Search
Search
About
Log in
Join
Experiences with
Nurtec ODT
Posts
Communities
13,763 public posts
Filter results
Firmagon Injection gone bad!
Husband got his first hormone injection yesterday to begin treatment which will include 45 Radiation Therapy sessions. He got the first shot, everything seemed ok, got the second shot and BP dropped like a rock. Could not wake him up. They called 911 took him to the hospital. He is home and doing OK
Husband got his first hormone injection yesterday to begin treatment which will include 45 Radiation Therapy sessions. He got the first shot, everything seemed ok, got the second shot and BP dropped like a rock. Could not wake him up. They called 911 took him to the hospital. He is home and doing OK
USAFproudmom
in
Prostate Cancer Network
1 year ago
A New Direction
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
dmt1121
in
Advanced Prostate Cancer
1 year ago
Back on ADT
Restarted ADT 3/15/23 with my Lupron shot followed quickly with Xtandi 160mg daily. My PSA peaked to 3.36 on 3/7/23 and then 4/3/23 1.65 5/1/23 .34 So hoping the trend continues downward. Not sure if a slow or quick drop is better on recurrence. My RO said, when asked, "lower is better". Its getting
Restarted ADT 3/15/23 with my Lupron shot followed quickly with Xtandi 160mg daily. My PSA peaked to 3.36 on 3/7/23 and then 4/3/23 1.65 5/1/23 .34 So hoping the trend continues downward. Not sure if a slow or quick drop is better on recurrence. My RO said, when asked, "lower is better". Its getting
treedown
in
Advanced Prostate Cancer
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
PCa Recurrence Treatment Advice
Diagnosed w/PCa--Gleason 4+5 in R lobe, 1st/12 cores & 3+4 in L lobe 2nd/12 cores, biopsy & pathology by Johnathan Epstein, June 2018 (age 62). Treatment: EBRT 81 Gy over 45 fractions (completed Jan 2019) + adjuvant Firmagon for 8 mos (completed Mar 2019). PSA reached undetectable nadir in Nov 2019
Diagnosed w/PCa--Gleason 4+5 in R lobe, 1st/12 cores & 3+4 in L lobe 2nd/12 cores, biopsy & pathology by Johnathan Epstein, June 2018 (age 62). Treatment: EBRT 81 Gy over 45 fractions (completed Jan 2019) + adjuvant Firmagon for 8 mos (completed Mar 2019). PSA reached undetectable nadir in Nov 2019
ac61418
in
Advanced Prostate Cancer
1 year ago
I just began the Eclipse Clinical Trial and will be posting my experiences here. Please share yours too.
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
I live in Southern California, but applied for acceptance into the Eclipse Trial in Miami Florida. The criteria was that I had to be castrate resistant and failed at first generation ADT, as well as second generation ADT. Plus that I had to have a minimum PSA of 2.0 with two consecutive rises one week
SViking
in
Advanced Prostate Cancer
1 year ago
Bladder retaining more once again after radiation..
Hi All, Thinking of you all always Curious about bladder retention after radiation. So prior to hormone treatment my dad couldn't pee.. literally just trickle.. extreme pain and discomfort but he battled out half a year like this sleeping maybe an 1-2 hours total a night. Hes a fighter.. he just did
Hi All, Thinking of you all always Curious about bladder retention after radiation. So prior to hormone treatment my dad couldn't pee.. literally just trickle.. extreme pain and discomfort but he battled out half a year like this sleeping maybe an 1-2 hours total a night. Hes a fighter.. he just did
FormulaRob
in
Advanced Prostate Cancer
1 year ago
What's normal with private consultations and NHS records?
My question is:- If one sees a consultant doctor privately, who then prescribes medication and informs the patient's GP of what he has prescribed, is it usual for that information to be added to the patient's medical record? I have been consulting a private endocrinologist who has been helping me to
My question is:- If one sees a consultant doctor privately, who then prescribes medication and informs the patient's GP of what he has prescribed, is it usual for that information to be added to the patient's medical record? I have been consulting a private endocrinologist who has been helping me to
Puddleperson
in
Thyroid UK
1 year ago
Final STAMPEDE results for Abi with/out Enza when starting ADT.
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
pca2004
in
Fight Prostate Cancer
1 year ago
Rising PSA...again..
In December 2017 I was diagnosed with prostate cancer after a biopsy. I ignored the symptoms for many years and it cost me. In February 2018 I had surgery to remove my prostate hoping that would cure me, PSA never went to 0. By December 2019 I was alarmed enough to start ADT with Elegard and in February
In December 2017 I was diagnosed with prostate cancer after a biopsy. I ignored the symptoms for many years and it cost me. In February 2018 I had surgery to remove my prostate hoping that would cure me, PSA never went to 0. By December 2019 I was alarmed enough to start ADT with Elegard and in February
Skidooerr
in
Advanced Prostate Cancer
1 year ago
Osteoporosis and HRT
I was diagnosed 3 years ago with osteopenia which has now progressed to osteoporosis, though frankly my recent DEXA report is so unclear that I'm waiting for word from my doctor to interpret it. My question is about hormone replacement and osteoporosis. I've been listening to podcasts with Dr. Felice
I was diagnosed 3 years ago with osteopenia which has now progressed to osteoporosis, though frankly my recent DEXA report is so unclear that I'm waiting for word from my doctor to interpret it. My question is about hormone replacement and osteoporosis. I've been listening to podcasts with Dr. Felice
mskathyny
in
Osteoporosis Support
1 year ago
Test Results
Hi Everyone I would be grateful for any comments about my recent test results. I’m confused. Briefly I have been hypothyroid for 17 years, I was on Levo but for the last 10 years I have been taking NDT which has been great. I’ve received a text saying I must see the doctor, they say I’m over
Hi Everyone I would be grateful for any comments about my recent test results. I’m confused. Briefly I have been hypothyroid for 17 years, I was on Levo but for the last 10 years I have been taking NDT which has been great. I’ve received a text saying I must see the doctor, they say I’m over
moleland
in
Thyroid UK
1 year ago
When to start ADT, Salvage radiation or both for BCR after PSMA Petscan shows nothing?
Post RRP in 2009 and now having BCR with PSA rising to .20 over the last couple years, I was offered and opted for a PSMA Petscan to see if there was an identifiable spot of recurrence that could be treated early. The PSMA scan came back with no indication of the PSA source, so now I am wondering about
Post RRP in 2009 and now having BCR with PSA rising to .20 over the last couple years, I was offered and opted for a PSMA Petscan to see if there was an identifiable spot of recurrence that could be treated early. The PSMA scan came back with no indication of the PSA source, so now I am wondering about
hogwell
in
Advanced Prostate Cancer
1 year ago
Testosterone & RLS
I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later. It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012
I was aware of mild RLS from about age 10 nearly 62 years ago. Occasionally, I could control it by autosuggestion. Dramatically, this RLS stopped when I had reached puberty, 3 years later. It emerged 62 years later, immediately radiotherapy and hormone therapy for prostrate cancer commenced in 2012
Elouis
in
Restless Legs Syndrome
1 year ago
e2 patch
well I finally got to meet with y Oncologist last week regarding use of estradiol (e2) patch to battle against osteoporosis / osteopenia because the 90 day Xgeva dosing (down from every 28 daysx 2 years) doesn't seem to be doing much. He claims the possible cardiovascular side effects from the PATCH
well I finally got to meet with y Oncologist last week regarding use of estradiol (e2) patch to battle against osteoporosis / osteopenia because the 90 day Xgeva dosing (down from every 28 daysx 2 years) doesn't seem to be doing much. He claims the possible cardiovascular side effects from the PATCH
Hidden
in
Advanced Prostate Cancer
1 year ago
Prolea advice...pros cons
MO wants to start prolea injections ...for osteopenia, and repair met damage to spine....insurance has aproved....but i havent yet, the side effect esp jaw problems...is problematic to me as it seems the adt/ erleada has allready wreaked havoc on my smile......thoughts , ty in advance b.w
MO wants to start prolea injections ...for osteopenia, and repair met damage to spine....insurance has aproved....but i havent yet, the side effect esp jaw problems...is problematic to me as it seems the adt/ erleada has allready wreaked havoc on my smile......thoughts , ty in advance b.w
Boywonder56
in
Advanced Prostate Cancer
1 year ago
Study: Addition of Short-term ADT Fails to Improve Survival over Radiotherapy Alone for Intermediate-Risk PCa
This is a very interesting large-scale study but it is only one study. Here's the Scoop: "The addition of short-term androgen deprivation (STAD) to dose-escalated radiotherapy did not improve overall survival (OS) for patients with intermediate-risk prostate cancer, although the regimen did produce
This is a very interesting large-scale study but it is only one study. Here's the Scoop: "The addition of short-term androgen deprivation (STAD) to dose-escalated radiotherapy did not improve overall survival (OS) for patients with intermediate-risk prostate cancer, although the regimen did produce
Revcat
in
Advanced Prostate Cancer
1 year ago
Hormonal therapy and Meningioma brain tomors
Back in 2016 I was diagnosed with stage 4A (regionally metastatic) Ductal Prostate Cancer. In addition to surgery and radiation I was on Lupron and Zytiga with prednisone for a couple of years, ending in late 2018. Luckily for me it looks like I was able to make it to remission. Unfortunately in 2019
Back in 2016 I was diagnosed with stage 4A (regionally metastatic) Ductal Prostate Cancer. In addition to surgery and radiation I was on Lupron and Zytiga with prednisone for a couple of years, ending in late 2018. Luckily for me it looks like I was able to make it to remission. Unfortunately in 2019
Dr_WHO
in
Advanced Prostate Cancer
1 year ago
Enzalutamide plus leuprolide reduces risk of metastasis in nonmetastatic HSPC men-from Urology Times, 29 Apr 2023
Findings from the phase 3 EMBARK trial showed that enzalutamide (Xtandi) plus leuprolide reduced the risk of metastasis or death by nearly 60% vs placebo plus leuprolide in patients with nonmetastatic hormone-sensitive prostate cancer (nmHSPC) with high-risk biochemical recurrence (BCR).1,2 "The
Findings from the phase 3 EMBARK trial showed that enzalutamide (Xtandi) plus leuprolide reduced the risk of metastasis or death by nearly 60% vs placebo plus leuprolide in patients with nonmetastatic hormone-sensitive prostate cancer (nmHSPC) with high-risk biochemical recurrence (BCR).1,2 "The
Balsam01
in
Advanced Prostate Cancer
1 year ago
EMBARK trial
Watching the results of the EMBARK trial with great interest as they had a ‘Lutamide monotheraoy’ arm that has performed very well and now questions are being asked about needing ADT for high risk of BCR in the hormone sensitive. Not matching my position of course ( there is no population that does)
Watching the results of the EMBARK trial with great interest as they had a ‘Lutamide monotheraoy’ arm that has performed very well and now questions are being asked about needing ADT for high risk of BCR in the hormone sensitive. Not matching my position of course ( there is no population that does)
Brysonal
in
Fight Prostate Cancer
1 year ago
Orchidectomy?
I have no plans to have an orchidectomy but I’m curious why some men do get them. I get that it allows one to avoid needing the periodic injections. But as I understand it one still has to take something to deal with the testosterone that is still produced by the adrenal glands even after the orchidectomy
I have no plans to have an orchidectomy but I’m curious why some men do get them. I get that it allows one to avoid needing the periodic injections. But as I understand it one still has to take something to deal with the testosterone that is still produced by the adrenal glands even after the orchidectomy
fireandice123
in
Advanced Prostate Cancer
1 year ago
1
...
91
92
93
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
7989 results
Advanced Prostate Cancer
4167 results
Prostate Cancer Network
453 results
View top 10 communities
Sort by
Most Relevant
Newest