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My Latest Bladder Cancer Update.
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
I got a letter yesterday saying to go for BCG treatment on the 30th May. just two days before my eye injection. One thw letter there was no usual previous conditions and telling me my cancer was low grade, high gread, then low grade. On the 14th july when everyone was being romantic and passing the
Ern007
in
Lung Conditions Community Forum
2 months ago
Hunger pain
Does any of you experience hunger pain? Mine is the worst when I don’t eat a lot of calories. I think a healthy person would not have any symptoms eating as much calories as I eat on these “low- calorie” days. I even get very bloated from the hunger.
Does any of you experience hunger pain? Mine is the worst when I don’t eat a lot of calories. I think a healthy person would not have any symptoms eating as much calories as I eat on these “low- calorie” days. I even get very bloated from the hunger.
EnikoF
in
IBS Network
2 months ago
Hearing aids and work
Hi, I started using hearing aids earlier in the year (moderate to severe loss, with profound at the highest frequencies). I’m only in my mid 50s and have close to 10 years working left. As with a lot of office workers I’m now spending an awful lot of time on MS teams. I’m really struggling with headphones
Hi, I started using hearing aids earlier in the year (moderate to severe loss, with profound at the highest frequencies). I’m only in my mid 50s and have close to 10 years working left. As with a lot of office workers I’m now spending an awful lot of time on MS teams. I’m really struggling with headphones
GillyA
in
Tinnitus UK
2 months ago
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DVT with intravenous AB
On Friday, I had a PICC line inserted into my right arm to administer Ceftazidime ABs every 24 hours by Hospital at Home nurses. My hand hurt from the moment the line was inserted and by Tuesday, I was experiencing numbness and pins and needles. Long story short, I had an ultrasound and a four inch
On Friday, I had a PICC line inserted into my right arm to administer Ceftazidime ABs every 24 hours by Hospital at Home nurses. My hand hurt from the moment the line was inserted and by Tuesday, I was experiencing numbness and pins and needles. Long story short, I had an ultrasound and a four inch
Poirette
in
Lung Conditions Community Forum
2 months ago
Normal pressure glaucoma -having a rant
I’ve just recently been diagnosed with normal pressure glaucoma. I’ve always been very short sighted so Ive always had regular eye checks from a contact lens optician and a different specs optician. I go to the same place every year. About 18months ago my contact lens optician said that the thinning
I’ve just recently been diagnosed with normal pressure glaucoma. I’ve always been very short sighted so Ive always had regular eye checks from a contact lens optician and a different specs optician. I go to the same place every year. About 18months ago my contact lens optician said that the thinning
WaitandSee
in
Glaucoma UK
2 months ago
Photosensitivity, eye pain and headache.
I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the forehead) when outside. The headache goes upon going into deep shade or into the house. I do however, find myself squinting even in the home. I do
I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the forehead) when outside. The headache goes upon going into deep shade or into the house. I do however, find myself squinting even in the home. I do
RosieA
in
LUPUS UK
2 months ago
Sonitus soundbite
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
Hi all, Has anyone had any experience of using the Soundbite device to address hearing loss in one ear after acoustic neuroma surgery? Just looking at options as I'm struggling a bit, so it would be good to hear of others experience. Here's the website: https://www.sonitusmedical.com/the-soundbite-hearing-system-in-detail
domforr
in
Acoustic Neuroma Support
2 months ago
Anyone has treatment addressing Genomic ATM Mutations?
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
I have a tier 1 genomic mutation ATM FRAMESHIFT MUTATION Anyone try Provenge? I am trying to found if I should do the drug of the moment suggested to me Keytruda by MSK ARK Inhibitors A Vaccine maybe? I’m in chemotherapy for Liver Mets see bio MSK wants to add Keytruda He said all
Shorehousejam
in
Advanced Prostate Cancer
2 months ago
tinnitus so loud I can’t hear in my right ear
I’m currently experiencing a difficult time owing to a family bereavement . My tinnitus has been getting worse over last few days and today my hearing is almost completely gone in my right ear . I have had an mri with clear results . Is there anything I can do to try to help calm it down ? I’m assuming
I’m currently experiencing a difficult time owing to a family bereavement . My tinnitus has been getting worse over last few days and today my hearing is almost completely gone in my right ear . I have had an mri with clear results . Is there anything I can do to try to help calm it down ? I’m assuming
Jannypetlump
in
Tinnitus UK
2 months ago
Anti-coag query please
Hi. I wondered if anyone could give me someone with more knowledge than me about anti-coagulation could give me some perspective please. Newly diagnosed with paroxysmal AF. Have been max 5 eps a year all resolving with max several hours. My Chads vascs (spelling?!) score is 2 so cardiologist has prescribed
Hi. I wondered if anyone could give me someone with more knowledge than me about anti-coagulation could give me some perspective please. Newly diagnosed with paroxysmal AF. Have been max 5 eps a year all resolving with max several hours. My Chads vascs (spelling?!) score is 2 so cardiologist has prescribed
Joeyy06
in
Atrial Fibrillation Support
2 months ago
Nafarelin/Synarel down reg - when did you get period?
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Prettypenny1
in
Fertility Network UK
2 months ago
Eye surgery
my doctor told me he wants to do surgery on my eye to straighten out a crease on the retina membrane. At the same time he said he will do a procedure that might eliminate the need for the injections I’ve been having for AMD. is anyone familiar with this?
my doctor told me he wants to do surgery on my eye to straighten out a crease on the retina membrane. At the same time he said he will do a procedure that might eliminate the need for the injections I’ve been having for AMD. is anyone familiar with this?
Blindbasset
in
Macular Society
2 months ago
Gingko Biloba - Supplement Advice
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
Hello everyone, I'm reaching out for advice on using Ginkgo Biloba to combat brain fog. My previous experience with the Amitamin Ginkgo complex yielded promising results in boosting mental clarity. However, I've noticed it contains iodine (150ug), which I'd rather steer clear of. With that in mind
BookLover2020
in
Thyroid UK
2 months ago
Posterior vitreous detachment
I had an unexpected issue in the last few days which started with large black flashes then the following day black ‘squiggles’ - went to Eye AandE and they said nothing to do with my normal tension glaucoma and I will have to live with this annoying condition which is very distracting. Has anyone else
I had an unexpected issue in the last few days which started with large black flashes then the following day black ‘squiggles’ - went to Eye AandE and they said nothing to do with my normal tension glaucoma and I will have to live with this annoying condition which is very distracting. Has anyone else
Gillian36
in
Glaucoma UK
2 months ago
Coffee - links to autoimmune?
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
Dear PA members - there seems to be many articles about negative and positive impacts of coffee/caffeine on autoimmune diseases. Does anyone know /researched if coffee has a negative or positive impact on AG PA? Its not clear. Many thanks
PAapr22
in
Pernicious Anaemia Society
2 months ago
First appointment with nhs Rheumy
Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware that I had seen one, I had already had my bloods done prior to the appointment. He said my RF was 170 which is high, he gave me two booklets
Hi, I had my first nhs appointment with the Rheumy who is based at the same health centre as the one I have seen privately. He did say to me that he was aware that I had seen one, I had already had my bloods done prior to the appointment. He said my RF was 170 which is high, he gave me two booklets
Wonderfullifeandmore
in
PMRGCAuk
2 months ago
arthritis drug and tinnitus
hello….i have rheumatoid arthritis, and i have been recommended to take a disease modifying drug to slow the disease progression. My issue is that i have constant tinnitus in both ears, and my rheumatolgy nurse has toldme that tinnitus is a side effect of ‘all commonly diagnosed’ disease modifying drugs
hello….i have rheumatoid arthritis, and i have been recommended to take a disease modifying drug to slow the disease progression. My issue is that i have constant tinnitus in both ears, and my rheumatolgy nurse has toldme that tinnitus is a side effect of ‘all commonly diagnosed’ disease modifying drugs
Amanda150
in
Tinnitus UK
2 months ago
Chemo Side Effects
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
On lupron since 2011, recurrance, SPLASH TRIAL, Provenge NOv 2023. Strarted on Taxatere (doxcetel) in March. My MO put me on an 18 infusion schedule (I believe 1/2 normal dose) because of my age, 84. I get infused ever week for 3 weeks, then 1 week off and continue for 28 infusions. I have had 6 infusions
Joeym1040
in
Advanced Prostate Cancer
2 months ago
Retinal Vein Occlusion Treatments?
Hi. I am looking for people who have or have had RVO (retinal vein occlusion) and have had Ozurdex injections to treat this issue. I'm working with a pharma client on an educational video for their website and I need to connect with people with RVO who would like to share their experience. I can provide
Hi. I am looking for people who have or have had RVO (retinal vein occlusion) and have had Ozurdex injections to treat this issue. I'm working with a pharma client on an educational video for their website and I need to connect with people with RVO who would like to share their experience. I can provide
BluePE
in
Glaucoma UK
2 months ago
Wenckebach phenomenon
I have had two heart surgeries in the past and was getting skipped heart beats for a while. After my 24 hour ECG they found something called wenckebach phenomenon. Anyone have any idea what this is and is it normal for someone with a heart condition
I have had two heart surgeries in the past and was getting skipped heart beats for a while. After my 24 hour ECG they found something called wenckebach phenomenon. Anyone have any idea what this is and is it normal for someone with a heart condition
Spammy123
in
Heart Rhythm Disorders Support
2 months ago
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