Experiences with

Nystagmus

I have SCA 6 and nystagmus as one of my symptoms. I’m increasingly having difficulties with this when walking as it exacerbates the poor balance problem. I’m currently taking Gabapentin and have been doing so for a number of years.

Does anyone else have problems with nystagmus? Nystagmus has been part of my MS since the time of diagnosis (1980) but it calmed down for many years. Sometimes it would be mild enough--I'd be going up and down the aisles of a supermarket and suddenly I couldn't read the labels on food packages.

I was born 3months premature Visually impaired in one eye Got nystagmus Plus autism I think my hearing is better Them ppl with normal sight

Patients with neurological symptoms or signs such as new pupil abnormalities, eye pain, cranial nerve palsies, nystagmus, visual field defects, tinnitus, paraesthesia or neuralgia should be screened for B12 deficiency."

my condition gets worse every week when I get out of bed , stand up after sitting down my problem starts, with constant vertigo my vision is terrible I cannot see clearly and if I move my head I nearly fall down, cannot drive or go anywhere on my own for fear of falling. My opthamologist said

Moved me eyes from one side to the other, and occasionally to the centre, compulsively for 20-30 seconds, and now terrified that I have caused myself permanent Nystagmus.

I got the stomach flu the week of Christmas 2023..I had to pull over in the middle of a busy road to vomit..the flu lead to vertigo, double vision annd nystagmus in my right eye.

I no longer have pins/needles or nystagmus. However, I have begun to have new symptoms since August/September 2024. Since August/September 2024, I have developed bilateral flashes and floaters. I have never had this issue before.

I’m wondering if this is signs of a nystagmus and wanted anyone who had any experience or knowledge to help me understand if nystagmus is a gradual appearance of eye movement changes and whether they are constant or can be one offs like I’ve faced? Any help appreciated

Had severe nausea, vomiting for hours ,nystagmus and vertigo. Stop dose by decreasing time in mouth to 10 minutes which is working well- no RLSno PLMD, and for some reason, my hot flashes have stopped since taking it. Best guess is I’m around 1mg. I’ve been completely off Prami for 4 weeks now.

I saw a different PT that specialized in vestibular issues and she put the goggles on me and said she could barely see any nystagmus. Definitely not what she’s used to seeing with patients with vestibular migraines.

In 2020 he was diagnosed with disorders of the ocular motor system (double vision, nystagmus...) and in 2021 with gait ataxia. Last year, slurred speech was added to the list. The symptoms worsen in "boosts", especially in the winter months.

A Nystagmus has also raised its head which increases the dizziness and nausea. CT still nil acute. Consultant I spoke to says he is going to speak to my neurologist for review as he is concerned about the latest issues. Very frustrating but I’m glad I stayed on here!

My husband was damaged mainly on the left frontal lobe which has resulted in many long last disabilities, he has cognitive impairment, aphasia, communication and processing disorder, deaf in one ear, nystagmus and has been registered as partially sighted.

Had an episode of Nystagmus (dizziness) in Feb but it went away. Also seeing an eye doc to make sure eyes not related to ear ringing. Still on W&W 2.5 years. WBC is at 20. Primary care doc wants me to take a 6 day course of prednisone.

Quick background- diagnosed with well-developed Glaucoma a few days after birth in left eye (plus cataract, nystagmus, squint and a fixed iris) Lost sight completely by age 13/14. Glaucoma was identified in my right eye at 16 years old.

Also does everyone with cerebella ataxia have nystagmus of any type. Thank you

I have been experiencing eye pain and twitching, nystagmus in a morning (only started in July) that literally lasts a couple of seconds but can even feel them move with my eyes shut. Also been getting mild headaches but not always I’m not sure what this is. Also been dizzy, like I’m on a boat.

The fine motor system is broken down and triggers nystagmus (eye tremor). It can also cause loss of binocularity and eye dryness causing redness. I could not find where it caused yellow eyes. This is more jaundice possibly from alcohol or liver problems.

I have been told to do Brandt Daroff exercises for a couple of weeks, which should sort out the problem as Dr thinks it is BPPV, albeit no sign of nystagmus . I am finding that the exercises make me feel even more unwell and really struggling with them.