has
So I had my laparoscopy last May, confirmed endo, coil fitted. Pain returned after a few months. In November I was put on Zoladex injections with Tibilone HRT tablets, this helped the pain a lot and reduced it to a few times within the 3 month period of being on it. Now the last 2 weeks the pain has
Mummaamber
in
Endometriosis UK
5 months ago
High PSA upon diagnosis, treatment , and outcome
Hello, Diagnosed 9 months ago with Gleason 7 unfavorable… 2 4+3 ,2 3+4, and 1 3+3 ..on one side only ..I guess my high PSA score made it unfavorable , PSA 18. As a result had aggressive tri modality treatment .. brachytherapy seeds, 15 linac radiation sessions, and 9 months o ADT ..just stopped
Hello, Diagnosed 9 months ago with Gleason 7 unfavorable… 2 4+3 ,2 3+4, and 1 3+3 ..on one side only ..I guess my high PSA score made it unfavorable , PSA 18. As a result had aggressive tri modality treatment .. brachytherapy seeds, 15 linac radiation sessions, and 9 months o ADT ..just stopped
Yokohama2023
in
Prostate Cancer Network
5 months ago
TSH Level
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
Forumjunkie
in
Thyroid UK
5 months ago
Group therapy for arthritic pain including PMR
Does anyone know of any face-to-face groups within the Portsmouth area? Or, does anyone know who to contact to find out? Any advice would be gratefully received. Thank you
Does anyone know of any face-to-face groups within the Portsmouth area? Or, does anyone know who to contact to find out? Any advice would be gratefully received. Thank you
Markandevie
in
PMRGCAuk
10 months ago
throbbing lower leg
hi all, New here I’ve had endo for 15 years it eased up and I thought it had gone when I had my daughter 11 years ago but when she was 8 it came back with vengeance. Had a laparoscopy and encision surgery in Oct 2023 pain eased up for 3 months then came back yet again so now they have started me on
hi all, New here I’ve had endo for 15 years it eased up and I thought it had gone when I had my daughter 11 years ago but when she was 8 it came back with vengeance. Had a laparoscopy and encision surgery in Oct 2023 pain eased up for 3 months then came back yet again so now they have started me on
DanDan1991
in
Endometriosis UK
5 months ago
CBT-I (Cognitive Behavioral Therapy Insomnia) for Parkinson's Insomnia
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
staceysack
in
Cure Parkinson's
8 months ago
First MO visit
Prostectomy in 2017 and radiation in 2020 with no further treatment. PSMA test in November 2023 was negative with PSA of 0.14 at that time. My PSA has now increased to 0.34. I have my first visit with an MO in a couple weeks. Any suggestions or hints as to what to expect for treatments following
Prostectomy in 2017 and radiation in 2020 with no further treatment. PSMA test in November 2023 was negative with PSA of 0.14 at that time. My PSA has now increased to 0.34. I have my first visit with an MO in a couple weeks. Any suggestions or hints as to what to expect for treatments following
RedBird713
in
Advanced Prostate Cancer
5 months ago
Zoladex and bleeding
So I was on Decapeptyl for a few months last year, a month without HRT and a couple with. I stopped using it because it was causing me headaches and was switched to Zoladex alongside HRT. For the first 4 injections it was fine, it stopped my periods and I was doing ok, although my moods have got slightly
So I was on Decapeptyl for a few months last year, a month without HRT and a couple with. I stopped using it because it was causing me headaches and was switched to Zoladex alongside HRT. For the first 4 injections it was fine, it stopped my periods and I was doing ok, although my moods have got slightly
x_b_x
in
Endometriosis UK
5 months ago
weight gain with low TSH?
Hi! Just got my blood work back, normal range T3 and T4 but bdl for TSH. Feeling a little sluggish and tired, no tolerance to COLD, getting sick a lot and consistently gaining weight over the past 4 months. Just some background, I got my thyroid removed 2 years ago due to graves disease. I've been
Hi! Just got my blood work back, normal range T3 and T4 but bdl for TSH. Feeling a little sluggish and tired, no tolerance to COLD, getting sick a lot and consistently gaining weight over the past 4 months. Just some background, I got my thyroid removed 2 years ago due to graves disease. I've been
KymmyLo
in
Thyroid UK
5 months ago
My experience with mental health and First Episode Psychosis.
The way in which acute Psychosis can affect your life is so overwhelming that I thought I’d write a piece to spread awareness and combat the stigmatization that this symptom of mental health illness has in our society. I have had a few years of struggles with anxiety, panic attacks and depression,
The way in which acute Psychosis can affect your life is so overwhelming that I thought I’d write a piece to spread awareness and combat the stigmatization that this symptom of mental health illness has in our society. I have had a few years of struggles with anxiety, panic attacks and depression,
shawshankred
in
Anxiety and Depression Support
5 months ago
NGS Test/Next-Generation Sequencing Important to have done.
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
5 months ago
Radiation Starts, Bye Bye Urethra?
D-Day arrives August 6th for IG/IMRT. Two very kind and empathetic technicians attend to my placement on the treatment bed. Lasers aligned, they leave the room and this giant green machine (which I had not previously met) begins whirring and gyrating about my torso with beeps and clunks. I sense that
D-Day arrives August 6th for IG/IMRT. Two very kind and empathetic technicians attend to my placement on the treatment bed. Lasers aligned, they leave the room and this giant green machine (which I had not previously met) begins whirring and gyrating about my torso with beeps and clunks. I sense that
mababa
in
Advanced Prostate Cancer
2 days ago
Hormonal treatment for Endometriosis
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
I had an appointment with a specialist recently and I expressed the desire to have diagnostic laparoscopy for endometriosis. The specialist recommended that I try taking hormones in the meantime to see if that helps with pain management. He said that by taking hormones I could control my period and choose
Tigerlily34
in
Women's Health
5 months ago
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