I've been on ADT since Feb, 2023 maintaining everything ok, play Water Polo 4x a week for 2 hours - master water polo team and lift weights - but in the last few weeks the hot flashes are crazy strong. One minute I'm doing great and then 30 seconds later sweating bullets. I work from home thank god, but are there any remedies that you have tried that stop this from happening. Especially bad at night hot cold, hot cold...
Treatment for a BCR had RP in 2018 GL 3+4
On a more positive note since finishing 39 radiation sessions following the Ssport protocol my PSA is <0.04 basically undetectable. I had the 6 months Lupron shot in Feb 2023 that should wear off starting around Aug 2023
Big test now will the PSA stay down after the Lupron wears off? What has been your experience at this point in TX?
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plato123
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I have a ceiling fan over my bed I leave on high. When I wake to a hot flash I just toss back the covers and let the blowing air evaporate the sweat. You’ll probably get used to it.
I’m on a similar track to you but about 9 months ahead. Hot flashes were terrible after three or four months. I tried acupuncture which didn’t work for me (although I enjoyed lying on a comfortable couch for an hour each week). I then took Cyproterone Acetate for 12 weeks and that really helped. It took my waking up at night from about 7-8 times down to 3-4, which is a big difference. I also think my body has just adapted to the flashes so I don’t notice them as much. I am starting to get more of them again now so will have another bout of Cyproterone when it gets too much. I also work hard in the gym, play golf, swim and walk etc. Incidentally, I visited Arizona in May and can vouch for the fact that they don’t bother you there!
Estradiol patches did the trick for me and have the added benefit of maintaining bone health which is affected by ADT. Originally prescribed by Snuffy Myers, I’ve been using them for about 9 years now. My hot flashes used to be very intense and happened on an hourly basis ( I counted 15 one day). With the patches I rarely get one. The patches are safe to use since they are absorbed through the skin and not through the liver like pills are. Snuffy has 2-3 videos on YouTube about them, you can check them out if interested.
Where do you get these patches from. Are they similar to estrogen patches as when I asked my MO about those he said estrogen can be converted to testosterone so must be careful
Did Myers have any recommendation for or against sulfurophane , that you know of ? Do you take that or any other supplements to keep the cancer in check ?
No not that I know of and no I don’t take it. IMO supplements do nothing to keep cancer in check, nor does diet. But a healthy diet and exercise will help the body to stay strong for the battle ahead.
I'm the same age, active and also started ADT in Feb. Hot flashes in some way are part of the scenery for me. May have tapered off a bit in intensity. Generally not too bad, though sleep disruption the worst. Got a portable air conditioner for the bedroom really helps.
I'm in Dallas and after 18 months of Lupron I stopped. Being undetectable for 17 months I decided to end hot flashes and I started Testosterone. My PSA has not risen much in 14 months. I feel great!
I think we all have different symptoms with our hot flashes mine start with a tingling in my feet then it moves up my legs down in to my groin then into my arm mussels then In get a sweaty fore head and i feel a senses of relief that it is indeed a hot flash and not the other kind of tingling I read so much about spinal compression and all that stuff these hot flashes come every two and a half hours or so lasting my be 4 or 5 minutes when I am at sleep, I then roll over and fall back to sleep ,during the day I lean back and take a break. this all feels like magic to me and that damed PC is going oh shit we can't take much more of this. ... but then I have a very fertile imagination
at the infusion center they roll there eyes and say tingling and I say No its a hot flash !!!!!!!Baby. but to be .fair we are all different and so are all these hot flashes . I would soo like to have uninterrupted nite sleep but then there is all this magic going on. I hope
I tried Oxubutinin for a while and it helped some but was making my vision blurry and started having difficulty peeing. I get hot flashes about every hour. Many make me have a strange anxious nausea feeling at the onset. My feet feel more odd and numbish when they occur. I do have hand held fan I take with me and more than one small one in house near placed I sit. Its odd they trigger the bladder. Strong hot flash always coincides with need to pee. Then I get cold..Oh the fun! Think I will try Estroidal low dose patches. Let us all know what works for you
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