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Goodbye "snoutie"
It is a shame that within our society, there are those who sadly carry a personal bitterness towards others. I, like so many others joined this site so I could hopefully reach out and offer help, support and advice to others by calling upon my own personal experience, medical knowledge, and life age
It is a shame that within our society, there are those who sadly carry a personal bitterness towards others. I, like so many others joined this site so I could hopefully reach out and offer help, support and advice to others by calling upon my own personal experience, medical knowledge, and life age
Hidden
in
British Liver Trust
5 years ago
Transplant birthday/Mental Health Awareness Week/Lung Transplant Consultation
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
5 years ago
Post transplant 5 mos no energy
I am the only careprovider of my husband who received a kidney transplant over 5 months ago. First 2 months were great, and then problems arose and all is fine now except for low hemoglobin. I give him "Procrit" 3X a week by injection (he shakes so badly is reason for he gives 4X a day insulin shots
I am the only careprovider of my husband who received a kidney transplant over 5 months ago. First 2 months were great, and then problems arose and all is fine now except for low hemoglobin. I give him "Procrit" 3X a week by injection (he shakes so badly is reason for he gives 4X a day insulin shots
Gardner-NY
in
Kidney Transplant
5 years ago
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Recurrent IgA nephropathy and back on dialysis
I would love any diet or lifestyle advice for me to support me during my 2nd time on hemodialysis since transplanted 10 years ago. I am a recurrent IgA patient and am being evaluated for kidney transplant.
I would love any diet or lifestyle advice for me to support me during my 2nd time on hemodialysis since transplanted 10 years ago. I am a recurrent IgA patient and am being evaluated for kidney transplant.
PeonyLover
in
Kidney Disease
5 years ago
Keep reading others suffering in same as me so connect with people’s problems...
Hi I have all same problems I’m having so much difficult can’t walk little activity make me breathless always go to emergency hospital outpatient emergency they don’t know what is scleroderma effect on your body they keep me on my wheelchairs over 4 hours I was asked I need beds they can’t after I asked
Hi I have all same problems I’m having so much difficult can’t walk little activity make me breathless always go to emergency hospital outpatient emergency they don’t know what is scleroderma effect on your body they keep me on my wheelchairs over 4 hours I was asked I need beds they can’t after I asked
Nurmohammed
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Transplant liver.
Me again, is there an age cut off for getting a liver liver transplant in England ? I know its 63 in France. I am 61 and a half .
Me again, is there an age cut off for getting a liver liver transplant in England ? I know its 63 in France. I am 61 and a half .
Nictesla
in
British Liver Trust
5 years ago
Prednisone/corticosteroids
Hello. Anyone reading this who had a kidney transplant and is NOT taking prednisone or other corticosteroids as part of their anti-rejection meds? I've been hearing/reading about the possibility of going steroid-free and I'm considering raising the possibility with my doctor. (I currently take tacrolimus
Hello. Anyone reading this who had a kidney transplant and is NOT taking prednisone or other corticosteroids as part of their anti-rejection meds? I've been hearing/reading about the possibility of going steroid-free and I'm considering raising the possibility with my doctor. (I currently take tacrolimus
galfieri
in
Kidney Transplant
5 years ago
My mom had a liver and kidney transplant on feb 9th 2019
My question is she just still isn’t quit right and she is unable to even roll over we are at the end of the 3 Rd month post transplant I think she had a small stroke I keep being told no any thoughtd
My question is she just still isn’t quit right and she is unable to even roll over we are at the end of the 3 Rd month post transplant I think she had a small stroke I keep being told no any thoughtd
4mymom
in
Kidney Transplant
5 years ago
Kidney transplant
I HV kidney transplant 4 month ago but still have pain near my inner side of right thigh..is it normal ..
I HV kidney transplant 4 month ago but still have pain near my inner side of right thigh..is it normal ..
Ish123
in
Kidney Transplant
5 years ago
Kidney transplant..before 4 month
I HV pain near my thigh area..four five month after kidney transplant.. Is it OK or any issue..after how much time pain totally gobe?
I HV pain near my thigh area..four five month after kidney transplant.. Is it OK or any issue..after how much time pain totally gobe?
Ish123
in
Kidney Transplant
5 years ago
Newbie ...
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
SomersetJo
in
British Heart Foundation
5 years ago
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve.
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
KIDNEY Transplant
Hello everyone i just had a kidney transplant in August but when i wake up in the morning my eyes are puffy my labs are fine does anyone know why
Hello everyone i just had a kidney transplant in August but when i wake up in the morning my eyes are puffy my labs are fine does anyone know why
Chyna1
in
Kidney Transplant
5 years ago
Chantel who is Recovering Double Lung Transplant
This is a Post, one of many that Chantel would Share each day Leading up to her Transplant. This is the First one since she Pulled through after having a Bad Week. Now Truly on the Mend. These Words are Truly Inspirational. Enjoy Each & Everyday. Love n Hugs to you All. xxxxx
This is a Post, one of many that Chantel would Share each day Leading up to her Transplant. This is the First one since she Pulled through after having a Bad Week. Now Truly on the Mend. These Words are Truly Inspirational. Enjoy Each & Everyday. Love n Hugs to you All. xxxxx
Hacienda
in
Lung Conditions Community Forum
5 years ago
Living in the UK, Transplant approval been initiated to QEH Birmingham.
Im 37 struggling to come to terms with a Liver Transplant advised April 19’ I have AIH/PSC/UC Absolutely scared after going through surgery for clearance of stones in intrahepatic bile ducts + removal of gall bladder and liver biopsy recently and trying to recover. I have had repeated cholangitis and
Im 37 struggling to come to terms with a Liver Transplant advised April 19’ I have AIH/PSC/UC Absolutely scared after going through surgery for clearance of stones in intrahepatic bile ducts + removal of gall bladder and liver biopsy recently and trying to recover. I have had repeated cholangitis and
RPancho
in
British Liver Trust
5 years ago
I have TP53
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
Doremefasol
in
CLL Support
5 years ago
Spider angioma
Hi all.excuse the state of my hand. Stupidly As a gas man I always put these spider veins down to the physical job I’ve got of replacing the highway gas mains in all weathers.five years ago I had my first Bleed in my oesophagus but developed this spider Naevi five years before.so in hindsight I should
Hi all.excuse the state of my hand. Stupidly As a gas man I always put these spider veins down to the physical job I’ve got of replacing the highway gas mains in all weathers.five years ago I had my first Bleed in my oesophagus but developed this spider Naevi five years before.so in hindsight I should
Popel
in
British Liver Trust
5 years ago
Introduction
Hello I got my very Kidney Transplant in Jan. 2018. Just wanted to in and say hi... looking for support and suggestion.
Hello I got my very Kidney Transplant in Jan. 2018. Just wanted to in and say hi... looking for support and suggestion.
Sammie82
in
Kidney Transplant
5 years ago
Hi 👋
Hello my name is Kristel and my daughter Leah has been on pd since she was 5 days old !!! She has also had open heart surgery She does pd Dialysis At home everyday We are still waiting for transplant We have a page for on face book called Leah storms journey to a kidney transplant
Hello my name is Kristel and my daughter Leah has been on pd since she was 5 days old !!! She has also had open heart surgery She does pd Dialysis At home everyday We are still waiting for transplant We have a page for on face book called Leah storms journey to a kidney transplant
Kidney4leahstorm
in
Parents of Children with Kidney Disease
5 years ago
10 months post Stem Cell Transplant
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
It's been a long time since I last posted on here! 10 months ago I was lucky enough to receive donor cells from a 10/10 match. It's been a rollercoaster ride but looking back, I've been very lucky as it has been nowhere near as bad as I had read it could be. Yes there have been some challenges, felt
KAS8
in
CLL Support
5 years ago
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