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Maintainence Drugs Avastin & Olaparib
Hello Everyone, I hope all of you are doing well. I had my 6 cycles of chemo followed by debulking abdominal surgery. I was planned to have 2 more cycles of chemo after surgery. I went to see my oncologist for a review appointment yesterday and she said she wouldn't give me more chemo because I had
Hello Everyone, I hope all of you are doing well. I had my 6 cycles of chemo followed by debulking abdominal surgery. I was planned to have 2 more cycles of chemo after surgery. I went to see my oncologist for a review appointment yesterday and she said she wouldn't give me more chemo because I had
Rgrg
in
My Ovacome
1 year ago
Mets to the lung
Having battled through three lines of chemo, Avastin and a parp, I have now discovered that the cancer has progressed to my lungs.I see my oncologist next week, and don't know if he will have any suggestions, but what I am looking for from you ladies is how to deal with the breathlessness. I have become
Having battled through three lines of chemo, Avastin and a parp, I have now discovered that the cancer has progressed to my lungs.I see my oncologist next week, and don't know if he will have any suggestions, but what I am looking for from you ladies is how to deal with the breathlessness. I have become
27-359
in
My Ovacome
1 year ago
HE4 increasing
Hello All Amazing Women! My sister had a full debulking in July along with chemo after and is now on maintenance with an Oliparb drug and Avastin infusions every 3 weeks. She had a PET and CT scan after her chemo was completed and they were both clear. She’s feeling great and her CA125 has been at 9
Hello All Amazing Women! My sister had a full debulking in July along with chemo after and is now on maintenance with an Oliparb drug and Avastin infusions every 3 weeks. She had a PET and CT scan after her chemo was completed and they were both clear. She’s feeling great and her CA125 has been at 9
Teacherwithcurls
in
My Ovacome
1 year ago
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Weekly Taxol/ Avastin
Hi Everyone,I am writing on behalf of my mum, aged 61. She appears to be a 'wild type' HGSOC stage 4. Diagnosed Feb 2021. Surgery wasn't an option due to poor response to front line carbo/ taxol... (2nd opinion by Dr Fotopoulou). It kept the disease stable but no improvement. CA125 stayed around 400
Hi Everyone,I am writing on behalf of my mum, aged 61. She appears to be a 'wild type' HGSOC stage 4. Diagnosed Feb 2021. Surgery wasn't an option due to poor response to front line carbo/ taxol... (2nd opinion by Dr Fotopoulou). It kept the disease stable but no improvement. CA125 stayed around 400
Mum8757
in
My Ovacome
1 year ago
avastin costs
hi, is anybody having avastin (bevacizamab) and paying privately for it. I responded well to it on first diagnosis 6 years ago. Unfortunately I am not eligible on the nhs . Can anybody tell me more about the costs as they seem to vary so much.
hi, is anybody having avastin (bevacizamab) and paying privately for it. I responded well to it on first diagnosis 6 years ago. Unfortunately I am not eligible on the nhs . Can anybody tell me more about the costs as they seem to vary so much.
Suzannevans
in
My Ovacome
1 year ago
allergic to Caeylx, what now?
Hi ladies I’m having my 1st recurrence. I’m stage 4. Had debulking surgery and x6 carbo supposed to be with taxol but I was allergic to the taxol. I then had 10 Avastin infusions before it stopped working. Today was my first chemo with Carbo along with Caelyx and I had an allergic reaction to the
Hi ladies I’m having my 1st recurrence. I’m stage 4. Had debulking surgery and x6 carbo supposed to be with taxol but I was allergic to the taxol. I then had 10 Avastin infusions before it stopped working. Today was my first chemo with Carbo along with Caelyx and I had an allergic reaction to the
Willowsmum51
in
My Ovacome
1 year ago
Wishing all the forum ladies and support workers a restful and peaceful Christmas and New Year.
Hi All, I had my 12th round of Avastin last week and have been struggling with generalised aching and joint discomfort. On reflection this has probably been getting worse since round 10. I am also on Olaparib which I know causes similar side effects. Just wondered if anyone else has experienced this.
Hi All, I had my 12th round of Avastin last week and have been struggling with generalised aching and joint discomfort. On reflection this has probably been getting worse since round 10. I am also on Olaparib which I know causes similar side effects. Just wondered if anyone else has experienced this.
Nov5
in
My Ovacome
2 years ago
Best Wishes to All :)
Hello lovely ladies, This is my first post on here, I just wanted to wish you all the best during this festive period. This time last year, I wasn't enjoying my food and I was feeling bloated not knowing why. I feel very lucky to be in a position this year when I can enjoy my food and spend time with
Hello lovely ladies, This is my first post on here, I just wanted to wish you all the best during this festive period. This time last year, I wasn't enjoying my food and I was feeling bloated not knowing why. I feel very lucky to be in a position this year when I can enjoy my food and spend time with
Halo2O14
in
My Ovacome
2 years ago
Advice please re: Niraparib (Zejula) side effects (i.e. bloating, nausea & vomitting & stomach pains?)
Hello ladies, I hope you are all keeping as well as possible in the run up to Christmas! I was wondering if anyone who's been treated for Ovarian / Peritoneal Cancer has had horrible side effects from the Niraparib (Zejula), maintenance drug? I was given Niraparib 200mg after a 1st recurrence in
Hello ladies, I hope you are all keeping as well as possible in the run up to Christmas! I was wondering if anyone who's been treated for Ovarian / Peritoneal Cancer has had horrible side effects from the Niraparib (Zejula), maintenance drug? I was given Niraparib 200mg after a 1st recurrence in
Doughnut21
in
My Ovacome
2 years ago
DOXIL side effects
oncologist wants to put me on doxil maybe maybe not w avastin anyone have anything to say about this ?
oncologist wants to put me on doxil maybe maybe not w avastin anyone have anything to say about this ?
quillette
in
My Ovacome
2 years ago
Grandsons got chickenpox and I'm supposed to Xmas day with them🤷♀️x
OK 1st time ever that everyone isn't coming to me for Christmas and I'm going to my daughter for lunch but my grandsons came down with chickenpox yesterday and I'm on avastin and starting niraparib today! Am I still safe to go? Any advice? I really want to go to them but want to be safe. Thanks lovely
OK 1st time ever that everyone isn't coming to me for Christmas and I'm going to my daughter for lunch but my grandsons came down with chickenpox yesterday and I'm on avastin and starting niraparib today! Am I still safe to go? Any advice? I really want to go to them but want to be safe. Thanks lovely
Newbery3
in
My Ovacome
2 years ago
Good news post!!! 🥳❤️🩹
Well had my over the phone oncology appointment yesterday as I've had this covid again 🙃 1st scan since surgery and finishing chemotherapy and after my oncologist talked about starting parps and reading the consent then sorting my avastin around having a port fitted I asked her if she'd had my scan
Well had my over the phone oncology appointment yesterday as I've had this covid again 🙃 1st scan since surgery and finishing chemotherapy and after my oncologist talked about starting parps and reading the consent then sorting my avastin around having a port fitted I asked her if she'd had my scan
Newbery3
in
My Ovacome
2 years ago
Parp partially working?
I've been on Avastin with Olaporib after 1st line treatment since April 2022, with my ca125 rising since August from 15 progressively up to 750 4 weeks ago, though 1 week ago it had gone down to 700. A scan in September came back clear ; one just done shows possible slight activity in a couple of lymph
I've been on Avastin with Olaporib after 1st line treatment since April 2022, with my ca125 rising since August from 15 progressively up to 750 4 weeks ago, though 1 week ago it had gone down to 700. A scan in September came back clear ; one just done shows possible slight activity in a couple of lymph
Loorunner
in
My Ovacome
2 years ago
Has anyone taken Avastin?
I have been prescribed Avastin--an IV injection--for inflammation in the brain. I have a brain lesion (on MRI) and they can't determine if it is more tumor or necrosis. It is at the site of an original tumor which was removed via craniotomy in 2018 with follow-up SRS to the tumor bed. Current lesion
I have been prescribed Avastin--an IV injection--for inflammation in the brain. I have a brain lesion (on MRI) and they can't determine if it is more tumor or necrosis. It is at the site of an original tumor which was removed via craniotomy in 2018 with follow-up SRS to the tumor bed. Current lesion
LadyKatarina
in
SHARE Metastatic Breast Cancer
2 years ago
Abdominal Hysterectomy
HelloI was diagnosed with peritoneal cancer stage 3c in June 2022 just before my 30th birthday. I had six cycles of chemotherapy with carboplatin only as I had allergic reaction to taxol. Im a BRCA2 positive and responded quite well to chemotherapy. My initial CA125 was around 3000 and it dropped to
HelloI was diagnosed with peritoneal cancer stage 3c in June 2022 just before my 30th birthday. I had six cycles of chemotherapy with carboplatin only as I had allergic reaction to taxol. Im a BRCA2 positive and responded quite well to chemotherapy. My initial CA125 was around 3000 and it dropped to
Rgrg
in
My Ovacome
2 years ago
It's back!
I finished Avastin (after pac/carbo/surgery) in Dec 21 and I have just been told that the cancer has returned. I will be starting caelyx/carbo .I'm a bit terrified this time I think it's going to be rough I tolerated carbo/Pac well.I'm feeling a bit defeated by it all.
I finished Avastin (after pac/carbo/surgery) in Dec 21 and I have just been told that the cancer has returned. I will be starting caelyx/carbo .I'm a bit terrified this time I think it's going to be rough I tolerated carbo/Pac well.I'm feeling a bit defeated by it all.
Ova-whelmed
in
My Ovacome
2 years ago
beyond 6 cycles
Hi all, looking for some advise. My mum is currently fighting her second reoccurrence with weekly taxol and bi weekly avastin followed by a weeks break. She recently finished her 6th cycle and although her ca-125 jumped between 3rd and 6th cycle ( 15-28) Ct scans show the disease is stable. Her oncologist
Hi all, looking for some advise. My mum is currently fighting her second reoccurrence with weekly taxol and bi weekly avastin followed by a weeks break. She recently finished her 6th cycle and although her ca-125 jumped between 3rd and 6th cycle ( 15-28) Ct scans show the disease is stable. Her oncologist
ShamilaS
in
My Ovacome
2 years ago
Side effects
Hi lovely ladies, I'm new to this forum, so apologies if question has already been aired. I was diagnosed with Stage 3c serous ovarian cancer with peritoneal secondaries 1 year ago. I had 4 rounds of carbo/pac and 3 of Avastin prior to hysterectomy:BSO and extensive debulking. Had further 2rounds
Hi lovely ladies, I'm new to this forum, so apologies if question has already been aired. I was diagnosed with Stage 3c serous ovarian cancer with peritoneal secondaries 1 year ago. I had 4 rounds of carbo/pac and 3 of Avastin prior to hysterectomy:BSO and extensive debulking. Had further 2rounds
Nov5
in
My Ovacome
2 years ago
Retinal Bleed
My daughter had a retinal bleed 3 weeks ago. She has myopic degeneration in both eyes. Her central vision is gone in effected eye. She is seeing a black spot in that area. Treated with Avastin 3 days post incident and is due another shot in November. She had a previous bleed in 2018. However I suspect
My daughter had a retinal bleed 3 weeks ago. She has myopic degeneration in both eyes. Her central vision is gone in effected eye. She is seeing a black spot in that area. Treated with Avastin 3 days post incident and is due another shot in November. She had a previous bleed in 2018. However I suspect
Faith8867
in
Macular Society
2 years ago
Scanxiety Series 3 Episode I (?)
Hello everyone Just had a scan ordered by oncologist because ca125 jumped 10 points in September to 45. Tbh it has edged up every month on Olaparib (I have been on it since May 2021). i am really struggling with the idea that despite being BRCA 1 the maintenance treatment probably hasn’t really worked
Hello everyone Just had a scan ordered by oncologist because ca125 jumped 10 points in September to 45. Tbh it has edged up every month on Olaparib (I have been on it since May 2021). i am really struggling with the idea that despite being BRCA 1 the maintenance treatment probably hasn’t really worked
Lyndy2
in
My Ovacome
2 years ago
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