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Update on my father
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Dad was diagnosed in 2016 stage 4, bones and lymphnodes. We dont have a gleason score because his diagnoses was found through a hip xray after a fall and they biopsied his hip. He has had lupron, xgeva, bicalutamide and now he is on Xtandi. Dads last bone scan psa were July 8th. His bone scan showed
Radtech40
in
Advanced Prostate Cancer
6 months ago
Testosterone was nearly back to normal, then dropped
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
I had a year of Lupron and Enzalutamide in 2022. Testosterone slowly came back to a high of about 240 in June and Sept 2023. Normal for me is around 350 - 375. Now this week T is down to 156. Is this sort of fluctuation normal? I had 6 months of ADT in connection with radiation for recurrent PCa
Teddy28
in
Advanced Prostate Cancer
6 months ago
Lupron Injection denied by Medicare Advantage PPO plan
My husband will need Lupron injections monthly x4. Two before starting radiation, and 2 during radiation treatment. The insurance, Medicare Advantage PPO, denied it. Anyone successfully appealed the denial? Any suggestions from the group? I checked and Medicare part D covers Lupron for the treatment
My husband will need Lupron injections monthly x4. Two before starting radiation, and 2 during radiation treatment. The insurance, Medicare Advantage PPO, denied it. Anyone successfully appealed the denial? Any suggestions from the group? I checked and Medicare part D covers Lupron for the treatment
Inquisitive_one
in
Advanced Prostate Cancer
6 months ago
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given a choice about duration of ADT
Tall Allen and others. Clean PSMA, , 3+4, 3+4, and 4+3., biopsy. 77yrs old, hit gym daily but have significant side effects of lupron.. Being treated at Comprensive cancer center. Plan was one year of Lupron. After five SBRT, and nine months on adt, my doc is willing to let me terminate my Lupron
Tall Allen and others. Clean PSMA, , 3+4, 3+4, and 4+3., biopsy. 77yrs old, hit gym daily but have significant side effects of lupron.. Being treated at Comprensive cancer center. Plan was one year of Lupron. After five SBRT, and nine months on adt, my doc is willing to let me terminate my Lupron
Photographerhere
in
Prostate Cancer Network
6 months ago
Working with Stage IV
First time posting (be gentle) Anybody else still at work with the disease. I’ve contributed to a pension for 24 years, and with being diagnosed, am I being foolish staying at work. Note-minimum retirement is 58 at my work. Also, did read this right, ADT only gives about 10 mos. to 1 year increase
First time posting (be gentle) Anybody else still at work with the disease. I’ve contributed to a pension for 24 years, and with being diagnosed, am I being foolish staying at work. Note-minimum retirement is 58 at my work. Also, did read this right, ADT only gives about 10 mos. to 1 year increase
BigJ32
in
Advanced Prostate Cancer
6 months ago
What does this mean?
In preparation for my six month follow up to radiation and two months since the end of 6 months of Lupron on Thursday I got my blood work results via the portal. For the first time ever I went to the portal for the lab and pulled up my results. Maybe I should not have done that. So I would like your
In preparation for my six month follow up to radiation and two months since the end of 6 months of Lupron on Thursday I got my blood work results via the portal. For the first time ever I went to the portal for the lab and pulled up my results. Maybe I should not have done that. So I would like your
Mgtd
in
Advanced Prostate Cancer
6 months ago
Becoming mCRPC despite falling PSA
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
kennycool
in
Advanced Prostate Cancer
6 months ago
Recovery of Testosterone
We all have heard about how long it takes to recover testosterone after you stop ADT. You probably also heard how age affects recovery time. The older you are the longer it takes and the T may never recover. The type of ADT you take can also affect recovery time - shot versus pill. I am 78 and I have
We all have heard about how long it takes to recover testosterone after you stop ADT. You probably also heard how age affects recovery time. The older you are the longer it takes and the T may never recover. The type of ADT you take can also affect recovery time - shot versus pill. I am 78 and I have
Mgtd
in
Prostate Cancer Network
6 months ago
Sciatica
I went off ADT 9 months ago after 6 months of Elegard depot treatment following prostate radiation. I know that many of the side effects of ADT can persist months and even years after stopping Elegard (Lupron). But I seem to have developed new symptoms (breast sensitivity and sciatica) 6 months after
I went off ADT 9 months ago after 6 months of Elegard depot treatment following prostate radiation. I know that many of the side effects of ADT can persist months and even years after stopping Elegard (Lupron). But I seem to have developed new symptoms (breast sensitivity and sciatica) 6 months after
sciaticaman
in
Advanced Prostate Cancer
6 months ago
Stopping Lupron
Today I’ve had my next medical check. PSA still undetectable after RT IMRT/VMAT to prostate bed and pelvic floor accompanied by 24 months of Lupron. This was my third regimen after DXed in 11/2017, for more details pls refer to my bio. I will now stop Lupron, let’s see what the future will bring.
Today I’ve had my next medical check. PSA still undetectable after RT IMRT/VMAT to prostate bed and pelvic floor accompanied by 24 months of Lupron. This was my third regimen after DXed in 11/2017, for more details pls refer to my bio. I will now stop Lupron, let’s see what the future will bring.
Nusch
in
Advanced Prostate Cancer
6 months ago
Friend in need of help
A very close friend (82 years old) was admitted to the hospital on New Years eve with severe back and Chess pain. After tests, scans, MRI and blood tests he was diagnosed as follow: PSA 3882 up from 7.6 the prior year. stage 4 prostate CANCER (T3/T4) that has metastasized to his spine, lesions
A very close friend (82 years old) was admitted to the hospital on New Years eve with severe back and Chess pain. After tests, scans, MRI and blood tests he was diagnosed as follow: PSA 3882 up from 7.6 the prior year. stage 4 prostate CANCER (T3/T4) that has metastasized to his spine, lesions
old64horn
in
Advanced Prostate Cancer
6 months ago
PC no longer castrate resistant
Hello all, my latest pet/ct scan indicates my PC is no longer castrate resistant as there is new disease growth in my lungs. Largest lesion is 2.5 centimeters. I'm no longer taking xtandi, so it can be "washed out" of my system prior to new treatment, however I'm still getting quarterly lupron shots
Hello all, my latest pet/ct scan indicates my PC is no longer castrate resistant as there is new disease growth in my lungs. Largest lesion is 2.5 centimeters. I'm no longer taking xtandi, so it can be "washed out" of my system prior to new treatment, however I'm still getting quarterly lupron shots
brokenyoyo
in
Advanced Prostate Cancer
6 months ago
MSK Consult Today
Thanks to everyone who has given me excellent advice regarding my husband’s pca recurrence. Today we met with an MSK uro oncologist for a second opinion. He completely agreed and supported the plan of radiating the high pelvic nodes (including the lower abdominal nodes along the bifurcation) and slightly
Thanks to everyone who has given me excellent advice regarding my husband’s pca recurrence. Today we met with an MSK uro oncologist for a second opinion. He completely agreed and supported the plan of radiating the high pelvic nodes (including the lower abdominal nodes along the bifurcation) and slightly
103532
in
Advanced Prostate Cancer
6 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
6 months ago
Do I need an Oncologist?
Originally had PSA test that came back 28+ and was referred to Urologist. I was not interested in Surgery so the Urologist referred me to a Radiation Oncologist. After the radiation treatments were over I went back to the Urologist to continue the Lupron treatments. My last visit with the Radiation Team
Originally had PSA test that came back 28+ and was referred to Urologist. I was not interested in Surgery so the Urologist referred me to a Radiation Oncologist. After the radiation treatments were over I went back to the Urologist to continue the Lupron treatments. My last visit with the Radiation Team
johnson2691
in
Advanced Prostate Cancer
6 months ago
Next step..
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
rfgh20
in
Advanced Prostate Cancer
7 months ago
Sudden increase of PSA...
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
My PSA numbers after 3 years of Lupron were steady at 0.2...then last month it went to 13....My oncologist has ordered tests but i am worried...Has anyone experienced a similar rise...?
Max24
in
Advanced Prostate Cancer
7 months ago
Update Castrate Resistant Metastatic Cancer
My metastatic prostate cancer was diagnosed castrate resistant on November 1 with PSA of 0.8, which was doubling in about two months while on Lupron. On November 10 I started Abiraterone + prednisone. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to
My metastatic prostate cancer was diagnosed castrate resistant on November 1 with PSA of 0.8, which was doubling in about two months while on Lupron. On November 10 I started Abiraterone + prednisone. By December 1 my PSA dropped to 0.44 in 22 days on Abiraterone. In the next 35 days it went down to
dac500
in
Advanced Prostate Cancer
7 months ago
New Developments in My Husband's PCA Journey
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
103532
in
Advanced Prostate Cancer
7 months ago
PSA suppression
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
pca2004
in
Fight Prostate Cancer
7 months ago
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