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Help me please
hi good folk we are living in Iceland my daughter diagnosed with JIA 3 years ago she used many kind of medication because any medecin she took worked few months then the doctor change it and tried another ones now she is taking simponi injuction and Methotrexate every friday night (friday is her nightmer
hi good folk we are living in Iceland my daughter diagnosed with JIA 3 years ago she used many kind of medication because any medecin she took worked few months then the doctor change it and tried another ones now she is taking simponi injuction and Methotrexate every friday night (friday is her nightmer
Montaha
in
NRAS
2 years ago
Where do I stand now with anti virals?
Hello to you all I have chosen to stop taking Adalimumab because I don’t think it’s doing anything and it has triggered a patch of vitiligo which i want to try and avoid spreading. This means I am now taking methotrexate 20mg subcut and 6mg pred. I was wondering Do I still qualify for anti virals?
Hello to you all I have chosen to stop taking Adalimumab because I don’t think it’s doing anything and it has triggered a patch of vitiligo which i want to try and avoid spreading. This means I am now taking methotrexate 20mg subcut and 6mg pred. I was wondering Do I still qualify for anti virals?
Bon1
in
NRAS
2 years ago
Trapped wind
Can I just ask if you out there and suffer with trapped wind do you get it in ur back, chest and shoulder ? I woke up this morning when to toilet had a good bowel movement then felt normal had some buscopan and wham I started with trapped wind. I ve not had anything to eat so I know it’s not food, the
Can I just ask if you out there and suffer with trapped wind do you get it in ur back, chest and shoulder ? I woke up this morning when to toilet had a good bowel movement then felt normal had some buscopan and wham I started with trapped wind. I ve not had anything to eat so I know it’s not food, the
Bassem1979
in
IBS Network
2 years ago
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Disappointed/stressed
9 days into taking Pentasa (alongside budesonide 3mg) in an attempt to stop taking budesonide and I experienced side effects of the pentasa. Feeling sick, no appetite, bloating, burping, chills/hot sweats and the worst diarrhoea. I’ve decided to stop taking it and continue with the 3mg budesonide for
9 days into taking Pentasa (alongside budesonide 3mg) in an attempt to stop taking budesonide and I experienced side effects of the pentasa. Feeling sick, no appetite, bloating, burping, chills/hot sweats and the worst diarrhoea. I’ve decided to stop taking it and continue with the 3mg budesonide for
S-ved
in
Crohn's and Colitis Support
2 years ago
Is anyone using danshen?
I have begun acupuncture treatment as a prophylactic, and my Chinese acupuncturist recommended danshen (more specifically Fu Fang Dan Shen). Does anyone have any experience with this? Thanks for any light you can shed ...
I have begun acupuncture treatment as a prophylactic, and my Chinese acupuncturist recommended danshen (more specifically Fu Fang Dan Shen). Does anyone have any experience with this? Thanks for any light you can shed ...
malaekahana
in
AF Association
3 years ago
Octasa 800mg
Hi not been on here for a while, I was in hospital at the beginning of December for a week losing blood and going to the loo a lot , put me on prednisone steroids tapering down over eight weeks. I was on Pentasa granules 2g morning and night. I ask to go back on to octasa which I have had before and
Hi not been on here for a while, I was in hospital at the beginning of December for a week losing blood and going to the loo a lot , put me on prednisone steroids tapering down over eight weeks. I was on Pentasa granules 2g morning and night. I ask to go back on to octasa which I have had before and
Bluegirl1948
in
Crohn's and Colitis Support
3 years ago
Buscopan daily?
Hi everybody, I was told I have IBS about 8months ago and to try fodmap. I've had stool (once) and blood tests (twice) which were all clear. I've found fodmap incredibly hard to follow as it's so limited and I never seem to get a long enough period of time to really try it I.e. a month where there are
Hi everybody, I was told I have IBS about 8months ago and to try fodmap. I've had stool (once) and blood tests (twice) which were all clear. I've found fodmap incredibly hard to follow as it's so limited and I never seem to get a long enough period of time to really try it I.e. a month where there are
Tronson
in
IBS Network
3 years ago
Osteoporosis And Prolia
Hello just a quick question for all. Because of having osteoporosis,my doctor has recommended “PROLIA” the twice a year shot . I have read in the literature that states one of the reasons not to take are immune compromised .has anyone had any experience with this. I am now reluctant to take it of
Hello just a quick question for all. Because of having osteoporosis,my doctor has recommended “PROLIA” the twice a year shot . I have read in the literature that states one of the reasons not to take are immune compromised .has anyone had any experience with this. I am now reluctant to take it of
Grandmajoanie
in
CLL Support
3 years ago
Chlorinated water protective for CLL?
Wow, surprising. Just found out my water filter hadn't been working and I've been drinking different levels of chlorinated for ? years. So just quickly googled, wondering if that explained my diagnosis 2019. But no! Maybe I should turn off my filter and put Britta aside as well --
Wow, surprising. Just found out my water filter hadn't been working and I've been drinking different levels of chlorinated for ? years. So just quickly googled, wondering if that explained my diagnosis 2019. But no! Maybe I should turn off my filter and put Britta aside as well --
Vlaminck
in
CLL Support
3 years ago
Collagenous Collitis Advice
Hi, I’m just wondering how long you can take the maintenance dose of budesonide for Collagenous Collitis? Is there a time limit on this? I completed my 3 month course of 9mg/6mg/3mg but after a couple of weeks my symptoms came back. My consultant said that I could take 3mg for a further 8 weeks which
Hi, I’m just wondering how long you can take the maintenance dose of budesonide for Collagenous Collitis? Is there a time limit on this? I completed my 3 month course of 9mg/6mg/3mg but after a couple of weeks my symptoms came back. My consultant said that I could take 3mg for a further 8 weeks which
S-ved
in
Crohn's and Colitis Support
3 years ago
Ulcerative colitis and pernicious anaemia
Hi Everyone, I was first diagnosed with PA ten years ago and the PAS literally saved my life ( see profile for further information).I have now been diagnosed with ulcerative colitis. I have symptoms identical to those I had before my initial diagnosis of PA and wonder if anyone knows if there is a negative
Hi Everyone, I was first diagnosed with PA ten years ago and the PAS literally saved my life ( see profile for further information).I have now been diagnosed with ulcerative colitis. I have symptoms identical to those I had before my initial diagnosis of PA and wonder if anyone knows if there is a negative
Florikeet
in
Pernicious Anaemia Society
3 years ago
Ulcerative colitis and discharge
Are there any ladies on this site that have ulcerative colitis experienced vaginal discharge. Over the last two week’s I’ve had two swabs taken and urine tested ,both have come back clear. Been to the doctors this morning and she believes the discharge could be to the fact that I have colitis, told to
Are there any ladies on this site that have ulcerative colitis experienced vaginal discharge. Over the last two week’s I’ve had two swabs taken and urine tested ,both have come back clear. Been to the doctors this morning and she believes the discharge could be to the fact that I have colitis, told to
Bluegirl1948
in
Crohn's and Colitis Support
3 years ago
Full Body Cryotherapy
Anyone have any research or stories about whole body cryotherapy and CLL? I tried a 3 minuet liquid nitrogen cryotherapy today. My thinking was cold supposedly induces DNA repair and I doubt cold could do any real harm. I searched the site but didn’t see anything directly addressing this type of
Anyone have any research or stories about whole body cryotherapy and CLL? I tried a 3 minuet liquid nitrogen cryotherapy today. My thinking was cold supposedly induces DNA repair and I doubt cold could do any real harm. I searched the site but didn’t see anything directly addressing this type of
Rando21
in
CLL Support
3 years ago
Immunocompromised and Active Virus Vaccine
I’m currently on 6.5mg/day prednisolone for PMR. My 6 week old granddaughter has just received her first Rotavirus live vaccine. Is there any risk for me being around her and if so, how,long should I should I keep my distance?
I’m currently on 6.5mg/day prednisolone for PMR. My 6 week old granddaughter has just received her first Rotavirus live vaccine. Is there any risk for me being around her and if so, how,long should I should I keep my distance?
Prahran
in
PMRGCAuk
3 years ago
Venetoclax and Stelara
Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime? Or can anyone recommend medication for Ulcerative Colitis while taking Venetoclax?
Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime? Or can anyone recommend medication for Ulcerative Colitis while taking Venetoclax?
Driverps1
in
CLL Support
3 years ago
When to take Questran or Colestid powder
I am taking one sachet of Questran or Colestid powder (containing colestyramine or colestipol hydrochloride respectively) per day to control suspected bile acid malabsorption (I have a cooperative doctor - but I haven't been tested for BAM) and therefore IBS D - and with some success. My question is,
I am taking one sachet of Questran or Colestid powder (containing colestyramine or colestipol hydrochloride respectively) per day to control suspected bile acid malabsorption (I have a cooperative doctor - but I haven't been tested for BAM) and therefore IBS D - and with some success. My question is,
merve1
in
IBS Network
3 years ago
Cll and Ulcer Colitis
Hi everyone, I’m about to have my first treatment for cll. I also have ulcer colitis. Has anyone else had the same situation? Be good to hear feedback on any complications with having ulcer colitis and getting venetoclax medication. My doctor did say that one patient of hers had FCR treatment and it
Hi everyone, I’m about to have my first treatment for cll. I also have ulcer colitis. Has anyone else had the same situation? Be good to hear feedback on any complications with having ulcer colitis and getting venetoclax medication. My doctor did say that one patient of hers had FCR treatment and it
Driverps1
in
CLL Support
3 years ago
Salofalk granules
Hello, I’m recently diagnosed with Ulcerative colitis and started taking 3mg of salofalk daily. I’m on day three and I’m literally stuck on the loo with awful diarrhoea & tummy cramps. Is this common when starting this medication. I feel worse now than before I started them! Thank you
Hello, I’m recently diagnosed with Ulcerative colitis and started taking 3mg of salofalk daily. I’m on day three and I’m literally stuck on the loo with awful diarrhoea & tummy cramps. Is this common when starting this medication. I feel worse now than before I started them! Thank you
Scout
in
Crohn's and Colitis Support
3 years ago
IBD tracker app recommendations
Hello all I have recently been diagnosed with colitis. I would like to track my meds, symptoms, food etc. An app would be good rather than paper. I can see a few on the App Store but they don’t have a lot of reviews. Downloaded a couple but don’t seem that good. Any recommendations?? Thanks
Hello all I have recently been diagnosed with colitis. I would like to track my meds, symptoms, food etc. An app would be good rather than paper. I can see a few on the App Store but they don’t have a lot of reviews. Downloaded a couple but don’t seem that good. Any recommendations?? Thanks
Hephzi
in
Crohn's and Colitis Support
3 years ago
Anyone with Calprotectin level higher that 6000?
My son (14) has been diagnosed with Crohn's 5 years ago. His initial Calprotectin levels were between 2000 and 3000. After a year and a half of Prednisone, Salazopyrin and Entocort his levels shot up to over 6000 (literally off the chart). The doctor ordered another test assuming that it was a false
My son (14) has been diagnosed with Crohn's 5 years ago. His initial Calprotectin levels were between 2000 and 3000. After a year and a half of Prednisone, Salazopyrin and Entocort his levels shot up to over 6000 (literally off the chart). The doctor ordered another test assuming that it was a false
BelindaSteyn
in
Crohn's and Colitis Support
3 years ago
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