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Xmas worries?
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
bungi1961
in
Bowel Disease Support
7 months ago
First SI, the pain, ouch!
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Bertiepuss
in
Pernicious Anaemia Society
7 months ago
BCG Finished - CT SCAN - UPDATE.
First the good news - My CT scan result I was told in clinic today shows the 6mm growth has not moved - Further scan in 6 months. So one thing for now off my mind.. So I had my last BCG of the course today, glad in a way but hope I may get back on it despite the warts with it. So in six weeks
First the good news - My CT scan result I was told in clinic today shows the 6mm growth has not moved - Further scan in 6 months. So one thing for now off my mind.. So I had my last BCG of the course today, glad in a way but hope I may get back on it despite the warts with it. So in six weeks
Ern007
in
Lung Conditions Community Forum
11 months ago
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Update
hi l have had a consultation this morning following up on me after surgeries and brachytherapy. The outcome is they can offer me no more radio, and am to carry on with my normal day to day life! To anyone out there who is thinking shall l or shall l not get professional guidance with my symptoms my
hi l have had a consultation this morning following up on me after surgeries and brachytherapy. The outcome is they can offer me no more radio, and am to carry on with my normal day to day life! To anyone out there who is thinking shall l or shall l not get professional guidance with my symptoms my
AlexaMac
in
Endometriosis UK
11 months ago
weird mouth symptoms on Sulfasalazine
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Has anyone experienced anything like the following? I’ve been on Sulf for 7 weeks, max dose from 4 weeks. In the last 3 days I’ve had a sore tongue which has now settled but I’ve completely lost my sense of taste. I’ve tested and am negative for covid. I can’t think what else it could be!
Charlongo79
in
NRAS
7 months ago
Movicol/colonoscopy prep for IBS relief
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Hi all, I have predominantly IBS-D but occasionally I have bouts of horrific IBS-C (I can go up to a week without any bowel movements). This is accompanied by horrific bloating/acid reflux and uncontrollable eggy gas. It can go from a few days to months. I’ve had to be signed off work before because
Book_Worm5
in
IBS Network
7 months ago
Going round in circles
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Following my gastroscopy this is on the report: THE GASTRIC MAPPING SHOW MODERATE CHRONIC INFLAMMATION. THERE IS MULTIFOCAL INTESTINAL METAPLASIA THROUGHOUT THESE BIOPSIES. THERE IS ALSO SEVERE GLANDULAR ATROPHY WITH NEUROENDOCRINE HYPERPLASIA. NO MUCOSAL ULCERATION OR ACTIVE INFAMMATION SEEN.
Helliborous
in
Pernicious Anaemia Society
7 months ago
All clear now for two years
Just sending a positive story. Diagnosed 2b HG clear cell, endometrioid 2020. Big op, chemo, diagnosed my own recurrence after 6 months. Another op, then RT. 2021. Last couple of scans have been clear. They are still going to check me every 6 months. I am taking alternative supplements and vitamins
Just sending a positive story. Diagnosed 2b HG clear cell, endometrioid 2020. Big op, chemo, diagnosed my own recurrence after 6 months. Another op, then RT. 2021. Last couple of scans have been clear. They are still going to check me every 6 months. I am taking alternative supplements and vitamins
candyapplegrey
in
My Ovacome
10 months ago
Supplement Guidance
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Hello all So after years of a tummy that reacted to certain foods, being diagnosed as gluten intolerant in 2016, really suffering in 2021 and 2022, following a FODMAP diet recommended by my doctor (don’t recommend) and getting to a point where I only ate the same plain things everyday, I finally paid
Kimsy17
in
IBS Network
7 months ago
pinching on left side of abdomen
does anyone else have a pinching feeling on left side of abdomen more do when leaning over. I think everything is settling after a flare up but something else starts I’m taking buscopan and mebeverine for pain/spasms any help appreciated
does anyone else have a pinching feeling on left side of abdomen more do when leaning over. I think everything is settling after a flare up but something else starts I’m taking buscopan and mebeverine for pain/spasms any help appreciated
finsbury
in
IBS Network
7 months ago
Study: diet of dark green leafy vegetables reduces ferritin
Reduction in Ferritin Concentrations among Patients Consuming a Dark-Green Leafy Vegetable–Rich, Low Inflammatory Foods Everyday (LIFE) Diet
https://doi.org/10.1093/cdn/nzac095 From my own experience, I believe that a whole food plant based dietary pattern is effective in keeping my ferritin
Reduction in Ferritin Concentrations among Patients Consuming a Dark-Green Leafy Vegetable–Rich, Low Inflammatory Foods Everyday (LIFE) Diet
https://doi.org/10.1093/cdn/nzac095 From my own experience, I believe that a whole food plant based dietary pattern is effective in keeping my ferritin
Autumn_Leaves
in
Haemochromatosis Society UK
11 months ago
non responsive or refactory coeliac’s disease
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
hi Was wondering if anyone else has had similar issues ? Sorry it’s a long one My Nan, Mother and Brother all have coeliacs and have been diagnosed for many years my brother also has colitis. I’ve only been diagnosed for 4years now, but had been tested regularly due to hereditary link. A gluten
RJane83
in
Gluten Free Guerrillas
7 months ago
Distended stomach & abdomen after ablation
Bit of a strange one this, so thought I'd ask if anyone else has had a similar experience and a diagnosis. I had my 2nd catheter ablation 4 days ago under Gen Aanaesthetic; the ablation, plus cardioversion, seems to have gone well (allowing for it being very early days) and the groin wound is healing
Bit of a strange one this, so thought I'd ask if anyone else has had a similar experience and a diagnosis. I had my 2nd catheter ablation 4 days ago under Gen Aanaesthetic; the ablation, plus cardioversion, seems to have gone well (allowing for it being very early days) and the groin wound is healing
chrisfellrunner
in
AF Association
11 months ago
12 year old suffering IBSD...and Aire2 breath tests. Are they any good?
Hi there, My daughter is now 12 and has suffered most of her life with cramps, loose stools/diarrhoea and bloating. After various tests throughout the years we were told last year it was ibs-d. We've been left to our devices with no support and for a while during the summer, she was symptom free
Hi there, My daughter is now 12 and has suffered most of her life with cramps, loose stools/diarrhoea and bloating. After various tests throughout the years we were told last year it was ibs-d. We've been left to our devices with no support and for a while during the summer, she was symptom free
Ceeative-cookie
in
IBS Network
7 months ago
Pain management
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
Dear Friends: I am currently taking 20mg Methadone daily for RLS and will have painful hand surgery soon. Because Methadone blunts effects of opioids I am concerned about pain management. Any ideas how best to handle? Thank you.
JustVisiting23
in
Restless Legs Syndrome
7 months ago
Longtime glaucoma patient
Hi. I just wanted to say that my experience with Glaucoma has been over many, many years. I’ve been very fortunate to have had treatment, isoptocarpine which was horrible. I have Myopia and these drops made it almost impossible to see for any length of time. They were to reduce the eye pressure quickly
Hi. I just wanted to say that my experience with Glaucoma has been over many, many years. I’ve been very fortunate to have had treatment, isoptocarpine which was horrible. I have Myopia and these drops made it almost impossible to see for any length of time. They were to reduce the eye pressure quickly
Dougalldoo
in
Glaucoma UK
11 months ago
Freiberg's disease?
I started with pain in my right foot last December, associated with stiffness and itching about halfway up the foot, all causing me to limp. It feels for all the world as if there's a group of bones all bunched together which I feel like hitting with a hammer to get them back in place- I said this to
I started with pain in my right foot last December, associated with stiffness and itching about halfway up the foot, all causing me to limp. It feels for all the world as if there's a group of bones all bunched together which I feel like hitting with a hammer to get them back in place- I said this to
Toffee1878
in
NRAS
11 months ago
Thoughts please
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
AnnMB
in
Restless Legs Syndrome
11 months ago
Inflammation on colonoscopy
Hi everyone I had a colonoscopy today after around a year of diarrhoea, constipation, bleeding, tenesmus, BM at least 5x day and huge amounts of mucus. Lots of biopsies were taken and there were a couple areas of inflammation in my distal rectum, also some small haemorrhoids further down. The biopsy
Hi everyone I had a colonoscopy today after around a year of diarrhoea, constipation, bleeding, tenesmus, BM at least 5x day and huge amounts of mucus. Lots of biopsies were taken and there were a couple areas of inflammation in my distal rectum, also some small haemorrhoids further down. The biopsy
Eevee31
in
Crohn's and Colitis Support
7 months ago
Unclear advice from doc
Had aches and pains in joints and raised ESR and CRP levels. After many discussions with GP, he decided I have Polymyalgic Rheumatica. I said i didnt think i did as the stiffness and aches had improved by 80% with no treatment. He had put me on sertraline and i told him it was affecting my bowel and
Had aches and pains in joints and raised ESR and CRP levels. After many discussions with GP, he decided I have Polymyalgic Rheumatica. I said i didnt think i did as the stiffness and aches had improved by 80% with no treatment. He had put me on sertraline and i told him it was affecting my bowel and
worrier62
in
IBS Network
7 months ago
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