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Bladder Cancer with CLL
CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
CLL since 2012 ( Ibrutinib 5 years , Gayzva 6 months , Acalabrutinib 2 years ) now bladder cancer , high grade , no wall penetration .... advised to take BCG for 6 weeks every 3 months for a year ... anyone shed light on what I can physically expect from the BCG ?
fish61
in
CLL Support
4 years ago
PSA
Quick question Is <0.02 undetectable? After radiation to the pelvic and 4 lupron injections my psa dropped from 1.47 to the above. My T must not be at the castration level cause I still peek at the ladies.
Quick question Is <0.02 undetectable? After radiation to the pelvic and 4 lupron injections my psa dropped from 1.47 to the above. My T must not be at the castration level cause I still peek at the ladies.
Howard53545
in
Advanced Prostate Cancer
4 years ago
Eligard with Zytiga/prednisone NOT working...
So...I was on lupron injection program and it worked for a year keeping my psa at bay below 4. Recently my psa doubled and I was switched over to eligard. Recently added Zytiga and prednisone which is NOT Working. Psa up to 20. I’m told I’m going to get switched to another drug and chemo.... Mets are
So...I was on lupron injection program and it worked for a year keeping my psa at bay below 4. Recently my psa doubled and I was switched over to eligard. Recently added Zytiga and prednisone which is NOT Working. Psa up to 20. I’m told I’m going to get switched to another drug and chemo.... Mets are
Acirol
in
Advanced Prostate Cancer
4 years ago
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Starting Xtandi
The oncologist has just added Xtandi, if we can get help paying for it, to my husband getting Lupron injections! His cancer had mestazied to his shoulder for which he had radiation. My husbands PSA is 0.70 right now. His cancer is aggressive Gleason 9 stage 4. He tolerates the Lupron okay with some side
The oncologist has just added Xtandi, if we can get help paying for it, to my husband getting Lupron injections! His cancer had mestazied to his shoulder for which he had radiation. My husbands PSA is 0.70 right now. His cancer is aggressive Gleason 9 stage 4. He tolerates the Lupron okay with some side
Juliejet
in
Advanced Prostate Cancer
4 years ago
Off of xtandi and PSA is low
Hello I think this is good news my dad was on xtandi for 3 month brought his PSA low . 66 but it had a lot of debilitating side effect so we stopped and didn’t try anything more. Only Lupron every three months and xgeva. Well 5 months off of Xtandi his PSA still remains low which I’m happy but the doctor
Hello I think this is good news my dad was on xtandi for 3 month brought his PSA low . 66 but it had a lot of debilitating side effect so we stopped and didn’t try anything more. Only Lupron every three months and xgeva. Well 5 months off of Xtandi his PSA still remains low which I’m happy but the doctor
Olivia007
in
Advanced Prostate Cancer
4 years ago
Prostate Cancer with Covid
In Nov 2019 [at age 79] I was diagnosed with prostate cancer with a PSA of 96.2. The subsequent biopsy showed a Gleason 5+4 adenocarcinoma in 12 of 12 cores; clinical stage T3a, N0, M0. A bone scan and CT scan were negative for metastatic disease. But extraprostatic extension at the right apex with involvement
In Nov 2019 [at age 79] I was diagnosed with prostate cancer with a PSA of 96.2. The subsequent biopsy showed a Gleason 5+4 adenocarcinoma in 12 of 12 cores; clinical stage T3a, N0, M0. A bone scan and CT scan were negative for metastatic disease. But extraprostatic extension at the right apex with involvement
ajb999
in
Prostate Cancer Network
4 years ago
PSA up to 112, Xofigo treatment now
Hi folks, I was diagnosed in May of 2016 with Gleason 9/10 and Mets in 3 bones. I have had Lupron, Doxcetaxal, PROSTVAC, Xtandi, Zytiga, Immuneotherapy trial, Cabazitaxel, and now Awaiting my 3rd dose of Xofigo. My PSA has rose steadily since the Xtandi failed in October of 2019, now up to 112 after
Hi folks, I was diagnosed in May of 2016 with Gleason 9/10 and Mets in 3 bones. I have had Lupron, Doxcetaxal, PROSTVAC, Xtandi, Zytiga, Immuneotherapy trial, Cabazitaxel, and now Awaiting my 3rd dose of Xofigo. My PSA has rose steadily since the Xtandi failed in October of 2019, now up to 112 after
tomtom9148
in
Advanced Prostate Cancer
4 years ago
Happy Holidays
Could anyone tell me why some people do better than others? Are there many strains out there of PCa? I haven't had a PSA in like 3 months but I've had a .04 last time. I was diagnosed in mid 2012 and it's been lupron and Xtandi. I'm at NIH in a clinical trial but others I've known there have died. When
Could anyone tell me why some people do better than others? Are there many strains out there of PCa? I haven't had a PSA in like 3 months but I've had a .04 last time. I was diagnosed in mid 2012 and it's been lupron and Xtandi. I'm at NIH in a clinical trial but others I've known there have died. When
Kevinski65
in
Advanced Prostate Cancer
4 years ago
Developments since July 2020
Hi, Sorry for being away for some time. Actually, I wanted some time to elapse so that one has adequate subject matter. Since my last post in July 2020. # PSA Journey >>Jul -258, Aug 8.7, Sep 2.8 , Oct .88,Nov .14. # BRACA 1 &2 Negative. # Current Medication>>>>>Degarelix , Densumab
Hi, Sorry for being away for some time. Actually, I wanted some time to elapse so that one has adequate subject matter. Since my last post in July 2020. # PSA Journey >>Jul -258, Aug 8.7, Sep 2.8 , Oct .88,Nov .14. # BRACA 1 &2 Negative. # Current Medication>>>>>Degarelix , Densumab
doklam2017
in
Advanced Prostate Cancer
4 years ago
My first met to the bone- now what?
Diagnosed almost 2 years ago with Gleason 8s and 9s on 12 of 15 samples, and been on Lupron and Zytiga +pred ever since. Scans showed extensive lymph node involvement but nowhere else. Since treatment, always had negligible PSA including 3 weeks ago. Yet recent PSMA scan from UCLA showed a met to lumber
Diagnosed almost 2 years ago with Gleason 8s and 9s on 12 of 15 samples, and been on Lupron and Zytiga +pred ever since. Scans showed extensive lymph node involvement but nowhere else. Since treatment, always had negligible PSA including 3 weeks ago. Yet recent PSMA scan from UCLA showed a met to lumber
KJMinPhx
in
Advanced Prostate Cancer
4 years ago
Long Strange Journey
I was diagnosed with Prostate cancer in July 2020. PSA of 35 and Gleason score of 8. Second opinion from Johns Hopkins indicated a g score of 6. My local utility's pathologist agreed after reexamination. How can my PS A be a 35 and my Gleason be 6? Just finished 5 1/2 weeks of external radiation and
I was diagnosed with Prostate cancer in July 2020. PSA of 35 and Gleason score of 8. Second opinion from Johns Hopkins indicated a g score of 6. My local utility's pathologist agreed after reexamination. How can my PS A be a 35 and my Gleason be 6? Just finished 5 1/2 weeks of external radiation and
Guitarwolf
in
Advanced Prostate Cancer
4 years ago
Next step
G9. 3b. RP. PSA going into SRT .039, up from .023. My 7 months of ADT expired the 23rd of last month. PSA and T are still undetectable. Still feel all the bad side effects of the lupron. Doc says no more Lupron , just wait and see. My PSA stayed at .023 for a year after RP until I went on vacation
G9. 3b. RP. PSA going into SRT .039, up from .023. My 7 months of ADT expired the 23rd of last month. PSA and T are still undetectable. Still feel all the bad side effects of the lupron. Doc says no more Lupron , just wait and see. My PSA stayed at .023 for a year after RP until I went on vacation
ck722
in
Advanced Prostate Cancer
4 years ago
Prostate removal?
Good morning all. My question is....why would my urologist talk me out of having my prostate removed after I told him that was my thought after I found out that I have prostate cancer. My cancer didn’t spread , so then we decided to have 45 days of radiation treatments and 2 years of Lupron ( 1 shot
Good morning all. My question is....why would my urologist talk me out of having my prostate removed after I told him that was my thought after I found out that I have prostate cancer. My cancer didn’t spread , so then we decided to have 45 days of radiation treatments and 2 years of Lupron ( 1 shot
Suds4me
in
Prostate Cancer Network
4 years ago
Use of Nitric Oxide booster For Covid treatment found to Reverse 2 month doubling time in My Brother
My brother 27 years after diagnosis of PCa got off of Xtandi and Lupron Nov 2019 with it still working ( after 4 yrs On) because at 85 yrs it was making walking very difficult. I suggested he try "Nitric Oxide Booster (Snap Inc.)" to fight Covid and with hope it would make his leg muscles stronger
My brother 27 years after diagnosis of PCa got off of Xtandi and Lupron Nov 2019 with it still working ( after 4 yrs On) because at 85 yrs it was making walking very difficult. I suggested he try "Nitric Oxide Booster (Snap Inc.)" to fight Covid and with hope it would make his leg muscles stronger
RVALuna
in
Advanced Prostate Cancer
4 years ago
Zytiga
Is it normal for PSA to go from 2.38 to .50 in two Months since on Zytiga and lupron or should it be undectable
Is it normal for PSA to go from 2.38 to .50 in two Months since on Zytiga and lupron or should it be undectable
Chris52981
in
Advanced Prostate Cancer
4 years ago
When does the pain kick in?
Hey all. Hope everyone is staying safe and as healthy as we get these days. Had some good news at my 3 month medonc appt this week. My PSA has been around 10 while on Lupron and Zytiga. Latest check puts me at 0.2. That’s zero point freakin’ two! Wooot?, eh?! Obviously this is great news in this moment
Hey all. Hope everyone is staying safe and as healthy as we get these days. Had some good news at my 3 month medonc appt this week. My PSA has been around 10 while on Lupron and Zytiga. Latest check puts me at 0.2. That’s zero point freakin’ two! Wooot?, eh?! Obviously this is great news in this moment
LessPaul
in
Advanced Prostate Cancer
4 years ago
Mets shrinking
Went in for yearly bone scan. Mets on tail bone was not detectable and those on my spine have noticeably shrunk. I am on Lupron, Zytiga and workout 5 days a week. I have the BRCA2 disorder. While I will never be cured I find this very encouraging. My question is has anyone else had this kind of success
Went in for yearly bone scan. Mets on tail bone was not detectable and those on my spine have noticeably shrunk. I am on Lupron, Zytiga and workout 5 days a week. I have the BRCA2 disorder. While I will never be cured I find this very encouraging. My question is has anyone else had this kind of success
mrscruffy
in
Advanced Prostate Cancer
4 years ago
The difficult question most all of us will face (Part II)
Three months since I wrote Part I here: https://healthunlocked.com/advanced-prostate-cancer/posts/144050608/the-difficult-question-most-all-of-us-will-face. Let's Update. :) Shortly after the meeting with my new ONC I had a lesion on my C7 radiated. 13 weeks later I still have a cough. For 7 weeks
Three months since I wrote Part I here: https://healthunlocked.com/advanced-prostate-cancer/posts/144050608/the-difficult-question-most-all-of-us-will-face. Let's Update. :) Shortly after the meeting with my new ONC I had a lesion on my C7 radiated. 13 weeks later I still have a cough. For 7 weeks
dpowellnt
in
Advanced Prostate Cancer
4 years ago
$790 For a 5-minute Video call? And Firmagon shortage?
My RO just sent his bill for a 5 minute video conference call he had with me to tell me something that could easily have been put in an email! $790 !!! So why are healthcare costs out of sight in the US??? Oh, and I just got a call telling me that Firmagon is in short supply and they have to delay
My RO just sent his bill for a 5 minute video conference call he had with me to tell me something that could easily have been put in an email! $790 !!! So why are healthcare costs out of sight in the US??? Oh, and I just got a call telling me that Firmagon is in short supply and they have to delay
JPnSD
in
Advanced Prostate Cancer
4 years ago
How long do flu symptoms last from Lupron?
It's been 24 hours since I got my first shot and over the past 3 hours I'm getting flu like symptoms, like fever, aches, and it feels like I've ran a 5K too. I know it's my body adjusting to this, I also know this isn't a one size fits all thing either. This sucks really bad but I've had worse and
It's been 24 hours since I got my first shot and over the past 3 hours I'm getting flu like symptoms, like fever, aches, and it feels like I've ran a 5K too. I know it's my body adjusting to this, I also know this isn't a one size fits all thing either. This sucks really bad but I've had worse and
FinalBossMatt
in
Advanced Prostate Cancer
4 years ago
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