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Avastin Sore Mouth
Hi there, my mum has had 2 infusions of Avastin and although seems to be tolerating it well she has developed a really sore mouth and eating is really painful. Can anyone recommend anything to help and does this settle down as the treatment progresses? Thanks in advance for any advice. Ashleigh x
Hi there, my mum has had 2 infusions of Avastin and although seems to be tolerating it well she has developed a really sore mouth and eating is really painful. Can anyone recommend anything to help and does this settle down as the treatment progresses? Thanks in advance for any advice. Ashleigh x
Pitchperfec
in
My Ovacome
2 years ago
coping
does anyone else on here think glaucoma feels like a death sentence? How do you cope? do many ppl mange to stop vision loss in its tracks?
does anyone else on here think glaucoma feels like a death sentence? How do you cope? do many ppl mange to stop vision loss in its tracks?
ChrisNorthEast
in
Glaucoma UK
2 years ago
HCQ: do we need to pay more attention to serious ocular side effects!👆
Many lupus sufferers are prescribed Hydroxychloroquine to manage their lupus and a common side effect most often reported is gastrointestinal disturbances eg stomach churning, pain, wind, digestive problems etc BUT prescribers never seem to liaise with ophthalmologists to establish baseline observations
Many lupus sufferers are prescribed Hydroxychloroquine to manage their lupus and a common side effect most often reported is gastrointestinal disturbances eg stomach churning, pain, wind, digestive problems etc BUT prescribers never seem to liaise with ophthalmologists to establish baseline observations
Betty909090
in
LUPUS UK
2 years ago
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Moon Face!!!
I'm reading up as much as i can on PMR & was rather worried to read that a condition called moon face can occur where fat deposits go to the face making it swollen and round . Has anyone had this problem? I have just started 15 mg of prednisone is this classed as high dosage many
I'm reading up as much as i can on PMR & was rather worried to read that a condition called moon face can occur where fat deposits go to the face making it swollen and round . Has anyone had this problem? I have just started 15 mg of prednisone is this classed as high dosage many
rachelbell
in
PMRGCAuk
2 years ago
One year Couch to 5k Runniversary
Just a quick post (hopefully, during lunch break), Sunday 24th was a year since I graduated from c25k. I couldn't really mark it as following a half marathon training plan that scheduled just a15 min recovery run and I want change because I had a 10k event yesterday. So, I marked that run as the anniversary
Just a quick post (hopefully, during lunch break), Sunday 24th was a year since I graduated from c25k. I couldn't really mark it as following a half marathon training plan that scheduled just a15 min recovery run and I want change because I had a 10k event yesterday. So, I marked that run as the anniversary
Freecloud
Graduate
in
Couch to 5K
2 years ago
Myopic macular degeneration
Hi all. After treatment (18 months and 10 Lucentis injections) for what I’d assumed was ‘age related’ MD, a consultant today told me, no, it was ‘myopic’ MD. I’ve always (since teens) been extremely short sighted so maybe no surprise there. Has anyone else been diagnosed with ‘myopic’ MD and, if so
Hi all. After treatment (18 months and 10 Lucentis injections) for what I’d assumed was ‘age related’ MD, a consultant today told me, no, it was ‘myopic’ MD. I’ve always (since teens) been extremely short sighted so maybe no surprise there. Has anyone else been diagnosed with ‘myopic’ MD and, if so
Fuzzbox100
in
Macular Society
2 years ago
What's this in my RPE after Eyleas injections?
Had CNV/AMD in left eye 2016, didn't know if I could hold still for injections, hence no central vision in that eye. CNV/AMD started in right eye in January 2018. No choice about going for injections. Had injections until March 2020 when oedema stopped. The small bump in my RPE, as in the first of my
Had CNV/AMD in left eye 2016, didn't know if I could hold still for injections, hence no central vision in that eye. CNV/AMD started in right eye in January 2018. No choice about going for injections. Had injections until March 2020 when oedema stopped. The small bump in my RPE, as in the first of my
ironbrain
in
Macular Society
2 years ago
sensitive feet?
Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a short while. I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't
Does anyone else have really sensitive feet.?It's happened this last year. It hurts to wear shoes. The softest shoes cause bruises or blisters after just a short while. I don't know if this is just a new issue from lupus/sjogrens or from taking hydroxy or pilocarpine. I'm early fifties so it can't
dg70
in
LUPUS UK
2 years ago
Prednisone and CSR - wondering about the connection
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Hello - I have had PMR almost two years currently at 6mg of Pred. A year ago I was diagnosed with CSR central serous retinopathy and was told its common in type A people and will go away in six months.... well didn't go away went to retina specialist who gave me a shot which seemed to help but he mentioned
Sunnyday365
in
PMRGCAuk
2 years ago
Connecting with someone with similar diagnoses
I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome
I am wanting to connect with anyone who has been diagnosed with both generalised Complex Regional Pain Syndrome and Primary Sjogren's Syndrome
Led_zepplin
in
The Australian Sjögren's Syndrome Association
2 years ago
Dangers of treatment for mild symptoms
Hello all. My PET scan showed evidence of PMR and my rheumatologist wants me to go onto steroids although I have very little pain or stiffness at present. This is to guard against GCA. If I understood her correctly the options include local injections and Depo Medrone. The rheumatologist also mentioned
Hello all. My PET scan showed evidence of PMR and my rheumatologist wants me to go onto steroids although I have very little pain or stiffness at present. This is to guard against GCA. If I understood her correctly the options include local injections and Depo Medrone. The rheumatologist also mentioned
Donaloge
in
PMRGCAuk
2 years ago
Deteriorating eyesight...........
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hi everyone, I had my first anti VEGF injection this morning, it was s anxious about it, but it was better than I expected. I have a medium to large static black blob ( lower left eye) and a feeling of a foreign body/grit in injection area, runny left nostriltoo, my eye is getting very sore.. It's the
Hidden
in
Macular Society
2 years ago
Comparing two INFs
This is mostly for science nerds, a comparison of the old PEG-Intron (no longer available) to Pegasys, shedding some light on what the Besremi guys are doing with longer dosing intervals. --- A 2004 report in context of hepatitis therapy: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2004.02170
This is mostly for science nerds, a comparison of the old PEG-Intron (no longer available) to Pegasys, shedding some light on what the Besremi guys are doing with longer dosing intervals. --- A 2004 report in context of hepatitis therapy: https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2036.2004.02170
EPguy
in
MPN Voice
2 years ago
A recent review of the failings of the currently held model for thyroid treatment
I don't think I've already posted this. This review again sets out the failings of the TSH-T4 dominated model of thyroid therapy and treatment. Open to download  Endocrine https://doi.org/10.1007/s12020-021-02851-6 VIEWPOINT Thyroid testing paradigm switch from thyrotropin to thyroidhormones—Future
I don't think I've already posted this. This review again sets out the failings of the TSH-T4 dominated model of thyroid therapy and treatment. Open to download  Endocrine https://doi.org/10.1007/s12020-021-02851-6 VIEWPOINT Thyroid testing paradigm switch from thyrotropin to thyroidhormones—Future
diogenes
in
Thyroid UK
2 years ago
Blepharitis and infections
since being on 2 lots of combination drops for my eye pressure I it has reduced . But also dry eye worsened , developed blepharitis now and had to have steroid drops for infection a few time. Is this something others have also experienced? It’s getting me down as a few month don’t seem to go by before
since being on 2 lots of combination drops for my eye pressure I it has reduced . But also dry eye worsened , developed blepharitis now and had to have steroid drops for infection a few time. Is this something others have also experienced? It’s getting me down as a few month don’t seem to go by before
Sufitzy
in
Glaucoma UK
2 years ago
Eye exercises to reduce pressure
Hi everyone, Do any of you do any eye exercises to reduce your eye pressures? I've done some research and found some videos on YouTube about exercises you can do to reduce your eye pressure. Link below: https://www.youtube.com/watch?v=lGWcku_hmGY I've recently been diagnosed with glaucoma
Hi everyone, Do any of you do any eye exercises to reduce your eye pressures? I've done some research and found some videos on YouTube about exercises you can do to reduce your eye pressure. Link below: https://www.youtube.com/watch?v=lGWcku_hmGY I've recently been diagnosed with glaucoma
Mimesy
in
Glaucoma UK
2 years ago
Newly diagnosed
Hello, I am 31 and was diagnosed with glaucoma 1 month ago. Ever since then I have been on Monopost glaucoma drops once a day. This week, I have noticed my left eyelid has been twitching at random points throughout the day. It doesn't hurt, it's just a bit annoying. Do you think this is normal or
Hello, I am 31 and was diagnosed with glaucoma 1 month ago. Ever since then I have been on Monopost glaucoma drops once a day. This week, I have noticed my left eyelid has been twitching at random points throughout the day. It doesn't hurt, it's just a bit annoying. Do you think this is normal or
Mimesy
in
Glaucoma UK
2 years ago
Eye Pain
Hi everyone, I am feeling abit sorry for myself, yesterday I had my six injection in my left eye and my third loading injection in my right eye, apart from suddenly feeling very very painful pressure while having the jab, I developed a really painful right eye, it felt as if my eye was on fire, it
Hi everyone, I am feeling abit sorry for myself, yesterday I had my six injection in my left eye and my third loading injection in my right eye, apart from suddenly feeling very very painful pressure while having the jab, I developed a really painful right eye, it felt as if my eye was on fire, it
NettRoy
in
Macular Society
2 years ago
Is one telangiactasia worth mentioning??
Me again! With yet another skin-related question… Whilst waiting on my next rheumatology date, and for a dermatology appointment which will be in the interim, I have been keeping an eye out for any new signs. I know that the hands often give clues around CTD. I’ve just noticed what I think is a
Me again! With yet another skin-related question… Whilst waiting on my next rheumatology date, and for a dermatology appointment which will be in the interim, I have been keeping an eye out for any new signs. I know that the hands often give clues around CTD. I’ve just noticed what I think is a
Winter_night
in
LUPUS UK
2 years ago
Eye Drops
Hi this is the second time my mum has had closed angle glaucoma. She’s been on a lot of eye drops but is now down to just pilocarpine four times a day. The problem she has is that they sting and burn uncontrollably. She’s tried the preservative free ones and is also taking dry eye drops. The specialist
Hi this is the second time my mum has had closed angle glaucoma. She’s been on a lot of eye drops but is now down to just pilocarpine four times a day. The problem she has is that they sting and burn uncontrollably. She’s tried the preservative free ones and is also taking dry eye drops. The specialist
Glos35
in
Glaucoma UK
2 years ago
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